Saturday Blog Post 12062021
I’ve been up since 0630. I woke up and felt energized but in a lethargic way as my brain was in a fog. A half hour later, my mother let the tea kettle whistle for more than 10 minutes and I got pissed off so went downstairs to shut it off. I was near the bottom of the stairs when she turned it off. I was so mad. I told her she woke me up with the fucking kettle and she said good. NO! Not good!! Who the hell wants to be up before 8am on a damn Saturday?? I started making my coffee and then decided I was going to get her a deaf kettle so that it lights up rather than whistles. I swear sometimes she doesn’t hear the thing.
I had asked my nephew if he would go to the pharmacy for me but he never responded. My sister had to go to get my niece snacks so she gave me a ride. Thank god because my legs are still killing me and I am in a lot of pain with my ankle. It has been raining off and on today so I think that is why I am hurting. I am glad there wasn’t a line at the pharmacy so I didn’t have to wait too long to get my meds and get out. I found out you can use food stamps at the pharmacy so that is cool. Now whenever I need creamer or ice cream, I can pay for it using my card.
The new update now has weather status on my taskbar. That is pretty cool. I want to clear my bed off today but I don’t know if I will be able to do it. I just woke up from a nap and feel oozy. I thought I was going to fall backward while I was putting on my PJs when I came home from the pharmacy. It was not a good feeling. I still feel really tired and I don’t know why as I slept pretty good last night. For the first time in weeks I didn’t wake up in the middle of the night. I think it is probably because I went to bed close to 2300. Pain was keeping me up.
I asked my pcp for a referral to a dermatologist because a couple of birth marks I have has changed. One turned black and the other has become rough. The rough one is on my left arm and the other is on my left thigh. I have a particular doctor I want to see as she was my father’s doctor. I really liked her so would like to see her.
My right calf is still painful from what the physical therapist did on Wed. It is getting better though. The swelling has gone down, which is good. I was getting worried that I would have to go to the emergency room for a possible blood clot. If it is still bothering me when I see my PCP on Tues, I will let him know and maybe he can just order an ultrasound just to be on the safe side of things. I got a burger I took out the other day that I plan on making for my lunch/dinner tonight. I also want to make some white rice as I have been craving it for a while now. I wanted to have it last night but I guess my mother didn’t want to make it. They had the jasmine rice and I wanted to buy it but my mother doesn’t like that kind so I didn’t.
A tiring and frustrating day
My mother’s visiting nurse came and she has been after my mother to be more aware of the foods she eats to help control her sugar better. So she sent me a couple of things via email that might be helpful. As she was explaining this to my mother, she misgendered me. Then my mother did the same. I went upstairs. I wanted to nap but couldn’t.
I had to go grocery shopping and spent a hundred dollars on food, mostly vegetables and fruit. I thought I could carry everything home by bus but as I was walking to the bus stop, I realized this wasn’t going to happen. I called a cab when I got to the stop. I waited a good twenty minutes for it. I just rested. Thankfully as I came home my niece saw me and helped carry two bags up the stairs. I carried the Gatorade. I thought I was fine with minimal damage but soon as I settled on my bed my ankle flared up. So much for cooking dinner tonight.
I had requested my BT meds yesterday afternoon through the patient web thing and it never went through. I am glad I called because I am running low on my meds. I don’t know if it will go through tonight or not. It will suck if I have to wait till Mon.
My whole body is sore from carrying the groceries. I am wicked tired and want to listen to the game tonight but I don’t know if I will be awake. I just want to nap. I didn’t have two cups of coffee today. I just had the one. Only thing I have eaten today was a yogurt when I came home from shopping. If my mother doesn’t cook dinner, I will just order out again. Kung Pao chicken has been my go to these days but the spicy stuff has been bothering my stomach. I don’t care though because it tastes so damn good.
My mother made dinner but it wasn’t what I was looking forward to. She thought the cucumber I bought was zucchini so made it like zucchini and it didn’t taste right. It was really watery. Just a mess. So there went my cucumber salad. I wish I could have cooked the way I wanted to. Will have to be some other night.
When morning pain is too much
Early this morning I got a wicked bad cramp in my CRPS foot. I couldn’t do nothing but bear it. I couldn’t move it or anything. I knew it wasn’t because I was dehydrated because I was drinking fluids when I was up at 1 am. I drank half a bottle of Gatorade. My foot is still severely sore so I had to take a couple of BT meds. I wanted to go grocery shopping today but that isn’t happening.
I ended up going to PT last night. She worked on my calf muscle which she said had a A+ knot in it. I am to roll a tennis ball underneath it to try and work it out. She said I might need dry needling to get it out but I would be limping out of the office as it is painful. She was just working on it with her hands and it was fucking hurting so bad so I know the needling would be worse. She told me that I could use a book on the bed and roll it. That is an awesome idea because I have a foam topper and the ball would just sink in and not move. My calf is still sore from the massaging she did. I walked up the hill to my house and it hurt so bad last night coming home. My breathing is going to take time to get better, she said. It is the last thing to get better. But I should continue to walk up the hill. I won’t be walking today because of my foot.
I made an appointment with my therapist for the end of the month. I figured if I have an appointment, I wouldn’t stray too much away from therapy. I see my pcp next week, in person. I am going to see if he can order fasting labs for me as it has been a while since I have had them done. I just sent them a message to find out if I should contact uro because I am still experiencing pain in my urethra despite not cathing. I don’t want to take the pyridium tabs because they cause me to retain more as I don’t get the urge to go. Today is the last day I am on antibiotics for this UTI. I haven’t cathed the whole time I was on because the urge was there for me to go. I also haven’t been on a schedule because I seem to be able to go every 3-4 hours on my own.
I am listening to Taylor Swift’s Speak Now album. I love this album so much. I wanted to listen to Fearless and I might later. Or maybe I will mix the albums and create a playlist. I don’t know. I just need to hear good music that puts me in a good mood without causing me to think about things.
I am getting tired. I was up in the middle of the night again and didn’t go back to sleep until around 4am. I woke up around 0730 to pee and I have been up since. I might need a second cup of coffee soon. I want to work on my 2nd memoir today. If I can write at least 300 words that would be good. I don’t really know where this book is going. I have written only around 500 words so far. It has been a slow start because it is so personal.
My legs are killing me so I really think despite taking BT meds, it isn’t enough for me to go grocery shopping by bus. It will be too much for me and I don’t want to hurt more than I already do. Today would be a perfect day for it because the weather is perfect. It has cooled off considerably and is a nice sunny day. The wind makes it cool but other than that it is a really beautiful day.
Another hot pre-summer day
Another hot day in Boston. I cannot stand it. I am in a grumpy mood. I don’t know if I am going to go to PT tonight. I should go because I haven’t left the house all week and I need to get my prescription. I was able to shower but now am exhausted. My leg is killing me from where I injected the T. I seem to have flared up my whole leg. Doesn’t bode well for walking to my appointment and doing physical therapy. I will see how I am around 2pm and if I am in still in pain, I will cancel.
I woke up in the middle of the night because of pain. My shoulder flared up on me and it took a while to settle down. I sent my therapist a message asking if she was going to leave any time soon. The way she was saying she didn’t have time for me made me wonder if she was going somewhere. She sent me this long message back about how her time is split between two clinics and also reiterated that I would benefit from a group in addition to therapy. I wrote back that I don’t think groups fit for me and right now with my upcoming surgery I don’t think entering a group would be ideal.
Just had my second coffee of the day. I found that if I have a second cup I can usually ward off a daytime nap. It usually wears off around 1730 though and I get super tired. My sister is going to give me a ride to my appointment so I don’t have to take the T first leg of the trip. I really don’t like late appointments but it was the only time she could fit me in. Next week I am not seeing her and if I skip today that will be three weeks I haven’t seen her.
I just changed my shirt and put deodorant on, something I always forget to do when I go out. I am so used to not going out that I forget when I do go out to wear it. I know I will be needing another shower when I come home from PT. I should cancel because I am in so much pain but I really need to go. I messaged the PT to tell her to go easy on me. She agreed. She is a good therapist. I call her the poking therapist because she always seems to poke to get to the spot that is knotted. She did a good job on my calf. It doesn’t seem so tight anymore. It was twitching after I took a shower. I love taking showers but also hate them because they make me exhausted. I usually take just one a week but in this heat I need to take more. It is supposed to cool off tomorrow. I want to go grocery shopping. I want to make lemon chicken. My sister made it a few weeks ago and I loved it. Been craving it since then with some white rice. I also plan on making zucchini like my niece made. It was really good.