I’ve been in severe pain since 1900 last night. I don’t know what I did to cause this flare. I know part of it is because I was emotional today with the news of my BFF who is like a little brother to me. I love him so much. I wish there was something I could do for him. I am going to try and call him every week just to check in on him.
I’ve been scrolling on twitter most of the night. I did read Medical Apartheid. I finished the ugly chapter I was on about eugenics and how white people wanted to expunge African Americans. This went on until the year 2000 where they set up clinics to sterilize or force them on birth control. One of the campaign sayings was something like better to be an addict than to have a child. Shows how depraved people were about addiction. Rather than deal with the issue, they rather the person suffering from addiction was sterile or on the long term birth control Norplant. Just makes me sick. The next chapter is on radiation and Blacks. I don’t know if I can stomach it. I thought I could read this but it is really sad what these people have gone through after their freedom was given.
I am tired but I can’t sleep due to pain. I’ve already taken what I could. I even took ibuprofen to try and stop the pain. I think I could be hungry but I don’t feel like going downstairs to make something to eat. I would just have cereal though. I found a box of honey nut Chex while I was putting groceries away yesterday. I love that flavor.
Because of my grocery delivery, I canceled my therapy appointment. I won’t have therapy this week. I will see her on Mon. We have a lot to talk about. I should probably write some of it down so I don’t forget. I hate writing stuff down because once it is out of my head and on paper, I forget about it.
I made an appointment for my eye exam in a couple of weeks. It is outside of Boston at a new place. I just hope the doctor is nice. It is in the afternoon so I am not so sleepy. I think there is a bookstore near there so I might go book shopping after.
Red Taylor’s Version
I am still waiting for my CDs to be delivered from Amazon so I am listening to this album via Amazon Music because I pay for the unlimited. I had downloaded the songs but apparently the buy CD get digital free doesn’t work anymore. I have downloaded the songs but they are just on the app and not on my phone.
I just finished listening to the album the entire way through, without the shuffle on or repeat on. I fucking love it. Her version of Better Man is so fricken cool. I still think of my father with this song. I was ok with Babe but Jennifer Nettles sings it better. And for the life of me I cannot think who sang Better Man first so I had to google it to find Little Big Town did. I listened first on speaker and now I am listening via headphones to get a better experience of it. Some of the songs sound better than the original version. You can definitely hear the more mature Taylor’s voice on the album. I love the addition of violins to Last Time. When the album first came out I was fixated on this song. I must have listened to it a thousand times but I just love the melody of the song rather than I listened to the lyrics.
The “All too well” 10 minute version is so fucking cool. It kind of messed me up when listening to it because of the added lyrics. I cannot wait to see the movie tonight at 7pm. I cannot believe how well this song is. I thought it would be instrumental but I am so glad there is lyrics. There are a couple of songs that I didn’t hear before because they were on the deluxe album and I didn’t purchase it. Ronan was and is a sad song. It is about a four year-old’s death. The lyrics are stunningly beautiful. I never heard this song before now but I heard about it from a fellow Swiftie I follow on Twitter. Amazon delivered my songs and I got them on my phone now. After dealing with my stupid MP3 app, I have all 30 songs in a folder/playlist so I don’t have to play each album separately. Dumb thing.
Arm is hurting me today but that is because I am using the muscles a little more and I made the mistake of lifting my arm while trying to lift my Tshirt up so I could put my phone in my pocket. I am more left handed than I think I am. I write like a second grader because that was the last time I wrote with my hand. I never realized how much I use my arm until I hurt it. Even typing hurts my sore forearm.
I had two cups of coffee back to back as I was listening for the first time the new album. It caused colon blow but I am ok. I made it to the bathroom in time. But I am so damn tired. I could nap right now. I was up a few times during the night. I woke up sometime before 4 to use the bathroom. I didn’t know if I had to go or not when I woke up. I never really went back to sleep. I got up around 9. I took my meds and then listened to the album as I made coffee. I had the kitchen to myself as my mother was leaving the house for an appointment. I had a bowl of cereal as I was starving. I hadn’t eaten anything since last night when my mother made eggplant. I haven’t been eating too good lately. I just been eating one meal a day. My mother is making fish tonight so I will have some of that. I didn’t have lunch yet. I don’t really know what to make. I should make some eggs. I haven’t had them in a while. I don’t know.
Saturday Blog 06112021
Today I am dealing with an influx of junk mail being filtered to my inbox rather than junk mail folder. I must have gotten at least a half dozen notifications today so far that are junk. I don’t know what is the problem. I sent a message to outlook hoping to find a reason. It’s jut ridiculous. The emails are all bogus. But I think I got a handle on it as most of the emails are from the same domain.
I sort of woke up when my med alarm went off at 0830. I made the mistake of falling back to sleep and now I feel like all I want to do is sleep. I only woke up once during the night and that was to go pee. I hope when I go for my test next week that it records the urge sensation when I am cathing. It is so uncomfortable to be going about my business cathing and then get an uncontrollable urge to pee. Sometimes my stream becomes stronger and then urine goes everywhere. It is messy and I hate it.
I had a cup of coffee and I might have a second cup soon as I am so fricken tired. I think I am going to heat up the chicken pot pie that I have for lunch. I haven’t really eaten anything today. My mother made zucchini and had a little of that but it was wicked salty.
Ohio State and Nebraska are playing each other in college football. Every year they play each other and every year I am conflicted who to root for because they are my favorite teams. OSU is beating the Huskers right now. I think OSU is going to beat them, again. Nebraska has been holding up some good defense though. It is a close game right now. And OSU wins 26-17!
My damn shoulder is killing me today. I put heat on my ribs as the muscles are sore. My bicep keeps throbbing along with my wrist/forearm. I can’t wait till I see the doc on Monday and they decide what they are going to do. I hope I can delay PT for a few weeks until I get my back PT in. I don’t think I need the full six weeks as usually one to three dry needle sessions is all I need. I start PT on Tues. It is with the same PT that I had earlier this year. She is good and I like her style.
The past few months have been weird as my therapist has noticed that I am more future thinking than I was in the past. I attribute this to losing hopelessness. I don’t know when it happened. I started feeling less suicidal and wanting to move forward with my transition. It is unusual for me to think of future thinking such as having top surgery and doing what is required to get it done. I feel like I lost some of my suicidality. I just don’t see things as dark or dire anymore. I have noticed that my CRPS pain isn’t at the high levels it once was and maybe, because the chronic pain isn’t so bad, I have become more hopeful about the future.
It is a strange feeling to go from complete hopelessness to being hopeful in a few months. The depression seems more manageable than it was and so the psychache that I feel isn’t as great. I have gone from feeling suicidal on a daily basis to really only when my pain levels are at a 10 or above. The feelings of not being able to escape have gone away as well. For the first time in my life I feel I have a future. I want to lose weight so I can lose the things on my chest. I can picture myself doing this where it seemed impossible before. I can’t attribute this to one thing because I think it is a combination of things. One is the alliance of my therapist and psychiatrist, possible medication has eased the depression symptoms enough that I can see beyond the horizon and not feel like I am drowning so much. Also better pain control and accepting my physical dysfunctions are now a part of my life that is not going to go away anytime soon. I also think that having a community on social media has helped during the dark times because just when I am at my lowest there are people saying that I matter and that they are glad I am still here. Words like that help when you feel like scum of the earth for no reason or when the pain is so bad all you can think about is death.
I also think music has helped to ease the troubles I have faced. For months now, I have been listening to Taylor Swift’s albums, new and old. Her evermore and folklore songs have brought meaning to me as well as the extra songs in her Fearless (Taylor’s Version) album. To identify with lyrics is powerful and meaningful. The songs help to heal the traumas I have been through as well as heal from past relationships and deal with current ones. In her 1989 album, I found a song that I can relate to my current therapist with that helped to deal with our rocky relationship. This therapist has helped me to see things differently and also to come to the realization that I have serious depression. It is something that I always knew but never spoke aloud before. Working through the severity of the depression has been difficult. I think I have come to terms with it and thus the hopelessness it has given me doesn’t seem to strangle me like it once did.