The 330 am blog
I’ve been up since 0130 because of pain. My right shoulder hurts and didn’t get better until I got up and started stretching it out a bit. I’ve been in a weird mood since waking up. I feel like I should be suicidal with the amount of pain that I am in but I am not. I don’t know if this is a good sign that I am getting better or what. I think the groups is helping me though I don’t know how because the skills I haven’t learned really. I know what they are but I haven’t worked on them. I have tried the DEAR MAN skill that my therapist wants me to but we had to go over it and then I dissociated afterwards so I don’t remember a thing about what we talked about. I didn’t even know if I had attended the session so I asked her if I did. She said I did. So weird.
I have one more week of groups and then I am done and I don’t think I will go back. It was too stressful. Plus my email kept deleting the emails that the clinicians were sending and I don’t know why that is. I got to make a rule so that it goes to my inbox and nowhere else.
My therapist wants me to send her screenshots of the handouts I am given during groups. I think she wants to make sure I am going and I find this irritating. I feel like she doesn’t trust me. The agreement was that I would text her and Then I would have a response to what I was texting. Thing is the past few days I haven’t had any responses to what I text her about. I feel like this is a one way street again.
I haven’t really participated in group that past few days. I listen but I have been getting bored. Even the group that I thought would be interesting was a flop. I didn’t like it at all. I have been going to the first three groups because those are the most important ones as they are mostly clinical. The first one is just a check in and the other two are either CBT or DBT groups. I find it interesting that they are using both therapies in the program. Both are useful, don’t get me wrong and they do work to their own extent.
I love the therapist that I have in the program. He is so energetic and empathetic and fun to work with. He is a really good guy and I love when he leads groups because he makes them fun instead of boring. He brings this energy that is positive and soothing. I love it. I am going to miss him when I leave. I feel like I should write him an email but I think I will wait as it is the weekend. I am surprised the hospital doesn’t recognize MLK day. It is this Monday and my therapist is off but the program is on. Very weird.
I have put back the weight I lost. I am disappointed in this because I was able to go below 200 and now I am a few pounds over. My struggle with weight is so finicky. It all depends on my appetite and if I eat regularly. Lately I have just been eating one meal a day because I usually full and don’t want to eat anything else for the day. This talking about eating is making me hungry. I think I am going to make scrambled eggs with cheese. I just hope we have the bread.
I dissociated last night and didn’t even realize it until later that night. I wasn’t there for therapy but I was. I showed up but I have no recollection of the meeting. It has been a long while since something like this has happened. I don’t know why. I have no idea if something triggered me into dissociation or what. I don’t feel like seeing her again. I feel like I am taking up too much of her time.
I am meeting with my neurosurgeon and psychiatrist today. Both are virtual thank god because my ankle is still flared up and I know I wouldn’t be able to walk from the train station to my neurosurgeon’s office. Thankfully my back is better today so I don’t have to tell him I fell unless he asks. I have no red flag symptoms so I think I am ok. I got to tell my psychiatrist about he shaking. I noticed my right leg will shake and supposedly my hands shake when I give my sister things. I don’t have a steady hand when I hold them out straight.
I went to three groups today and they were okay. I had my meeting with the therapist and we decided to go the rest of the two full weeks. Insurance will pay so I don’t have to worry about going four days this week. I just have to show up to three groups though so that is good. I am not sure what my schedule will be like next week as I will be going all five days. I have to ask about this.
I didn’t sleep well last night. I was up most of the night because of pain. My neck, ankle, and back were all conspiring against me. They still are. I am so miserable. I feel like I just want to die. I wanted to text my therapist this but I decided not to. I didn’t want to worry her. I just said that I was in a lot of pain and left it at that. I still can’t believe I dissociated last night. I remember bits and pieces of therapy but it feels like I wasn’t there.
My legs and knees are still hurting from the fall I took the other day. My knees are bruised as I landed on them. I am so sore. I have been taking Tylenol around the clock for the soreness. My neck muscles are killing me too. All from that one fall. My back seems to be okay and I don’t have any back problems. I do have a sore back but that is it. No other pain going down my legs or other radiating back problems.
The surgeon signed me off. I don’t need to see him again unless I have problems. I am glad. My psychiatrist agreed to increase the citalopram. He is only going up 10 mg and then see how I do. He wants to make sure the drug doesn’t mess with my heart rhythm. I’ve never had a problem with SSRIs so I don’t know what his deal is.
I woke up at 3
I woke up at 3am and am still up so I ordered breakfast. I am kind of hungry. My mother’s baby monitor alarm went off shortly after I woke up. She had to go to the bathroom and my sister was there to help her. I was supposed to watch her tonight but got a flare after an emotional response to my mother after she called me a “she”. I hate when I get emotional flares of pain. I hate that CRPS is so dependent on my state of mind sometimes.
I had the breakfast but couldn’t finish the 3rd burrito. It was cold and I was already getting full. I thought about making a cup of tea but didn’t want to stay in the kitchen. I wanted to try to get back to bed. So I am writing a blog to exhaust myself before trying to get back to sleep. I had woken up with back pain which is never a good sign. I took some Tylenol to try and settle it down. I really hope I didn’t so something to my back. I see the neurosurgeon next week and I wanted him to sign me off but I am not so sure he will now that my back has flared up. I have been doing more stuff lately so I can understand why my back is flared. The sneeze I had yesterday morning didn’t help. I felt like I pulled a muscle and that is what it feels like.
I have lots to do today. I need to clear off a space in my room so it is less dusty. I also need to change my bedding. My new foam topper should be arriving today. I don’t know when but I hope it is in the morning and not the evening. My hope is to put it on my bed and then watch my mother while it settles on my bed. I have to have it like that for at least 24 hours. So I can’t be on my bed at that time. I am going to need a chair to sit down because I can’t stand while doing stuff for long periods. That will definitely flare me up more. I really need to get stuff done in my room. My sisters want to replace the rug with a wood laminate. I don’t mind. I hate having a rug anyways. I just hope my bed doesn’t roll on the floor. I got wheels on my bed that have sunk into the rug. One of them have broken due to the weight of me and the bed. But they are cheap plastic wheels so I am not surprised. I hope I can remove them and just have a stopper instead.
The other day I had a phone call with the reporter that is doing a book on suicide. He is interviewing people from the study I was involved in last year. We have become good friends. He asked me how the partial hospital was going with it being virtual. I told him how it was and how distant you can be while being online. You really don’t make friends with the group members because there is no real interaction.
I had ordered my meds by mail and I receive one of the two packages. I should be getting the other one sometime today. I hope so because I am running low on one of my meds. I am surprised it has taken this long. I usually get them right away after I get the email that said they have been shipped.
I am constipated again so I just took some Miralax. Surprisingly, I haven’t had the soft stool that I usually get while taking it, which is good because that means no accidents. I have lost the control of loose soft stool. I can’t keep it in anymore. Hard stuff I can but if it is soft and mushy, forget about it. I think I need to take Miralax regularly for a few days so that I can go every day. I feel backed up when I don’t go for a day or so. I feel like I should take 1000 mg of magnesium at night just so I can go. I hate being constipated. It is the worst feeling in the world.
One thing I have noticed since going to partial is that my suicidal thoughts have gone away. I am not so suicidal anymore. But I still wish that I was dead. I haven’t actively planned anything in a while. I think that is good. I will bring it up in therapy on Monday. I haven’t heard from partial about extending my time. I hope they do. I am so anxious about this. I hope they approve it and will be sad if they don’t.