Tiring day of appointments
I reluctantly got up this morning and didn’t want to leave the house. I had slept through the night but was still exhausted. I had coffee and then counted down the minutes to when I had to get ready to catch the bus. My legs were so heavy today as I walked to the bus stop. I knew it was going to be a challenging day for me as I had a lot of walking to do today.
I saw my PCP and we discussed my fatigue. He thinks it is multifactorial so he is sending a message to my psych team to try and find ways for me to sleep better. I told him my blood pressure has been high lately and he checked it. It was high so he is adding a new blood pressure medicine. Yay a new medicine. Not. I see him in three months.
I then went to my second appointment at the other end of the hospital for the covid blood draw. He couldn’t get me so asked one of the other medical assistants. She got me right away. After the blood draw I went to get my haircut. I slept on the train ride back home. I was so tired. I had to stop a few times.
I came home and was hungry. I didn’t feel like cooking so I had some cereal. I made a cup of coffee to try and avoid a nap. While I was eating, I did my shoulder exercises. I had worn the sling all morning so it was good to move it about. It still hurts. When I went to my room, I took off my sneakers and socks. Soon as I got into bed my ankle flared up and I had to take a BT med. I also took some ibuprofen for the shoulder pain. I don’t know why the CRPS is flaring lately. I started to hurt on the walk home from the bus stop. Each step I took was more painful than the last. I was dreading the last block home.
I am doing nothing tomorrow and if I sleep all day so be it. I am just going to have a down day. Might order pizza again. Actually, might order it tonight. I am a pizza junkie. I can eat pizza every day if I am able.
I need to schedule an eye exam so I can get new glasses. I haven’t had an exam in almost two years. I tried reading from my sunglasses today and it was difficult so I know my prescription has changed. I just don’t like the eye doctor I see. It is hard to see someone else because of my insurance. I’ll probably see someone by the end of the year though.
Just about eight weeks post op hysterectomy
I am just about eight weeks post op (tomorrow will officially mark the eighth week) and today was the first full active day I have had. I woke up and got up before eight this morning. I made myself an egg and had a cup of tea as I wanted tea. My friend sent it from England as a recovery gift. It was good tea. A little later I had a cup of coffee with the last of my creamer. My groceries arrived in the afternoon so I was going up and down stairs a lot. Then I went to the bank to deposit money so I wasn’t in the red anymore. I had to borrow money from my mother. I just hope I can pay her back when I get paid.
I came home and I was out of breath. It took me several minutes to catch it and relax. I was sweating the whole time I was bringing the groceries up the stairs and I was sweating again when I came home. I had stopped at the pharmacy before coming home to pick up my meds and that little fucking hill I have to walk up plus going up two flights of stairs with two bags of Gatorade bottles was too much for me. I had my appointment with my psychiatrist and luckily I was normally breathing by the time he logged on.
I told him I was depressed and he could see that I was. He offered some trans support website which I sent out to. There was another one which I tried to email but for some reason I was unable to copy the email address from Zoom. I had to write it down. I am not sure I am going to email this person because they are far from me and I don’t have a car to get there should they meet in person. Plus insurance is a factor as well. I rather go to a free group than have it be a therapeutic one which I have to pay for. I told him about the increase in Pristiq and he said that by the time we see each other next (in Nov), he hopes the med will provide me some relief of the depression. I told him about my B&B issues making me a hermit in the house. I just don’t feel comfortable using public restrooms to cath. I still have to go to the lab to give a urine sample to make sure I don’t have an infection. I have been having some bladder pain lately and even though my urine is clear, I want to make sure it really is.
I called uro today to schedule the appointment for the testing but the doc didn’t “order” the test that they could see so I have to wait for the medical assistant to call me. I was hoping to hear back from her this afternoon but nope, no calls. Tomorrow I have an early dentist appointment and plan to go to the hosp afterwards to drop off the urine sample. I just hope I wake up like I did today or the appointment might be missed. I have to leave a half hour before the appointment because I will be going uphill and I know I will be short of breath. I want to be sure I am breathing close to normal when I go to the office.
I am making a chicken pot pie for dinner. Tomorrow I might make a small marinara sauce so I can have spaghetti and meatballs. I hid my spaghetti so no one will eat it. Every time I want a particular pasta it seems to be gone as my nephew eats pasta all the time.
I had Starbucks while out so I am caffeinated for tonight’s ballgame. The stomach tightening has already begun with the stupid stat predictions and shit. If we can get to the starting pitcher early, we might have a chance to win. But our pitcher has to be nasty Nate or we will be in trouble. It is a win or go home kind of game so if we lose, we are done. Baseball season is over for me, at least with the Sox. It will continue with the winner of the game.
I think I did too much with the bags I had to carry. 45 bottles of Gatorade and 10 gallons of water I had to bring up the stairs. I am not supposed to be lifting anything over 10lbs at least for another four weeks. I am considered healed though as I am at the eight week mark. I wish my bladder was in better condition than what it is. I really hope the urodynamic testing gives me some answers that are favorable. Even if it shows that I don’t have to cath every time, I still have to cath for residual as I am not emptying my bladder when I void. I don’t know how going to a trans support group would be helpful with my medical issues but maybe having just someone that understands the dysphoria will help.
Five weeks post op and in bad mood
Last night my foot/ankle started hurting with stabbing pains. It continues into today. I am in a rotten mood. I read a chapter and a half of Enemy of the People. It is helping to distract me in a weird way. I don’t feel like coloring yet but it is on my agenda. I just feel so poorly. I emptied my bladder and now I have abdominal pain and I just can’t cope. So I decided to write.
I sent my therapist a message. I asked her if I could show up without being productive. Not sure how she will respond to the question. I really don’t feel like going to therapy. I know I should because I am very depressed but I just don’t feel like talking if there has to be an agenda in session. I am not motivated to be productive right now. I just want someone to listen to me and I think that is the fucking job of a therapist to do, not create a plan for session.
I am full of melancholy. My thoughts are dark again. The CRPS pain isn’t helping my mood. I keep thinking I will be better off dead. My appetite has been poor. I managed to heat up some quiche for lunch. I had it with coffee that I didn’t even finish. Yesterday all I had was a yogurt and an Ensure. I just haven’t been hungry. I was thinking of ordering roast beef today but not sure I will. Maybe for dinner.
I still have some crap on my pad. I don’t see the doc until Friday morning. I set two alarms so I get up. Waking up in the morning has been extremely hard the past few days. I was able to brush my teeth this morning and have a cup of coffee while my sister was here. She just came back from her trip to Europe. She gave me some funny socks. While I was cooking the quiche, I shaved my head. I might shower today. Sometimes that helps to make my mood better.
My pain just jumped. I just took some more pain meds with an Ativan as I am wicked anxious and overwhelmed. I guess I am not showering as that would take too much energy and might cause more pain. My pain doc would not like that I am taking Ativan with my pain meds but I don’t give a fucking shit what she thinks. I have been taking them both for years and I am still here so there.
I wish I was seeing the surgeon tomorrow rather than Friday. I hate wearing underwear and a pad. I want to wear my boxers again. They are more comfortable. Every day there is discharge and I can’t stand it. That along with the stupid abdominal pain from my bladder is just driving me nuts. I have no one to talk to about it. I just feel so alone right now. Least my incision has healed up and isn’t open anymore. I was worried I was going to get an infection there. It will hurt if I press on it though so I don’t do that.
Writing on a Monday
I’ve had two cups of coffee to ward off tiredness and the second cup has finally fueled my fire! Tomorrow evening I will be going to a webinar about writing as a caretaker. I hope this helps with some of the frustration I get with my mother and her chronic health issues, particularly her diabetes and chronic pain. The person leading the webinar is a renowned writer at the Massachusetts General Hosp. I have known her for years, by name only so this will be a treat to finally meet her. I took out my portfolio and was glad to find that one of my favorite pens was inside. That will be excellent writing material.
My appointment with my therapist is less than 3 hours from now. I am kind of nervous about going as I am in a bitchy mood. I want to text my therapist to tell her this but last time it didn’t go well and I got more angry and annoyed. It has only been a week since I last saw her but it feels like ages.
I just emptied my bladder and I am having pain. I don’t understand why. I wasn’t that full. I was just emptying my first cup of coffee. I will be emptying my second in a couple hours. I also need to brush my teeth. I bought Listerine so I can try and get rid of this canker in the back of my mouth. I know salt and water would probably work but it makes me gag so I rather use mouthwash.
I am finally out of the haze the flu shot put me under. Past few days have been rough with me sleeping all day. Today I am feeling a little more alert. I didn’t sleep well. I woke up at 6 and gave up as I was just resting my eyes and not really snoozing or sleeping. I had woke up to pee around 4 and just couldn’t get back to sleep. I probably will take a nap after therapy. I usually do.
I wore underwear and a pad last night. So far, pad is clean. No discharge, which is awesome. I am waiting for the nurse to call as she said she would check in with me. I hope it is before my appointment with my therapist. She also wants to call to see how my wound is. I think it is better as it has closed up. I have a band aid on it right now to keep it clean.
I am going to try and keep myself hydrated today. I have been really bad about that the past few days because I was sleeping on most of the day. I have to clear the recycles that have been accumulating on my bed and empty my bedside trash. Sox are off tonight. They have eleven games left in the season. They have a chance of playing in the wild card if they continue to win games. I already am feeling nervous about these final games. Going to need Ativan for listening to them.