CRPS doesn’t care about hot temps

CRPS doesn’t care about hot temps

It has been muggy in the house the past few days as a warm front is passing through. Temps have been above 70 degrees and I have had the AC going. You would think that would be a cause of my foot being cold but I shut off the AC a few hours ago and then my foot got cold then exploded in pain. I have been miserable since. All I have had to eat today is two donuts and coffee. I don’t really feel like eating. I’ve slept most of the day. I am just so tired. I dealt with bad emotions last night. My anxiety was at its worst. Sometimes it is hard to know it is anxiety and I need an Ativan to calm down. Once the medication works, I can think clearer and not so dark sometimes.

I had therapy. I asked for an extra session as the dysphoria was really getting to me. It has gotten to the point where I don’t even want to shower because I don’t want to see myself naked. I wish there were no mirrors in the bathroom. I hate looking at myself. Sometimes I look at myself and think damn I look good and other times I hate myself so damn much I can’t stand looking at me. I have been meaning to trim my beard all week but that hasn’t happened. I just don’t have the energy for self-care. I was able to brush my teeth this morning before taking my meds. I find that if I brush after having my morning void is easier than trying to do it after I have had my coffee.

My day started late because after I took my morning meds I went back to sleep and didn’t get up till around 1300. I had coffee because it has become a routine to have coffee when I wake up. I tried to take a nap after coffee because I was feeling tired but I couldn’t sleep. I was too anxious I would sleep through my appointment.

I realized today that I had a really nuts therapist who really thought she had possession of me. In a way I am glad I am no longer in that relationship but I miss her sometimes. She provided me care when no one else did and was my biggest supporter in my efforts to be me. She went to the poster session with me at my first conference. My psych was to show up but never did. My psych is someone who I miss terribly. It is coming on two years now that she has been gone. It still hurts like the day we said goodbye. We still keep in touch and have had a few zoom calls since then. I never thought this psychiatrist would be on zoom but she did.

I have to plan my grocery delivery. I got to remove some stuff from my cart so I don’t go over my limit. I am going to the store on Monday with my cousin. I will get the stuff I am removing then. I need to have the heavy stuff delivered so it is easier to bring upstairs. The ice cream and steak I can get at the store.

Back on Twitter!

Back on Twitter.

I am back on Twitter. I was really getting down because I couldn’t access my account and Twitter support finally reached out to me to clear the error that was causing the text messages not to go through. I took a screen shot of the backup code so that I would have it should I get locked out again. I missed my tweeps so much. I deactivated the acct I was using.

I sent this to my therapist and PCP: “hi,

I am having a hard time with the gender dysphoria around top surgery and the stupid limitation of the BMI. I can be so suicidal at times because I can’t stand to look at my chest and knowing weight is what is keeping me from this goal is killing me. I lost some weight due to covid but gained some back once I started eating again. I’m not good with diet and my appetite is either there or it isn’t due to the depression. I am 192 right now and was 187 last week. This is stressing me out and I am not sure who to talk to about it.”

I hate that a BMI is preventing much needed suicide prevention work. I am in the mood to take a lot of pills right now but I won’t. It is just a feeling that will pass. I hate feeling this way. I don’t know why there is a restriction for surgery. This is so fucking stupid. I feel like it is discrimination against obese people. I just want these things off my chest! They don’t belong there. And it sucks that now they are hairy and will only become more hairy as the T dose has increased. I just want to be flat chested. What is wrong with that? I am a fucking man for crying out loud. I don’t even care if I have nipples or not. Just want the damn things off.

My therapist canceled therapy yesterday due to an immediate personal problem. I guess dealing with my mother on this Mother’s day is all on me. I have decided to get her a son card. I will get it tomorrow when I mail my letter. My cousin sent me a box of her husband’s things. Her husband is my godfather. I haven’t opened it yet because I am so emotional about other things that I just can’t deal with more grief. I miss my godfather so much. He was such a good man.

I am so tired today. I have been up since 0100. I have tried going back to sleep but I keep failing. This UTI is kicking my ass. It still hurts to pee and my urine is cloudy. It probably smells but I can’t smell things right now because of covid. I had Covid PT yesterday and it killed me. Made me so fricken tired. I thought I would sleep through the night but I only slept for a few hours before waking up at 1. The UTI is making me pee every 2 fucking hours. It sucks. I can’t do anything until I finish the antibiotics. I haven’t cathed at all because it hurts.

Don’t call me daughter 6

Don’t call me daughter 6

Yesterday I was in the kitchen with my mother and I was in a mood. I wasn’t feeling so great and just wanted to do what I needed to and go back to my room. My mother was there and asked what was wrong. She wanted me to talk to her. Fuck that. She lost that right when she refused to call me son. From now on I will correct her when she is misgendering me. But I am not going to talk to her for any reason other than what goes on in the house. I am not going to talk to her like I did before about my ailments and doctor appointments. She is getting to be the egg donor and if that is what it takes to cut off feelings from her then so be it.

I’ve been having a hard time with the cramps. I don’t know if they are uterine or bladder related but as an experiment, I cathed and felt relief at first only to have severe pain afterwards.  I don’t know what to make of it and I have cathed since. Taking a double dose of Miralax was a bad idea. I had colon blow and woke up with crap in my pants. Luckily, I didn’t get any on the bed. I had to shower and what is worse my mother had to use the bathroom so I was so embarrassed. I need to time taking it right. Thing is it is so unpredictable when it works. It could be a few hours or could be a day. There is no time table to expect when to go.

I am still have cramps and being really down about it. I called my gyn to make an appointment for the exam. It is in May. I see the uro NP this week so I am going to tell her and ask for a urine culture to be done just to be sure I don’t have an infection that could be causing this. I really am not looking forward to surgery again but there is little choice I have. Once the offending organ is gone is should be apparent what is causing what. I doubled my bladder spasms pill yesterday to see if it would help and it did a little bit. Maybe this is bladder related. I won’t know until the uterus is gone. I got my bladder on a schedule again. I didn’t want to do it but I have gone past the six hours I am supposed to go. I can’t keep holding on to my urine for so long. It could be why I have spasms as well.

I wonder if my mother is ashamed of me and that is why she doesn’t want to call me son. It would make sense. I don’t get the sense she is proud of me. I just don’t understand why she can’t accept her child. This bothers me so much. When you bring it up to her, she is dismissive. Then I think about all the abuse she put me through and it just makes me so sad and angry. She used her trust as a mother to do her evil bidding of abusing and touching me when she had no right to touch or look. I get mad at my pediatrician who documented all these things and didn’t do a damn thing about it.

shower and a shave

Shower and shave

I need to shave my head and shower today. I am getting very stinky. I should trim my armpit hair. I haven’t done it in a while. It just grows so damn fast, like the hair on my head. I am really congested today with allergies. Today is supposed to be nice out. I am sure I will overdress and be hot. I will probably sweat a lot, too. I got PT today. My mother does, too.

I had a good session with my therapist on Mon. We talked about my suicidality and how I would like things to proceed from now on. We are going to continue working with the chronic pain workbook and I am to do the Crisis Response Plan. It has been hard to do. I haven’t been suicidal so I haven’t done it. I did write it out in my therapy book. I got to put it in my journal. She wants to work with me and I am glad because I really don’t want another therapist.

Baseball spring training is underway. I haven’t watched it because I really don’t watch TV. I don’t know if it has been on the radio or not. They are now doing 9 inning games so it would be worthwhile to see or hear it. They don’t have it on their radio app which sucks. I don’t know if games are going to be on the app this year or not. It was wonderful last year as I could play it anywhere I go and could listen along as I carried my phone with me around the house. I caught every pitch. It was really good.

I finally was able to get my songs on Dropbox off and put it on my phone for Mary Chapin Carpenter’s One Night Lonely album. I can finally listen to the songs from that awesome night. I still can’t believe I fell asleep midway through her singing. Her voice is so soothing to me so I am not surprised. I am so happy she has her acoustic album.

I have been trying to get my mother to use he/him pronouns with me and she is still resisting it. Yesterday my nephew called me a he and then my mother was like she. I feel so invalidated when she does this. Even when I told her I was her son her response was like “whatever”. I hate that she is like this. I will never understand how a parent can reject their child, never. More stuff to talk to in therapy about.

Since I have been eating regularly, I stopped losing weight. I actually gained some weight but I am still under 200 pounds. I still hate my body. I still want the things on my chest to be gone, completely. Eventually I will get a hysterectomy so I can find out if my bladder is cramping or not. Yesterday I had to email my urologist because I have been retaining again. There have been long stretches where I don’t void. The other day was nearly sixteen hours since my last void. I thought I would have to cath. Yesterday voiding was okay, nearly every three hours I was urinating. It still scares me that I might have to cath again one of these days.

I need to empty my recycles. I have a lot of Gatorade bottles in my room. I just have been so lazy to bring them all the way to the first floor where the recycle bin is. I will try and do that today as tomorrow is trash day.