midnightdemons7

Saturday Blog 26102024

I got up around 1030. I was tired but I had to get up as my friend with breast cancer was having chemo and I wanted to see her. I had my two cups of coffee and the cake I bought yesterday. Then I went upstairs and packed what I needed. I figured I would do some schoolwork while I was there. I just made it to the bus stop. I was really huffing and puffing when I got there. I was rushing but not that hard. Luckily there was a seat available and I rested while I waited.

I went to the pharmacy to give them my MassHealth card. I figured I would give them the card and then pick up my meds. Nope. They changed things while I was there. I must have been there for a fucking half hour. And the meds I wanted MassHealth to take care of was rejected. I had to pay for. Fuck. I got to the hospital and my friend’s chemo ended. We talked for a bit. She ended up feeling tired. I didn’t keep her as I knew she had a long drive home. I told her to text me when she got home. I gave her a bear hug. I love her so much.

I thought about going to Starbucks to do schoolwork but I didn’t want another coffee. I went home. As I walked, I did get a bit winded. I am going to call my pcp on Monday. Something is wrong. I don’t know what as I am not a respiratory expert but something is off.

I had some leftover lo mein for dinner. I am wicked tired. My sister sent me pics of her Halloween costume and I cracked the fuck up. She is a pregnant nun and my brother in law is a priest. Too fucking funny. I don’t know how I am going to get these notes into my notebook. Maybe tomorrow. I have the beginning of a headache forming. I don’t know if it will turn into a migraine or not. I just know I need my pillow soon. My day is done. I hate that I have become an old man who turns in early.

Tired of migraines

I slept most of the day yesterday. I woke up during the night with a few migraines. I remember taking a naratriptan but I don’t remember the time. I have one pill left to last me till the 30^th. So now I have to go without meds for them. I was really tired today. I misread the notice about the orange line. I thought the shuttles were today and they were for the weekend. I took the cab for nothing. Oh well. Saved me the trouble of walking from North Station. I keep getting out of breath for some reason. I don’t know why and it is for short distances. I don’t know if I should see my pcp or not. The last time I saw her she just said I was deconditioned. But I am going my normal routes. I don’t know. I’m just chucking it off as being overweight.

Grades came in. I got an 86 average right now. My exam grade wasn’t so good. I got a 66. I don’t understand why. I thought I did pretty good on it. I will have to make an appointment with the professor and talk about it. I am pretty upset with myself about it. I have some work to do today that is due. There is a bunch of homework on sensory stuff due in a few weeks. I missed class this whole week so I have no clue what is going on.

I have a headache right now and I hope it doesn’t turn into a migraine. I am really miserable. I met with my DMH worker today. It went really good. I like that I can talk to her about anything and everything. She is just so cool. I told her I really need a therapist as I am struggling. Most days I feel like I am wearing a mask to hide myself. But dealing with chronic pain every day or every other day has been so difficult. It’s so draining. Today was the first time in a week I took a shower. I am growing out my hair as it has been too many days since I last shaved. It is going to be difficult because I like the feel of being bald.

Was any of it true

I slept for a few hours and then was up around 130am and have been up since then. I couldn’t go back to sleep. I tried to settle down but couldn’t. I went to my appointment and was a little late. I left the house kind of late as I couldn’t get going. I took a cab to the Square as I wanted Starbucks. Luckily there was a fifteen minute grace period and I was just ten minutes late. The NP was good. We went over options and decided to increase the Topamax and if that didn’t decrease the amount of headaches/migraines by the time I saw my neuro in Nov, it might be worth switching the preventable injection to something else.

After the appointment, I went to social security. I found out they did change my gender marker for social security but they didn’t change it for my benefits. Now it is changed but it will be a few weeks for it to take effect. I texted my sister and she said that it is a pain in the ass and it is sometimes a two person process unfortunately. It’s done and now I can get my passport done and “real ID”. I got to go to the RMV site and make an appointment again. I don’t know if I have to have newer bills as it has been a few months since I printed it out. I have to look at it as I don’t even remember when I did.

I came home and rested for a little bit. I was tired and hungry. I waited more than a half hour for the bus home. I should have Ubered home or something. It was my fault as I forgot to change the direction of the bus route and it was the wrong time I was looking at. I checked the pharmacy before the bus came and it wasn’t ready. I still have like three to be filled tomorrow so I will pick up everything tomorrow. I priced what was ready and I nearly died. My blood pressure med and the Topamax alone is $50. Add the Latuda and it’s $75. I still have 5 other meds to get that are anywhere between 2 to thirteen bucks, which means this month’s meds are going to be over $100. I am going to use MassHealth because I can’t afford it. I just got to bring my card to the pharmacy tomorrow before class so that they can redo everything and the med that are to be filled so that after class I can pick them up. I don’t know how much it will cost me but I know it won’t be $100.

I finished off the pizza I bought yesterday. I took down two bags of recycle. I got at least another three in my room. I’ve been eating Reese’s pumpkins. But I am so full of pizza I can’t eat anymore. I plan on watching the Netflix documentary of the 2004 Red Sox. I am probably going to cry all through it. I cried during the trailer. I need to take a shower but I have run out of spoons again. Maybe tomorrow before I leave the house. I will try and get up early.