I had the appointment with the physiatrist today. He was a good guy, with a sense of humor and everything. We spent more than hour going over what to do with my ankle. According to the diagnosis he gave me for physical therapy, nearly every tendon in my poor ankle is inflamed. I’m screwed. I am happy though that he didn’t recommend a steroid injection. He wants to give physical therapy and a new medicine a try. The new medicine has some risks for someone like me. He warned me that it could make my incontinence worse. Fun. I am really hurting after all the poking and prodding. Hopefully, physical therapy will help me walk correctly. I do still have to wear an AFO (ankle foot orthotic), but he is recommending that I get a hinged one so that my ankle moves more freely. But right now, I am to keep my ankle as immobile as possible. He wanted me in a cast but I wouldn’t have it. If I go out, I will use the walking boot that I have. I don’t like it because it causes my hip to go out on me, but if it helps my ankle, I am for it. But there is no easy fix for my ankle. The doc hopes that PT can help stabilize it but with the nerve damage, there is no telling if that can happen. In the mean time, I am just going to go through the motions and see where they lead. If physical therapy proves to be too much for me, I am not going to go ahead with it and will say something. I am just glad the doc didn’t just offer me injections and that was it. But I still feel screwed that my ankle is so messed up when I really haven’t done anything major to cause it to be fucked up.
Right now I am feeling very sad. I am glad I know what is wrong with me (not like I didn’t) but going for physical therapy is going to be hard. I never know if I am going to get a gung ho therapist that thinks that if I don’t listen to him I won’t get better. I need someone that is willing to work with me and if I don’t have that, I am walking. Tough shit. I will find someone I can work with but it takes so much out of me, both mentally and physically. I know my ankle is messed up because I have been partly using it wrong, and partly because it is weak because of cauda equina syndrome. I don’t know what the hinged AFO is going to be like. I just hope it fits in my sneaker like my current one does.
I am in agony. Ankle pain just jumped to 12. I knew it would after all the poking and prodding today, plus walking the blocks to and from the various points I had to go to get to my appointment. I just put a NSAID gel on it to knock off some points. I hope it helps.
I really wish I had someone to talk to right now but there is no one. I really would love to talk to my psychiatrist but she is not available until Monday. I have emailed her all week and have not gotten a single response from her so I don’t think she is getting email where she is. She said she was at a conference. Least now that I know that I have a good doctor, I can cancel the appointment with the surgical fellow for the ankle that I had scheduled for Friday. With any luck, I might be able to see my psychiatrist. That would be wonderful. I miss her as it has been more than three weeks since our last appointment. I had to cancel our last appointment because of pain. She understood but it has been a nightmare trying to reschedule because she is so booked up. And we have been doing this via email so it is frustrating when I don’t get a response within a day or two. I do need her to refill one of my meds. And unfortunately, it is one where I need a hard copy, she can’t fax it.
My therapy schedule is also messed up next week because my therapist needs Tuesday off. Just when I thought things were going to be back to normal, they get fucked up again. I don’t talk with my therapist until Wednesday but I am going to see if we can do a check in on Monday. Hearing her voice some how calms me and lets me know that someone cares. I also need to deal with my father next week which isn’t going to be pleasant. I really wish I didn’t have to deal with him, my blood pressure would normalize for once, though it was good today at the doctor’s office. My pulse was still high. I can never get a resting pulse to be close to normal. It is always in the 80’s or higher.