I’ve been down since July…
Been listening to the song Evermore by Taylor Swift. It is a song that I can relate to. It means so much to me. I am home alone and listening via my Bluetooth headset. I had two cups of coffee today and I am not feeling hungry at all despite just having the belVita biscuits with the coffee. I am trying to keep track of my bladder function by recording the times I void in an excel sheet on my phone. I just added cath to my med app so I know what time I am supposed to go by. I just drank a bunch of Gatorade so I am hoping to go soon. I am supposed to go every 4-6 hours, more if I drink a lot or have coffee. I have been sticking with the six hour mark rather than four because otherwise I would be cathing instead of voiding on my own. I just don’t get the urge till around really the 5 hour mark. This is all because of the nerve damage caused by the tethered cord that I had and needed surgery for a year ago.
It was a nice day yesterday. I drank my coffee on the back porch. I want to put a chair out there so I can go and sit on the porch and just be outside for a bit. I have to buy the chair. A plastic one so it can be easily washed and not have to worry about the weather spoiling it. Just will have to worry on windy days because it could get blown off the porch!
I had therapy Monday. It ended with me being annoyed. We were talking about my deconditioned body and she wants me to talk to my PT about what I can do about it. Basically it means more PT for me and she said I could have a year of it to regain my strength back. I think she is right. The idea of going back to PT doesn’t appeal to me but I know that I have to do it if I want the short of breath and tiredness to go away. Then I got depressed and we talked about that and how frustrated I am by the managing chronic pain book that I bought. As we ended she said not to work on it until our next session when we can do it together.
I need to shave and shower. I have PT this afternoon. I am not sure if I will be going because my bowels seem to be unpredictable right now. I might have a virtual appointment with her. I need to go out as it has been a week since I last left the house. I had my T shot today in my left nerve damaged thigh. I am kind of hurting but it isn’t too bad. My ankle is hurting me more than my thigh. Having the shot in my thigh always worries me. I need to walk it off and I will today when I go out for my appointment. It is going to be another nice day today, though cooler than it was yesterday.
Last night I was pretty depressed and suicidal. I don’t really know why. I just got overwhelmed with being sad and just wanted to die. I was listening to the song Exile by Taylor Swift. The lyrics were so powerful. I kept wondering why I am still alive. I want to be dead so bad yet the people around me keep me here and I resent them. I really wish I could live some where else so I can be away from my toxic family. I know being around my mother is not good for my mental health but I have no where else to go. I don’t earn enough money to pay rent somewhere. I can’t work. Just sucks and I will always have suicide as an option.
Cold cloudy Sunday
The temp dropped during the night and I woke up freezing around 0230. I was in pain and been taking pain meds throughout the night. Mostly been taking Zanaflex, Tylenol, and my breakthrough med. My whole left arm is hurting for some reason, from the shoulder to my hand. I haven’t lifted anything heavy in the last few days so I don’t know why it is bothering me. I just put on a long sleeve shirt because it is 64 degrees in my room. brrrrr
Four days till Opening Day at Fenway! I am very excited we are getting 162 days of baseball. Last year just sucked with 60 games. I don’t know if they will have the games broadcasted on the radio app this year or not. I hope they do so I can listen anywhere. My favorite pitcher got scratched for starting opening day due to dead arm. I really wanted to see him start off the season at home.
I am so tired so I just plan on staying in bed today. Only thing I have to do is my meds for the week. I should get rid of my recycle that has accumulated on my bed. I have empty Gatorade bottles at the foot of my bed. For some reason I can really suck down a 20 oz bottle faster than a 32 oz. I need to start preparing for changing my sheets again. I think I am going to wash the new sheets I have and then use them on my bed.
My neck is starting to hurt again. I need to put heat on my shoulders and neck. I haven’t done it in a few days because my neck wrap is on my bed and I keep forgetting to bring it down when I go downstairs. I’ve been wanting to make a cup of tea for a while now. I just haven’t had the patience to make a cup. I just want to stay on my bed all the time.
WordPress changed the way they set up blogs. I don’t like it because you got to write out the tags and categories instead of just clicking on them like before. Pain in the ass. What normally took me 10 minutes to do now takes 20. Sucks. I hate the change. I knew it was going to happen when they had two ways of creating a blog. It was just a matter of time before they gave you the option you didn’t like.
I have therapy tomorrow. This week for appointments aren’t too bad. I have PT and I see my psychiatrist. I can’t wait to see my PT because my shoulder is so bad. I have been trying to decrease the time I spend on my phone but it has been difficult. I was waiting for a book to come yesterday but it won’t be in until next week. I am so bummed. It’s a baseball history book that one of the baseball people I follow on Twitter recommended to me. I think it is what I am looking for in the history of team names and such.
Saturday Blog 27032021
I ran a lot of errands today. I am really tired. I didn’t sleep well last night either because I kept on waking up with the blankets off me. I was cold. The temp dropped during the night. It is a nice 66 degrees in my room right now, a little on the chilly side but I like cold. My back is hurting me. I stood longer than I should have while doing my errands. I shaved and showered today. I also put gel in my hair to spike it up. It didn’t spike the way I wanted to so it just looks like my hair is standing up. I think I used the wrong kind of gel.
My bladder started the day before 8 am. I couldn’t go back to sleep after I took my meds so I just had coffee. I forgot to brush my teeth. I have been forgetting more often than not lately. I need to be better about it. I will try later after I take my night meds to brush.
It’s 50 degrees out but it is getting really windy out so it’s probably closer to 45 degrees out. I have my ceiling fan on but am thinking about shutting it off because I am getting cold. I really just want to get under the covers and sleep. Last night I went to bed before 8 pm and I was up all hours of the night. Sometimes in pain other times I just couldn’t go back to sleep or had to pee.
My neck is starting to hurt. I can’t remember the last time I put heat on it. I don’t feel like going downstairs. My legs hurt too much to do stairs. I am listening to my top 25 songs, which is mostly Eric Church’s album Mr. Misunderstood. I am not surprised as I have listened to it more than a hundred times. It is one of my favorite albums. So many good songs are on this album. I am really shocked they didn’t release Mixed drinks with feelings. I love this song so much it is in competition with One Number Away by Luke Combs.
I just took my night meds. The new alpha blocker hasn’t caused me any dizziness so far. I have decided that I need to take Miralax every day if I want to have a bowel movement. There is no other way. The senna seems to keep me in check once the hard stuff goes. It is getting the hard stuff to go that is the problem. I have to be careful because if I over do it, I will have bowel accidents and that kills me every time they happen. The last time it happened my sister was in the shower and I didn’t want to bother her so I thought I could hold it. Yeah right. Truly sucked.
Since Wed’s appointment I have been feeling exhausted. It was a long test and not much came from it except that the doctor switched alpha blockers. I see the NP in a month to see how things are going and if I am voiding. She was very worried about me not going for 18 hours and had me promise to cath if it should happen again. My legs have been sore the past two days and it has been hard to walk. I need to take a shower and haven’t had the energy to. I also need to shave. I got my haircut on Wed and have not taken any selfies because my hair isn’t spiked like I want it. Yesterday I was supposed to get the vaccine but I was just hurting too much. I didn’t sleep because of shoulder pain and my legs were horrible. I just wanted to rest in my bed. Today I had groceries delivered and that took a lot out of me. I was able to take a nap. My appetite has been low the past few days. I have been eating but very little. I had my biscuits with my coffee today and just now had a bowl of cereal. I think that is all I am going to have today.
My neck has been awful all week. I canceled PT yesterday because I hurt too much with my legs. I hated doing it but walking hurt so much yesterday. I am in a lousy mood. Surgery didn’t help me like I thought it did and that is really hard to take. I had a hard time emptying my bladder. The stress of the test left me feeling really tired. I sent a message to my uro to find out if it is the same thing that is wrong, that the bladder neck muscles aren’t working right. I told her I was thinking about botox. I just wanted to research it a little before I said yes.
I had groceries delivered today and then when they were in my room, I just collapsed. I was able to nap for a couple of hours. I need to shave and shower today but I don’t think it is going to happen. My legs just feel really sore. Even though I just woke up from that nap, I feel another sleep is needed. So I probably will be taking a nap before I go to bed for sleep. I don’t care. I am just so bloody exhausted I can barely keep my eyes open. My mother just called to say dinner is ready. I am not hungry so will pass. I just want to lay down and sleep.