I went to bed too early last night. I got your around 1130p to pee and then had a hard time falling back to sleep. I read the rest of my book. It helped to settle me down some. I drank a lot of poweade so I ended up having to pee again around 3am. It was difficult to go back to sleep.
I woke up with my med alarm. I shut it off and went to sleep for a few hours. I forgot about my grocery delivery. I am glad it came in the afternoon and not the morning or I would have missed it. I took a shower before it came. It tired me out but I had the perfect hot water temp so it was soothing.
I made some boiled eggs for lunch. I didn’t know what else to make. I had three cups of coffee. I was hyper when I left for PT. The bus was a little late, so I was literally on time for my appt. We did some work on the machines with increasing resistance. It killed my legs. Then she had me on a rolling chair to do some more leg work. My calves were killing me. Legs feel so sore right now.
I came home and made a spicy bean burger for dinner. My niece gave me one of her papusas which was really good.
My mother didn’t have a good day. She was tired and in pain. We had the appt with the medical oncologist, and it didn’t go very well. My aunt misinterpreted what he said and got really upset. She was yelling at my mother to get more care, and my mother ignored her. I think my mother has given up, and it has been hard to see. She just doesn’t care. She will do things if she is up to it. Otherwise, it is up to one of us to help her do things. We are seeking an opinion from radiation oncology, but the med oncologist said they only do things if you have symptoms and my mother doesn’t at the present time. It has been a hard day for me. I’ve been really sad and alternating with caring and not caring. I’ve never gotten along with my mother and I don’t think we ever will.
I almost wrote something in my book last night, but when I wrote it in the journal, it was only a paragraph, so I nixed the idea. I really am struggling to write this book.
About my hiatus
I have been in the hospital the past three months. I was not in a state where I could write a blog. I was doped up most of the time and barely knew what was going on around me. I was sick with renal failure, covid, and infection called C diff. I was barely eating so they had place an nasogastric tube down in my stomach for a bit. I don’t know how long this tube was place. I had taken a pic of it sometime in Sept. I missed how the season ended for my Sox. When I came home for a bit, I thought it was the end of Aug but it was the beginning of Oct. I was home for a week or so before going back to the hospital for psych. I spent four weeks in the hospital on the psych unit. I got really good care there. I learned my top surgery was postponed and I was very, very devastated. It was good that I was in the hospital because if I wasn’t, I probably would have ended my life right then. I was so angry and frustrated as I didn’t have answers and had to wait for them. I had no access to my phone so I didn’t have the usual supports I have when I am home. It was extremely frustrating. The staff tried to help me but all they could do was sympathize with me. There was only one LGBTIQQ staff person on the unit and even she couldn’t really understand my predicament.
I have an appointment next week with my pcp to get medically cleared for top surgery. I really hope this conversation goes well. It will be the first time meeting my new pcp as a fully conscious being. The first two times I met her, I was still in the confused, delusional state. All I could do when I met her was blink my eyes and nod yes or no.
I am having difficulty writing in a constant stream of consciousness. It has taken me two days to write three hundred words for this blog. My thoughts are still hard to write with everything that I have been through. It was really difficult in the hospital as I really lost the ability to write. Writing has always been a coping mechanism for me and when I couldn’t think to write, it hurt, literally. I would get these headaches that felt like my brain was being crushed. It literally hurt to think. I got several migraines while in the hospital. I would wake up around 0330-430 every morning with severe migraines. It was terrible. The trauma of everything I went through was very difficult to process. I had become catatonic at one point.
I am still feeling wicked depressed and anxious at times. I am off all pain meds and off my Ativan. It is weird not taking meds around the clock like I once did for years. Now I just take it a few times a day as I am taking my blood pressure med three times a day and take the Latuda at dinner time. It makes me tired and I often find that by 1900 I am sleepy. But that could be because I have been waking up before 0500 most mornings. I find it hard to get back to sleep with these early morning awakenings. I am so much clear headed now than I was in the middle of October. My memory is still not there on what transpired the six weeks I was on the medical floor of the hospital. I just have these weird dreams/delusions that sometimes intrude in my head. One day while in the psych ward, I was flooded with memories and couldn’t make sense of things at all. The anxiety it produced was terrifying. I was convinced I killed my mother and a bunch of weird shit around my house. Taylor Swift music got me through a lot of the anxiety but while in the psych ward, I didn’t have my music to calm me so it was very difficult to cope. Now that I am home and have music again and my laptop, I am coping so much better. I am reunited with my online friends again and it feels so good because I was missed so much. I have missed blogging so much. I regret that I didn’t write before now but it has been hard finding my writing voice again. It has been a real struggle.
In closing, I am going to try and write a blog a day like before, even if it is less than 500 words.
Therapy black out
Trigger warning sexual abuse talk
I had therapy today and in the middle of it, my power goes out. I had to use my hotspot to connect but because I was in the dark, I didn’t turn the camera on. UGH. We were talking about trauma and specifically my mother’s abuse towards me. She sexually abused me from the time I was young, like age 2 to 13. She always had to look at my genitals or breasts. Now that I have been cathing for a while, I still have flashbacks to when she touches me when I touch myself. In my pediatric records, the doctor notes that my “vagina was closing” according to my mother but I wonder if it was really my urethra as it is in my vaginal opening. I’ve had a few UTI’s growing up and I wonder if it is because my mother stuck things in there. I also had a trauma medical procedure done to me when I was five. I had to be restrained physically and chemically for the doctor to do the procedure. All I remember is that I was screaming for my mother to get me, to comfort me, and when she didn’t come, I felt abandoned. I hated my mother for not being there. It was then that I started hearing voices.
Today’s WordPrompt from WordPress is transition. I was talking about my transition today with my therapist as my mother misgendered me, again. It invalidates me and makes me think my transition is not worth it. As I will always be seen as a “daughter” to her rather than a son. She thinks she owns me. I haven’t told her that I will be having top surgery yet. I want to make sure the insurance is going to cover it. I don’t want to tell her and then it not happen. It is five months away anyways. I am hoping that I can have it sooner but I got to know insurance will cover it first.
I am going for blood work this week so asked my pcp if they also need a urine sample because my test strip for home testing tested positive for white cells. I don’t know if my bladder is still inflamed or what. It still hurts though and even though I am starting the estrogen cream tonight, it could be a month before it has an effect. I was going to start last night but I got too tired to put it on. I was going to put it on after my last cath for the night but I didn’t want to get out of bed. I was comfy.
I woke up a couple of time during the night to pee and I was on the same schedule as my mother as every time I had to go pee so did she. I might have to hide the benzoyl peroxide I bought as I found it on the sink rather than in the cabinet. The last tube I bought was used by family members. I never had a chance to use it because it was used up before I could or it went missing on me. I have a breakout of zits right now and need to use it. For fuck’s sake, I bought it with my money and the shit is not cheap. Pisses me off that someone keeps using my acne products.
I wanted to make a zucchini chicken stir fry for supper but my ankle and foot are hurting me too much. My mother is just going to make the chicken with salt and pepper for me. I just realized I haven’t eaten anything since breakfast this morning. I never made lunch like I had wanted to. Therapy just got me so upset.
Feeling depressed and another shitty night sleeping
I had a shitty night sleeping. I woke up around 0130 and had to pee. I stayed up for about a half hour then went back to sleep after drinking a half a bottle of Gatorade. I shouldn’t have done it, I know, but I did and then I woke up two hours later to empty my bladder again. This time I was awake. I had a bad dream just before waking me up and I was still pissed off at the doc appointment yesterday. He asked why I was on Latuda because I don’t have a diagnosis of psychosis in my file. I said it is because I have depression with psychosis. I am trying to shake this guy off but he is in my headspace for the time being. I told my mother about the appointment and she said I was on too many meds. Fucking a. I really felt crummy after that.
I’m still waiting for my catheter company to tell me that my insurance will cover the new prescription order. I received an email from them this morning so I don’t know if it was one of the automatic ones or if the insurance has gone through and they need information from me. I then cringed and called the dentist to see what the next step is for my tooth. She said it was a two part procedure and it is expensive. I asked if we could do a partial or a bridge or something. She said she would ask the dentist and get back to me. So I am waiting.
I need to take a shower today. It has been more than a week since I last showered. I have been feeling some gender dysphoria lately so kind of why. I am not happy with my body at all, especially the hair growth on my upper body. I sent a message to my doc asking if she knew why the pattern was inconsistent. I seem to have more hair on my left side than I do my right. I also hate the hairy boobs I have. Just makes me depressed. I can’t believe July is almost here. I see the top surgery surgeon in a few weeks. I have been aware of how nipples are on men’s bodies and been taking screen shots of the ones I like that I want for myself. I don’t know if it will be a graft or just a resize of my current nipples that they will do. I really hope that my weight doesn’t get in the way of this. It will just crush me if it does.
I am waiting for the pharmacy to text me saying my meds are ready. They have been “in progress” for several hours now and it still isn’t done. Last time it wasn’t ready till after 1400. My ankle has been throbbing since early this morning when I was up. I last took my pain meds around 0400. I have one pill left. I don’t want to take it until I know the pharmacy is going to have my meds ready. I got to fucking call them. Every fucking month it is something and always with the same meds. Always. Such a pain in the fucking ass.