Up at 4 am and got a few goals
I woke up around 4 because my bladder was giving me urges. I tried to go on my own and failed so had to cath. I couldn’t go back to sleep right away as I am anxious about my deposit coming through. I am supposed to get paid today. I hate when the deposit takes forever to go through. It usually is in by 330 am but sometimes it takes a couple more hours to pass. One day the bank was having trouble so I didn’t get my deposit till late afternoon/early evening. But soon as it goes through, I will pay my grocery tab even though I don’t really have the funds for it. I might have to forgo putting funds in my Starbucks acct. That really sucks but it is the only way I can afford things right now. Besides the money that I am putting toward my cards will be enough to add funds once the money gets processed. So hopefully it will all work out. Crossing my fingers it does. I cannot wait till my deductible of $250 is met so I don’t have to pay for my meds the rest of the year. It should be met by the end of the week as I have more meds to get. My monthly refills. I am glad they are all together now not spread out over the month.
I have three goals I like to do today. One is to get to the pharmacy for my meds. Second is emptying my recycle bag. Third is taking my trash out. If I can do at least two of the three I will be happy. I changed my sheets yesterday afternoon and it caused such a flare. My back was killing me by the end of the night. It felt like someone was trying to sever my spine in the middle of my back. The pain was awful. I don’t know what it will be like after surgery. I might not be able to sit for long periods like I am accustomed to. That will suck when I have to go to PT and will need to sit for at least 30 mins on the bus ride to the office. I am looking into getting a public assistance ride service for disabled people. It will pick you up and drop you off. I am hoping to have just a pick up at the hospital and then a ride home afterwards but I am not sure if I can do that. I will find out the week of my surgery. Just lovely that I will have that worry prior to my surgery. I still don’t know if I am disabled enough to get it.
So if I feel up to it later on today, I will post my progress on my goals and see how far I went. I hope to do all three but going up and down two flights of stairs three times is going to be tough. My ankle is already tingling and I all I did was use the bathroom. I also got to brush my teeth today. I have been really bad at brushing and I am to see the dentist the end of this week! Oh boy!
Yesterday, I helped two strangers. On the way home from the hospital where I had my appointments, I noticed I lost my ring. I had no idea where it could have been. Last time I felt it was when I was washing my hands and a part of me wondered if I accidently threw it away with the paper towels I was using as I was adjusting it on my finger. That was the last time I remember seeing it. I should have put it on my other hand where it wasn’t so loose but I didn’t so I thought I lost it. Today I called up police and security of the hospital to check to see if someone turned it in. Someone had. I took the next bus to the station and went to the hosp. While there, I decided to go to the lab and see my friends. It was good to see them. I miss working there. I even had a dream that I had to FedEx a sample to get results by 5 the next day. Weird. I think the lab will always be a part of me, even if they get my name and gender wrong. Some of my friends who follow me on social media know I am transitioning. I wasn’t out to all of the people in the lab so I just had to take it.
I had a good session with my therapist yesterday. I had written her a letter which she said I started off strong and then went off on a tangent. I don’t remember what I wrote so it is possible. I am finding transference with her gets easier as time goes on. She kept my letter and the papers I printed out which were the SSF part A. I told her we can use them and they can be our talking point. It will help focus things. Least that is what I hope will happen. Just hope she doesn’t sort of hold me to it every meeting. My psychopharm is. She pulls out the sheets every meeting. She asks about my suicidality. She has been asking since I told her to. My therapist has too. She wanted to know more details about it but I didn’t want to talk about it. I told her it would be a few months before I was ready to act on my thoughts, though I didn’t say it in those words. I am still not sure I will tell her I was going to kill myself.
I told my psychopharm that if I don’t feel better by Monday, I will consider going inpatient for a while. I really hope I don’t end up back south east of Boston again. That place was terrible. I would really hate having to use catheters there. I would rather have a foley put in so I won’t have to worry about it. I get my order of supplies tomorrow. I plan on packing a bag in addition to trying to clear the alcove space that needs to happen. I hope this bag that I have been trying to find is there and not in the other alcove.
Presidents’ Day Blog 2020
It has been another painful day except this time it is my leg that hurts. I haven’t been able to do much today. Both legs hurt but the left is worse. I hope I don’t have a DVT. I always worry about that when I have been laying about and not being active too much. Hard to be active when you are in pain. I see my therapist tomorrow and I plan on calling my pcp’s office if it still hurts. I got to call the office anyways as there seems to be a scheduling error. I don’t have an appointment with my psychopharm until March. I thought I had one on the books for the last week of Feb but there isn’t one. I need a refill on my meds for the end of the month so I would like to see her but if I can’t, I will just tell her I need a refill. I got to call my surgeon’s office as they have the wrong medical record number on my paperwork. I think the number is my mother’s.
The last call I need to make is to make an appointment with the public transportation Ride service. It is a pickup service that I may need after surgery because I will be too weak to take public transportation. Once I have it, I will be able to see that pain clinic my pcp wants me to go to. But that won’t be until after my surgery. I don’t want to be changing up meds before then. I just hope that my pain will be taken cared of while I am in the hospital.
I was hoping to go to Starbucks tomorrow but I am out of funds. I’ll have to make my coffee tomorrow. Past few days I have been drinking tea. I still have the iced coffee in the fridge. It is past its expiration date so I hope it still takes good even though it hasn’t been opened. I will see tomorrow.
I got my grocery bill down to $174 even. Hope I can keep that total for a week. I don’t get paid until next Monday. I got a lot of cereal and frozen dinners so I have food while recovering from surgery. I wanted something quick that I didn’t have to stand and cook. I don’t think I will be able to do much the first few weeks after surgery. I have no idea what I am going to do about therapy. I don’t think going six weeks without is a good idea.
The voices are somewhat better. The increase in dose of the Invega has helped stabilize the psychosis. I chatted with a suicide hotline last night because the pain was so bad, I was losing my mind. We were talking and I felt like I gave too much information about being suicidal. They asked me what my plan was and I said that wasn’t relevant as I am not going to act on my thoughts tonight. I can hardly walk or stand so there was no way for me to attempt. They wanted me to let my therapist know I talked to them. I cringed at this. So after the conversation ended, I texted my therapist to tell her. I also asked for an appt for tomorrow and she responded with some times. I think it will be good to talk to her as things have been building up. The stress of surgery is causing so much havoc. The flares have been, too. I just feel so hopeless and helpless when the flares are so bad I can’t stand. It causes me to think of ending things and once I start, I can’t help but plan things. It is my escape and I don’t think that is ever going to change.
Saturday Blog 15022020
I really haven’t done much today. My only goal for the day was to write a blog. I have been in pain most of the day, which meant having to take gaba. I have a risk for falling when I take gaba during the day and I have to be extra careful when going up and down stairs.
I put a medication on my bed when I got it from the pharmacy and I can’t find it. It has disappeared or my bed ate it. Sucks because I really need it right now. My psychopharm and I had decided to go up on the Invega before resorting to psych admission. Problem I have with admission is cathing. I am not sure what the process is as every floor is different. I am not sure if I will be able to cath or if I will have to have a leg bag. Having a 500mL bag will suck as I know I will wake up in the middle of the night to empty it. I doubt they will allow me to change bags as the tubing might pose a safety risk. The psychopharm did say that if my safety becomes an issue to go to the ED regardless of the cathing issue. My safety is more important.
I hit a rough spot the other night and I texted my therapist about it but got no response from her. I am sure we will talk about it when I see her next week. I had to fool the voices in order for them to leave me alone. This is when I increased the Invega. I am doing okay with the 6 mg. The voices have gone away. The psychopharm said I can go up to 7.5 mg if I need to. The script I am missing is the Invega. I don’t know if I used it or where I put it. It isn’t on my bed. I might have to get a refill to the pharmacy but that would mean borrowing money again as I am broke until next week. I don’t know if my mother will give me it. I already borrowed money off her earlier this month. I keep forgetting to budget money for my meds. Next month I need to have food so I put in a large order of groceries but I don’t think I can afford the $230 cart that I built. I might just order a few things rather than the whole thing. I am trying to get my food stamps increased but with the way the stupid ass president is cutting things, I doubt I can. Hell, they may just take it away from me because I am disabled and cannot work. So stupid. But the poor and disabled are the first groups of people to get screwed in government funds.