The first of November 2020
I have four birthdays to celebrate today. Three are friends and one is a family member. It is the beginning of birthday month. I always dread it and this year, I am dreading it more so because my aunt is no longer alive. Every time I think of her death, I am panged with grief and heartache. I talked to my sister about celebrating her birthday and we agreed to go by the cemetery where she is buried.
I shaved and showered today and it came at a price. My foot bones acted up and I am still hurting hours later. I took a pain med because I had to. I am close to crying the pain is so bad. I had to shower because I smelled so bad. It has been more than a week since I last showered. I had taken an Ativan so my back didn’t cramp up so bad. It did anyway but resting helped ease it. I wished the hot water helped but it didn’t. It did help some of the tension in my neck and shoulders. I found that soothing.
I did my meds for the week. I almost forgot to do them. I usually do them around 2pm every Sunday but I wasn’t in the mood this week as I was just getting up. I figure I would do them before I wrote my blog for the day and I did. Now one less thing to worry about. Twitter is annoying me with me vote stuff. One of the historians I follow was talking about past elections and I can’t stand it. The next few days are going to be rough. Between Covid and election talk, I am stressed out. I only leave my house if I have to. I have not even left my room long enough to empty my recycles and trash. I have to do this this week because my AC needs to come out before the weather gets colder. I would have had it removed today but it is raining again.
I need to find my heating pad. I want to see if maybe using that on my back will help the cramps/spasms. I sent a message to my surgeon about what to do. Hopefully I will get an answer by Tues. If not I will call and see what he recommends. I have had it with all these cramps and nothing but rest helping.
I see my therapist tomorrow. I am kind of nervous about it. I don’t know what to talk about. I have been racking my brain about things to talk about but nothing comes to mind. I have an anniversary of when I went into the hospital back in 1994 coming up later this week. I always remember it because I wanted to die on Nov 5th. I really wanted to die that year. I was in one of the worst depressions of my life. It started in August and didn’t end till maybe June of 1995. It was a long depression. I had started college about two weeks after I got discharged from the hospital. I made the Dean’s list that semester. It was the only time I made it. Self-doubt nearly destroyed me after that. I felt like I was just not good enough.
Saturday Blog 17102020
I have had a tiring day. I again woke up in the early morning hours so I felt sleepy. I took a shower and that made me more tired. I wanted to make myself something to eat but my sister was using all the available kitchen space to make muffins, a pie, and a chili. I envy her energy because I would have stopped at the muffins. When she had finished putting thing back and there was counter space, I made myself something to eat, which caused back spasms to happen. They happened while I was showering so I was getting beat down.
I felt so depressed the past few days because my uncle died yesterday. I am filled with grief. My father’s side of the family is gone. My aunts and uncles are all dead. I just have my cousins now. And for this to happen close to a year since my aunt passed away last year is just too much.
I really didn’t eat that much today other than having a pop tart with my second cup of coffee. I wanted tacos so I ordered some. They were just the thing to kill the hunger. My belly is happy. I have been fighting sleep the past three hours. I thought I would blog before I laid down to slumber. I went to the pharmacy today without taking my muscle relaxers. OMG I nearly died while I was in the store. I had to sit down for a bit after I was called four customers later. I wondered how I was going to get home but I made it. I had to pull the mask off when I was three houses away. I couldn’t catch my breath going up the hill. I felt like I was going to fall over at any second. I was cursing myself going out because every time I go out when I am tired this happens. Now I am exhausted. I haven’t brushed my teeth or washed my face. I really need to wash my face because of the cut I gave myself shaving needs cleaning so I can put Neosporin on it. I hate that I can’t shave right now because the cut is a little deep and I don’t want to reopen it accidently.
I had my appointment with my psychopharm NP. She had nose surgery so her face was all banged up. I felt bad for her. We talked about my cousin who passed away last week. She said I should write about it. There really isn’t much to write about. She died from unknown causes at this time. We will know more once the autopsy is done. I think she had a cardiac arrest. It is sad because she is the first female in my family to die suddenly. And so young; she was only 50. I will miss her. I hope she is in peace now where ever she may be.
I have one more appointment with her and it will be our last as I will be seeing a new psychiatrist next week. I hope I get along with him. I don’t like that I have to see someone new in such a short time period. I started seeing this NP last Oct and it hasn’t been a year yet and she is leaving me. I really liked her. She was good. I liked seeing her. Now I got to start over with someone new. I miss my psych so much and wish I could see her again. She said I am in good hands where I am now. I hope that she is right.
I am so exhausted I don’t think I am going to be up for the second Sox game tonight. I wanted to listen to it but I am just too tired I can’t keep my eyes open. They are playing a double header today and lost their first game. Fucking Barnes blew the save. I really despise this pitcher. He always seems to lose games. My favorite player was put on the 45 day IL list today. He won’t be back this season. Just as well.
Neurosurg appointment and other things
I didn’t want to get out of bed today. I didn’t sleep well. I was up most of the night in pain then in the morning I kept on having to run to the bathroom because of bladder and bowels ready to unleash themselves. I didn’t know if I would be able to go to my appointment because my bowels were acting up. They settled down but I was so fricken tired. I never showered like I wanted to. I stunk. I honestly don’t remember the last time I showered. Probably last week. It was snowing all day so walking was not the best.
The neurosurgeon had no idea why my bladder is not functioning the way it should. There is nothing he can see but thinks it could be a tethered cord and I have to get a special MRI so they can see it. He also wants to get images of my thoracic spine so it is going to be a long time on the machine. My back isn’t going to like it. Once I get the images done, I come back and we will discuss what to do. It doesn’t sound like the injury to my bladder is going to be helped either way. All we can do is prevent more damage from happening. I talked with the NP psychopharm before the appointment. I apparently sent her what was going on and like what usually happens, I forgot I sent her what I wrote. I am kind of feeling suicidal as this is pretty hopeless things for my back aren’t going to get better. Even if I were to have surgery, it would just be as a preventative thing, not to fix what the damage done. I can’t go to my happy place now even if I wanted to end things there. Too much fucking snow. I might have to get a hotel.
I’ve had no appetite today at all. I didn’t even have coffee. I had 3 OREO cookies and that was it. I came home from my appointment and went into a flare. Actually, I think this is the flare from Thanksgiving as I don’t think it ever went away. Nothing is touching this pain. I canceled the appointment for tomorrow with that psychologist I was supposed to see. I just can’t go out for the third day in a row. I am exhausted. All these fricken appointments that are back to back are doing a number on me. I am surprised I haven’t had more flares.
I’ve thought about my therapist all day today. She is on vacation but I wish I could have had a chance to talk to her. I see her next week but it doesn’t sound like there will be too many appointments this month because of her needing to take time off. I still haven’t written about why I should discontinue therapy. I might work on it tomorrow. I really need to think about it. Therapy for the most part has helped keep me here because the therapist wanted me to live. I just never shared in that aspect that I need to live. I feel like I should die. I always feel like I should die, that things will be better off if I were dead. Now that I know neurologically I am fucked, it doesn’t help keeping me here. And even though I never thought about having a relationship with someone, now that will never happen because I’ve lost feeling in my sexual stuff. I am okay with it but for some reason it is just another thing my fucking illness takes away from me.