just stay

Just stay

This saying “just stay” has been kicking around the suicide prevention circles I have run across. Some days it helps me to focus on staying here. Other days, I want to scream why, I don’t deserve to be here. Today I am feeling a little hopeful because my psych sent me a message and it really made me feel like someone really cares about me. I am taking that with me so that I can do this Herculean project I want to do.

Last year when I was thinking of something to do about writing my book, I thought of writing a baseball history book about what teams were called before what they are currently. Like the Red Sox had many names before being called the Sox. If you look at the World Series, they are listed as Americans or red stockings. The Yankees were called the Orioles before they were the Yankees. I find this so interesting and seeing as there isn’t a book about it, I want to write it. One of my favorite authors, SE Hinton, always says “write what you want to read.” I always wanted to learn about the history of baseball teams so I want to write it. I am not sure I will have to go to Cooperstown to get the information I need but if I do have to go there, I will. I am not sure how I will finance it but I am sure there is a will there is a way.

Yesterday, I had therapy and it was a disaster. We talked about frustrated needs that Shneidman says contributes to suicide. She didn’t understand what these needs meant to me to understand why I am suicidal. She wants me to write them and then write the things that get in the way. That was going on and then the voices got unbearable. I asked her if she felt I was meaningless. At first she was like why am I thinking that. When I told her the voices were saying this and I needed her to tell me they were wrong she then said that I was not meaningless so that reality testing happened. Then she asked more about the voices and I said that I had lowered my dose. She flipped out in a very concerned way. She wants me to talk to my psychopharm about doing something to help the voices go down as this is a serious matter. I did send a message to the psychopharm but have not heard back from her. I also sent a message to my uro and she hasn’t responded either. I am going to have to drop a urine sample next week when I am back at the hospital.

I am coming down with a cold. The virus has been hanging around the house as my mother and sisters have been sick. I am treating it with rest, fluids, and vitamin D. I find that vitamin D helps respiratory and cold infections better than anything. There was a study I was involved in and D actually helps the cytokines fight infection. But the trick is you have to be out of deficiency in order for the D to work. Find out if you are deficient, get stable on D and you will be able to fight getting the cold better. I find that if I take 10,000 IUs for a few days, my cold symptoms go away faster. So instead of being sick 10-14 days, I am sick maybe 4-5 days. This works for me. It might not work for someone else but I am just throwing it out there. The cytokine is Hcap18. There have been a lot of studies with this and asthma. A Google search will help you understand this if you don’t believe me.

I made a cup of English tea. It is by Twining called Everyday Tea. I got it from an English friend I know on Twitter. The tea is really English as it is from the UK. I love it as it is a full bodied tea and is strong. It is really good especially on cold New England days like today. It is 14 (-10C) degrees out. Hope it helps this cold that I have. It is cold in my room because I have the window open. It is 64 (17C) degrees in my room. I love the cold and this temp suits me. I just put on a sweatshirt on top of my long sleeve shirt. My ankle is really hurting today. I have had to take gabapentin and extra breakthrough meds to try and quiet it. It feels like I am being stabbed and the pain is right through the joint making me feel suicidal. I want to shave and shower but it doesn’t look like that is going to happen today.

so tired of the shore

So tired of the shore

I had a meeting with my psychopharm today. We went over the psychache psychometrics. She assessed my suicidality. She didn’t like that I am hearing commanding voices and my suicidal level was high. I told her this was my norm. She said if that changes to get in touch with her immediately. I told her I would.

I sent a message to my therapist last night and haven’t gotten a response. The voices are telling me that she thinks I am meaningless and don’t trust her. I should end seeing her. I am still feeling meaningless. The voices are really loud today and I am having trouble concentrating. Tomorrow I see the therapist and I am supposed to bring Shneidman’s needs with me. I thought of just bringing a print out of my blog on the subject but then I thought bringing the book might be better as it lists a better definition of the words than I could interpret.

Since before my appointment with my psychopharm, my ankle had started to act up. I took a pain med before leaving the house. Now my pain is beyond tolerable. I can’t take my normal stuff because I have an early appointment with the therapist tomorrow. I have to leave by 1030. I just hope that I remember to bring Shneidman’s book with me. I meant to put it in my bag today but I forgot it on my bed. I am glad I took a shower this morning (probably what set off my ankle) so I won’t have to tomorrow.

The voices have been really loud today. Last night they were obnoxious. I sent a message to the therapist but haven’t had a response. They are telling me I should kill myself, though they are not being too clear on how to do it. One is telling to do it this way and the other is just like take this bottle of pills. I am glad I don’t have those bottles near me. I want them to shut up but I know the only way they really will is by killing myself. I can’t put them on mute as they don’t have a mute button. I have five voices right now, 3 that are bad and 2 that are my normal ones. Sometimes there are six. I am glad the 6th one doesn’t come along too often. There is so much noise going on. I told the psychopharm I would only be open to taking trilafon. It is the only med that works when I need it. I don’t want to go on something else or increase the dose I am taking now. I don’t want side effects. It is bad enough that I am dealing with dry mouth from the nortriptyline and the bladder spasm medication. I won’t take that medicine tomorrow because I want to see if it is making the dry mouth worse. I hate dry mouth. I have to make sure I carry cough drops or hard candy with me at all times now.

abuse finally told

Abuse finally told

****trigger warning****

Wednesday, my mother set off my PTSD. I had such anxiety most of the day that it was driving me crazy along with the intrusive memories and feelings of shame and humiliation. I couldn’t sleep the whole night. I was up because of pain so around 0430 before I went to finally rest, I sent a text to my therapist asking if I could still see her today despite canceling the appointment. She responded like an hour or so later saying yes, I could come in.

I wasn’t sure how I was going to go about this. I had so much on my mind. I needed to ask her input on how to set boundaries with my mother and she said that it is not going to be easy as this is going to be coming from left field with her (my mother). I knew it would be I was just hoping something I could say could diffuse the situation. Really didn’t come up with anything so I started talking about the stuff she did to me. She said if this had happened today, child’s services would have been involved. I still feel sick about all of it. When I told her what she wanted the doctor to do and then I couldn’t tell her what went on at home, with her holding me down to do what she wanted to do. I pretty much told her everything that she ever did to me. She (therapist) thinks my mother is psychotic. She is not trying to take away from what she did to me. My therapist told me what she did was abuse and I was both relieved and scared about this. I always got that what she did was of “motherly concern” so therefore was not abuse. And because when I confronted my mother at 16 she denied it as well as I was told how could I say such things about my mother, it just made me shut down. I denied it because I had to. Now I cannot because it is causing too much turmoil.

The abuse happened when I was a toddler up until I was fourteen. It made the gender dysphoria so much more present and also messed with me in other ways. I feel dirty and I don’t think I will ever be clean. This is all I can write at this time. I wish I could write more but it is hurting too much and stirring up too many emotions.

Boxing day and other stuff

Boxing Day 2019 and other stuff

I went out with friends this afternoon. We had dinner and it was a really good time. My niece accidently kicked my bad foot twice and my foot reacted as if she hit it with a baseball bat. I saw stars and continue to see them.

The psychopharm sent me a couple of messages. I responded and said that I can give her a paper and a scale we can use to assess my suicidality. She is open to it. I am not sure how long she will do this for. I told her that my suicidality needs to be assessed from now on at every visit. She said in one of the messages she would be curious on days that I am not so suicidal how it is. My level of suicidality has been waxing and waning. I am just getting stressed out with my mother as she doesn’t like me fucking sleeping during the day. She doesn’t get that I don’t sleep at night no matter how many time I fucking tell her. I had her on block for a while and I think I might do it again as I don’t want to be disturbed with her while I am trying to sleep. She wants me to “open up” to her. I told her that isn’t happening so forget about it. She got mad. I don’t care.

feeling low. I am dehydrated as there is little urine in my bag. I thought I drank enough (bottle and a half of gatorade) but I guess not. The catheter is really bothering me today. I see uro Tues and hope this comes out. The uro wants me to think about a supra pubic catheter. I don’t want to have surgery as I am scared CRPS might spread. I am having horrible bladder pains so I do hope the catheter comes out on Tues. I just can’t deal with it anymore. It is just making me more depressed. Found out my psych diagnosis has changed. I no longer have bipolar disorder. I have recurrent major depression with psychotic features. That fits me better. Though the psychopharm thinks I have persistent depressive disorder (formerly known as dysthymia). Either works for me as I am fucking depressed!!

30 December 2019

I never finished this blog so kept it and decided to just put in today’s date. I start off wanting to say things and then I just lose interest and lose my train of thought. I can’t send my therapist links to my blog anymore because anyone who accesses my record can have access to it and I don’t want that to happen. When I go back to texting her, I will. I don’t know when that will be as she said right now I am “unstable”.

I haven’t really eaten since Boxing Day. I think I just been living off of Ensure. I just have no appetite at all. I had two Ensure today at different times. I really don’t want to leave my room for anything if I don’t have to. I have the larger bag hooked up so I don’t have to empty it often and can sleep without worrying. I see the uro tomorrow and I was worried I wouldn’t as there was a problem with scheduling. They wanted me to come in earlier but I can’t because I have a delivery. I got the times mixed up so I can be there by noon if the delivery is here by 10. I plan on taking a shower when I get up so I can be as clean as possible. I feel dirty but my damn ankle is hurting so much along with me having back spasms that I don’t want to shower right now. I’m not sure if I will be placed on an antibiotic once the catheter comes out just as a preventative. I hope to go back to my “new normal” of cathing a few times a day. I don’t know if I will be able to go on my own yet. Won’t know until the catheter is out but I am thinking not as I have had zero urges. I am going to ask the uro about the bladder pain. If it is from the catheter, fine but if it isn’t, something needs to be done about it.