the 330 am blog

The 330 am blog

I’ve been up since 0130 because of pain. My right shoulder hurts and didn’t get better until I got up and started stretching it out a bit. I’ve been in a weird mood since waking up. I feel like I should be suicidal with the amount of pain that I am in but I am not. I don’t know if this is a good sign that I am getting better or what. I think the groups is helping me though I don’t know how because the skills I haven’t learned really. I know what they are but I haven’t worked on them. I have tried the DEAR MAN skill that my therapist wants me to but we had to go over it and then I dissociated afterwards so I don’t remember a thing about what we talked about. I didn’t even know if I had attended the session so I asked her if I did. She said I did. So weird.

I have one more week of groups and then I am done and I don’t think I will go back. It was too stressful. Plus my email kept deleting the emails that the clinicians were sending and I don’t know why that is. I got to make a rule so that it goes to my inbox and nowhere else.

My therapist wants me to send her screenshots of the handouts I am given during groups. I think she wants to make sure I am going and I find this irritating. I feel like she doesn’t trust me. The agreement was that I would text her and Then I would have a response to what I was texting. Thing is the past few days I haven’t had any responses to what I text her about. I feel like this is a one way street again.

I haven’t really participated in group that past few days. I listen but I have been getting bored. Even the group that I thought would be interesting was a flop. I didn’t like it at all. I have been going to the first three groups because those are the most important ones as they are mostly clinical. The first one is just a check in and the other two are either CBT or DBT groups. I find it interesting that they are using both therapies in the program. Both are useful, don’t get me wrong and they do work to their own extent.

I love the therapist that I have in the program. He is so energetic and empathetic and fun to work with. He is a really good guy and I love when he leads groups because he makes them fun instead of boring. He brings this energy that is positive and soothing. I love it. I am going to miss him when I leave. I feel like I should write him an email but I think I will wait as it is the weekend. I am surprised the hospital doesn’t recognize MLK day. It is this Monday and my therapist is off but the program is on. Very weird.

I have put back the weight I lost. I am disappointed in this because I was able to go below 200 and now I am a few pounds over. My struggle with weight is so finicky. It all depends on my appetite and if I eat regularly. Lately I have just been eating one meal a day because I usually full and don’t want to eat anything else for the day. This talking about eating is making me hungry. I think I am going to make scrambled eggs with cheese. I just hope we have the bread.

listening to the 80s

Listening to 80s

I felt like listening to Pandora today so just turned it on and 80s music started playing so I will keep it on that. I love the 80s. I had coffee and I am somewhat energized. I haven’t decided what I am going to do today. I need to go to the grocery store for half and half and coffee. I might go this afternoon. My back is still bothering me from trying to find this book that I just ordered another copy of. Fuck it. I still got to go to the bank and deposit some money so my account isn’t overdrawn.

My allergies are bad today. I keep clearing my throat and coughing to clear it. I hate when I am so congested in the morning. Makes me gag. Brushing my teeth was fun. I am sucking on a cough drop to sooth my throat. My sister is out of quarantine Tues. I can’t wait. She must be so bored.

I need to shower today. I smell. I need to be better about showering as I have just been showering once a week for a while now. I used to shower every other day but I have let it lapse. I just seem to shower when I can’t stand the feel of my hair anymore. I have a full beard now so I need to wash it or it gets itchy. I have decided to keep it for now. I like it. I just wish the tiny bald spot would grow hair. It is one of the reasons I have to not keep the beard.

My back is still bothering me from looking for the book last night. I don’t think it would be wise for me to go out today. I don’t want to get stuck while out like I did before. I will just get upset. But the only priority today is to shower. Just hope my back doesn’t crap out on me. It is really bothering me right now. I just want to lie down and rest. I am getting hungry but I don’t feel like making something to eat. I haven’t had anything to eat since yesterday. I only had Ramen noodles all day and some pretzels. I don’t really know what to eat. I want to make a chicken sandwich but for some reason it is nauseating me so I don’t want to eat anything. I might make a fluffernutter. It is a sandwich with peanut butter and fluff (marshmallow crème).

The one self-care thing I absolutely hate is nail cutting. I swear my nails grow superfast and I feel like I am cutting them every week. I hate it. I hate toe nail cutting more. My sister just came up with food so I don’t have to worry about it for now. Yay! I will have some in a little while.

pain is lonely

Pain is lonely

I was scrolling through facebook and came across the meme “Pain is lonely” and it struck a cord with me. It is lonely. You have no one to talk to about it that really get it, unless you talk to someone that has the similar chronic pain that you have. I find that even though I talk to my BFF sometimes she doesn’t understand the kind of pain I got through with my ankle and foot. She understands everything else, how pain can make you cranky and tired and not motivate you to do stuff. It is a tradeoff. I rather have some understanding than none.

I got a call from the partial hospital place and they sent me email to fill out and send back. I had to fill out some form using adobe but it was confusing so I just saved it and sent the form. If it is wrong I am sure they will let me know. I have my first meeting at 9 and then group start at 10. Fun. I told them I have an appointment at 2 that I need to keep. It is my therapy appointment. The schedule is DBT based with some creative groups in between. Looks like a regular hospital group program but without the admission.

I went to pick up my prescription because I thought my neurologist changed the order. She didn’t but just gave me more refills. WTF I told her specifically I am taking more than what is prescribed like we discussed. Fuck. I hate when she doesn’t fucking listen. I hope she has it in her notes. Fuck. I am so pissed off.

My mother’s covid test came back negative but she has a cold. Despite me and my sister telling her to wear a mask, she refuses. She wears it around her neck with her mouth and nose exposed. Helpful. Not. I am staying in my room and using sanitizer when I get back to my room just to disinfect my hands. I do not want to get sick. As far as I know, I am the only one that got the flu vaccine.

My neck muscles have been really hurting me today on my left side. It feels like I pulled a muscle or something. I might have slept wrong again. I am going to tell my neurosurgeon when I see him because the pain isn’t going away and I haven’t found much relief. Heat, rest, meds, and stretching have not helped.

I am so tired. I didn’t sleep well again. I woke up around 0230 to pee and stayed in bed for a half hour before I finally got up to go. The urge was there but it wasn’t strong enough so I wasn’t sure if I had to go or not. I should just go anyway rather than lay there wondering. It took me some time to get back to sleep afterwards. I set the alarm for my appointment that was canceled on me due to covid. I am not going to reschedule the test. This is the third time I have had to set up an appointment since my surgery and I am not going through the anxiety again. So fuck it. I am not making another appointment.

depressed and not eating

Depressed and not eating

I haven’t had anything solid to eat since Wed. I just have no appetite. I have been drinking Ensure and Powerade so at least I am hydrated. I might make some ramen noodles after this blog. Least it will be something.

I had an appointment with my psychiatrist yesterday. He wants me to go to a partial hospital program as he want to “nip this in the bud”. Idiot. I am already depressed. I don’t know if I am going to go or not. I will discuss it with my therapist Mon. I know she will be for it. I just don’t want to get up in the morning because I am not a morning person and it is difficult to take stuff in when I am not that awake. It will be virtual so I don’t have to leave my house but still. Rolling out of bed to turn the laptop on to attend a group doesn’t sound like fun. I am getting pissed off that he hasn’t given much thought to a citalopram increase and just wants to increase the stupid Latuda. I got to go to the pharmacy to pick it up. Just seems dumb to me that he is banking on an antipsychotic for mood benefit. If it hasn’t changed my mood and I am getting more depressed, it isn’t working for me. I don’t understand why he won’t increase the SSRI. Just annoys me.

I haven’t done my check in for the day. I will later. I usually try to do it around 1500 but today has been an off day. I slept late and didn’t go to my PT appointment. I overslept. It was early this morning and I just couldn’t get out of bed. My legs have been killing me for most of the day. I think I did too much yesterday when I went for my haircut and then went grocery shopping. I bought cheese for the house. My mother didn’t like what I spent for the parmesan but we haven’t had it in a while since we ran out so I wasn’t going to wait for a sale like she does.

I am tired today. I have little energy. I feel down and can’t really concentrate at times. My neck has been feeling tense this past week and hurts. I had a difficult time sleeping. I keep waking up in pain. My arm and shoulder hurt. I haven’t been able to find a comfortable position to sleep in. I usually sleep on my right side but lately that has been causing me pain in my left shoulder. I don’t know why but I keep waking up with it hurting. My neck muscles feel like they are pulling and I can’t get them to calm down. I’ve tried heat and meds and nothing has worked. I think I need a massage. Only problem is I don’t have the money for it. It is always expensive. Maybe I can with Christmas money. We’ll see.