About my hiatus
I have been in the hospital the past three months. I was not in a state where I could write a blog. I was doped up most of the time and barely knew what was going on around me. I was sick with renal failure, covid, and infection called C diff. I was barely eating so they had place an nasogastric tube down in my stomach for a bit. I don’t know how long this tube was place. I had taken a pic of it sometime in Sept. I missed how the season ended for my Sox. When I came home for a bit, I thought it was the end of Aug but it was the beginning of Oct. I was home for a week or so before going back to the hospital for psych. I spent four weeks in the hospital on the psych unit. I got really good care there. I learned my top surgery was postponed and I was very, very devastated. It was good that I was in the hospital because if I wasn’t, I probably would have ended my life right then. I was so angry and frustrated as I didn’t have answers and had to wait for them. I had no access to my phone so I didn’t have the usual supports I have when I am home. It was extremely frustrating. The staff tried to help me but all they could do was sympathize with me. There was only one LGBTIQQ staff person on the unit and even she couldn’t really understand my predicament.
I have an appointment next week with my pcp to get medically cleared for top surgery. I really hope this conversation goes well. It will be the first time meeting my new pcp as a fully conscious being. The first two times I met her, I was still in the confused, delusional state. All I could do when I met her was blink my eyes and nod yes or no.
I am having difficulty writing in a constant stream of consciousness. It has taken me two days to write three hundred words for this blog. My thoughts are still hard to write with everything that I have been through. It was really difficult in the hospital as I really lost the ability to write. Writing has always been a coping mechanism for me and when I couldn’t think to write, it hurt, literally. I would get these headaches that felt like my brain was being crushed. It literally hurt to think. I got several migraines while in the hospital. I would wake up around 0330-430 every morning with severe migraines. It was terrible. The trauma of everything I went through was very difficult to process. I had become catatonic at one point.
I am still feeling wicked depressed and anxious at times. I am off all pain meds and off my Ativan. It is weird not taking meds around the clock like I once did for years. Now I just take it a few times a day as I am taking my blood pressure med three times a day and take the Latuda at dinner time. It makes me tired and I often find that by 1900 I am sleepy. But that could be because I have been waking up before 0500 most mornings. I find it hard to get back to sleep with these early morning awakenings. I am so much clear headed now than I was in the middle of October. My memory is still not there on what transpired the six weeks I was on the medical floor of the hospital. I just have these weird dreams/delusions that sometimes intrude in my head. One day while in the psych ward, I was flooded with memories and couldn’t make sense of things at all. The anxiety it produced was terrifying. I was convinced I killed my mother and a bunch of weird shit around my house. Taylor Swift music got me through a lot of the anxiety but while in the psych ward, I didn’t have my music to calm me so it was very difficult to cope. Now that I am home and have music again and my laptop, I am coping so much better. I am reunited with my online friends again and it feels so good because I was missed so much. I have missed blogging so much. I regret that I didn’t write before now but it has been hard finding my writing voice again. It has been a real struggle.
In closing, I am going to try and write a blog a day like before, even if it is less than 500 words.
Feeling depressed and another shitty night sleeping
I had a shitty night sleeping. I woke up around 0130 and had to pee. I stayed up for about a half hour then went back to sleep after drinking a half a bottle of Gatorade. I shouldn’t have done it, I know, but I did and then I woke up two hours later to empty my bladder again. This time I was awake. I had a bad dream just before waking me up and I was still pissed off at the doc appointment yesterday. He asked why I was on Latuda because I don’t have a diagnosis of psychosis in my file. I said it is because I have depression with psychosis. I am trying to shake this guy off but he is in my headspace for the time being. I told my mother about the appointment and she said I was on too many meds. Fucking a. I really felt crummy after that.
I’m still waiting for my catheter company to tell me that my insurance will cover the new prescription order. I received an email from them this morning so I don’t know if it was one of the automatic ones or if the insurance has gone through and they need information from me. I then cringed and called the dentist to see what the next step is for my tooth. She said it was a two part procedure and it is expensive. I asked if we could do a partial or a bridge or something. She said she would ask the dentist and get back to me. So I am waiting.
I need to take a shower today. It has been more than a week since I last showered. I have been feeling some gender dysphoria lately so kind of why. I am not happy with my body at all, especially the hair growth on my upper body. I sent a message to my doc asking if she knew why the pattern was inconsistent. I seem to have more hair on my left side than I do my right. I also hate the hairy boobs I have. Just makes me depressed. I can’t believe July is almost here. I see the top surgery surgeon in a few weeks. I have been aware of how nipples are on men’s bodies and been taking screen shots of the ones I like that I want for myself. I don’t know if it will be a graft or just a resize of my current nipples that they will do. I really hope that my weight doesn’t get in the way of this. It will just crush me if it does.
I am waiting for the pharmacy to text me saying my meds are ready. They have been “in progress” for several hours now and it still isn’t done. Last time it wasn’t ready till after 1400. My ankle has been throbbing since early this morning when I was up. I last took my pain meds around 0400. I have one pill left. I don’t want to take it until I know the pharmacy is going to have my meds ready. I got to fucking call them. Every fucking month it is something and always with the same meds. Always. Such a pain in the fucking ass.
Tiring day of appointments
I reluctantly got up this morning and didn’t want to leave the house. I had slept through the night but was still exhausted. I had coffee and then counted down the minutes to when I had to get ready to catch the bus. My legs were so heavy today as I walked to the bus stop. I knew it was going to be a challenging day for me as I had a lot of walking to do today.
I saw my PCP and we discussed my fatigue. He thinks it is multifactorial so he is sending a message to my psych team to try and find ways for me to sleep better. I told him my blood pressure has been high lately and he checked it. It was high so he is adding a new blood pressure medicine. Yay a new medicine. Not. I see him in three months.
I then went to my second appointment at the other end of the hospital for the covid blood draw. He couldn’t get me so asked one of the other medical assistants. She got me right away. After the blood draw I went to get my haircut. I slept on the train ride back home. I was so tired. I had to stop a few times.
I came home and was hungry. I didn’t feel like cooking so I had some cereal. I made a cup of coffee to try and avoid a nap. While I was eating, I did my shoulder exercises. I had worn the sling all morning so it was good to move it about. It still hurts. When I went to my room, I took off my sneakers and socks. Soon as I got into bed my ankle flared up and I had to take a BT med. I also took some ibuprofen for the shoulder pain. I don’t know why the CRPS is flaring lately. I started to hurt on the walk home from the bus stop. Each step I took was more painful than the last. I was dreading the last block home.
I am doing nothing tomorrow and if I sleep all day so be it. I am just going to have a down day. Might order pizza again. Actually, might order it tonight. I am a pizza junkie. I can eat pizza every day if I am able.
I need to schedule an eye exam so I can get new glasses. I haven’t had an exam in almost two years. I tried reading from my sunglasses today and it was difficult so I know my prescription has changed. I just don’t like the eye doctor I see. It is hard to see someone else because of my insurance. I’ll probably see someone by the end of the year though.
Just about eight weeks post op hysterectomy
I am just about eight weeks post op (tomorrow will officially mark the eighth week) and today was the first full active day I have had. I woke up and got up before eight this morning. I made myself an egg and had a cup of tea as I wanted tea. My friend sent it from England as a recovery gift. It was good tea. A little later I had a cup of coffee with the last of my creamer. My groceries arrived in the afternoon so I was going up and down stairs a lot. Then I went to the bank to deposit money so I wasn’t in the red anymore. I had to borrow money from my mother. I just hope I can pay her back when I get paid.
I came home and I was out of breath. It took me several minutes to catch it and relax. I was sweating the whole time I was bringing the groceries up the stairs and I was sweating again when I came home. I had stopped at the pharmacy before coming home to pick up my meds and that little fucking hill I have to walk up plus going up two flights of stairs with two bags of Gatorade bottles was too much for me. I had my appointment with my psychiatrist and luckily I was normally breathing by the time he logged on.
I told him I was depressed and he could see that I was. He offered some trans support website which I sent out to. There was another one which I tried to email but for some reason I was unable to copy the email address from Zoom. I had to write it down. I am not sure I am going to email this person because they are far from me and I don’t have a car to get there should they meet in person. Plus insurance is a factor as well. I rather go to a free group than have it be a therapeutic one which I have to pay for. I told him about the increase in Pristiq and he said that by the time we see each other next (in Nov), he hopes the med will provide me some relief of the depression. I told him about my B&B issues making me a hermit in the house. I just don’t feel comfortable using public restrooms to cath. I still have to go to the lab to give a urine sample to make sure I don’t have an infection. I have been having some bladder pain lately and even though my urine is clear, I want to make sure it really is.
I called uro today to schedule the appointment for the testing but the doc didn’t “order” the test that they could see so I have to wait for the medical assistant to call me. I was hoping to hear back from her this afternoon but nope, no calls. Tomorrow I have an early dentist appointment and plan to go to the hosp afterwards to drop off the urine sample. I just hope I wake up like I did today or the appointment might be missed. I have to leave a half hour before the appointment because I will be going uphill and I know I will be short of breath. I want to be sure I am breathing close to normal when I go to the office.
I am making a chicken pot pie for dinner. Tomorrow I might make a small marinara sauce so I can have spaghetti and meatballs. I hid my spaghetti so no one will eat it. Every time I want a particular pasta it seems to be gone as my nephew eats pasta all the time.
I had Starbucks while out so I am caffeinated for tonight’s ballgame. The stomach tightening has already begun with the stupid stat predictions and shit. If we can get to the starting pitcher early, we might have a chance to win. But our pitcher has to be nasty Nate or we will be in trouble. It is a win or go home kind of game so if we lose, we are done. Baseball season is over for me, at least with the Sox. It will continue with the winner of the game.
I think I did too much with the bags I had to carry. 45 bottles of Gatorade and 10 gallons of water I had to bring up the stairs. I am not supposed to be lifting anything over 10lbs at least for another four weeks. I am considered healed though as I am at the eight week mark. I wish my bladder was in better condition than what it is. I really hope the urodynamic testing gives me some answers that are favorable. Even if it shows that I don’t have to cath every time, I still have to cath for residual as I am not emptying my bladder when I void. I don’t know how going to a trans support group would be helpful with my medical issues but maybe having just someone that understands the dysphoria will help.