About my hiatus
I have been in the hospital the past three months. I was not in a state where I could write a blog. I was doped up most of the time and barely knew what was going on around me. I was sick with renal failure, covid, and infection called C diff. I was barely eating so they had place an nasogastric tube down in my stomach for a bit. I don’t know how long this tube was place. I had taken a pic of it sometime in Sept. I missed how the season ended for my Sox. When I came home for a bit, I thought it was the end of Aug but it was the beginning of Oct. I was home for a week or so before going back to the hospital for psych. I spent four weeks in the hospital on the psych unit. I got really good care there. I learned my top surgery was postponed and I was very, very devastated. It was good that I was in the hospital because if I wasn’t, I probably would have ended my life right then. I was so angry and frustrated as I didn’t have answers and had to wait for them. I had no access to my phone so I didn’t have the usual supports I have when I am home. It was extremely frustrating. The staff tried to help me but all they could do was sympathize with me. There was only one LGBTIQQ staff person on the unit and even she couldn’t really understand my predicament.
I have an appointment next week with my pcp to get medically cleared for top surgery. I really hope this conversation goes well. It will be the first time meeting my new pcp as a fully conscious being. The first two times I met her, I was still in the confused, delusional state. All I could do when I met her was blink my eyes and nod yes or no.
I am having difficulty writing in a constant stream of consciousness. It has taken me two days to write three hundred words for this blog. My thoughts are still hard to write with everything that I have been through. It was really difficult in the hospital as I really lost the ability to write. Writing has always been a coping mechanism for me and when I couldn’t think to write, it hurt, literally. I would get these headaches that felt like my brain was being crushed. It literally hurt to think. I got several migraines while in the hospital. I would wake up around 0330-430 every morning with severe migraines. It was terrible. The trauma of everything I went through was very difficult to process. I had become catatonic at one point.
I am still feeling wicked depressed and anxious at times. I am off all pain meds and off my Ativan. It is weird not taking meds around the clock like I once did for years. Now I just take it a few times a day as I am taking my blood pressure med three times a day and take the Latuda at dinner time. It makes me tired and I often find that by 1900 I am sleepy. But that could be because I have been waking up before 0500 most mornings. I find it hard to get back to sleep with these early morning awakenings. I am so much clear headed now than I was in the middle of October. My memory is still not there on what transpired the six weeks I was on the medical floor of the hospital. I just have these weird dreams/delusions that sometimes intrude in my head. One day while in the psych ward, I was flooded with memories and couldn’t make sense of things at all. The anxiety it produced was terrifying. I was convinced I killed my mother and a bunch of weird shit around my house. Taylor Swift music got me through a lot of the anxiety but while in the psych ward, I didn’t have my music to calm me so it was very difficult to cope. Now that I am home and have music again and my laptop, I am coping so much better. I am reunited with my online friends again and it feels so good because I was missed so much. I have missed blogging so much. I regret that I didn’t write before now but it has been hard finding my writing voice again. It has been a real struggle.
In closing, I am going to try and write a blog a day like before, even if it is less than 500 words.
Broken shoulder and other things
My pcp got back to me late yesterday afternoon and scheduled me for an urgent care visit. I went this morning, which I didn’t want to get out of bed for. I am glad I went and had an x-ray because my shoulder has a fracture in it caused by a dislocation. The results said that it was prior but I don’t recall ever dislocating my shoulder before. I need to have an MRI done but there is a significant wait so I will be having a CT scan done on Monday, which means I need to reschedule my therapy appointment. I also need to see a shoulder specialist.
After the appointment, I was hungry and thirsty. I didn’t have anything to eat or drink when I got up because I got up really late and I had to catch the bus if I was to be at my appointment on time. I went to CVS and got a smoothie. I then went to the Square to go to Starbucks to grab a mocha and a sandwich before catching the bus home. I had to pick up my meds at the pharmacy so I went there before stopping home. I got out of breath when I got home. Stupid hill still makes me short of breath. I had to sit on my porch for a bit before going up the stairs. I was in a lot of pain when I got home from the exam and not taking any pain meds. I should have taken some with me but I didn’t think.
I am quite tired. Yesterday I woke up at 2 am and didn’t go to sleep again till around 2200 or so. It was a long day. I couldn’t think to write a blog so I just posted a pic of a puppy that I thought was cute. I had therapy yesterday. It went well. She was calling me out on shit and I was at one point like, is this Will Hunting?? She wanted me to take care of myself rather than rely on others for care as I’ve been neglected and abused for most of my childhood. I understood where she was coming from but it didn’t feel good to know that I had to do the caring from now on. That doesn’t sit well with me. I do take care of myself in other ways.
While I was at the urgent care, they took my blood pressure and my diastolic was high. I just took my blood pressure at home to see what it is and it is still high. Fuck. I might have to go back on the labetalol. I had stopped taking it because I didn’t think I needed it. My blood pressure has been good until now. Now I got to monitor it to make sure the high readings don’t continue. I am in a lot of pain so that maybe why my pressure is up. I haven’t given myself the T shot yet today that I am due for. I wanted to write for a bit before doing it. I am so tired. I plan on going to bed early tonight because starting Friday, my nights are going to be busy watching baseball and I need to be up to listen to the plays. Just hope I am wrong about them having days off and then playing. We need to win four games and it isn’t going to be easy with the Astros.
I had a rough night of weird dreams. I dreamt of my sister in law who just died a few weeks ago. She had been on my mind recently and I guess she manifested in my dreams. In the dream, we were supposed to be going home. I was driving but no matter what road I took it was a dead end. I kept driving around in circles trying to find the street that would take me home and I couldn’t find it. My med alarm went off so I took my meds and then used the bathroom. I had my coffee and still felt sleepy. I had a bowl of cereal and then went back to bed. I slept for a few hours, dream free. I woke up still feeling tired but a little better. My mood was still in the gutter.
My therapist texted me this morning asking if she could see me today rather than tomorrow. I said ok. We met and it went ok. She had her dog in her lap so I got to see him for a bit. He is cute. We talked about my bladder issues but she didn’t get it. She didn’t validate me or understand what I was going through. I felt more depressed about it as we spoke. We talked about writing and being consistent with it. I think I am doing that with my daily blog writing. It has helped me with my anxiety a lot. It only helps a little bit with the depression.
I was very tired after session. I tried taking another nap but couldn’t. I got really bad gas pains in my chest. I keep burping which has relieving some of the pain but my stomach feels icky. I am kind of hungry. I think I am just going to have a bowl of cereal for dinner. I don’t feel like cooking. I was able to brush my teeth this morning after I had my coffee. I need to shave my head and face but I am having trouble finding the energy to do it. I love the bald feel but it is a chore to shave every other day or so. I wanted to bring this up to my therapist but I felt like it would be vain of me.
My leg has flared up again. It has been hurting me most of the afternoon and now into the evening. I’ve been taking BT meds for it. It is almost time to take another dose. Also almost time to take my night meds. There is no game tonight so I plan on going to bed early. I haven’t read today so I might finish the chapter I was reading yesterday. I had to take a break from it because it upset me. This book has not been an easy read.
Haircut and shower exhausted me
I had some energy this morning so I decided to get my haircut. When I came home I showered and now I am exhausted. I went to Starbucks for my mocha and something to eat. While walking back to the barber shop, I got winded and it took a while for me to catch my breath. I thought I was over covid but I guess not. It has been five months and I am still experiencing some side effects of the illness. Please, if you are reading this and haven’t been vaccinated, please get the shot.
I have been feeling depressed and my sleep has been awful. I was up most of the night. I just couldn’t sleep. It is pay week and I am worried about my finances. I already messed up and am overdrawn on my checking account. I thought I could pay all my bills with one check and I can’t. I need the supplemental pay I get from my long term disability claim to help with my bills. I still need to pay my cell phone and cable bill. I get paid tomorrow from the LTD so I won’t be in the negative but I will be down a hundred bucks. I should have some money to pay my sister back for the loan she gave me.
My therapist responded to the message I sent her about how to proceed in therapy. I asked her if we could just free associate rather than stick with a topic because I just am not motivated to work on my trauma right now. She said that we could do that if that will bring me in. I honestly was thinking of canceling next week’s session because I see it as pointless. I just am not really in the mood to talk about stuff. I just feel kind of stuck and don’t want to do anything. I have been reading so my concentration hasn’t been affected. My appetite has been sort of ok. I am eating less than what I should be eating. The other day all I had was a yogurt and an Ensure for the entire day. I just am not eating calories to get through the day. I am drinking fluids though because I have to make sure my bladder is empty every four hours, two if I drink coffee. I am so frustrated with the discharge. I am glad I am seeing the surgeon tomorrow because I can’t take wearing pads anymore. It has been five weeks that I have been wearing it and they are starting to irritate me.
My neurologist granted my request for lidocaine patches for my nerve pain on my thigh. I am so glad. I had a box of them but they expired years ago so I had to toss them. I am going to try and put them on my shin where most of my pain is most days. I don’t know if it will work because the skin is so sensitive it might hurt. I can no longer where socks that are thigh high. The elastic hurts me.
I have an easy week next week with just one appointment to see my therapist. I just put some money on my T pass so I might go to Starbucks to read or write while having my mocha. I meant to bring a book today but I forgot. It’s hard when I don’t carry a bag. I forget things. I am so tired. I think I am going to take a nap and then make a black bean burger for lunch/dinner. Hope I can sleep and not have weird fucking dreams. Last night I dreamt I was with my cousins and was laying in their bed after they made it. I don’t remember the reason I was there. But it was just weird.