Tuesday is Broken

Tuesday’s Broken

I was feeling pretty crappy today. Back pain was really bad and I just felt really, really down and worthless. I posted how I felt and someone responded with how I help people with how I feel with my posts and raw emotions. After I asked her if I could share her response and she said I could. I posted it on my IG and FB. I also sent a screen shot of it to my psych as she told me the things this person said, maybe not the way she said it, but the sentiment is the same. While I was thinking of all of this, Sugarland’s song, Tuesday is Broken popped into my head. I couldn’t find a more fitting song in that moment.

Last night I was transferring Gatorade from one bottle to another and ended up spilling it on my bedding. My back was hurting terribly so I wasn’t going to do it right then. I was cold because of the AC so I got some blankets and covered myself with those. The back pain didn’t ease up. When I woke up this morning to take my morning meds, I accidently doubled my dose of breakthrough meds and that made me very sleepy. I have been sleeping on and off all afternoon. I had sent my psych an email around 4 am saying I was worthless. I half expected her to call me but she didn’t. I also told her how suicidal I was feeling because my ankle and foot were no longer dissociating. I was getting crazy thoughts and wanted to go through with them so bad. I emailed her instead and that kind of lifted my load a bit. I have not heard from her at all. I hope she is getting my emails and they aren’t in cyber space somewhere. I haven’t been getting a “could not deliver” message so that is good. I think I have emailed her nearly every day this week. Been trying not to and the more I try, the more I fail. I just send her one email a day unless I am having a hard time, like I was last night. I honestly don’t remember being up at 4 but I must have because that is the time I sent the email. I think I also shut the AC off because of being cold. Today has been really hot that the AC is making my room cold but not an ice box. It is so fricken muggy in the house.

I made an egg burrito for the first time in ages. It was good. I put picante sauce in it before I rolled it up. I found that was better than spooning it onto it with each bite. I might make another tomorrow. I bought the flour tortillas. I have been eating them with chili. I fell in love with a Hormel chunky kind with beans. It has a little bit of a kick to it as my nose always runs when I eat it. I really want to make my cookies but it has been so fricken hot that I don’t want to be in my kitchen at all. Maybe I can convince my sisters to install a wall unit and shush my mother about it. It just makes cooking so hard in the summer.

I was still feeling a little sick after I ate. I think it was because of the pain meds. I took a Zofran so I wouldn’t hurl the contents of my stomach. I had coffee. I wanted another cup but my shirt was soaked with sweat and I didn’t want to stay in the kitchen anymore. The testosterone has so increased my sweating. I hate that I have to wear deodorant all the time now because otherwise, I stink within minutes in this heat, even if I just came out of the shower. I really hate that I have to put off top surgery until the construction is done. I am starting to look stupid because I have facial hair and female boobs. I so hate the things on my chest. I hate them more and more every single day. I think that is why I have been feeling such loathing and worthlessness. I have no idea how to counteract the gender dysphoria. I have been shaving again. I had wanted to stop to see what grew but my nephew said that if I keep shaving it will grow faster so I am doing that. There is one slight problem…I like having a smooth face so I am not sure growing a beard, even though I really want one, is going to be possible. I could just grow it and see how it feels and then if I don’t like it, shave it off. I am not going to let it grow crazy like my nephew does. I can’t stand when men do that. It just drives me crazy. I like when it is neat. Maybe it is just me.

The good news is that because I rested and took meds, my back isn’t hurting me as much. It could have flared up because the thunderstorms were passing through and the pressure changes set it off as well. Either way, I am just glad I can move without pain again. My foot is killing me but that is a constant thing that will never go away. I just hope it doesn’t make me suicidal again like it did last night. Pain had jumped from a 12 to a 15 to a 17 within a few hours. I am really exhausted from it, even though I really haven’t done much today. Tomorrow I want to take down the recycling in my room as it has been growing. I just got some study money for Amazon so I might order the bins I was looking at. I was planning on getting four but I might get six. I was going to buy another foam topper that DOESN’T fucking move but I am too afraid it is going to make me hot because of the gel. I also don’t have a place I can spread it out on for 24 hours. I might sleep in the recliner in the living room if I do get it. It has to air out for that long in order for it to “set.” It is also summer so being in the living room right now would totally fucking suck because it will be hot as hell and I won’t be able to sleep. I am completely heat intolerant because of the nerve injury and T. I might hold off till after the construction so I can maybe place it in the dining room floor for 24 hours and then carry it up to my room. I just hope it doesn’t sell out by then because I will be pissed!

Feeling anxious again so I took my pulse. It dropped 5 points since I last took it. It has been steadily dropping today. After I ate it went up to 89, then went down to 63 and now it is 58. It will probably get lower as the night goes on. I have no idea why my pulse drops when I am in pain. My blood pressure is good; I don’t get hypotensive or hypertensive. I just hate feeling fearful for no reason. I hope tomorrow I can do some more stuff around my room, like putting more clothes in the drawers that I cleared out. Or maybe just put my PJs in there so I know where they are, if I remember LOL. I also had trouble peeing today because I forgot to take my urine retention pill. I was having bad bladder pains and spasms. I was wondering why and then I realized I hadn’t peed since the morning. I wasn’t getting the urge to go because that fucking connection seems to want to work when it wants to work, not when it is supposed to thanks to Cauda Equina Syndrome. My sister was yelling at my mother for something so I didn’t want to go downstairs. I hate that I am walking on eggshells in my own house again because of the bitch bully.

Writing difficulties and dealing with shit

Writing difficulties and dealing with shit

***warning long read***

I have been having trouble writing my blogs. I have been going through some turmoil about my psych leaving. I have been in contact her with email but it isn’t the same. I feel like I lost a parent. Because of this, I have lost my words. Past few days, I have not been able to write because even though there is stuff to write about, I just can’t get it. It is really difficult. Before I left seeing my psych we talked about my writing and writing in general. I half want to send her a message telling her I have been having difficulty writing since she left but not sure that is appropriate as I don’t want to make it seem like her leaving is the reason I cannot write. I am so mad at the place she and I worked at because they forced out for obviously different reasons. I think this anger is what is getting in the way of my writing. She wants me to continue my care there. And frankly, I really don’t want to leave as I finally found a doctor that can work with me and has a good team that cares. That is rare to find these days.

Day before yesterday (the 2nd), I had my appointment with my TG doc (transgender). We discussed how things were going and I am pleased with the results. I sort of have a hair explosion which I knew was going to happen but damn, my legs are really hairy now. She told me that T can cause increase in sweating and OMG that hit me like a ton of bricks. I sweat really bad anyway because of my nerve injury and now it is worse. The weather has been really muggy and hot and because of the sweating, I had to go through like 3 shirts in one day over a couple of days. I couldn’t understand why I was so damn hot and now I realize it is because of hormones adding to my already messed up temperature settings. I asked her if she was going to increase the T dose and she said no because my testosterone blood level is in the “male” range. I had my blood drawn yesterday and I guess I made the cut off for running hormones as my T result came back. It was nearly double what it was in Jan. Holy crap. I looked up the normal range for males and I am close to being in the middle of it. So I will stay on the dose. My hematocrit has increased though my energy levels haven’t. Hematocrit levels shows if you are anemic or not. I was always in the 30s range. Now I am in the 40s. Thing is my numbers have steadily increased and she told me that she doesn’t want my blood to become viscous due to increase in blood production in the bone marrow. I am fine with the dose as it is. She also said that it is a time process so the longer I am taking the T, the more it will build up in my system. I felt good about that but also am a little impatient!

Before I started my blog, I had a chat with my nephew. I am so glad I can talk to him about men stuff. I had asked him about the facial hair and he said that shaving it will make it grow faster. I had wanted to hold off shaving the rest of the month to see what will grow as the fuzz around my face is becoming more noticeable but is not really dark enough yet. It is there but kind of faded. So when I take a shower today, I will shave. I might trim my sideburns a little bit. They are now past my earlobes so it will be only a matter of time before the rest fills in. One day I really want to go downstairs with facial hair just to freak my mother out. She has not been accepting of transgendered people. My brother in law’s nephew is trans and there was a period of time where we didn’t see him. When we did, he had almost a full beard and my mother exclaimed, “what the hell is on your face?!” I nearly died from embarrassment and also felt the sting of it because I knew then she would not accept me when I did grow a beard or when I came out to her. I was right about it and it still hurts. I have tried talking to her about it but she is adamant that is “accepting.” When I was in the hospital, I had asked her during my last weekend there when is she going to accept me. Her response was in a strained voice as she said “she has accepted since I was born.” The other stuff we talked about I knew was making it uncomfortable for her. I can pick up things, I always have as I have been empathic and sensitive. We haven’t talked about it since, though she is trying to use my pronouns and name more, unlike my sister that moved in. She has yet to call me a him/he and will call me my birthname. I am glad my youngest sister is more accepting but if she messes up, she will correct herself. I am not sure if my brother in law knows I am or not. I haven’t told him and I am not sure my sister (youngest) has either. The kids (nieces and nephew) have been more accepting and I think knew before I came out to them. It has been a process for everyone. My online friends have been the most accepting and supportive. They really like the transition photos as they can see the changes. I had recently done a ten week transition post and even then you can see a change. I really don’t like my day 1 pic anymore. But I think that has more to do with me hating myself and being uncomfortable with myself for basically two reasons: I am not congruent to what I am and that my father called me ugly and fat my whole life. I do think I am ugly and obviously I am fat. The TG had the “weight talk” with me. Even though I had lost 12 pounds since I last saw her and I told her it was because of me not eating, she still wants me to lose more. I have no idea why doctors feel they have to say the obvious. I cannot stand it because it makes me feel more ashamed of myself.

I had appointments all week. Today and the rest of the week I am not doing anything. My legs are so sore from everything. Monday when I went to PT things looked good. I have two sessions left and then I will “graduate.” I have been going for nearly six months trying to get my right (good) ankle/foot stronger. I don’t think I can get the calf to loosen. It has been the most aggravating part over the course of treatment. Every time I try to stretch, I hurt the next day in a big way. I pretty much have given up on it. I have also given up on trying to get my balance better only because I need to be standing and my CRPS foot/ankle doesn’t like it. It can trigger a flare. Tues after I saw my TG doc, I had a flare and for the first time, a few hours later, I dissociated. I felt like I didn’t have a foot/ankle anymore and the pain was not there. It was very fucking weird. This lasted until this morning when I woke up at 2 am because of back and hip pain. I have gotten into this habit while sleeping to twist my upper body is one way and my pelvis/hip is the opposite. I had some pain that was about an 8 so I took my breakthrough meds and some Neurontin. When I was having difficulty going back to sleep, I took some melatonin. I now have a hangover from it but that is what coffee is for. I still don’t have mega pain and this worries me. I had emailed my psych about this but never got a response about it.

Yesterday I saw my eye doctor, which I am not going back to again. She didn’t really help me and I feel like she didn’t get what I was telling her as I really couldn’t see the letters out of my right eye clearly. No matter how I told her that, she just kept adjusting the lenses on the thing and nothing worked. Then she went to the other eye. After that she just said my prescription changed a little. I was like WTF. How the hell could it have changed a little when I cannot see out of my right eye from far away??? I had gone to see her not only for a regular eye exam but also due to my having double vision. I had told my psych as I thought it might be the Lamictal and she said it is. I needed to be under supervision to taper down the dose so she is trying to speed up seeing another psychiatrist. But after the exam, it turns out that my right eye is “lazy” meaning the muscles are weak and get worse when I am tired, hence the double vision. The problem is not problematic enough for me to have a prism in my eyeglasses, but if it gets worse, I will need it. I feel like I might need it now as I could not see just one frame the whole time she was trying to get me to see one. I kept on seeing two or the corner or half of the other frame. Again, she did not listen to me and just went on with her business. I will be seeing my mother’s eye doctor. He is an ophthalmologist which is what I sort of need. My mother confused me because she said a “nurse” did the eye exam and then he went over what they did to okay it. I tried to get more information out of her but she doesn’t know who the person is that is testing her vision. She never asks the questions just goes along with it. I am sure if the doctor said that if she jumped off a bridge would help her, she would. So now I got to get another eye exam, which needs to be on Medicare, not my eye insurance. I am not sure Medicare covers eye exams. I know the insurance that I have does but they will not cover it because I have Medicare. I am so annoyed at this. I won’t be getting new glasses until I get another eye exam. I want to make sure the prescription is right and won’t cause my eyes to strain or get tired while reading on my phone or while I am on the computer or even looking at something far away like a street sign or something. I have always known my right eye has been weak but hell, least listen to me when I say I cannot see the letters!

After the appointment, I sent an email to my psych telling her the double vision was likely not due to the Lamictal but having the lazy eye problem. I never got a response back. I then emailed her about still being in a dissociated state. I wish she would have responded but she didn’t. I miss her and it has only been a week since I last saw her.

I guess that is all. I might do a weekly blog if I don’t write every day or every other day, like I am doing now. I know it is long and I apologize. I just wanted to write how things are going for me. It has been a real struggle and my pain has not helped my suicidality. I still have my plan and I know one day I will go through with it. Just not now.

tough painful week

Tough painful week

I’ve had a rough week both physically and emotionally. Monday I semi said goodbye to my psych of 26 years. She still wants to care for me so when she finds another home, she will call me. She is not sure where she will be as she has not thought that far. I totally understand that. I figure it might be a few months but in the meantime I will still be in contact with her either through phone or email. I started having side effects of my mood stabilizer, which is really bad timing as I am not currently under direct care of a psychiatrist. My psych is trying to push seeing someone faster. My pcp’s social worker is also trying to get me to see a gender affirming psych that is joining the clinic. I just had bloods drawn for a level as last time I was barely therapeutic. I am having double vision and just to make sure there isn’t something wrong with my eyes, I am seeing my eye doc next week.

I had PT which was sort of good. On Saturday, I did some stuff around my room. Sunday I did a little more even though my back didn’t like it. Monday I was okay until I was coming home from my psych’s appointment. Back flared up terribly. I was still hurting when I saw my PT on Tuesday. She gave me some decompressing exercises to do. I was really hurting past few days as I have been having pain go down my leg and the pain was near my spine yesterday when I was coming home from the therapist appointment.

The therapist appointment went well. I found out what kind of therapist she is and I think it is going to work out. She loves the Sox and we both have the same favorite player, though she is a lot more obsessive than I am about him!! At one point, I thought she was going to jump down my throat when I was criticizing him and she stopped me before I could say anything. Yikes! I have my next appointment with her the week after next. She is a CBT therapist but also has some DBT stuff. I am going to bring her my copy of Craig Bryan’s CBT for suicide attempters and see if she is receptive to it. If she isn’t, then I guess that will be okay and we can go from there. I will have a hard time with it though as I feel like I have all these things that could possibly help me with my suicidality but I don’t have a therapist to go along with it and it frustrates the hell out of me! I did ask her if she would turn me away and she said no. I was relieved to hear this. Maybe she will work out after all.

My sister had sent me texts Wed saying she wanted to take my stuff upstairs today. I told her no as I knew I would be hurting as I have all week. Fortunately, she decided to go to the beach so I didn’t have to deal with her. We haven’t really spoken kind words to each other since she moved in. I really don’t care as she really hasn’t been there and doesn’t understand anything I have been going through since I have been on disability. I really don’t see this changing. Maybe when the work on the house is done with but certainly not right now.

A couple of hours ago, I used the bathroom. I normally don’t really look in the mirror as I hate my face. Today I did and much to my surprise, I have darker hair around my jawline! The fuzz is becoming darker. I was so excited. I knew I had to post transition pics, which I did on Instagram and facebook. I kind of did on Twitter, too, though didn’t give as big a description. Kind of hard to do when you only have 240 characters. I just sent it out to a couple of people that want to keep track of my transition. I hope when my T gets increased next week, the facial hair will come in faster and darker. I would love to come downstairs one morning and shock the hell out of my mother with a beard. I am not sure she knows I am on T. I sure as hell didn’t tell her. I am not sure if she asked my sisters or if my sisters told her. She hasn’t said a word to me about anything. I have mentioned that I will be having my breasts removed. She didn’t seem to like that at all. Yet she wants me to be “happy.” I don’t think I can ever be happy as I don’t know what the hell it is. I rather be content but the way things are going, I doubt that will ever happen. I forced myself to shower because some icky water fell on me. I have this thing that turns musty smells to water and the container fell on me. I had to shower. I was hurting afterwards. My back wanted to kill me. I started getting suicidal thoughts again. I have been having them on and off since being discharged from the hospital. They haven’t been really bad like they were. I have thought on a few occasions to end it and started to plan it but once the pain backed off, so did the planning. I just wish something helped with the flares. Since changing my meds to something else, nothing has worked for the flares. The 24/7 pain has been lowered. I wake up with a 2 or 3 but sometimes if I have more than a few days activity, I will have ankle/foot pain that is more than I can bear. I haven’t been able to find something to help ease that pain. Distraction works but only to a point. I could watch a movie but soon as that movie is over, the pain returns, sometimes worse than what it was before I started watching the movie. Last night I did five cryptograms. It was really cool as I really miss doing them. I started to remember the hacks. Some were really too difficult for me so had to go to a new puzzle. One quote was perfect for my psych so I sent it to her. I also sent her the transition pics and the excitement about growing in a beard. I half want to shave the stuff off just to see if it would grow back thicker but my friends told me to leave it alone. Hair under my chin is growing more together. Just wish it was in the middle of my chin. There is still a bare spot.

Guess that is all for today. Not sure if I will post over the weekend. It has been difficult finding my words lately, hence the spotty posts. Thanks for reading and understanding.

gender dysphoria flares again

Gender dysphoria flares again

I had PT today. I didn’t get to drink more than one cup of coffee. I could barely finish the cup as I had to run. I was in slow mo today as I was just so tired. I had another bad night sleeping. I really have no idea what time I fell asleep but I know it was after 0230. I got dressed and wore my favorite flannel shirt that I found last night while going through my clothes.

Because of the standing and sort of half bending I did (with breaks because my back wasn’t having it), my hammy on the left and both calves were killing me. I could barely move which further slowed me down. I had the button down flannel on and it was a little tight in the chest area, so much so that it triggered my loathing of the things on me. I tried to ignore it and listen to my music but it was like a band around me and I hated it so bad. I thought about top surgery again. I honestly don’t know if I can do it, especially as I am really suicidal right now. I just don’t feel that is a priority right now. At the same time, I want these stupid things off. I hate myself for being in the wrong body. It also sort of throws gas on the suicidal fire that is going on.

I came home after getting some pizza at one of the local pizza places. I got the Sicilian kind as I really wanted it. I found five bucks in the shirt so it was sort of a reward. By the time I got to my room to change, my fucking legs gave up on me and both feet were killing me. I got my laptop and was scrolling through Twitter. There was a physician weekly chat and the topic today was insurances, specifically how they deny services or delay care due to prior authorizations. It made me think of top surgery and moving forward with it as I am not sure my insurance will cover it and then I will be screwed. My PCP had mentioned that it will take some doing with both of my insurances to get the surgery covered. There is a meeting of transmen I am thinking of attending the first week in April, if I don’t end up ending things before then.

I’ve had it with my fucking mother. She has been calling me my birthname the past few days and today with all the gender dysphoria going on, I just can’t deal. It is sending me further down the black hole I am in. She refuses to call me by my legal name or use the right pronouns. I am so fucking upset. I just feel like I am a fucking outsider in my own home. No one in my house respects me. I give it to them. I guess I am not worth the same in return. I am just done. I got three more notes to write. Hope I can do it. No one is to blame except me.