Saturday Blog 17102020

Saturday Blog 17102020

I have had a tiring day. I again woke up in the early morning hours so I felt sleepy. I took a shower and that made me more tired. I wanted to make myself something to eat but my sister was using all the available kitchen space to make muffins, a pie, and a chili. I envy her energy because I would have stopped at the muffins. When she had finished putting thing back and there was counter space, I made myself something to eat, which caused back spasms to happen. They happened while I was showering so I was getting beat down.

I felt so depressed the past few days because my uncle died yesterday. I am filled with grief. My father’s side of the family is gone. My aunts and uncles are all dead. I just have my cousins now. And for this to happen close to a year since my aunt passed away last year is just too much.

Taco Tuesday

Taco Tuesday

I really didn’t eat that much today other than having a pop tart with my second cup of coffee. I wanted tacos so I ordered some. They were just the thing to kill the hunger. My belly is happy. I have been fighting sleep the past three hours. I thought I would blog before I laid down to slumber. I went to the pharmacy today without taking my muscle relaxers. OMG I nearly died while I was in the store. I had to sit down for a bit after I was called four customers later. I wondered how I was going to get home but I made it. I had to pull the mask off when I was three houses away. I couldn’t catch my breath going up the hill. I felt like I was going to fall over at any second. I was cursing myself going out because every time I go out when I am tired this happens. Now I am exhausted. I haven’t brushed my teeth or washed my face. I really need to wash my face because of the cut I gave myself shaving needs cleaning so I can put Neosporin on it. I hate that I can’t shave right now because the cut is a little deep and I don’t want to reopen it accidently.

I had my appointment with my psychopharm NP. She had nose surgery so her face was all banged up. I felt bad for her. We talked about my cousin who passed away last week. She said I should write about it. There really isn’t much to write about. She died from unknown causes at this time. We will know more once the autopsy is done. I think she had a cardiac arrest. It is sad because she is the first female in my family to die suddenly. And so young; she was only 50. I will miss her. I hope she is in peace now where ever she may be.

I have one more appointment with her and it will be our last as I will be seeing a new psychiatrist next week. I hope I get along with him. I don’t like that I have to see someone new in such a short time period. I started seeing this NP last Oct and it hasn’t been a year yet and she is leaving me. I really liked her. She was good. I liked seeing her. Now I got to start over with someone new. I miss my psych so much and wish I could see her again. She said I am in good hands where I am now. I hope that she is right.

I am so exhausted I don’t think I am going to be up for the second Sox game tonight. I wanted to listen to it but I am just too tired I can’t keep my eyes open. They are playing a double header today and lost their first game. Fucking Barnes blew the save. I really despise this pitcher. He always seems to lose games. My favorite player was put on the 45 day IL list today. He won’t be back this season. Just as well.

neurosurg appt and other things

Neurosurg appointment and other things

I didn’t want to get out of bed today. I didn’t sleep well. I was up most of the night in pain then in the morning I kept on having to run to the bathroom because of bladder and bowels ready to unleash themselves. I didn’t know if I would be able to go to my appointment because my bowels were acting up. They settled down but I was so fricken tired. I never showered like I wanted to. I stunk. I honestly don’t remember the last time I showered. Probably last week. It was snowing all day so walking was not the best.

The neurosurgeon had no idea why my bladder is not functioning the way it should. There is nothing he can see but thinks it could be a tethered cord and I have to get a special MRI so they can see it. He also wants to get images of my thoracic spine so it is going to be a long time on the machine. My back isn’t going to like it. Once I get the images done, I come back and we will discuss what to do. It doesn’t sound like the injury to my bladder is going to be helped either way. All we can do is prevent more damage from happening. I talked with the NP psychopharm before the appointment. I apparently sent her what was going on and like what usually happens, I forgot I sent her what I wrote. I am kind of feeling suicidal as this is pretty hopeless things for my back aren’t going to get better. Even if I were to have surgery, it would just be as a preventative thing, not to fix what the damage done. I can’t go to my happy place now even if I wanted to end things there. Too much fucking snow. I might have to get a hotel.

I’ve had no appetite today at all. I didn’t even have coffee. I had 3 OREO cookies and that was it. I came home from my appointment and went into a flare. Actually, I think this is the flare from Thanksgiving as I don’t think it ever went away. Nothing is touching this pain. I canceled the appointment for tomorrow with that psychologist I was supposed to see. I just can’t go out for the third day in a row. I am exhausted. All these fricken appointments that are back to back are doing a number on me. I am surprised I haven’t had more flares.

I’ve thought about my therapist all day today. She is on vacation but I wish I could have had a chance to talk to her. I see her next week but it doesn’t sound like there will be too many appointments this month because of her needing to take time off. I still haven’t written about why I should discontinue therapy. I might work on it tomorrow. I really need to think about it. Therapy for the most part has helped keep me here because the therapist wanted me to live. I just never shared in that aspect that I need to live. I feel like I should die. I always feel like I should die, that things will be better off if I were dead. Now that I know neurologically I am fucked, it doesn’t help keeping me here. And even though I never thought about having a relationship with someone, now that will never happen because I’ve lost feeling in my sexual stuff. I am okay with it but for some reason it is just another thing my fucking illness takes away from me.

You are king so go into the light…

You are king so go into the light…

These are the words the voices have been telling me since Tues. I haven’t had commanding voices that were severe until tonight. I contacted a couple of friends and they helped me to get through until the medication kicked in. It has been a week that the voices started. This never bodes well. I know it is because of the stress of the death of my aunt and going to the wake and funeral. My family is very loving so it wasn’t like I was awkward or anything. I just didn’t want to say goodbye to my aunt. It hurts so bad having her gone. But she has been gone longer than her physical body ceased to exist. Parkinson’s dementia made her into a shell of a person that just became silent and I think that was when we really lost her. I feel so bad for my cousins who watched her deteriorate. It must have been so painful and I really hate that this disease not only affected my aunt, but her son and his family.

I seem to have caught the family crud that has been making its rounds to all the family members. I am congested. I took a mega dose of vitamin D and will take another tomorrow to ward off the virus. I had my flu shot so I hope I don’t get a strain that is not in the vaccine. I honestly haven’t been really sick since 2008 when I got double pneumonia. God I was ill for a month and took forever to get my strength back.

Beginning of Dec I have a lot of appointments. I have an appointment with the psychiatrist that was assigned to me when my psych left. If the NP does not give me my Ativan, the way I take it and a 30 day supply, I will go back to him. I am tired of this “discussion” where it is only her points she wants me to see not mine. And I don’t think it is a good idea to mess up someone’s med regimen because of long-term effects. I just cannot tolerate this. I see the NP Monday and I will calmly explain that I understand her concerns but I do not care about the effects.

I hadn’t peed in six hours so I cathed and as I was doing so, it was a long void. I was trying so hard not to clamp off the catheter but a spasm occurred and urine flow stopped. Now I have to try again so I don’t wake up before 6 am. I am going to try in about a half hour or when I am finished with this blog, whichever comes first. I really hate that this is my life now. That I will be having to catharize myself forever now or end up in the emergency room because I don’t have the urge to pee. I feel so humiliated. Just increases the suicidality. I found out today at the OT appt that this is nerve damage. I thought it might be due to medication but she said not according to the urodynamic study. I feel really sad about this. It’s just another nail in my coffin. I can’t take my back constantly being broken down and worrying about facing surgery all the time.

Monday I am supposed to talk with a behavioral med psychologist. I hope it isn’t because my “team” told him I was not compliant with my care, meaning not taking my medication or skipping appointments, etc. I go to mostly all of my appointments except if there is good reason not to, like feeling sick or being in pain. I just am having a major problem with the urine thing because it just screams at me that I am disabled where before I knew I was but I really didn’t want to face it. Now it is staring at me in the face and I can’t deal. The depression is making me feel like I would be better off dead. And now the voices I should just take a bottle of pills so I can be king to go into the light. I have already decided I am going to end my life before my next birthday. It is just a matter of time and a few weeks away. I just hope I don’t end up back in the hospital when I see the NP next week. I don’t know if she will think going into the hospital will be a good idea and I hope she doesn’t because it is NOT a good idea, especially before a holiday. Just really bad to go into the hospital around a holiday.