Tag Archives: writing

Hurricane by Luke Combs

Hurricane by Luke Combs

Fricken love this song. It is I think his first hit. I must have listened to it over a thousand times. Then when his album came out, I listened to One Number Away and it still stands as one of my top 25 songs on my MP3 player. I love Luke Combs music. His voice is just all country, something that is missing in today’s radio. I was listening to the country radio station last night and I had to shut it off because it was the SAME music I heard the night before. I don’t know what it is about Florida Georgia Line in spelling their new song they release but it is getting old. Their latest new song is SIMPLE and it is lame.

I saw my psychiatrist today. I told her my therapist and I are working on a way to keep me alive even though I don’t want to be. He understands it is my overwhelm and flares that are triggering my planning dates and feeling immensely suicidal and trapped. I was in pain before I saw my psych. My ankle bone was acting up. I took my BT med and an hour later I was drowsy, even though I just had 5 shots espresso. I think I need to cut back on the shots because my stomach had a hard time afterwards. I think I am just going to have 4 shots and see how I do. I didn’t put a lot of soy in, so that maybe why it caused some discomfort.

My psych was telling me about a dog named George that talked. I forget the exact title she gave me but I think I found the video on YouTube. It was so funny. I had seen it before but it is always fun to see again. She then emailed me saying she wanted labs. Shit. And they have to be fasting. UGH. I hate fasting labs. I’ll probably get it sometime next week, though I am not sure when. I will have to make sure I don’t eat after 9 pm and then get my blood drawn the day, if I don’t have the night from hell. She gets the labs done because it is a yearly thing with the Invega to make sure it isn’t doing funny stuff to my lipids or setting off diabetes. She probably ordered another chem 7 to check my glucose and sodium again. Fun stuff.

I was in agony with my damn ankle bone. It was hurting me so much. And there are such rude people on the train. Here I am with a brace on each leg and these two women raced on the train to the disabled seating. I was pissed. Luckily there was a seat available next to one of them and I didn’t care that my ass cheek touched the woman next to me. Tough shit. My bus home was late and I had to go to the pharmacy before going home. I bought some chimichangas for dinner and some ice cream sandwiches. My mother didn’t like it as it was too chocolatey. More for me! The house was so hot because my lunatic aunt had shut the back door because “it was letting the heat in”. Fucking moron. I couldn’t believe she was still there. Then my sister and I found out why. She didn’t want to leave my mother alone. I knew she felt like my mother was an invalid. Made my sister and I mad. She doesn’t need to be babysat. She is an adult and needs to do stuff on her own in order to get better. Waiting on her is not going to help her. I am just glad she left when we came home. I had to leave early because she was annoying the fuck out of me this morning, fucking yelling at the TV being stupid. I know I yell at the TV when I watch sports but she yells at every show she watches! That is just absurd!!

I am going to try and rest this weekend but I need to do laundry as the hamper is full. It is mostly towels and my clothes as I was pretty sweaty this week. I hope it is going to be cooler next week. Next Saturday I was supposed to go on a Booze Cruise but there is no way I can manage with being in two braces. The stairs are narrow and I don’t want to risk I fall. I went last year and loved it so much but it was hard to manage with my AFO going up and down the stairs. I feel sad that I can’t make it and see my beautiful town I live and grew up in on the water. I am sure my sister will post pics. I will tell her to take pics so I can steal them, LOL. I love Boston so much. I really want to go to the Boston Harbor Cruise. I have never been to Thompson’s Island or Spectacle Island in Boston Harbor. I really love George’s Island because there is the fort that was built during the Civil War that is still there, even though it is crumbling. Some parts of the fort you cannot have access to because it is collapsing. It is cool but I can’t walk around like I used to. It would be nice to bring a lunch and my chair and just sit on the grass and see the water around the island. I love the water. It calms me down. I miss my home town so much, which had the harbor on one side and Chelsea Creek on the other. It was really cool. I miss walking so much. I know that I would lose so much weight if I was able to walk like I used to. But the town I am living in now has too many hills and it is exhausting walking just to the pharmacy. I am lucky if I can walk around the block to go to the Post Office some days.

I start another round of PT next week. My only appt of the week. Monday I see family and hope to go swimming in my cousin’s pool. Depends on the weather and how I feel. She has an inground pool. I can’t wait to see them. I have to remember to bring my BT meds with me. They make me really drowsy so I hope I don’t have to use them.

One More Light

One More Light

****expressions of suicide in this blog are just that. I am blowing off steam, expressing myself because keeping it in hurts too much****

This song by Linkin Park recently won an award for something I cannot remember. I saw it a couple of days ago. I am not surprised as when I first heard it, I knew it would be the perfect song for suicide prevention. Yet somehow, with my upcoming demise, I cannot help but think of this song.

I was talking to a friend of mine who I told a few months ago that I had made the decision to end my life in a few months. I told her yesterday when I would do it. She asked if everything had been planned like we talked about. I realized I didn’t have all my ducks in a row. Hell, I still haven’t written my letters. I am finding it hard to say goodbye to those I love dearly. People always think that suicide is an impulsive act. That is kind of horseshit to those that suffer from it chronically. There is usually a lot of planning involved. Even Chester had a smile on his face and looked happy in the days before he ended his life. I nor anyone else will know what was going through his mind that lead him to this decision.

Pain o’clock started a little while ago. I am so fricken tired of hurting. I know that no medicine or treatment will bring me pain free. Even if I go through the pain program and their tasks, I will still have pain. I will just manage it better, which I guess it is better than what I am doing now. Even though I am on better pain meds to manage my pain, I am still having flares. I really think that if I was on a higher dose of meds, just 15 milligrams, I wouldn’t have so many flares per week. But according to my psychiatrist, they (pain docs) won’t do that. I have had enough. She saw me yesterday because she was worried about me after I sent her a few emails about how bad the pain was and how my suicidality was increased. I am tired of fighting the supposed experts. It is shit when they don’t fucking listen to the patient. Like what was the point of me seeing her if she wasn’t going to do anything? I am done, so fucking done.

I am sorry to my friend and family about ending my life in the next few weeks. I tried really hard to manage my pain better but they fucked me over. My light needs to be extinguished. I can’t go on like this anymore. I don’t have a fucking life. I can’t even fucking read a book for fun anymore or go to Starbucks to write in my journal about mundane things without pain. It is only going to therapy or medical appointments these days. Often I leave an hour or two early so I do have time to cope with travel and write because as you can see, there are more than a few days between entries. Even my night journal doesn’t have that many entries. I should be on my new journal by now as I am so close to the last few pages but I am not because I don’t fucking care. I plan my death. I rather do that. That gives me hope that I can escape from this hell.

I am so very sorry for hurting any and everyone involved in my life. I know there are many people that will be hurt that that I am gone. If I could put a band-aid on your hearts I would. I don’t blame anyone. This isn’t anyone’s fault. I have postponed this long enough. I was supposed to die in June and here it is July. I wish I had the time to analyze this song. It is such a beautiful song with so many meanings.

pained and pissed off

Pained and pissed off

I didn’t go to sleep till 0700. I woke up around 1000. I sorted out my meds and as there was a threat of increased pollen, I took an extra Allegra. I then made breakfast and coffee. I was so sleepy after the coffee that I decided to take a nap. My foot exploded a few minutes after my head hit the pillow. I was so fricken mad.

I tried to calm down so I took some more Ativan and Neurontin. I usually don’t take Neurontin during the day but I wanted to fricken sleep. I had emailed my psychiatrist around 0230. She responded and asked if I can come in on Monday. I told her it would be hard as I have PT in the morning but she had a time that suited when I could get to Boston so I said okay. I really thought today was Sunday all day. I kept having to look at my phone to see that it was Saturday. I am so off from not sleeping.

I was able to fall asleep around 1400. I slept for another 3.5 hours. I was hungry so made a burger. My sister is going to have a dinner for tomorrow so I will try and grill the steak that I have. I asked her to show me how to operate it. She didn’t have time today as she was going out.

The highlight of my day was having my little 5 month old cousin come over. She is such a cutie. She kept crying every time I talked to her so I let her be. She stopped crying when I walked away. HAHA. I came down after I finished my tea because I wanted a pic of her. I snuck it as her mother doesn’t want pics. I am not going to post it but I wanted to show my friend how cute she is (not on social media). I played with her and she was “talking”. Just kind of loud stuff, like she was boss. It was funny. I love her so much.

I came back upstairs and some troll on Twitter responded to a message I had posted at god knows what hour. It was from like 1 am or so. We exchanged a few messages and then I blocked him as he was a troll. He said he was using his friend’s phone to use Twitter. Ya, you are a troll if you do that. Idiot. I am trying to stay awake but my fucking foot feels like it is being sliced open. I didn’t have a number 2 today. I am upset about this because I need to keep track of it. I don’t remember if I went yesterday or not. I think I did but I don’t remember. I am kind of in a fog so my memory isn’t great. I will take some fiber pills with my night meds and just continue to take them until I go. I will take Miralax if I need to.

I had take my blood pressure around 4 am just to see what it was. Damn batteries were dead so I had to find new ones. I found them and put them in. Then took it. It was high on both wrists. Pulse was 91, a little fast. I took it when I woke up this morning and it was a much better number. I am going to keep track of it every day in one of my notebooks. My PCP wants to compare the office visit BP to my home BP readings.

I am kind of scared of meeting with my psych on Monday. If I am cool and collected, I don’t think anything will happen. I honestly don’t know what I said in the email. I know I told her about my mother’s upcoming surgery. What I said after that, I am not sure. I know I was pissed I didn’t end my life yesterday because I was in so much damn pain. I got to get through the to the damn pain clinic that the damn dose is not adequate for flares. I need something that will cover me and the breakthrough meds are not doing that. I am having severe pain, just by moving my foot or sometimes, not even moving my foot. It just explodes while I am on the bed, not doing anything. I can’t stand it. I hate, fucking absolutely hate, not being heard and this pain doc and fellow just does not listen!! They have their own idea of what is wrong and how to treat it and that is that. No intervention or input from the patient. What kind of care is that? Paternalistic! I hate it very much. My former PCP allowed collaboration and things. We might not have agreed on some things but at least we talked about it rather than him saying this is what we are doing end of story. I wish I still had him. I know he would be attacking my weight issues, which would be stressing me out, but at least I could count on him to help control my pain. I don’t think those kind of docs exist anymore.

painsomnia ramble

Painsomnia ramble

It is almost 0500. I have yet to sleep. I thought I would write to see if that would help me fall asleep. I went to have something to eat and as I turned to walk back to the stairs, my ankle gave out on me. I couldn’t bear weight on it. It was the slowest walk through the house. There was no one I could call as it was so early in the morning. Now I am in a lot of pain, more than what I was in.

I was thinking about what I wrote early in yesterday’s blog about there being a kind of “split” where you have this dark side no one knows about and then you have this side where you appear like nothing is wrong. I want to write more about it but my mind isn’t that clear. I took some Neurontin and so I am kind of cloudy. I don’t know what more to say about it because it is how I feel. Like if I unleash the dark side people will freak out and maybe force me in the hospital or something. I emailed my psychiatrist and let her know yesterday was the day I wanted to end things. I also told her about my mother’s upcoming surgery and how I had planned my death before I knew she was going to have surgery. I told her I really wish I went through with it as I was and still am in a lot of pain. I am regretting the decision to put it off. I wrote her the goodbye letter. I didn’t tell her that though. I told her that next time I will go through with it as I will not make that mistake of taking back the decision and postponing the inevitable.

In the meantime, I am supposed to live my life like it is all hunky dory and shit. Other than my online friends and a few close people, no one knows about my plan. Hell, I don’t even know if I have a plan. I haven’t checked out the location so I have no idea if that will work out. It has to be a desolate area or I am fucked. Someone sees me and the chance of rescue is great. I don’t want that. I really don’t want to be fucking saved by some stranger. That is a fear. I just wish I had a car so I can drive some place and do it there. Easy clean up too. Kind of. I don’t know. It is not like I have done this before. No one knows what my plan is. And I won’t tell anyone. I think my therapist might know but I am not sure. We haven’t talked about suicide in a long time. And we won’t. There is no point. I have made my mind and I am going to stick with it when the time comes.

I have been trying to manage this pain. I tried distraction. Playing with my phone, being on social media, though nothing is really going on at these hours. I was talking to someone about cats. But that was hours ago. I wrote some tweets. I posted some Instagram pics. I was really bored. I really screwed up my ankle. It feels like someone is trying to cut it off. Fucking pain is terrible. It going up my ankle but only half way. So fucking weird. I am just going to stay up until I pass out. I can’t sleep anyway. Every time I lay down, pain increases. I try to wait it out but after three minutes I kind of lose it and have to sit up. I had the AC on but it is cool outside. It is also 30.2 for barometric pressure, which is why my pain is all fucking whacky. Hope it settles down. I will take another Ativan in about an hour. Hope it fucking helps.

How a grumpy day turned awesome!

How a grumpy day turned awesome (skip to end if you don’t want the boring parts)

I woke up grumpy. I kept waking up at odd hours, mostly because I was afraid I was going to sleep through my alarm. When the alarm finally went off, I was not wanted to get out of bed but my bladder forced me too. I used the bathroom before I took my meds. There was no waiting. I guess I had been holding it for some time and it wanted to be emptied now. After I went, I brushed my teeth. It was only after I had rinsed my mouth I realized I still had to take my meds. Fuck. That meant water and it was too early for that. It would make me puke. I took them with powerade anyway.

I then got a text message saying the bus I needed to take was 20 minutes behind. I got two of them so fuck leaving in 45 minutes. I had to leave now, going a different way. I got dressed quickly. I went downstairs and gave my mother the check for tomorrow so she could go to the bank. I told her I would be home sometime in the afternoon and she said today in a demanding tone so I said no tomorrow in a sarcastic tone and she yelled at me. Fuck you and I left (I didn’t say that or I wouldn’t be typing right now. I went to the bus stop. I checked the bus app to see when one would be coming and it said a few minutes. I didn’t feel like putting my headphones on. I wanted coffee badly. When I got to the station, where I planned on getting my caffeination, it was closed. Just lovely. I got my pass for the month and went to catch the train. The train came and I had to get one another one to get to my stop. That train was heading back to Boston. Fucking fuck. A switcharoo this early in the morning?? UGH. I got on the train to go one stop. Then this Chinese lady raced for the elevator and I waited for the next one. It was full of people so I waited for them to exit. A guy came on before I did and nearly closed the door on me. WTF. I hoped the bus I had to take to PT would be coming soon and it did.

I had a half hour before my appointment so I went to Dunks and had their coffee. It was decent. I also had a sandwich to try and get me out of the grumpy mood. My hip was hurting me and I forgot my breakthrough meds. This was just great. Around 1030, I walked to the PT office building and waited for my PT after I checked in. She got me and asked how I was and I told her my hip was really bothering it, you aren’t touching it today. And if you tried, I will yell at you. She said okay. I told her I did my exercises yesterday and she was happy. I did about three clamshell before my hip said no more. I told her I think I had the pillow too high. She said try a lower pillow so I will. We did the exercises she gave me to make sure I was doing them right. Then she said she was going to do myofacial release and I got scared. I said I will yell at you if you hurt me. She then showed me what she was going to do on my left arm. I then told her, that huh, that was probably not a good arm and showed her the bruise my doorway gave me. She asked how I got it and I said I was attacked by my doorway! She laughed. She showed me what she was going to do on my good arm and I said okay but be careful. I had stuff to do today and didn’t want to be in more pain by the end of the day than I want to be. As she was doing it, she kept creeping up to the area that hurt and I said watch it. She said ok. She did it for a few minutes and then it was over. I didn’t feel any different. My hip still hurt the same. She then asked about appt and I made two more.

I missed the half past buses and had to wait nearly a half hour to get back to the station. My hip was not happy as I had to stand. I was doing everything, walking around, standing on a wall, shifting my weight, all the while cursing myself for forgetting my pain meds. I was listening to my country music. Finally the bus came but the only seat available was the one facing the buildings where my father used to live. I closed my eyes so memories wouldn’t come flooding back. I had to wait for the train. The time thing was wrong. I waited more than 1 minute for the train, maybe 5-8. I was standing so my hip was thrilled as well. I got on the train and took a grumpy selfie. I was so pissed. I still had to connect to another train line to get to my therapist’s office. I got to the connection and followed the sign to where I thought said Alewife. It turned out to be the other end. I was pissed. I went back upstairs and asked the train employee where to connect to the Alewife side of the red line. She showed me. More stairs. Fun!!! I wanted nothing more than 4 shots espresso at this point. I was very tempted to leave this train and walk to another station but knew that would kill me.

I got to the stop and the Starbucks was closed due to renovations. Just made my day that much greater!!! I went to a coffee shop I used to like and got an iced coffee that tasted like shit. It costed me nearly $5 so I drank it, but only about half of it. I didn’t want to get sick. I wrote in my journal about my day so far and what I hoped to talk to my therapist about. When it got close to appointment time, I used the bathroom and then packed up my stuff to go.

Therapy went okay. We talked about my mother being a bitch the past few days. He asked if I could move out and I said not unless rent suddenly became wicked cheap. He was curious to know where I lived so pulled up my address and Google had my house. Haha so weird. He said I was in the middle of nowhere. I said there were two bus lines I was near and one went to the Square where I connect to see you. He found that explanatory. Then I told him about my sodium levels. He told me about some antipsychotics that could be for mood disorders and I said those aren’t really being used solely for mood stabilizers. I then listed what I knew and the story of Tegretol and Trileptal, how they came to be. I also gave a story about how I told a resident how come they didn’t show in a tox screen, though I don’t remember which was qual and which was quant. I just knew just because you were on Trileptal, you weren’t going to get a level unless you ordered it as a sendout test.

So I decided to go to the place I wanted to order Chinese food rather than have it delivered. I was still grumpy. My mother called and I let it go to voicemail. I didn’t want to talk to her, or to anyone really. Just let me listen to my music and leave me the fuck alone. So the bus finally came. I got to the stop where the food place was and they were closed. ARE YOU FUCKING KIDDING ME???????? I had to wait for another bus home. The bus driver was an asshole. He didn’t lower the bus so I could get on. I tripped and had to start again. Then after I waved my pass he didn’t wait till I was seated. I wear a fucking AFO brace. But I guess that doesn’t mean anything to anyone!! I am going to report him.

So past two days I have been getting UPS notification that a delivery is coming my way but I don’t recall ordering anything that had a UPS delivery. I was very perplexed. I come home finally, my belly growling, pissed off, with two packages for me. One was SE Hinton’s book that I ordered. The other was from Wiley. Odd. I don’t remember ordering a book from them. I get to my room. Open the package and it is this:

A little background. Someone 2-3 years ago were searching specifically for a citation that John Sommers-Flannagan had written and I wrote about in one of my papers on my blog. I made mention when I found out Dr. John was on Twitter. We have been in touch off and on. He post maybe 2 years ago he was looking for people to edit his coming book on counseling. I responding saying that I don’t have a professional degree but I have plenty of lived experience. He took a chance and I DM’d him my private email. He sent me a chapter and I read it/edit and gave my thoughts on it, etc. Then maybe a year ago he sent an email about acknowledgements. I wrote back to him with just my name as I didn’t have any credentials. (still no clue where the National Institute of Education came from). Today I got the book and it totally made my day!!! I am so fricken happy. I ordered my Chinese food while sending pics every where and to everyone! So that is how I got in the book.