The hunt for Picante sauce
I was in severe pain last night after taking my night time dose of pain meds. It wasn’t even two mins in my system when I moved to lay down that my ankle exploded in severe pain. It was then the waiting game of what to do/take. I was up till around 4. Around 3 I got hungry and heated up the breakfast burrito I made a few days ago. I wanted something spice and found a packet of picante sauce from McDonalds. YES! It was so good. My belly was full and I was able to get to sleep, though it wasn’t restful as I kept waking up every couple of hours, with my med alarm scaring the crap out of me. I would have stayed in bed but I had to see my therapist. I woke up shortly after 11 so there was no chance of a shower. I went downstairs to brush my teeth and use the bathroom. My mother made pancakes and saved me some. I took them with me to have at Starbucks with my much needed espresso.
I got to Starbucks and had 5 shots of espresso and the pancakes. It was good. I then wrote in my journal until it was time to leave for my therapist’s office. It was bloody cold but I was wearing a heavy sweatshirt and that made me sweat. My ankle was still bothering me so I took a strong pain pill to keep it quiet. In my Painsomnia state, I had written an email to my psychiatrist that was basically telling her I was going through with Plan A. She had responded with some weird inquiries so I had some explaining to do. We exchanged emails and I think everything is sorted. Not quite sure though as she never responded with my last email.
I went to my therapist’s office and session went well. He was surprised that the pain doc and my PCP had decided to go collaborate and not include me in the conversation. It is still a mystery why my psychiatrist needs to be involved. I asked him if the LGBT doc had been in touch with him and he said that they were looking for my entire record from him. He didn’t send it because he wanted to talk to me first and I am glad he did because I do not want them to have the record. They may talk to him, but I do not want what we talk about to be shared. He said that he is willing to write a letter if they need it but it will cost me. I am not worried about that. He said he would prefer a phone call. I agreed. So Friday when I meet with the doc, I will ask him what he wants with my therapist. As of yet, the LGBT doc has not contacted my psychiatrist. I have no idea if he got my medical records or what. Now I am really nervous about the appt.
I am on the fence on moving forward with my transition because of my plan. I am going to send my PCP a message about what he plans on doing with my pain meds. I am planning on picking up the script on Wed, if they are ready. After therapy, I went on my picante sauce hunt. I went to the grocery store at the Square and they had shit selection but no picante sauce. The eggs were also up thirty cents since I bought them Saturday. I went to another grocery store and they had the picante sauce! Yay! I bought three dozen eggs and a half gallon of juice, my kind as the one my sister bought my mother sucks. It is from concentrate and I like it not from concentrate. It just tastes better. I got home and had to shower. I was sweating and because I was holding my urine, I leaked pretty good. I felt gross. I knew my ankle wasn’t going to like it but that is what pain meds were for.
After the shower, I had dinner that my mother made. Then she yelled at me because I spent so much on the eggs. I should have destroyed the receipt but I forgot I left it in the bag. It wasn’t even her money! She said she wasn’t sending me shopping anymore. Fine. Whatever. I don’t give a shit. You buy your eggs and I’ll buy mine!
I just made a cup of orange spice tea and I am going to relax the rest of the night. My back and ankle are killing me. I hope I am not up all night again. I need to clean out my backpack and find out what the hell is so damn heavy. I think I am going to switch to my messenger bag. It is time for a change anyway. Time to rock the Pearl Jam bag!
I am having a hard time right now. My brain is playing games with me. My stupid female breasts are hurting me a lot tonight. If I didn’t know any better, I’d say I was going to have my menses soon. The weigh so heavy for some reason Maybe it is because of the pain.
I vant decide if I am male or female. I know I am a male but all my body parts are female. I am so distraught. It is making me tearful. I have no one to talk to that understands. I have one friend on FB that is trans ftm. I only met him because I met his mother through a mutual game we were playing at the time. Weird how things play out.
I know the pain will pass, eventually. I just hate it as it is just a reminder of who I am not.
There is a homeless guy by the Starbucks that I go to. Every time he sees me he misgenders me. Lately he has been calling me “lady”. Screw you pal, now you aren’t getting my extra buck when I have it. I hate my body so much. And having these painful things on my chest doesn’t make me like it any better. I hate being trapped in this shell.
I see the LGBT doc next week. I don’t know how it will go. It will be our 2nd appt. I need a minimum of three before being considered for hormone therapy. So frustrating. Wish I could have top surgery tomorrow and be done with these fuckers that hurt. Like I need more pain in my life. Just hate myself so much right now. I wish I was dead.
I knew I was going to wake up when my pain med wore off. I thought the neurontin and Ativan would cover me. I was wrong. I have such intense burning going on and there feels like a little ball of pain toward the middle of where my ankle and foot meet. This is a new pain. Got to love CRPS and all the different pains it gives you. It is never the same pain twice, usually.
I just had some cornbread so that flared things up because I had to go down then up the stairs. I was hungry. I have decided to give some of my casserole to my barber and his pal. There is no way I can eat it all myself.
My big check came in so I paid my bills. Now I am broke again. Easy come, easy go. Sucks being an adult.
Pain is awful. I really wish I could have a break, if only for a few hours. I got into such deep despair last night because of it. I thought of ending things once again. I just don’t have a place to do it. I need to find one. I haven’t 100% made up my mind to do it, but having a place would ease the anxiety. I just feel everyone would be better off without me. I feel so useless. I can’t function anymore because I am not sleeping well. These broken sleeps are making me feel like shit most days. I’m never going to get better.
Been having a lot of gender dysphoria the past few days. My mother has been calling me miss and even though I correct her, she doesn’t care. I asked my sister to call me her brother and she said if I want to. I’m getting frustrated with the whole pronoun thing. If I didn’t have breasts, it might be easier. I don’t know when I can have top surgery or if my insurance will pay for it. I’ve been too scared to call and ask. I will ask the LGBT doc when I see him in a few weeks. O hope I don’t have to lose weight because that will be a hard battle. I’ve only gained weight because of my meds. I know I don’t eat right. I’ve been thinking of joining Nutrisystem. It is a weight loss program but I don’t think I can afford the food. I’ll have to look into it. I have other stuff I need to get done before I spend like $300 on food to lose weight.
I wish my breasts were smaller than they are. Women in my family have such huge breasts. I hate them on me. Actually, I think loathe is a better term. If I could cut them off myself, I would. Also been wondering if I should get a penile operation. I don’t know. I guess in time I’ll figure that out.
I requested my records from the pain clinic to see what they wrote about me. I think it is important for me to know. I have every right to see my records. I hope they come soon.
LGBT appt and other things
I woke up early this morning to see the LGBT doc. I was nervous about it. I got there and I had to have them change my name. I thought I had my insurance card on me and I didn’t. They had the right info though so didn’t need it, it was just my name that needed changing. I liked the doc. He answered my questions and said that because I had a history of bipolar, he needed to talk to my psychiatrist and therapist. He also said that it will be a few appointments before I get started on hormones. I already figured that. He said that testosterone might increase mania. He asked if he wanted to transfer my primary care there and I was hesitant. I told him I was on pain meds and he said he had no problem taking over. I am not happy with my current PCP so I took a chance and said okay. Now I got to let my PCP know he is fired.
I have an appt with the new doc in seven weeks, which is more than what my pain meds would be for another refill. I would have to keep my current PCP a little longer. I see him the week before the appt with the new doc so I will tell him I am planning on transferring then.
I have been in so much pain since I came home. Because I was up early, I have been trying to sleep but dammit, half my ankle and foot go berserk every time I lay down. The last time, the pain was so painful and indescribable, I just started crying. The pain then caused my shin muscles to cramp up. I needed to get the heat pack and of course my bladder forced me downstairs because it had to be emptied. My mother was in the bathroom so I had to go down another flight of stairs to use my sister’s bathroom. There was no way I could hold it long. When my bladder says it is time to go, it’s time to go.
I hope I am not up all night in pain. I am so tired of sleepless nights. I might try finishing the baseball book. I just don’t know if I have the brain power. I feel so foggy from being sleep deprived. I think tomorrow I am just going to rest. I am not going to do a damn thing. I’ll try and change my sheets Sunday. I might make the zucchini bread then too. I don’t know. I know that anything I do gives me pain. A member of my support group says I should walk when in severe pain. OK. That doesn’t help me.
When I came home, it was freezing in my room because it was windy out. I had tried to nap but the wind was so bad it was rattling the doors in my room, and they were closed! It was scaring me so I had to close the window. Now my room is hot again. My foot has now gone from indescribable pain to burning. I really don’t want to take the Neurontin because I think it causes dizziness the next day. I don’t know why it is causing this now as I have been taking it for years. I only took 600 mg last night. I usually take more.
One thing that stands out from the LGBT doc is that he asked me if I had any Narcan. It is a drug used to reverse the effects of opioid overdose. I told him I was never prescribed this med. He said he would as I could accidently overdose. Although I have often felt like taking a handful when my pain is bad, I don’t take more than I should. I take my two tabs every six hours or so follow by the strong pain pill if I need it a few hours later. I am very careful with my meds, all of them, not just the opioids I take. The only med I might take more of is the Neurontin. But I haven’t been doing that lately because my appetite is out of control the next day. I have also gained a lot of weight the past two months. I hate it. I feel so yucky. I hate myself for letting myself get so fat. I’ve been trying to cut back but there are days when I only eat one meal and then there are days where I am always hungry. I can’t win with these meds. The testosterone might cause weight gain too. I don’t know what I am going to do about that. It could just be more muscle than fat but in my mind, more weight just is an issue regardless. It’s not like I can go to a gym and workout. I would love to go back on a treadmill or even walk to the train station like I used to as either one is about 1 mile from my house. I really miss walking. If you are abled bodied, please don’t ever take walking for granted. You never know when it will be taken away from you.
Can anyone understand?
So flipping fed up. After I made my squash and was putting it away my whole ankle and foot seized up. Told my mother I wasn’t sure how I was going to go upstairs. She says I need to rest until the pain goes away. Frack!! Really? I could rest for days and it will still hurt. Then she says I go up and down the stairs sometimes like it is nothing. No. It still fracking hurts. I still have pain. Then she says not to yell at her, it’s not her fault. JFC. So fucking done. Taking an Ativan. Can’t deal anymore!! No one fricken understands. If resting worked, I should be cured by now.
I watched cat and dog videos after I sent this to my psychiatrist. I am just having a bad pain day. I am so stressed out. I am worried about tomorrow as I will be seeing a new doctor. I have no idea how it will go. I have been trying to stay together just for this appointment. If it goes poorly, I don’t think I can handle it. I feel like there is no understanding anymore. I am skeptical this doc will allow me to get hormones to be the man I know I am. It is just so difficult. I have chronic pain that is driving me insane and the walk I got to take tomorrow to get to the building is a ways from the station. I plan on making a detour so I can get my Starbucks before the appointment. I wish someone was going with me but at the same time I don’t think I could handle company. I have no idea when the bus will come as I usually don’t take it that early in the morning. My appt is at 0830 and I got to be there early as my name has changed since I was there. I have decided not to use Medicare as my insurance, just keep my BCBS. I think it will be easier that way. I am paranoid that if I use Medicare for my transition, I might be on a list of some kind and the government will get me as long as Cheeto is in “charge”.
I made the butternut squash, as I said before. I used too much brown sugar so it is really sweet. I used half a cup. I should have went with a quarter. Oh well. It was still good. My mother is making a stir fry tonight with rice so I will have it as well. I bought a Pyrex loaf pan with a lid so I can make the zucchini bread and have a place to store it. My mother is using both her cake storage containers so I don’t have a place to store the bread once I make it. I will see how I am Saturday, though I plan on changing my sheets then. All depends if this pain settles down some. I can function if it is below a 7. Right now it is close to a 13 and am just crying. I took my pain meds though I didn’t want to. I really don’t think they work for me anymore. I am just dependent on them. Either that or my pain has just been so bad there is nothing to take for it. It is a new pain, not my normal kind of pain, that I have been experiencing.
I emailed Dell to find out if I could get a memory upgrade or if I am stuck with what I have. I think I can upgrade my hard drive but I am not sure. If I can’t use the memory that I bought, I will sell it on Amazon or someplace. I doubt I can return it. Still mad at myself that I bought a cheap laptop to stay cheap. I only need more RAM so I can run Facebook without the memory flag going off. So stupid.
I think I am going to put on some lidocaine. It might not help 100% but it might just bring my pain down to bearable. Fucking 13 is not fun. I seriously am thinking of cutting it off, and probably would if I had the implements to do it.
I forgot to take my morning blood pressure pills when I woke up this morning. I will take the night dose. I have been checking my BP to make sure it doesn’t get high or low and to keep an eye on my pulse.