pissed kind of day

Pissed kind of day

I woke up around 0500 in pain. I took my breakthrough pain because it was too early for my regular one. I stayed up for a little bit and then went back to sleep for about an hour and half when my mother woke me up to put on her compression socks. I was not happy. I put them on and then decided to go back to sleep. I set the alarm so I could make breakfast before leaving for PT. I wanted to make pancakes. Alarm went off and I didn’t want to get up. The alarm kept announcing the time. I was lying on my right side and didn’t want to roll over to shut it up. Eventually I did because it was annoying me. I laid on my back and after a bit changed to my right side so it wouldn’t hurt. My ankle was being a brat.

I went downstairs and saw that the bag that I had left on the table by the other set of stairs was gone and there was mail there. I asked my mother where she put the bag. I must have said it three times and she didn’t understand what I was saying so I starting yelling. She yelled back when she heard what I was saying. I got the bag and did all I could from slamming the door to the porch where she put it. I then got an umbrella because my back was telling me it was going to rain.

I went to the kitchen and made breakfast and coffee as I needed it very badly. I just hoped it wouldn’t make me sleepy. The egg looked really good so I took a pic and posted it. I usually don’t post my breakfast, just other stuff that I make like desserts or a kind of meal that I got a recipe for. I ate it while my coffee was brewing. I tried the new creamer. The fucking protective foil wouldn’t come off. I was getting so annoyed. Finally it gave way and I didn’t spill the container in the process. It wasn’t as sweet as the other creamer I used but it was okay. It did its job.

I grabbed the lid for the mug and then went upstairs to get dressed. My bitchy mother wanted me to mail something and go to the bank for her. Okay. I left and as I was walking to the bus stop, my lower back on the left side acted up. I had to take a break a few times to settle it down. I stopped where there was shade to put the Bluetooth on my phone and listen to my headphones. Then continued to the bus stop. The bus came and I rode to PT.

I had emailed my PT about how the home exercises were going. She said we’ll change things up a bit. She gave me three new exercises. The posture exercise was out and the knees bent clamshell was, too. She went over some weighted exercises to do with my upper arms and back to help my core. We had time after it so she decided to massage my hip muscle. We were talking and I asked her if my current problem was due to the nerve injury, cauda equina syndrome. She said it was most likely due to over compensating for the weakness after rehabbing because I walk fairly well for someone with having CES twice. She said she is very surprised I am able to walk as much as I do given my conditions. I said thanks. A few people in my CRPS support group have also said so. I guess between the high pain tolerance and not being able to sit still, I push myself to do things. I did that for three years before I couldn’t do it anymore. I knew once I was in the AFO at work I couldn’t work two jobs anymore. Even managing one job was hard. I guess if I could have cut my hours to maybe four a day it would have kept me working but I couldn’t financially do that. My health insurance would have been ridiculous and my mother would have had a fit for not providing enough for the mortgage.

I was feeling tired after PT. The bus was always a guessing game because I had no idea what time which bus was going to come. And there were no benches to sit so I had to stand while waiting. I think I waited 15-20 minutes for a bus to a station. When I got there, the bus was there for the one home. It kind of freaked me out because there was a carriage on blocking the passage on the bus and then people would stand by the entrance blocking anyone that came on. I just freak out when that happens. I don’t know why it gives me so much anxiety but it does.

I got home and then went to the bank before going home. I have done this for my mother a million times. The customer service person asked if I was my mother and I said no. She then went to the back to ask someone a question. She came back and said they would do this this time but next time my mother needs to do it. I asked why as I have done this before without a problem and she said it was because of the withdrawal. I said there was no money exchanged, the money was being transferred from one account to another. She said that was the policy and I got mad because my mother had done this before without problems. I guess it just comes down to who does the transaction.

I walked home and my ankle started acting up. I walked in and I heard my mother talking. Then I heard my aunt and I wish I wasn’t home. I didn’t want anything to do with my lunatic aunt. But my cousin was over with her 4 month old daughter so it wasn’t too bad, until I asked my aunt a question and she gave me the entire history of how my mother entered the country as she was in Italy at the time. UGH. She can never answer a question with a short fricken answer. The baby was even getting fussy. When she finished, I asked my mother what she was doing for supper. She said hot dogs and potatoes. I was like okay. I was hungry but could wait.

I went up to my room to cool down and rest my ankle. It was really angry. I took a breakthrough pill. I was playing on my phone when hunger got the better of me. My sister texted me to check on my niece so I went downstairs. My niece was okay. Then my hip started hurting me where the PT had massaged me. I emailed her to see what to do about it. I made dinner for my mother and I. It was hard getting around the kitchen with my hip hurting.

After dinner I went back up to my room and I swear I feel so exhausted. Like all the energy has been sapped out of me. I don’t think I will be listening to the Sox tonight. My leg is hurting so bad and I feel so depressed about it. I need to go out tomorrow to see my therapist. I hope this pain settles down. I might not do the home exercises tomorrow if my leg is hurting me. I hope a good night’s sleep settles this thing down. I am going to take my night meds early and call it a night.

hot and annoyed

Hot and annoyed

Temps were close to 90 today. I was annoyed most of the day. I called my mother to ask her if she needed anything while I was out. She said just look at the price of the eggs. Okay. I go downstairs and she wants me to go to the bank. If she said so when I called her, I would be able to go. Now it was too close to the bus schedule and it isn’t going to happen. I asked when the bank closes and she said 4. Sorry no can do. I won’t be home till after 4.

I went to Starbucks and had a sandwich and espresso. I had five shots as I didn’t sleep well last night due to pain. Not really physical pain, but nerve pain, which is a different beast. I wrote while at Starbucks. Then I left for therapy. The train car I was on did not have air on. It was stuffy for the few stops I went. I reported it when I got off the train. I got to my therapy appt a half hour early. I just played with my phone until my therapist called me in.

I told him I would like to try twice a week. He said we can do it this week but then the next time won’t be until middle of July. He is going away after the fourth and won’t return until the third week, I think. I am okay with that. Hopefully but then my meds will be adjusted and PT will helped somewhat so I can make twice a week. We then talked about random stuff.

I left and walked to the station. Temp was higher but the humidity wasn’t bad as I thought it was. The train was delayed and I missed my connecting bus home. I had to go to another bus stop. I was careful on the walk home, avoiding that stupid ramp in the sidewalk that caused my ankle to flare Friday. By the time I walked in the door, I was sweating. The house was hotter than outside. I was kind of grumpy as I was hungry. My mother said what she was making and I told her I wasn’t hungry. She asked what did I say so I yelled I wasn’t hungry. Then she yelled back saying she wasn’t making it now (even though it was after 4PM, her dinner time). I got so annoyed. I just went upstairs and turned on the AC to cool down. My T-shirt was soaked. I used a towel to dry off. I didn’t feel like a shower as my ankle was acting up slightly.

I got a package and it was from China. I thought it was the ice genie I bought. It wasn’t. It was the Pride bracelet. I thought it was cool. I tried opening the clasp and it wouldn’t open. My mother tried and we used different things but it wouldn’t budge. I have no idea how to open it. I took some pics and sent it to a crafty friend. I also emailed the place I bought it from to see what the trick was. Hope my $25 didn’t go to waste or I want a refund.

I checked what the new schedule would be for the bus I take to PT. I will either be 45 minutes early or 10 minutes or more late. Great. I am looking into Uber. I don’t know how I am going to swing it as I don’t have extra cash during this month because of my bill pay mistake. I owe my mother money that she let me borrow to fix my account. I am still pissed. I never called them to argue because I hate conflict.

I took my night meds without problems. Weird because the past few nights I have had trouble swallowing them. I switched Powerades so maybe that was why. Fricken thunderstorm has taken my back out. Lovely. I can’t take my pain meds for another hour. I hate this shit. I really do. Hope I don’t have pain like I did last night. Sox are off so I hope to be asleep before midnight. Not sure what I will be doing after I finish this blog. Maybe read the new book I started yesterday. Or maybe try and read some Neverwhere. Neil Gaiman has another book out called how to talk to girl at parties. I thought it was a play or something and it is a book. I never know with him. I might get it, if it isn’t a graphic novel.

It’s 72 degrees and I need a heating pad

It’s 72 degrees and I need a heating pad

I had decided to do my PT exercises today. I printed them out after I spent nearly a half hour trying to get the battery contrast settings to “normal”. When I somewhat “fixed” it, I then rebooted and hit F2 quickly to check what the settings were in the bios. Sure enough, they were at 0. Fucking fuck. I put it to 100%, restarted, and then changed the settings I played with. Once that was done, I put the laptop aside. I struggled with the stupid body pillow, which at this point, I want to throw out the goddamn window. But it is helping with sleeping on my side and aligning my hips while I sleep.

I then did the exercises. I was only able to do about three or four outward motion with my left. I knew I was lucky to get that much. I had no problems doing the right. Then I did the others. I tried the one standing and adjusting my posture. My back DID NOT LIKE IT! I am still hurting. My spine is aching so bad. I took some advil and I am sure the constipation I am feeling isn’t helping. I woke up late so didn’t take Miralax. I just been taking fiber pills. Taking three things for the movement of bowels is hard. It’s worse when neither works. I went a little bit last night. It was better than nothing. I was hoping to get on top of it today but sleep interfered. I woke up at 8 to take my morning meds. I should have stayed up but didn’t and I regret that decision.

So now I have a heating pad on my back because it is sore with the AC on. Hope it works other than making me hot. I finished Dostoevsky’s Brother’s Karamazov today. Figures the last chapter had nothing to do with the plot!! I am just grateful it wasn’t long. I wrote a review on Goodreads. I plan on starting Dr. Stacey Freedenthal’s “Helping the Suicidal Person”. It is supposed to be good. Maybe it will help me be a little more hopeful and get me out of this funk. I am almost 90% sure I will end my life soon, though I am playing with the dates, again.

Tomorrow will be really hot. Twenty degrees hotter than today, which also does not help my back pain. It is also going to be yucky humid. I heard one school system has closed due to the extreme heat. That isn’t good.

Sox won today. I went to update the standings in my Twitter profile. I checked the MLB standings as I couldn’t remember if I did it or not yesterday. Seems I missed the whole Seattle series. OOPS. I corrected it. I made mention of wins or losses but never changed my profile to reflect it. Oh well. It is correct now.

Today my sister said she wasn’t having a BBQ but just throwing things on the grill. HAHAHA I got my brother in law a gift for Father’s day. He liked it. I had bought it for myself but it wasn’t what I expected. I am still looking for a keychain nail clipper with a file. I had one on my last set of keys but I lost them. I still haven’t been able to find them. I know I had them because I walked in the house. What I did after that point is a mystery. I was in a lot of pain and just want to rest so things were a blur. I have been careful where I set my keys down now. I have to remember to take them as they are in the kitchen. I don’t want to leave the house without them.

This morning, my cousin’s mother in law sent me a couple of pictures of my father set in a Jesus frame. My heart shattered in a million pieces. She sent them through FB messenger. For some reason, messenger downloads the images to my phone and I quickly deleted them. I didn’t want to see them. It hurt too much. I know she didn’t mean me no harm but it was unexpected. Sometimes as I flick through my phone and see the folder that I have of my father just gets me in ways. Even in death he is torturing me.

Feeling shitty and can’t sleep

It is almost 2330. I had a burger later and then got sleepy. I’ve been trying to sleep for an hour but my damn foot keeps acting up. Bottom of my foot has this pressure pain. I am getting zaps in the side of my foot near my toes. My metatarsals are being ripped apart.

Then my brain is working none stop. For some reason, the source (evil demon from Charmed) keeps popping in my head. I will be talking to someone and then their eyes change to black and they want to envelope me. I don’t get it. I don’t usually have nightmares, not since I was a kid.

Pain is driving up my suicidality. I have been thinking about canceling my therapy appt for Monday. But I want to see him. I got 3 appts this week. I was going to have 4 but I am going to cancel my eye appt. I’ll just reschedule it. I have been trying to do the exercises my PT gave me but they are different than the ones we did when I saw her. I can do the one for my right foot but my ankle is too angry to try to do. I have no idea if having my knees up and doing one exercise is going to upset my foot/ankle. It was alright with the AFO on but I don’t wear it around the house. The. There is one exercise that sounds more like part of my notes than an exercise. Have no idea what that is about.

I think I am going to go back to regular pillows and not use the body pillow I have. It is annoying me. I also need to change my sheets but I have accumulated a bunch of shit on my bed that will take a few days to get off. I started clearing off some stuff. I have a gazillion pharmacy papers from my meds. I tried using the privacy stamp on it but it didn’t work. So it is back to the “to be shredded” pile, which is overflowing at this point.

Last night I was in a suicidal mood and sent my psychiatrist an email about things running through my head. I was expecting a phone call today but nothing and no reply. I forgot she was on vacation last week so that was why she didn’t read the article and blog I sent her. I really wanted her to read the article. But because she didn’t, I couldn’t talk to her about what was on my mind. She said she will get to it. I hope so.

Foot is hurting really bad. I took the breakthrough med a little while ago. I think a placebo would have worked better. I also took some more fiber pills. I went a little bit today but that was all. I am expecting a colon blow. But it just feels stuck. I feel really uncomfortable. Usually one will work and I am taking 3 different things. I don’t think the senna works for me anymore. I hope i go tomorrow.

One Drink Ago

One Drink Ago

This song is by Terri Clark and Dallas Smith. Terri is my favorite female country artist. She is fricken gorgeous and I have loved her since the early 90s. This song hasn’t made it to Boston radio yet. I don’t know if it will. I hate that some songs are released but don’t make their way up here.

I had a hard time sleeping due to pain and then being over tired. I think I tried to sleep some time after 1. It wasn’t a fitful sleep as my med alarm kept going off for my morning meds. Then I was able to sleep most of the day. I woke up around 12ish, made an egg and coffee. The coffee made me sleepy so I went back to sleep for a few hours. I have been taking fiber pills since last night, hoping to go but nothing is working. I took some more Miralax and fiber when I had something to eat for dinner. I had some more of my zucchini pie. I was going to have a burger but the pie is going to go bad if it is not eaten. I think I might have to throw it away tomorrow. I have been the only one eating it. My mother said it gave her diarrhea and my sister didn’t like the taste. Whatever.

Sox were part of the reason I was up. They took the lead and then lost it in the 8th inning. The bullpen came apart. Game is earlier tonight, 2000. Tomorrow it will be at 1600. Tomorrow is also father’s day. I have been thinking about my father most of the month. Still can’t believe he is gone some days. Today I was wondering what he was doing and almost said it out loud to my mother. Then I said to her, you know what I just thought, and told her. I asked her if she thinks of her mother the same way. She said she doesn’t but she does miss her. My grandmother died in 2006. It was a blessing as she was in chronic pain due to cancer and dementia. She wasn’t the same person anymore. I think it was the only time I cried because my mother had been crying when she passed. I didn’t see her. I didn’t want to. She died at home.

I love Carrie Underwood. Her voice is amazing. I added Something in the Water to my playlist. Her vocals are just mind blowing. So powerful. Her latest song Cry Pretty is another favorite of mine. It made me cry the first few times I heard it because it was talking to me. The lyrics was speaking to me. It is a very powerful song. I think I posted it a few weeks ago. If not, I will post it again. Can’t have too much Carrie.