A busy past few days
I have a busy week with a lot of appointments. I had two today, back to back. Tomorrow I see my pcp to discuss my cardiac markers and a BP med. I am hoping she listens to me and puts me back on labetalol rather than another med. But if she isn’t open to it, then I will go on what she suggests.
I saw my TG doc today. She had a fellow interview me first. Things went well. The fellow tried to get me a 5mL vial of T but the pharmacy just filled a 1mL vial. I have enough T to last me the next few injections. She also referred me to plastic surgery so I could get a top surgery consult started. I am glad because my pcp never responded to my request from last week. The fellow also answered my concern about whether T had caused the dislocation in my shoulder. It didn’t. I am glad. She did say that because I had removal of my ovaries, I have to be concerned about my bone health. But I am still young enough that I don’t have to go for a bone scan. The only bone scan I want to do is on my shin to see if the CRPS has spread to it. I have been having severe pain for no reason and it is worrying me.
After my TG appointment, I had the chronic pain group, which had already started. I was about fifteen minutes late but they accepted me anyways. We had a good chat about families not getting our disabilities and I told them how rough it was living with my sister who triggers my PTSD often. I also came out to them as transgender and they didn’t seem to care, which I was glad about. We also talked about how our families don’t believe our pain and disability. It was a good group. I did talk about how my therapy session went and got support around it. There maybe future discussions about CBT.
I had therapy yesterday and we talked about my ED visit went. I told her I was freaking out over my lab results, thinking I was having a heart attack. Tomorrow when I see my pcp I am going to discuss what the lab values mean as having this marker in the blood indicates some kind of cardiac injury. I also asked my therapist if we could role play a bit about me asking for the blood pressure medication that I want so that I don’t get turned down. I didn’t want to come off as obstinate but I really think this med will be better as I have been on it before and had little to no side effects from it. We talked for more than a few minutes about it and I wrote down how to approach my pcp on this issue. I just hope I remember.
We then talked about how I feel we are divided and not on the same page about things. That is when she said to me “take the reins”. I was like what? She repeated what she said, adding that I was in charge. I was flustered. I couldn’t believe what she had said so I got my journal that has the notes to the bCBT book and shared with her what a structured session looks like. It had listed “agenda” and then went on to list other things. I asked the author of the book what is meant by this and he gave me a more descriptive outline of what the session looks like. I think there should have been an “:” to indicate this. So I went to my blog for the crisis response plan (Suicide Crisis Response Plan – midnightdemons7). This needs to be reviewed. In it, it said that if I get specific I should contact my therapist or psychiatrist. I should ask them if this is right or if I should just go to the psych ED. My therapist might not be available but I will bring it up with her when I meet with her next as that is when we will start with the new sessions I guess. She agreed to allow a new skill to be introduced and to practice it while in session. I think this is going to work out now as this seems more collaborative than what it was in the past where I spent the time just talking or not talking during session. I asked her if she was more DBT oriented or CBT. She said she was CBT so that will help a lot during the next few weeks. I am glad this is happening because I really felt like we were going on different directions. It just seemed like we would talk about stuff and then she would ask what is helpful but never follow up on what was helpful during the week or if I had practiced or done what was helpful. Mostly that meant me reading this manual for discussion. I felt like I was alone in reading it but it not going anywhere. I also felt like it was pointless to read if I couldn’t share what I was reading.
I have a busy week. Tomorrow I see my pcp and that is going to take a lot of energy. I wanted to get my hair trimmed but my barber had a death in the family. I contacted him today and he said his sister died. Her breast cancer had come back and it wasn’t a good prognosis. I am surprised she last this long. It was more than a year since she was diagnosed with this. I set up an appointment with him for Sat. Fri I plan on making his favorite dish, chili cornbread. I just have to get the ingredients. I will Thurs after my session with my psychiatrist. I will also ask him if I can contact him in an emergency as we have never discuss this before. There wasn’t really a need to as I really haven’t been in crisis since he became my psychopharmacologist.
By Sunday, I am just going to rest as I will need it. I don’t know when I will be able to read. I got hit with a flare up and couldn’t finish this blog yesterday. The flare was so bad that the bones in my foot and leg were aching very deeply and intensely. The pain in my leg is higher than it was and I fear that the CRPS is spreading. I want to contact my neuro and see if I can get a bone scan to see if it is CRPS or something else. I don’t think an X-ray will show anything as It only hurts when my ankle or foot is flared up and when I am resting on my bed. It doesn’t hurt when I put weight on it or walk on it. It is a very unusual type of pain when it comes on. I am feeling better because I got some sleep. I woke up around 0030 and had something to eat as I was hungry. I had honey nut cheerios. I emptied my bladder because it had been more than five hours since I last emptied it. I probably will have to go again as I drank the milk in the cereal and had some water afterwards. It’s 0130 now and I am not so tired. I might read the book for a bit until I am tired and can get back to sleep. My pain has finally settled down.
I got my blinders on and my anxiety has taken the reins. We were able to talk about it. I got one of the reins back but not the other one. I am so set on disappointment that my suicidality is in only mode which is a huge red flag. Therapist knows this even though I am being vague. She said psychologically I am ok to have the surgery but that doesn’t mean my physiology is ok, meaning the damn BMI may hinder surgery. I need to wait till April 19th with this weight of anxiety on me and suicidality. Every day is going to be hard and this dysphoria doesn’t help. Hating my body because I am not a male is killing me. I want to be flat chested and I don’t care if I have nipples or not. That isn’t important to me. Having the breast tissue gone is what is important to me. I won’t have bottom surgery because my privates don’t work right as it is. Taking out my clit and vagina doesn’t appeal to me. I actually like them so they are staying. Uterus is gone so no more periods to worry about. But if my size is what is going to keep this breast on, I am dead. I have it all planned out. Which is why I am trying to remain hopeful it will go ok and I won’t be rejected. If I have to wait due to damn covid fine. But if I have to wait because I need to lose 40lbs. Nope. Nice knowing you all. Blinders are saying this. I need More options or the entrapment I feel will suffocate me. Constriction and perturbation is high. That is all I will say for now.
The past few months have been weird as my therapist has noticed that I am more future thinking than I was in the past. I attribute this to losing hopelessness. I don’t know when it happened. I started feeling less suicidal and wanting to move forward with my transition. It is unusual for me to think of future thinking such as having top surgery and doing what is required to get it done. I feel like I lost some of my suicidality. I just don’t see things as dark or dire anymore. I have noticed that my CRPS pain isn’t at the high levels it once was and maybe, because the chronic pain isn’t so bad, I have become more hopeful about the future.
It is a strange feeling to go from complete hopelessness to being hopeful in a few months. The depression seems more manageable than it was and so the psychache that I feel isn’t as great. I have gone from feeling suicidal on a daily basis to really only when my pain levels are at a 10 or above. The feelings of not being able to escape have gone away as well. For the first time in my life I feel I have a future. I want to lose weight so I can lose the things on my chest. I can picture myself doing this where it seemed impossible before. I can’t attribute this to one thing because I think it is a combination of things. One is the alliance of my therapist and psychiatrist, possible medication has eased the depression symptoms enough that I can see beyond the horizon and not feel like I am drowning so much. Also better pain control and accepting my physical dysfunctions are now a part of my life that is not going to go away anytime soon. I also think that having a community on social media has helped during the dark times because just when I am at my lowest there are people saying that I matter and that they are glad I am still here. Words like that help when you feel like scum of the earth for no reason or when the pain is so bad all you can think about is death.
I also think music has helped to ease the troubles I have faced. For months now, I have been listening to Taylor Swift’s albums, new and old. Her evermore and folklore songs have brought meaning to me as well as the extra songs in her Fearless (Taylor’s Version) album. To identify with lyrics is powerful and meaningful. The songs help to heal the traumas I have been through as well as heal from past relationships and deal with current ones. In her 1989 album, I found a song that I can relate to my current therapist with that helped to deal with our rocky relationship. This therapist has helped me to see things differently and also to come to the realization that I have serious depression. It is something that I always knew but never spoke aloud before. Working through the severity of the depression has been difficult. I think I have come to terms with it and thus the hopelessness it has given me doesn’t seem to strangle me like it once did.
Sunday Blog 22082021
Post op day 4 hysterectomy
I got some good sleep finally. I feel really good. I am not in as much pain as I was in yesterday. I made sure to empty my bladder throughout the night and that helped. I am cathing every four hours to make sure I am empty completely. It hurts to void so that is why I am cathing. My genital area is sore but that is to be expected and the vaginal entrance is a little swollen. I noticed some clear discharge that is not mentioned at all with the post op stuff so I hope it is nothing to be worried about. I sent my surgeon a message anyway to ask if it is a concern or not.
Only thing I am planning on doing today is reading my MLB book. I started reading it last night as I couldn’t sleep. I read for about an hour and it helped to relax. I wanted to finish the chapter but it was too long. It was covering the two decades of 1900 and 1910. A lot of interesting baseball stuff happened during those years. I am having my doubts about being able to write a book about the history of team names. There is a lot of cross over between the leagues and some cities stays and it just gets confusing because things changed year to year, season to season.
I also plan on watching DS9. I can only watch so much TV before I get bored so if I watch two episodes, I will call that a win. Because of Tropical Storm Henri, baseball has been canceled for today in the New England area. We already had a tremendous thunderstorm and heavy rain. It is supposed to continue until tomorrow. I just hope nothing floods.
I am trying to fight off a nap right now. I am so tired from just having a cup of coffee and some breakfast. I know I am tired from post op. That is a given. It just comes on so suddenly that it is overwhelming sometimes. I am not having a lot of pain today. I made sure I took my pain meds during the night as I had my med alarm set to go off. I still only slept every three hours or so because I had to empty my bladder. My bladder seems to have its own schedule. I am glad I cath. It makes me feel like a man because I am standing while peeing.
I have been in the mood to write something profound but words are escaping me. I want to write a letter to my therapist about my trauma, just talking about one aspect of it and see where it leads me. I have so much emotion pent up in me right now that I think writing about it might help. I might post it on my blog if it isn’t too graphic in detail. I think writing about my cousin’s molestations might be helpful for me. I have been having intrusive memories about it the past few days. The one thing about anesthesia that I had is it brings things to the surface that you are trying to keep undercover. But with trauma there is always something under the surface. Anything that has to do with my genitals is a trigger for my sexual abuse to be in the forefront of my mind, even if I am not conscious of it.