Saturday Blog 10

Saturday Blog 10

I have been up since 4 this morning. I woke up in pain and have been unable to go back to sleep. All I have been doing is playing my Facebook game. I made breakfast around 6.

What is freaking me out is that last night when I was preparing my meds, my most important pill escaped. It rolled off the bed and I have been unable to find it. In trying to find it just now, I have aggravated my sciatica. Monday when I have the “mock” interview, I plan on that being my chief complaint. I think that will be a nice way to introduce CES to the interviewer. I hope I don’t have to explain what CES is. I really don’t because every time I have to explain it to a medical professional, my heart sinks in the confidence I have in the individual. Although CES is considered a rare condition, I know of about or more than 500 cases in countries around the world. Those are the ones that are true cases. But what doctors don’t get, is the aftercare of dealing with CES. Often the immediate condition is dealt with (often a ruptured disc or broken vertebraes), the person left with this condition requires care that is outside of surgery’s realm. Pain is a common occurrence. I know that for me, I still had back pain after surgery. It wasn’t until I was on regular opioid medication that I was free from this pain. Now I am taking it because it caused another condition, complex regional pain syndrome, in my nerve damaged left foot and ankle. I never recovered 100%. Plus I got hit with this condition for a second time, 5 years later. I think that is what “did me in”, so to speak. If I didn’t have this for a second time, I think I would have recovered fully. But alas, that didn’t happen.

Today I am still dealing with the effects of Cauda Equina Syndrome (CES). I am in pain nearly every day in my ankle and foot, sometimes my leg if the pain is really bad. It usually hurts because I don’t wear my AFO (ankle foot orthotic). I did a lot of activity on Thursday and I am still dealing with the after effects. I find that if I do a lot, I pay for it later, sometimes up to three days. It sucks.

I am in a lot of pain right now because the temperature dropped. It is cold and my foot hates it. I just took some pills to ease it. I am going to try and take a nap as being up since 4 am is not good. My foot feels like there are ice cubes on it, it feels so cold, even with a sock on it. But I am now back in my bed rather than my sister’s kitchen watching Spongebob. I was watching my niece for a little bit today.