a busy past few days

A busy past few days

I have a busy week with a lot of appointments. I had two today, back to back. Tomorrow I see my pcp to discuss my cardiac markers and a BP med. I am hoping she listens to me and puts me back on labetalol rather than another med. But if she isn’t open to it, then I will go on what she suggests.

I saw my TG doc today. She had a fellow interview me first. Things went well. The fellow tried to get me a 5mL vial of T but the pharmacy just filled a 1mL vial. I have enough T to last me the next few injections. She also referred me to plastic surgery so I could get a top surgery consult started. I am glad because my pcp never responded to my request from last week. The fellow also answered my concern about whether T had caused the dislocation in my shoulder. It didn’t. I am glad. She did say that because I had removal of my ovaries, I have to be concerned about my bone health. But I am still young enough that I don’t have to go for a bone scan. The only bone scan I want to do is on my shin to see if the CRPS has spread to it. I have been having severe pain for no reason and it is worrying me.

After my TG appointment, I had the chronic pain group, which had already started. I was about fifteen minutes late but they accepted me anyways. We had a good chat about families not getting our disabilities and I told them how rough it was living with my sister who triggers my PTSD often. I also came out to them as transgender and they didn’t seem to care, which I was glad about. We also talked about how our families don’t believe our pain and disability. It was a good group. I did talk about how my therapy session went and got support around it. There maybe future discussions about CBT.

I had therapy yesterday and we talked about my ED visit went. I told her I was freaking out over my lab results, thinking I was having a heart attack. Tomorrow when I see my pcp I am going to discuss what the lab values mean as having this marker in the blood indicates some kind of cardiac injury. I also asked my therapist if we could role play a bit about me asking for the blood pressure medication that I want so that I don’t get turned down. I didn’t want to come off as obstinate but I really think this med will be better as I have been on it before and had little to no side effects from it. We talked for more than a few minutes about it and I wrote down how to approach my pcp on this issue. I just hope I remember.

We then talked about how I feel we are divided and not on the same page about things. That is when she said to me “take the reins”. I was like what? She repeated what she said, adding that I was in charge. I was flustered. I couldn’t believe what she had said so I got my journal that has the notes to the bCBT book and shared with her what a structured session looks like. It had listed “agenda” and then went on to list other things. I asked the author of the book what is meant by this and he gave me a more descriptive outline of what the session looks like. I think there should have been an “:” to indicate this. So I went to my blog for the crisis response plan (Suicide Crisis Response Plan – midnightdemons7). This needs to be reviewed. In it, it said that if I get specific I should contact my therapist or psychiatrist. I should ask them if this is right or if I should just go to the psych ED. My therapist might not be available but I will bring it up with her when I meet with her next as that is when we will start with the new sessions I guess. She agreed to allow a new skill to be introduced and to practice it while in session. I think this is going to work out now as this seems more collaborative than what it was in the past where I spent the time just talking or not talking during session. I asked her if she was more DBT oriented or CBT. She said she was CBT so that will help a lot during the next few weeks. I am glad this is happening because I really felt like we were going on different directions. It just seemed like we would talk about stuff and then she would ask what is helpful but never follow up on what was helpful during the week or if I had practiced or done what was helpful. Mostly that meant me reading this manual for discussion. I felt like I was alone in reading it but it not going anywhere. I also felt like it was pointless to read if I couldn’t share what I was reading.

I have a busy week. Tomorrow I see my pcp and that is going to take a lot of energy. I wanted to get my hair trimmed but my barber had a death in the family. I contacted him today and he said his sister died. Her breast cancer had come back and it wasn’t a good prognosis. I am surprised she last this long. It was more than a year since she was diagnosed with this. I set up an appointment with him for Sat. Fri I plan on making his favorite dish, chili cornbread. I just have to get the ingredients. I will Thurs after my session with my psychiatrist. I will also ask him if I can contact him in an emergency as we have never discuss this before. There wasn’t really a need to as I really haven’t been in crisis since he became my psychopharmacologist.

By Sunday, I am just going to rest as I will need it. I don’t know when I will be able to read. I got hit with a flare up and couldn’t finish this blog yesterday. The flare was so bad that the bones in my foot and leg were aching very deeply and intensely. The pain in my leg is higher than it was and I fear that the CRPS is spreading. I want to contact my neuro and see if I can get a bone scan to see if it is CRPS or something else. I don’t think an X-ray will show anything as It only hurts when my ankle or foot is flared up and when I am resting on my bed. It doesn’t hurt when I put weight on it or walk on it. It is a very unusual type of pain when it comes on. I am feeling better because I got some sleep. I woke up around 0030 and had something to eat as I was hungry. I had honey nut cheerios. I emptied my bladder because it had been more than five hours since I last emptied it. I probably will have to go again as I drank the milk in the cereal and had some water afterwards. It’s 0130 now and I am not so tired. I might read the book for a bit until I am tired and can get back to sleep. My pain has finally settled down.

therapy and covid

Therapy and covid

I got a message this morning from my surgeon. He said my CT looks good and that I am healing. If I have pain to see him so next week I will see him (provided my Covid test is negative) as I still have pain in my arm. Since my last PT session, I have had less pain but my arm muscles are still sore for whatever reason.

My PT got back to me. She wants to see me in person and to call the front desk to see if this is possible. It isn’t possible because they are going by the 14 day rule rather than current CDC guidelines. I made an appointment for five more sessions. I took a shower today and my arm is hurting from moving my arm to wash up and wash my hair. I wanted to shave my underarms as a forest is there but I couldn’t lift my arm high enough to do it so said fuck it.

I had therapy today. We talked about my sister and her hissy fits. She wants me to not take blame when she goes off on something. I said I will try. She said that she is going back to virtual full time again because the cases are getting big again. Hospital wants to minimize traffic. I would have seen her today if I didn’t have to isolate because of my nephew having covid.

The only medication I have taken on “time” today has been my 4pm meds. I have taken my morning and T shot late. I actually almost forgot to take it until I looked at the calendar. My bladder urge has been horrible today. I either get it and can’t cath or I get it while I am cathing, which hasn’t been good as urine has gone down my leg today. Shower helped clear my nose and eyes for a bit. The dust in my room was really getting to me. Eyes were tearing while I was in therapy.

I don’t know why my left elbow is hurting me. It has to be because of the arm muscles being tight. I have been bad about using heat the past few days. I have the heat pack in the kitchen but I don’t like to spend time there because of Covid isolation. I have been drinking my coffee in my room most days.  I have been trying to keep up with fluids as I don’t know if this running nose I have today is cold or covid or allergies. I don’t feel sick. I am my usual brand of tired. I took a Benadryl to see if this is allergies and now I am sneezing so it might be a cold. I slept till 830 this morning because I shut my phone off. I had a few messages. I am glad I shut it off because the surgeon called before 8 am and I would have been pissed if he woke me up.

I have a can of corn chowder that I think I am going to have for supper. Just hope we have enough milk.

therapy and pain and shoulder and and

Therapy and pain and shoulder and and

So my third pair of glasses were delivered this morning around 0830. I have been up since 6 when I had to get up to pee. I didn’t want to go back to sleep because then I would feel shitty for the rest of the day. I didn’t want coffee just yet so just charged my phone and read Twitter. There were three packages when the mail was delivered, all for me. My cousin gave me THE OSU sweatshirt! It was the best present. He said it was from my godmother. I was close to tears but they wouldn’t fall. I thought we would discuss this in therapy but other stuff got discussed.

I wanted to go to the grocery store for coffee and half and half so I left. I took a bus there and then took a cab home as I knew I wouldn’t be able to carry the stuff home. My mother wanted eggs as she was making cookies so I got four dozen. I also completed the last of my Christmas shopping by picking up Ferraro candy for my niece.

I just chilled a bit when I came home from the grocery store. I still had to figure out a way to wrap my mother’s present, which didn’t come in a box like I thought it would. So I had one of my prescription boxes that was small enough and put it in there then put it in a larger box then put it in another box that I intended to wrap the gift in. I gave the box to my mother to wrap telling her not to open it.

I was in a lot of pain with my shoulder so I contemplated going to therapy. I asked the therapist and she said it was up to me. I knew if I didn’t show up, I wasn’t going to see her till the new year as she is on vacation next week. She said with patients like me she needs a month off, and I laughed because I knew she was right and not kidding. She told me I was messaging her too much and that I needed to journal more. She wants me to be more independent and less dependent on her. I have a problem with this. I’ve always depended on my therapist to be there and if she isn’t going to be there for me, wtf. She seems to think that she is only available during the 45 mins we are in session and no time in between. I have a problem with this. I have always been able to reach my therapists outside of session when I needed to. Granted the times I have been in touch with her are not urgent but still I like to convey things to her during the week. It is hard not to think about her when I am processing my recovery.

The thing that gets me is that this therapist never asks questions about me. Like she isn’t interested in me. I only have to speak my mind for the session to continue. My previous therapist of 16 years was all about me. She wanted to know what I was doing 24/7. We kept in touch even though we ended. It still hurts that we ended. I never processed her leaving me. And I never will with this therapist. She makes me feel like she is uninterested in me, just another slot in her calendar. Like I am unimportant. I know I should probably find someone else but it is so hard to find someone that is willing to take me on and that takes my insurance and is within T range.

I got a hold of the shoulder surgeon’s secretary today. I am scheduled for the arthrogram tomorrow. I am scared shitless. I looked up how it is done and I am feeling a little bit better about it but I know it is going to be painful as fuck. I plan on taking 2 mg of Ativan before the procedure and 2 BT meds afterwards. I just hope I can carry my water bottle. I also need to make sure I do have my water bottle because my uro wants another urine sample to make sure I don’t have an infection. I had planned on starting the vaginal estrogen tomorrow as I want to shower but it will have to be postponed. Seeing as I need to put this on twice a week and after I bathe, I think showering Tues and Thurs is a good idea and easy to remember. I just don’t know if it will mess up the test results so best not to put it on tomorrow.

I am fucking tired as fuck right now. I just took my night meds. I was late again in taking them. I like to take them between 7 and 730p because for some reason, that is when they work best and I am usually in bed by 10 the latest, if not before. I didn’t brush my teeth this morning so I am going to do so before bed when I empty my bladder before attempting to sleep.

long pt session and other things

Long PT session and other things

I woke up with my arm very sore. I don’t know what I do in my sleep that makes it angry. I had my coffee and my biscuits. I had an appointment with my psychiatrist that I had to be at my PT place for because the times were close together. We talked on the phone because zoom was not a good connection. He agreed to give me the 90 day Latuda and refilled my Ativan script. He thinks my frozen episodes are anxiety related and wants me to try and take an Ativan before it happens or when I feel it coming on. I am glad it is not a medication issue.

PT was not so great. My arm is more sore after seeing her. We went to do the stick exercises and my bicep muscles flipped out. I hurt so much. I thought I was going to cry. The muscles are so tight and sore. I got to put more heat on them. I am to lay off the exercises for tomorrow but to do them half step the following day. The PT said it could take up to four months before I am better. Fuck. I am two months into this so hopefully I am halfway there. The ortho was vague in his notes about how to proceed. I see the shoulder guy next month. Maybe I will get better answers from him. I never broke a bone before so I have no idea what time it takes to heal. I know that lifting my 5lb weights are off limits right now. I will only aggravate the muscles more than they are irritated.

My psychiatrist said that a secretary will be calling to book our next appointment. That if I don’t hear from them in a few weeks to send him a message. I asked if it will be in person and he said no. His department is still virtual due to the new threats. So weird because I will be seeing my therapist tomorrow. I told my PT I was seeing her and she asked how long has it been. I said more than a year and a half. I have my outfit all picked out. I am going to wear my new cardigan with my jeans. I haven’t decided if I am going to wear my khaki colored jeans or blue ones. I will decide tomorrow.

My mother had supper for me when I came home from PT. I had just planned on making a frozen dinner. I had hot dogs and potatoes with an artichoke. It was good. There was also chicken cutlets so I had one. Now I am going to color a dinosaur and post it to Twitter.