I am fricken exhausted. I only went to the pharmacy to get my meds and came right home. I feel so lifeless it isn’t funny. this so sucks having no stamina/endurance/energy to do anything. Pain is part of it too. it is just exhausting. After I went to the pharmacy I went to my sister’s apartment to relax a bit before going up the stairs. We talked a bit and I made the decision to call my PT to set up an appointment with her. The first available wasn’t ok in my schedule so it will be in two weeks. Now I got to call the Ride and schedule transportation to and from the place. I will do that tomorrow. I need to write down the appointments as I just took whatever might work for me.
I am so tired. I think I might go to bed early and hope I don’t wake up at 2 like I did last night. I had a hard time getting to sleep last night. I emptied my bladder and that helped a little but I still could not fall asleep and stay asleep. I had to get my meds and leave the house for a bit because I was getting cooped up again. I am hoping tomorrow I will get some energy to go to the butcher shop in the Square and get some burgers and steak. I want to make my chili cornbread casserole but it all depends on how my back feels in walking. It flared up big time by the time I came home so I just been laying low. I got the AC on because it is warm in my room. I can’t tolerate the heat at all.
Baseball draft is tonight. I don’t understand how it goes so I won’t be watching it. I will pay attention if the Sox sign someone. That will be the only interesting thing to hear. I remember last year we got a high school kid that was so excited. I forget his name. Hope we get some good pitchers this year. We really need them.
Not good enough
I had a difficult session with my therapist. She wanted to know why I didn’t text her when I was feeling suicidal thoughts but did to let her know I was in the ED. She said that I was “struggling” and thing is I really am not. I don’t know what the disconnect is. She keeps assuming things instead of asking how things are. Then she asked what I was going to do when I feel suicidal again and I told her I will manage. She said that wasn’t good enough. I got so frustrated at this point and I got mad. I don’t know what she wants from me. Her response always requires a different answer and I don’t have time to figure it out. I just try and figure things out as things come at me. I feel differently about things. I never feel the same about things. I might want to listen to music by someone specific or I might just want some group with no particular rhyme or reason. I might not want to listen to music. I might want to write instead. It all depends on the level of perturbation I am feeling that will drive what I do to cope. Last resorts will be to call a hotline.
It really bothered me that my therapist said this level of coping wasn’t good enough. I don’t know what she was looking for. I try and do the best I can when I am hit with the darkness and if that isn’t good enough, well, fuck you. I have decided that I am not going to text my therapist anymore. She doesn’t want me to anyways unless it is appointment related. I don’t know why I bother when it isn’t what she wants so I just won’t do it anymore.
Saturday Blog 30052020
Last few days have been rough. I haven’t been feeling well, emotionally or physically. Things just seem to be out of my grasp in handling them. I feel so low and the recent events of out west with George Floyd have hurt so much. I can only imagine the pain his family must be going through. I am glad the officer got arrested but more needs to be done. This cannot continue to happen but I know that it will. There are too many racists cops out there and people as well.
My ankle has been hurting me the past few days. It has been driving me up a fricken wall. Nothing I do helps it. I just been taking neurontin because the pain meds haven’t been touching it. Sucks when nothing helps your pain. It has been bringing me down. My back has also been bothering me with cramping up a storm. I have to take Zanaflex, which makes me sleepy. I have slept all day today because I was so tired. I have been waking up in the middle of the night because I had to pee or because of a weird dream. It gets so tiring. I have to cath most times because the urine urge isn’t strong enough. That has been irritating me, both physically and mentally. I know I still have the UTI. The NP called saying she had to switch antibiotics because it wasn’t effective. Now I am on the right one I hope to feel better soon. I feel so washed up it’s not funny. I wish there was a way to make things stop hurting. There is but no one wants me to do it.
I reached out to a friend the other night when I was feeling low. We have only just met on Twitter and been talking the past few months. She is a good person to talk to. She is almost like a shrink with her questions, LOL. I appreciate her though. It helps to talk to someone who gets it. She encouraged me to reach out to my other friends and I did. It was helpful.
I bought a new electric toothbrush. I feel like I would brush my teeth better with an electric one than a manual. It was on sale on Amazon for $20 so wasn’t bad. I just got to bring it downstairs so I can use it. It needs to be charged though. I think there is enough power in it for one brush though. I am dying to use it to see how I like it. It is a sonic toothbrush. I hope I do like it.
I wrote a letter to my therapist the other night about how things have been going. I think she read it. She didn’t respond to it, but then I wasn’t expecting a response. I told her about the difficulty of meeting virtually. I felt that was important for her to know as I am often so damn quiet because my thoughts are blank. I am not really thinking of anything, I just blank out. I don’t know if it is just the technology or what but it is so hard to focus on things when on the computer. Even when I am blogging I space out. But then I can always go to the internet to pass time. I can’t do that when you are talking to someone. That is just rude. I think there will be a way to work it out virtually but it will take some doing. I think she needs to ask more questions other than “what is going?”
Lady A just came out with a new song called Champagne night and I love this jam. It is so good. They played it live last night and it was awesome. I watched it for a little bit until I had to go to the bathroom for a million times. I have no idea what was wrong with my bladder and bowels last night but all I did was go. I think I have a UTI and for the bowels, I have no clue what was going on. It was so annoying.
The night before I posted a tweet that said what I needed to end my life and that things weren’t that much different than they were 25 years ago. I am reading Marsha Linehan’s memoir and found that between the ages of 18-20 we went through our own version of “hell” and while she became a famous psychologist, I am still suffering and wanting to end my life. I texted my therapist this tweet and I got met with a need to go to the hospital if I am not safe and if I am having thoughts than I need to call a hotline. Apparently telling your therapist these things is not an option. I am kind of mad but I am so used to people turning away when I am suicidal that at this point it is just expected. Except on Twitter where at least three people tweeted at me if I wanted to talk, I could talk to them. One of them DM’d me so we chatted for a bit until I fell asleep. I find this kind of support preferable to calling a hotline or going to the emergency room.
I had to restart Word as it needed to update. I was getting annoyed as I wanted to write stuff but I kept getting delayed. I should have just got the pad of paper and a pen and wrote. I think that is what I am going to do for the 200 word piece I want to write. It is still percolating in my brain. I keep thinking about it so it is close to being written soon. It takes me a while to write what I want, especially these days where one day melts into another. I want to stress that in my writing because I think it is important when you have a disability and lose track of time in this pandemic. I mostly just stay in my room because I am scared my visit to the pharmacy might have caused me to be exposed so I don’t want to expose my mother or sister or nephew. I just isolate and stay away from my family.
I had to go to the pharmacy tonight because I am almost out of the AZO pills for the UTI I have. I had to get some more and while I was out, I got a thing of Oreo ice cream because why not? It was not available in the grocery store when I went last but it was available in the pharmacy. I will take it! At six bucks a carton. Yikes, highway robbery though. I think it is worth it. You are paying for the convenience of the item but the price is about the same in the grocery store. I hope I will be able to buy groceries next week. I need some things again. I still have plenty of cereal but I want meat and fish. I was sad that they took away my beer battered fish. I will have to get it in the store now. I need to go to the store sometime next week. Maybe I can get my brother in law to take me. I just need a few items. My cousin was to take my yesterday but he “got better things to do” basically. I didn’t feel like going out yesterday anyways. I didn’t sleep well and I was really tired. I didn’t sleep last night either. Next door neighbor’s car had a squeaky belt so it woke me up at 0130. I couldn’t go back to sleep because I got a bad headache. I slept like every two hours. I finally gave up and then after breakfast, took a three hour nap. Just hope I can sleep tonight. Last night was difficult because some asshole decided to set off fireworks at 2330! WTF it isn’t even June yet! I hate assholes.