Cramping and don’t know why
Past two days I have felt cramps in my lower abdomen similar to period cramps but I no longer get them and I am worried it could be my bladder as they seem more intense when I am full or close to it. I still don’t have a clear sense to when I am full due to nerve damage I have suffered from. I am supposed to have urodynamic testing to see if my bladder has improved or not but scheduling has been difficult due to Covid. I need to bite the bullet and call to make the appointment. I also need to have a hysterectomy because if these cramps are uterine cramps I want the fucking thing gone. It is totally useless to me.
I have been in a bad mood all weekend, well, not really bad just really depressed and suicidal. I have been in so much pain with my ankle the past few days that the pain is really driving me insane. I’ve had to take more breakthrough meds just to get through the day and then my shoulders have been acting up so I have been in some serious pain last few days. I haven’t had anyone to talk to about it. I haven’t brought it up in group because physical pain is not really a mental health issue, though with it causing me to be suicidal, I guess you can say it is. I just have been zoning out in groups. I have my last week this week, thank god. I will be going five days this week, three groups per day. I tend to go to the first three groups unless the fourth one is interesting and I want to go to it. Then I will skip the DBT one for the fourth. The program had been helpful but now that I find myself in a semi crisis I am finding it didn’t really help that much. I found myself asking “ok, what skill or coping thing can I do”? but nothing was really coming to me as I didn’t know what to fucking do. I was in pain so going downstairs for an ice pack to use the TIPP skill wasn’t possible. I just wanted to die and as instantaneously as possible. Today has been better but these cramps are getting me down. I haven’t been faithfully taking my bladder spasm medication so it is possible my bladder is upset right now.
I just realized I forgot to do my meds this afternoon. I will have to do them soon as I need to take them in about an hour. Can’t believe I forgot. Today has just gotten away with me with all the pain I have been having. I got on my sister’s scale today and found that it was almost a ten pound difference between my scale. So all this time I thought I gained weight, I really lost weight. I feel better about this. My weight has been slowly decreasing over the past few weeks. I am really hoping to lose at least twenty-five pounds so I can have top surgery. I don’t know when I will have it but I hope it will be sometime this year.
I woke up at 3
I woke up at 3am and am still up so I ordered breakfast. I am kind of hungry. My mother’s baby monitor alarm went off shortly after I woke up. She had to go to the bathroom and my sister was there to help her. I was supposed to watch her tonight but got a flare after an emotional response to my mother after she called me a “she”. I hate when I get emotional flares of pain. I hate that CRPS is so dependent on my state of mind sometimes.
I had the breakfast but couldn’t finish the 3rd burrito. It was cold and I was already getting full. I thought about making a cup of tea but didn’t want to stay in the kitchen. I wanted to try to get back to bed. So I am writing a blog to exhaust myself before trying to get back to sleep. I had woken up with back pain which is never a good sign. I took some Tylenol to try and settle it down. I really hope I didn’t so something to my back. I see the neurosurgeon next week and I wanted him to sign me off but I am not so sure he will now that my back has flared up. I have been doing more stuff lately so I can understand why my back is flared. The sneeze I had yesterday morning didn’t help. I felt like I pulled a muscle and that is what it feels like.
I have lots to do today. I need to clear off a space in my room so it is less dusty. I also need to change my bedding. My new foam topper should be arriving today. I don’t know when but I hope it is in the morning and not the evening. My hope is to put it on my bed and then watch my mother while it settles on my bed. I have to have it like that for at least 24 hours. So I can’t be on my bed at that time. I am going to need a chair to sit down because I can’t stand while doing stuff for long periods. That will definitely flare me up more. I really need to get stuff done in my room. My sisters want to replace the rug with a wood laminate. I don’t mind. I hate having a rug anyways. I just hope my bed doesn’t roll on the floor. I got wheels on my bed that have sunk into the rug. One of them have broken due to the weight of me and the bed. But they are cheap plastic wheels so I am not surprised. I hope I can remove them and just have a stopper instead.
The other day I had a phone call with the reporter that is doing a book on suicide. He is interviewing people from the study I was involved in last year. We have become good friends. He asked me how the partial hospital was going with it being virtual. I told him how it was and how distant you can be while being online. You really don’t make friends with the group members because there is no real interaction.
I had ordered my meds by mail and I receive one of the two packages. I should be getting the other one sometime today. I hope so because I am running low on one of my meds. I am surprised it has taken this long. I usually get them right away after I get the email that said they have been shipped.
I am constipated again so I just took some Miralax. Surprisingly, I haven’t had the soft stool that I usually get while taking it, which is good because that means no accidents. I have lost the control of loose soft stool. I can’t keep it in anymore. Hard stuff I can but if it is soft and mushy, forget about it. I think I need to take Miralax regularly for a few days so that I can go every day. I feel backed up when I don’t go for a day or so. I feel like I should take 1000 mg of magnesium at night just so I can go. I hate being constipated. It is the worst feeling in the world.
One thing I have noticed since going to partial is that my suicidal thoughts have gone away. I am not so suicidal anymore. But I still wish that I was dead. I haven’t actively planned anything in a while. I think that is good. I will bring it up in therapy on Monday. I haven’t heard from partial about extending my time. I hope they do. I am so anxious about this. I hope they approve it and will be sad if they don’t.
Shit show of a day
So this morning as I was making coffee, I answered my mother’s phone. She was having some nursing come and her doctor’s nurse wanted to talk to her. Both women misgendered me and deadnamed me. One of the women couldn’t understand why I was going by G instead of my birth name and why I was a son and not a daughter as I was conflicting with her paperwork. I don’t understand why they couldn’t be gender affirmed in their care.
I shrugged it off as there was nothing I could do about it. I would have to tell my mother that I am her son and to refer me as it on her doctor’s records. I went to group and each one went ok. I had to miss the first one because I didn’t get an email in time telling me where the group was. For some reason I am not getting the email when they send it out. It worked out okay because the last group on the day was on gender. I was bored during some of the groups but it was ok.
My sister gave me the presents from my mother, including my birthday card that said “daughter”. I flipped out. I was so damn fucking hurt. And with the stuff that happened in the morning it really didn’t make me feel good. I texted my therapist, who is on vacation, and she flipped out and knew I was hurting. She asked who else I could reach out to. I had already sent a few messages out to friends that would talk to me. I put on some Bon Jovi to just listen to music. I wanted to listen to something that wouldn’t stir anything up.
I felt bad that I bothered my therapist. I wasn’t looking for support as I knew I wasn’t going to get it, with her being on vacation. I ordered a cheeseburger with mustard and pickles. I got the burger with ketchup. It even said on the paper mustard. Someone can’t read. I ate it anyway. I wasn’t going to let a burger go to waste.
My mother is doing ok. She is still weak. I am not too happy with her right now but there is nothing I can do about it right now. I have to somehow get over this, that she cannot accept me for me. But it hurts so much. I tried crying tonight about it but the tears wouldn’t come. I don’t know why when I felt tearful. I think the citalopram is the reason I can’t cry. It really sucks. I am glad my therapist is on vacation so I don’t have to deal with it.
Thanksgiving Eve 2020
My sister didn’t buy the squash that I wanted so I wanted to go today but I had to go to the post office to mail something out. I got stuck in the line so my sister went for me. I waited so long in line at the post office that my ankle flared up. It still is hurting me and I am trying so much to ignore it. It isn’t working. I am tired just from this excursion. God my ankle hurts. I didn’t go get my EKG today. I might go Friday if my sister isn’t doing anything. I will have her drive me there. It shouldn’t take too long. They are usually quick. I hate that I have to have it because my stupid breast is in the way because it is useless. I hate the things on my chest so much. It is really bothering me that I can’t get rid of them until I lose 25 lbs. I have been slowly losing weight but it is slow. I really think that this is discriminatory against overweight people to have them lose weight to affirm themselves. I don’t understand why you need to lose weight or be a certain BMI. If I had breast cancer I bet they wouldn’t say I needed to lose weight to remove the cancer. So stupid. Makes me so angry. It doesn’t help the gender dysphoria and it doesn’t help my mood that I have to fucking wait. I am so pissed off because losing weight is not easy.
I ordered lunch from my favorite sub shop. I can’t wait for the chicken kabob sandwich. It has been a long time since I had it. I bought myself an early birthday present for myself. I got a ticket to see Mary Chapin Carpenter at the Wolf Trap Center virtually for Friday night. I am so excited. And then I find out Taylor is on Disney plus so I will watch that tomorrow after dinner. It will be great to see Taylor and how she came with her new album. I love it. It is a really good mellow album.
I accidently took a double dose of Miralax today. I had a close to empty bottle so thought I would just take the rest didn’t realize there was enough for a dose in there. So I emptied the bottle in my glass. I just hope I don’t have colon blow or lose control of my bowels making an accident. I did my T shot today and didn’t hit a vein. I am so happy about that. Last couple of times I have hit one and there was a lot of blood after the shot. I can’t stand looking at my own blood. It makes me queasy.
I took a nap around 1600 and I am still tired. Hope I can sleep tonight. I know I took a late nap. I just took my night meds. I haven’t heard back from my psychiatrist. I had asked for a refill on the citalopram and haven’t gotten it yet. It still hasn’t been called in to the pharmacy. I hope I will hear from him on Friday as I will run out this weekend and I don’t see him till next week. Monday I will go get the EKG that I need. I wanted to go today but I wasn’t sure if the office had a half day or not because of tomorrow’s holiday.