First bad news of the year
I’ve had bladder pain all weekend and my uro is out of the office due to illness so she wanted me to see my pcp. My pcp wasn’t in the office so I went to medical walk in. The doc there was concerned I might have appendicitis so he had me down for a CT scan. The scan indicated everything was normal except my spine which had advance discogenic degenerative changes from L2-L5. Not the news I wanted to hear. I am already freaking out over my upcoming neurosurgeon appointment and this just added to my nerves, no pun intended. I am going to ask my PCP to tell him what has been going on and to see what he (neurosurg) wants to do. Maybe he wants to see me sooner than the 5th. I don’t know. My psych said that if I have surgery, she will visit me. Least that is one way of seeing her again. Though I rather it be her new office not my hospital room!
I’ve been in a mood since I came home. I want to self-destruct. I sent my psych a message that I am keeping things as best I can even though I want to plan right now (I didn’t tell her that). If I had some lethal method I would probably act on it. I am keeping focus on things other than suicide and that is very hard when you just want to end your life because things suck so bad right now. I did some Amazon shopping. I probably will do some more tomorrow as there are a few things that I need that I didn’t get. I just don’t want three charges all on the same card.
Voices have no calmed down despite me increasing the dose back to 4.5 mg of Invega. I might have to wait a bit. I canceled therapy for tomorrow because I just can’t go back to the hosp. I am so frigging tired and the stupid doctor hit my right heel to see if it caused abdominal pain that it flared up the sensitivity and my Achilles heel as well. I am in pain all over the place. Plus my ankle is in HUGE amount of pain. It locked up on me again when I came home soon after I took the AFO brace off. I haven’t eaten anything substantial but I gained five pounds since the last time I was weighed. I don’t know when that was but I was five pounds less. I am upset over gaining the weight. I was doing well to stay below 200 but I couldn’t stay off. I just had ensure when I came home and Gatorade. I am not hungry, even though I should be.
On the way home, I found out the GOP Senators were traitors like they have been the past two years and Derek Jeter got into the HOF. I am happy about Derek. He has my deepest respect because even though he was a Yankee, he played with heart and class. Unlike some people that will never make it into the HOF.
I am feeling really out of sorts. The voices are continuing to tell me I am meaningless and worthless. This has been going on for a week and I am about to snap. I don’t know what I will do but it won’t be good. I am trying not to give into my impish ways. I just feel so awful about my back and there is nothing I can do except wait until I see the neurosurg. I also got to wait two days for the urine culture to come back to see if I have a urine infection. That is a lot of waiting. The doc gave me the choice of going on antibiotics now but I didn’t want to be treated for the wrong bug so I decided to wait, which is the right thing to do. Just sucks. The urinalysis wasn’t positive at all so I don’t think there is any bugs causing the bladder pain. Nothing showed up on the CT scan so I am starting to think this is a CRPS thing. If I am right, this is going to be a problem when I have top surgery. I got to read more into Type1 CRPS. Type 2 is supposed to be the “bad” one. But I don’t have that so it shouldn’t be spreading to my bladder. UGH. I got to play medical detective because there is no one else to play with the clues. Though the pain is bad but not as bad as my ankle pain. Not choosing pains just saying. I hope I can sleep tonight but tomorrow is shot and pay day so I doubt it. It’s already 11pm. I will probably give the T at midnight. Sleep for a few hours to wake up to pay some bills then sleep some more. I want to get a haircut tomorrow. I kind of fucked it up as I went wild but I don’t think I did a too bad of a job that my barber can’t fix.
My sister is sick and when my other sister told me I laughed out loud because she opened up all the fucking windows in the house when it was like 18 degrees out. Fuck. Serves her right. Dumbass she is. I have my window open and I only got sick because my mother doesn’t wash her hands or cover her mouth when she coughs, and she has had a bad cough. Her foot doctor sent her to her primary as she had a bad coughing fit. UGH. They have her on antibiotics, which is good. If they have her on something else, I doubt she will take it. She will pay for it but she won’t use it. I don’t get that at all. Meanwhile I got to remember to budget my money this month so I can get my meds. I forgot last month. My bad. January is tough. I don’t even know what my monthly insurance is going to be yet. I haven’t gotten the invoice yet. I am thinking it is going to be at least $232, might be more but I will stick with that for now.
So tired of the shore
I had a meeting with my psychopharm today. We went over the psychache psychometrics. She assessed my suicidality. She didn’t like that I am hearing commanding voices and my suicidal level was high. I told her this was my norm. She said if that changes to get in touch with her immediately. I told her I would.
I sent a message to my therapist last night and haven’t gotten a response. The voices are telling me that she thinks I am meaningless and don’t trust her. I should end seeing her. I am still feeling meaningless. The voices are really loud today and I am having trouble concentrating. Tomorrow I see the therapist and I am supposed to bring Shneidman’s needs with me. I thought of just bringing a print out of my blog on the subject but then I thought bringing the book might be better as it lists a better definition of the words than I could interpret.
Since before my appointment with my psychopharm, my ankle had started to act up. I took a pain med before leaving the house. Now my pain is beyond tolerable. I can’t take my normal stuff because I have an early appointment with the therapist tomorrow. I have to leave by 1030. I just hope that I remember to bring Shneidman’s book with me. I meant to put it in my bag today but I forgot it on my bed. I am glad I took a shower this morning (probably what set off my ankle) so I won’t have to tomorrow.
The voices have been really loud today. Last night they were obnoxious. I sent a message to the therapist but haven’t had a response. They are telling me I should kill myself, though they are not being too clear on how to do it. One is telling to do it this way and the other is just like take this bottle of pills. I am glad I don’t have those bottles near me. I want them to shut up but I know the only way they really will is by killing myself. I can’t put them on mute as they don’t have a mute button. I have five voices right now, 3 that are bad and 2 that are my normal ones. Sometimes there are six. I am glad the 6th one doesn’t come along too often. There is so much noise going on. I told the psychopharm I would only be open to taking trilafon. It is the only med that works when I need it. I don’t want to go on something else or increase the dose I am taking now. I don’t want side effects. It is bad enough that I am dealing with dry mouth from the nortriptyline and the bladder spasm medication. I won’t take that medicine tomorrow because I want to see if it is making the dry mouth worse. I hate dry mouth. I have to make sure I carry cough drops or hard candy with me at all times now.
Abuse finally told
Wednesday, my mother set off my PTSD. I had such anxiety most of the day that it was driving me crazy along with the intrusive memories and feelings of shame and humiliation. I couldn’t sleep the whole night. I was up because of pain so around 0430 before I went to finally rest, I sent a text to my therapist asking if I could still see her today despite canceling the appointment. She responded like an hour or so later saying yes, I could come in.
I wasn’t sure how I was going to go about this. I had so much on my mind. I needed to ask her input on how to set boundaries with my mother and she said that it is not going to be easy as this is going to be coming from left field with her (my mother). I knew it would be I was just hoping something I could say could diffuse the situation. Really didn’t come up with anything so I started talking about the stuff she did to me. She said if this had happened today, child’s services would have been involved. I still feel sick about all of it. When I told her what she wanted the doctor to do and then I couldn’t tell her what went on at home, with her holding me down to do what she wanted to do. I pretty much told her everything that she ever did to me. She (therapist) thinks my mother is psychotic. She is not trying to take away from what she did to me. My therapist told me what she did was abuse and I was both relieved and scared about this. I always got that what she did was of “motherly concern” so therefore was not abuse. And because when I confronted my mother at 16 she denied it as well as I was told how could I say such things about my mother, it just made me shut down. I denied it because I had to. Now I cannot because it is causing too much turmoil.
The abuse happened when I was a toddler up until I was fourteen. It made the gender dysphoria so much more present and also messed with me in other ways. I feel dirty and I don’t think I will ever be clean. This is all I can write at this time. I wish I could write more but it is hurting too much and stirring up too many emotions.
Feeling grumpy and hopeless
Monday I saw the concussion doc. I am doing better but he still wants me to go to PT. I was supposed to start Friday but this urine infection is giving me bladder pains and cramps. I just don’t want to do nothing. After the appointment I saw my therapist who let me go after 15 mins of being there. I was so uncomfortable with my bladder that sitting was hard. I wasn’t talkative so she just let me leave. I have mixed feelings about it. I then canceled our appointment for tomorrow. I just cancelled all the appointments I had for the rest of the week. I just feel so miserable and depressed. I don’t want to do a goddamn thing. Yesterday was a complete blur. I didn’t sleep Monday night or kept waking up so I think I slept all day. I know I didn’t eat anything except M&Ms peanut candy and Ensure. I think I just left my room to use the bathroom and that was it.
I woke up in miserable mood. The urine culture came back with some bugs in it. Now I am just waiting to see if the doc wants to treat it or not. I am still having bladder pains. I had called yesterday but they said I had to wait till today for the culture to come back. I thought my depression was getting better but now I feel so much worse. Next week when I see the psychopharm I am going to ask her to see if increasing the duloxetine would be good. The nortriptyline isn’t helping my mood as I am on a low dose but it is helping the pain a bit. My neurologist gave me more than a week’s supply of a muscle relaxant. It is working as I am no longer getting spasms in my feet. They would come on while I was in the shower and omg I thought I was going to die just standing there while my feet spazzed out on me.
Right now I don’t have an appointment with my therapist. I responded to her message but haven’t heard anything yet. I got a few appointments next week. I see the behavioral psychologist and then PT. I also see the psychopharm. I feel so blah and overwhelmed with all these appointments.
I am fricken livid at my mother. I was in the bathroom cathing to pee and she just barges in to throw something in the hamper. WTF she couldn’t wait five fucking minutes??? I am so damn mad that she does this to me all the time. I know I need to tell her to stop but it is so hard talking to her because she doesn’t fucking hear what you tell her half the time and need to repeat it several times for her to get it. Then she thinks about what you say and she goes on a different tangent. Drives me fucking nuts. I want to hit the lottery so I can have my own apartment. I will hire a cleaning lady so I don’t have to worry about dust or the bathroom being dirty.
I have been fighting the urge to nap the past two hours. I am just so damn tired. I woke up three times to pee during the night. I try not to drink but the meds make my mouth dry. I got to switch back to Powerade as Gatorade is like drinking water. Soon as I start drinking, I just want more and more and before I realize it, the bottle is gone. Then I have to stay up to wait for it to go to my kidneys so I can empty my bladder for the night. I think nights of sleeping all night are over. There is like this internal 2-3 AM alarm clock that goes off saying I got to pee. It sucks. And once I go downstairs, do my business, then go back to my room, I am awake for a couple of hours.
I don’t plan on doing anything the next few days. I might get my haircut but that will be all. I just have no motivation to do a damn thing. I just want to sleep but the payback is being up all night. I haven’t eaten today and I don’t think I am going to. I haven’t even had an Ensure. I just had a cold brew and a cup of tea. I made the tea perfect. I love when I do that. It is so good. Wind is picking up. I got an alert that an advisory is in effect. Great. Hope it doesn’t keep me up.