Back on Twitter!

Back on Twitter.

I am back on Twitter. I was really getting down because I couldn’t access my account and Twitter support finally reached out to me to clear the error that was causing the text messages not to go through. I took a screen shot of the backup code so that I would have it should I get locked out again. I missed my tweeps so much. I deactivated the acct I was using.

I sent this to my therapist and PCP: “hi,

I am having a hard time with the gender dysphoria around top surgery and the stupid limitation of the BMI. I can be so suicidal at times because I can’t stand to look at my chest and knowing weight is what is keeping me from this goal is killing me. I lost some weight due to covid but gained some back once I started eating again. I’m not good with diet and my appetite is either there or it isn’t due to the depression. I am 192 right now and was 187 last week. This is stressing me out and I am not sure who to talk to about it.”

I hate that a BMI is preventing much needed suicide prevention work. I am in the mood to take a lot of pills right now but I won’t. It is just a feeling that will pass. I hate feeling this way. I don’t know why there is a restriction for surgery. This is so fucking stupid. I feel like it is discrimination against obese people. I just want these things off my chest! They don’t belong there. And it sucks that now they are hairy and will only become more hairy as the T dose has increased. I just want to be flat chested. What is wrong with that? I am a fucking man for crying out loud. I don’t even care if I have nipples or not. Just want the damn things off.

My therapist canceled therapy yesterday due to an immediate personal problem. I guess dealing with my mother on this Mother’s day is all on me. I have decided to get her a son card. I will get it tomorrow when I mail my letter. My cousin sent me a box of her husband’s things. Her husband is my godfather. I haven’t opened it yet because I am so emotional about other things that I just can’t deal with more grief. I miss my godfather so much. He was such a good man.

I am so tired today. I have been up since 0100. I have tried going back to sleep but I keep failing. This UTI is kicking my ass. It still hurts to pee and my urine is cloudy. It probably smells but I can’t smell things right now because of covid. I had Covid PT yesterday and it killed me. Made me so fricken tired. I thought I would sleep through the night but I only slept for a few hours before waking up at 1. The UTI is making me pee every 2 fucking hours. It sucks. I can’t do anything until I finish the antibiotics. I haven’t cathed at all because it hurts.

Don’t call me daughter 6

Don’t call me daughter 6

Yesterday I was in the kitchen with my mother and I was in a mood. I wasn’t feeling so great and just wanted to do what I needed to and go back to my room. My mother was there and asked what was wrong. She wanted me to talk to her. Fuck that. She lost that right when she refused to call me son. From now on I will correct her when she is misgendering me. But I am not going to talk to her for any reason other than what goes on in the house. I am not going to talk to her like I did before about my ailments and doctor appointments. She is getting to be the egg donor and if that is what it takes to cut off feelings from her then so be it.

I’ve been having a hard time with the cramps. I don’t know if they are uterine or bladder related but as an experiment, I cathed and felt relief at first only to have severe pain afterwards.  I don’t know what to make of it and I have cathed since. Taking a double dose of Miralax was a bad idea. I had colon blow and woke up with crap in my pants. Luckily, I didn’t get any on the bed. I had to shower and what is worse my mother had to use the bathroom so I was so embarrassed. I need to time taking it right. Thing is it is so unpredictable when it works. It could be a few hours or could be a day. There is no time table to expect when to go.

I am still have cramps and being really down about it. I called my gyn to make an appointment for the exam. It is in May. I see the uro NP this week so I am going to tell her and ask for a urine culture to be done just to be sure I don’t have an infection that could be causing this. I really am not looking forward to surgery again but there is little choice I have. Once the offending organ is gone is should be apparent what is causing what. I doubled my bladder spasms pill yesterday to see if it would help and it did a little bit. Maybe this is bladder related. I won’t know until the uterus is gone. I got my bladder on a schedule again. I didn’t want to do it but I have gone past the six hours I am supposed to go. I can’t keep holding on to my urine for so long. It could be why I have spasms as well.

I wonder if my mother is ashamed of me and that is why she doesn’t want to call me son. It would make sense. I don’t get the sense she is proud of me. I just don’t understand why she can’t accept her child. This bothers me so much. When you bring it up to her, she is dismissive. Then I think about all the abuse she put me through and it just makes me so sad and angry. She used her trust as a mother to do her evil bidding of abusing and touching me when she had no right to touch or look. I get mad at my pediatrician who documented all these things and didn’t do a damn thing about it.

An idiot, I am

Pain got the best of me this morning. Early this morning I was ready to doze off finally after being up all night. Laid down and within 15 minutes, pain got worse. I had enough so I got the elixir out. I wasn’t sure how it was going to taste. I took a swig. It was peppery and I checked the ingredients to make sure it didn’t have pepper in it or my stomach was going to reject my attempt. I kept taking shots but nothing was happening. I waited an hour. Nothing. By now it was like 6 am. I maybe dozed off for an hour or two, not consecutively though. By 0700, I gave up. The stuff wasn’t causing a reaction. I was mad and pissed and a jumble of other emotions.

I texted my therapist at midnight saying I wasn’t going to see her tomorrow. She thought it was today so allowed me to cancel. Mood was all over the place. Then she texted saying she couldn’t see me because she was really sick. That was the last text I got from her. I sent her a few more but got nothing. I went about my day.

I went to see my friend at the Navy Yard. We chatted for a few before he had to go back to work. I then went off for my appt with OT. We discussed the caths and stuff related. I asked her what would be best in cathing in bed and she told me it might be easier but I could get too comfortable with it that it would be the only place I would. Right now I am just planning on doing it when my ankle is 12+ level pain so I don’t have to go downstairs. I got a urinal and she showed me an type of catheter with a bag from the same company that makes the ones I use. She is going to recommend them to my uro so she can order them for me. These will be so much easier as then I don’t have to worry too much about wetting the bed with an accidental miss. Throughout the conversation I was having trouble keeping it. Concussion symptoms were in high gear today. Memory was finicky at best and my thoughts were not always on point. I would forget mid-sentence what I was saying and then totally blank out completely. Didn’t help that I sleep deprived.

After the appt, I went grocery shopping. I wanted burgers and turkey bacon. 4 things and I wiped out when I got home. I wanted to nap but couldn’t. I asked my mother to make burgers. She did, almost using the two pounds of meat I bought. I told her not to use all of it because I wanted to make dirty gravy. Now I need to buy more meat, which means going out in the storm tomorrow. Fucking fuck. I am so pissed she just did what she wanted with my stuff.

The only side effect from my failed attempt is a sore throat. I haven’t officially told anyone. I feel more hopeless and useless now than i did before. I put in a call to the NP as the therapist wanted me to involve her in this. She (NP) never called me so not sure when or if she will. I texted the therapist about it. Still got no response so she must really be sick. I don’t know if she is going to figure out i duped her with appt days. I did ask saying if there was an opening to let me know. I cannot see her Thurs but will if i have to. I see the behavioral med psychologist then. I cannot see the therapist and him on the same day as insurance won’t allow it.

I really don’t want to let on I tried to end things today. I feel like I will get in trouble if I do or worse, get placed back in the hospital. I will know more tomorrow if the therapist is feeling better.

Wed morning I see the concussion specialist. I am being evaluated for a TBI, which is what a concussion is, a traumatic brain injury, though a mild one. I am having a lot of symptoms so hope they can help. I know I have been bad about screen time and resting my brain. It is so hard though doing absolutely nothing sitting in the dark. I wouldn’t mind if I was drugged out on something or maybe I just need an ativan to help me sleep while my brain recovers. I still am getting headaches and pain at the back of my head where I banged it. Short term memory is shot. I can’t remember things like i used to and i have to write stuff down. The OT suggested I have an alarm set to start being on a bladder schedule so i know when to pee. I think i am going to put it in my med app as i can order it for every 6 hours or so without disrupting the time schedule. Trick would be at night so i don’t wake up in the early morning hours just to empty my bladder. But if i should have to, i now have the urinal and obviously the caths to do it. The OT also gave me a few higher quality chux pads. That was really nice of her. Now I can order them through Amazon. I haven’t decided if I should get disposable ones or washable. The price is pretty much the same, except for washable you get 4, disposable I think is 50. If I get the washable, I won’t have to reorder them, which would be nice.

I am feeling pretty worthless about failing, again. I guess I am just not meant to die. And this bothers me so much.

High levels of pain and new development

My pain level for most of the day has been a 14 since 4 am when I woke up to pee. Ankle/foot have been either together or alternating with the pain. Either my ankle joint is being hacked with an axe, foot bones are being crushed, or now an “L” shaped pain has started which totally prevents me from moving the damn thing. I just want to die and I am racking my brain on how to do it seeing as how I was going to do it didn’t pan out and didn’t work.

Today I found that I have diminished feeling in my privates. I can get slightly aroused but either have a weak orgasm or none at all, which is frustrating. I know I don’t talk about sex that much on here but the disc that is doing whatever to my bladder nerves also controls the nerves to the other parts of my genitalia. Although I wish to have no relationship with it, I have no choice because nerve damage will make phalloplasty difficult so I’ve choose not to have bottom surgery. However, now that this stupid disc is wreaking havoc on these nerves, I might as well not have a sex life of masturbation or with someone of my choosing. Thanks Cauda Equina Syndrome for really fucking up my life, and not in a good way.

As the compression seems to be causing slow diminished effects it is hard to know what level this injury is coming from. It is making me so damn suicidal. But like I said I need to find a way to do it. I still have the ginger plan. It is just finding the ginger to do the trick. I am going to try ginger beer next. Or a ginger shot that I found on Amazon. Sent a pic to my therapist and she got upset with me. Oh well.

I emailed my psych to let her know what was going on. She wants to know what my neurosurgeon says. I am thinking I probably will have to get a new MRI with contrast. I am going to suggest that an IV be placed so access is there. Otherwise, because I am a hard stick, it might be difficult to administer the contrast. My only worry right now is what effect this is going to have on my bowels. Right now I am backed up so I am kind of grateful for that but I need dynamite to get the shit out. OT has suggested Miralax so I am trying that. I am also wondering if the back pain is being masked because of the pain meds I take. Today while looking for a book my back flared up but sort of settled down. Then I was standing doing something when pain said to sit. I’ve been sitting with pain since then but it isn’t above a 4. If it was higher, then surgery would be next on my mind.

I really like my therapist (ptx) even though she is a hard ass. She pushes me and I like that about her. Also, I really didn’t think I had bullshit but she says I do. She wants to keep me on track of what we talk about and stay on it, not derail because I am feeling emotions about it. I am driving her nuts with the text thing. So I’ve decided to send the worrisome stuff to my alt phone so it is out of my system/head.

I can’t really the last time I had a number 2. I was going good for a while now I’ve stopped again. I hate constipation. You might think this is gross or maybe something not to talk about but this is what I deal with and shit I deal with goes on my blog. You don’t like it, find something else to read. I am scared of this development. The whole purpose of not going through phalloplasty was cause I liked my clit a lot. If it is no longer going to work then I am not sure what I am going to do. A sex life isn’t important to me but I’d still like one if it should present itself. If I should find a female I like and we hit it off i don’t want it to end because i can’t function. I never dreamed of having someone long term in my life but i do want someone to cuddle with.

If you are reading this and it cause discomfort due to issues of sexual abuse or something, please let me know and I will place a trigger warning so someone else doesn’t.