First bad news of the year
I’ve had bladder pain all weekend and my uro is out of the office due to illness so she wanted me to see my pcp. My pcp wasn’t in the office so I went to medical walk in. The doc there was concerned I might have appendicitis so he had me down for a CT scan. The scan indicated everything was normal except my spine which had advance discogenic degenerative changes from L2-L5. Not the news I wanted to hear. I am already freaking out over my upcoming neurosurgeon appointment and this just added to my nerves, no pun intended. I am going to ask my PCP to tell him what has been going on and to see what he (neurosurg) wants to do. Maybe he wants to see me sooner than the 5th. I don’t know. My psych said that if I have surgery, she will visit me. Least that is one way of seeing her again. Though I rather it be her new office not my hospital room!
I’ve been in a mood since I came home. I want to self-destruct. I sent my psych a message that I am keeping things as best I can even though I want to plan right now (I didn’t tell her that). If I had some lethal method I would probably act on it. I am keeping focus on things other than suicide and that is very hard when you just want to end your life because things suck so bad right now. I did some Amazon shopping. I probably will do some more tomorrow as there are a few things that I need that I didn’t get. I just don’t want three charges all on the same card.
Voices have no calmed down despite me increasing the dose back to 4.5 mg of Invega. I might have to wait a bit. I canceled therapy for tomorrow because I just can’t go back to the hosp. I am so frigging tired and the stupid doctor hit my right heel to see if it caused abdominal pain that it flared up the sensitivity and my Achilles heel as well. I am in pain all over the place. Plus my ankle is in HUGE amount of pain. It locked up on me again when I came home soon after I took the AFO brace off. I haven’t eaten anything substantial but I gained five pounds since the last time I was weighed. I don’t know when that was but I was five pounds less. I am upset over gaining the weight. I was doing well to stay below 200 but I couldn’t stay off. I just had ensure when I came home and Gatorade. I am not hungry, even though I should be.
On the way home, I found out the GOP Senators were traitors like they have been the past two years and Derek Jeter got into the HOF. I am happy about Derek. He has my deepest respect because even though he was a Yankee, he played with heart and class. Unlike some people that will never make it into the HOF.
I am feeling really out of sorts. The voices are continuing to tell me I am meaningless and worthless. This has been going on for a week and I am about to snap. I don’t know what I will do but it won’t be good. I am trying not to give into my impish ways. I just feel so awful about my back and there is nothing I can do except wait until I see the neurosurg. I also got to wait two days for the urine culture to come back to see if I have a urine infection. That is a lot of waiting. The doc gave me the choice of going on antibiotics now but I didn’t want to be treated for the wrong bug so I decided to wait, which is the right thing to do. Just sucks. The urinalysis wasn’t positive at all so I don’t think there is any bugs causing the bladder pain. Nothing showed up on the CT scan so I am starting to think this is a CRPS thing. If I am right, this is going to be a problem when I have top surgery. I got to read more into Type1 CRPS. Type 2 is supposed to be the “bad” one. But I don’t have that so it shouldn’t be spreading to my bladder. UGH. I got to play medical detective because there is no one else to play with the clues. Though the pain is bad but not as bad as my ankle pain. Not choosing pains just saying. I hope I can sleep tonight but tomorrow is shot and pay day so I doubt it. It’s already 11pm. I will probably give the T at midnight. Sleep for a few hours to wake up to pay some bills then sleep some more. I want to get a haircut tomorrow. I kind of fucked it up as I went wild but I don’t think I did a too bad of a job that my barber can’t fix.
My sister is sick and when my other sister told me I laughed out loud because she opened up all the fucking windows in the house when it was like 18 degrees out. Fuck. Serves her right. Dumbass she is. I have my window open and I only got sick because my mother doesn’t wash her hands or cover her mouth when she coughs, and she has had a bad cough. Her foot doctor sent her to her primary as she had a bad coughing fit. UGH. They have her on antibiotics, which is good. If they have her on something else, I doubt she will take it. She will pay for it but she won’t use it. I don’t get that at all. Meanwhile I got to remember to budget my money this month so I can get my meds. I forgot last month. My bad. January is tough. I don’t even know what my monthly insurance is going to be yet. I haven’t gotten the invoice yet. I am thinking it is going to be at least $232, might be more but I will stick with that for now.
1st cold in a while
I got my first sickness of the year. I was starting to come down with something over the weekend and now it is full course. I am coughing and got a runny nose. I am all congested but no fever. I ran out of Nyquil so I am just taking vitamin D. I feel a little better today even though I am stuffy.
My urologist got back to me today. She is sick but wants me to drop a specimen to the lab tomorrow and have my pcp follow up with it. So I sent him a message about that. I don’t know if it will be tomorrow though as Wed I need to see my therapist.
I still have the assignment the therapist gave me last week that I haven’t done yet. It is hard because I have to think what three need mean to me and how to achieve them. The first one I picked was achievement, to increase self-regard by the successful exercise of talent. I often dismiss my achievements like they are nothing. For example, the PT I saw was amazed I was able to get to her appointments from the next two towns over by public transportation. To walk to the bus/train stop and then go to and from. She gave me credit for that and I never thought of it that way. I would sometimes I have a pain flare after, but that was something I did without it being a challenge. Writing lately has been a challenge. I would love to write at least five days a week but I know there are days where I am not feeling up to it physically or mentally. It is hard to write when you feel like complete crap or your ankle is screaming on the top of its lungs.
The second thing is play. I would love to have a chance to go to the chess club more but sleep is more important to me. I have to plan the day because I have to take the bus on a Sunday. Then walk to the plaza. Sometimes they go to the coffee shop if the weather is not great and that means I have to have money for coffee. I usually don’t carry cash and I am often broke by the time I get paid. Just trying to have an extra $20 for a haircut has been hard. That also makes me feel good, to have a haircut. I wish I could go more than once a month but budgeting it now with having to budget my meds hasn’t been possible.
The third thing is defendence, to defend against assault, criticism, or blame. I need to stand up for myself more in my house. I let my sisters and mother boss me around all the time. They don’t think that I am disabled and that I do things on purpose, like leaving the toilet seat up. That is a new challenge for me with this whole catheter business. They don’t understand that I am not aware of things that they are. Yes it sucks but give me a little credit or just tell me so that I don’t do it again. Don’t get mad at me for something I don’t know I am doing. I am not doing it on purpose. I get so irritated with my sister about this stuff. She has no respect for other people. My mother has no privacy for my bathroom uses. It is really frustrating. I don’t know how to deal with this because both are so volatile.
This saying “just stay” has been kicking around the suicide prevention circles I have run across. Some days it helps me to focus on staying here. Other days, I want to scream why, I don’t deserve to be here. Today I am feeling a little hopeful because my psych sent me a message and it really made me feel like someone really cares about me. I am taking that with me so that I can do this Herculean project I want to do.
Last year when I was thinking of something to do about writing my book, I thought of writing a baseball history book about what teams were called before what they are currently. Like the Red Sox had many names before being called the Sox. If you look at the World Series, they are listed as Americans or red stockings. The Yankees were called the Orioles before they were the Yankees. I find this so interesting and seeing as there isn’t a book about it, I want to write it. One of my favorite authors, SE Hinton, always says “write what you want to read.” I always wanted to learn about the history of baseball teams so I want to write it. I am not sure I will have to go to Cooperstown to get the information I need but if I do have to go there, I will. I am not sure how I will finance it but I am sure there is a will there is a way.
Yesterday, I had therapy and it was a disaster. We talked about frustrated needs that Shneidman says contributes to suicide. She didn’t understand what these needs meant to me to understand why I am suicidal. She wants me to write them and then write the things that get in the way. That was going on and then the voices got unbearable. I asked her if she felt I was meaningless. At first she was like why am I thinking that. When I told her the voices were saying this and I needed her to tell me they were wrong she then said that I was not meaningless so that reality testing happened. Then she asked more about the voices and I said that I had lowered my dose. She flipped out in a very concerned way. She wants me to talk to my psychopharm about doing something to help the voices go down as this is a serious matter. I did send a message to the psychopharm but have not heard back from her. I also sent a message to my uro and she hasn’t responded either. I am going to have to drop a urine sample next week when I am back at the hospital.
I am coming down with a cold. The virus has been hanging around the house as my mother and sisters have been sick. I am treating it with rest, fluids, and vitamin D. I find that vitamin D helps respiratory and cold infections better than anything. There was a study I was involved in and D actually helps the cytokines fight infection. But the trick is you have to be out of deficiency in order for the D to work. Find out if you are deficient, get stable on D and you will be able to fight getting the cold better. I find that if I take 10,000 IUs for a few days, my cold symptoms go away faster. So instead of being sick 10-14 days, I am sick maybe 4-5 days. This works for me. It might not work for someone else but I am just throwing it out there. The cytokine is Hcap18. There have been a lot of studies with this and asthma. A Google search will help you understand this if you don’t believe me.
I made a cup of English tea. It is by Twining called Everyday Tea. I got it from an English friend I know on Twitter. The tea is really English as it is from the UK. I love it as it is a full bodied tea and is strong. It is really good especially on cold New England days like today. It is 14 (-10C) degrees out. Hope it helps this cold that I have. It is cold in my room because I have the window open. It is 64 (17C) degrees in my room. I love the cold and this temp suits me. I just put on a sweatshirt on top of my long sleeve shirt. My ankle is really hurting today. I have had to take gabapentin and extra breakthrough meds to try and quiet it. It feels like I am being stabbed and the pain is right through the joint making me feel suicidal. I want to shave and shower but it doesn’t look like that is going to happen today.
So tired of the shore
I had a meeting with my psychopharm today. We went over the psychache psychometrics. She assessed my suicidality. She didn’t like that I am hearing commanding voices and my suicidal level was high. I told her this was my norm. She said if that changes to get in touch with her immediately. I told her I would.
I sent a message to my therapist last night and haven’t gotten a response. The voices are telling me that she thinks I am meaningless and don’t trust her. I should end seeing her. I am still feeling meaningless. The voices are really loud today and I am having trouble concentrating. Tomorrow I see the therapist and I am supposed to bring Shneidman’s needs with me. I thought of just bringing a print out of my blog on the subject but then I thought bringing the book might be better as it lists a better definition of the words than I could interpret.
Since before my appointment with my psychopharm, my ankle had started to act up. I took a pain med before leaving the house. Now my pain is beyond tolerable. I can’t take my normal stuff because I have an early appointment with the therapist tomorrow. I have to leave by 1030. I just hope that I remember to bring Shneidman’s book with me. I meant to put it in my bag today but I forgot it on my bed. I am glad I took a shower this morning (probably what set off my ankle) so I won’t have to tomorrow.
The voices have been really loud today. Last night they were obnoxious. I sent a message to the therapist but haven’t had a response. They are telling me I should kill myself, though they are not being too clear on how to do it. One is telling to do it this way and the other is just like take this bottle of pills. I am glad I don’t have those bottles near me. I want them to shut up but I know the only way they really will is by killing myself. I can’t put them on mute as they don’t have a mute button. I have five voices right now, 3 that are bad and 2 that are my normal ones. Sometimes there are six. I am glad the 6th one doesn’t come along too often. There is so much noise going on. I told the psychopharm I would only be open to taking trilafon. It is the only med that works when I need it. I don’t want to go on something else or increase the dose I am taking now. I don’t want side effects. It is bad enough that I am dealing with dry mouth from the nortriptyline and the bladder spasm medication. I won’t take that medicine tomorrow because I want to see if it is making the dry mouth worse. I hate dry mouth. I have to make sure I carry cough drops or hard candy with me at all times now.