when morning pain is too much

When morning pain is too much

Early this morning I got a wicked bad cramp in my CRPS foot. I couldn’t do nothing but bear it. I couldn’t move it or anything. I knew it wasn’t because I was dehydrated because I was drinking fluids when I was up at 1 am. I drank half a bottle of Gatorade. My foot is still severely sore so I had to take a couple of BT meds. I wanted to go grocery shopping today but that isn’t happening.

I ended up going to PT last night. She worked on my calf muscle which she said had a A+ knot in it. I am to roll a tennis ball underneath it to try and work it out. She said I might need dry needling to get it out but I would be limping out of the office as it is painful. She was just working on it with her hands and it was fucking hurting so bad so I know the needling would be worse. She told me that I could use a book on the bed and roll it. That is an awesome idea because I have a foam topper and the ball would just sink in and not move. My calf is still sore from the massaging she did. I walked up the hill to my house and it hurt so bad last night coming home. My breathing is going to take time to get better, she said. It is the last thing to get better. But I should continue to walk up the hill. I won’t be walking today because of my foot.

I made an appointment with my therapist for the end of the month. I figured if I have an appointment, I wouldn’t stray too much away from therapy. I see my pcp next week, in person. I am going to see if he can order fasting labs for me as it has been a while since I have had them done. I just sent them a message to find out if I should contact uro because I am still experiencing pain in my urethra despite not cathing. I don’t want to take the pyridium tabs because they cause me to retain more as I don’t get the urge to go. Today is the last day I am on antibiotics for this UTI. I haven’t cathed the whole time I was on because the urge was there for me to go. I also haven’t been on a schedule because I seem to be able to go every 3-4 hours on my own.

I am listening to Taylor Swift’s Speak Now album. I love this album so much. I wanted to listen to Fearless and I might later. Or maybe I will mix the albums and create a playlist. I don’t know. I just need to hear good music that puts me in a good mood without causing me to think about things.

I am getting tired. I was up in the middle of the night again and didn’t go back to sleep until around 4am. I woke up around 0730 to pee and I have been up since. I might need a second cup of coffee soon. I want to work on my 2nd memoir today. If I can write at least 300 words that would be good. I don’t really know where this book is going. I have written only around 500 words so far. It has been a slow start because it is so personal.

My legs are killing me so I really think despite taking BT meds, it isn’t enough for me to go grocery shopping by bus. It will be too much for me and I don’t want to hurt more than I already do. Today would be a perfect day for it because the weather is perfect. It has cooled off considerably and is a nice sunny day. The wind makes it cool but other than that it is a really beautiful day.

Guest Podcast

I am featured today on the PTSD and Beyond Podcast for PTSD awareness month. Here is the link

https://ptsdandbeyond.podbean.com/e/episode-69-share-my-story-with-g/

I’ve been down since July…

I’ve been down since July…

Been listening to the song Evermore by Taylor Swift. It is a song that I can relate to. It means so much to me. I am home alone and listening via my Bluetooth headset. I had two cups of coffee today and I am not feeling hungry at all despite just having the belVita biscuits with the coffee. I am trying to keep track of my bladder function by recording the times I void in an excel sheet on my phone. I just added cath to my med app so I know what time I am supposed to go by. I just drank a bunch of Gatorade so I am hoping to go soon. I am supposed to go every 4-6 hours, more if I drink a lot or have coffee. I have been sticking with the six hour mark rather than four because otherwise I would be cathing instead of voiding on my own. I just don’t get the urge till around really the 5 hour mark. This is all because of the nerve damage caused by the tethered cord that I had and needed surgery for a year ago.

It was a nice day yesterday. I drank my coffee on the back porch. I want to put a chair out there so I can go and sit on the porch and just be outside for a bit. I have to buy the chair. A plastic one so it can be easily washed and not have to worry about the weather spoiling it. Just will have to worry on windy days because it could get blown off the porch!

I had therapy Monday. It ended with me being annoyed. We were talking about my deconditioned body and she wants me to talk to my PT about what I can do about it. Basically it means more PT for me and she said I could have a year of it to regain my strength back. I think she is right. The idea of going back to PT doesn’t appeal to me but I know that I have to do it if I want the short of breath and tiredness to go away. Then I got depressed and we talked about that and how frustrated I am by the managing chronic pain book that I bought. As we ended she said not to work on it until our next session when we can do it together.

I need to shave and shower. I have PT this afternoon. I am not sure if I will be going because my bowels seem to be unpredictable right now. I might have a virtual appointment with her. I need to go out as it has been a week since I last left the house. I had my T shot today in my left nerve damaged thigh. I am kind of hurting but it isn’t too bad. My ankle is hurting me more than my thigh. Having the shot in my thigh always worries me. I need to walk it off and I will today when I go out for my appointment. It is going to be another nice day today, though cooler than it was yesterday.

Last night I was pretty depressed and suicidal. I don’t really know why. I just got overwhelmed with being sad and just wanted to die. I was listening to the song Exile by Taylor Swift. The lyrics were so powerful. I kept wondering why I am still alive. I want to be dead so bad yet the people around me keep me here and I resent them. I really wish I could live some where else so I can be away from my toxic family. I know being around my mother is not good for my mental health but I have no where else to go. I don’t earn enough money to pay rent somewhere. I can’t work. Just sucks and I will always have suicide as an option.

An idiot, I am

Pain got the best of me this morning. Early this morning I was ready to doze off finally after being up all night. Laid down and within 15 minutes, pain got worse. I had enough so I got the elixir out. I wasn’t sure how it was going to taste. I took a swig. It was peppery and I checked the ingredients to make sure it didn’t have pepper in it or my stomach was going to reject my attempt. I kept taking shots but nothing was happening. I waited an hour. Nothing. By now it was like 6 am. I maybe dozed off for an hour or two, not consecutively though. By 0700, I gave up. The stuff wasn’t causing a reaction. I was mad and pissed and a jumble of other emotions.

I texted my therapist at midnight saying I wasn’t going to see her tomorrow. She thought it was today so allowed me to cancel. Mood was all over the place. Then she texted saying she couldn’t see me because she was really sick. That was the last text I got from her. I sent her a few more but got nothing. I went about my day.

I went to see my friend at the Navy Yard. We chatted for a few before he had to go back to work. I then went off for my appt with OT. We discussed the caths and stuff related. I asked her what would be best in cathing in bed and she told me it might be easier but I could get too comfortable with it that it would be the only place I would. Right now I am just planning on doing it when my ankle is 12+ level pain so I don’t have to go downstairs. I got a urinal and she showed me an type of catheter with a bag from the same company that makes the ones I use. She is going to recommend them to my uro so she can order them for me. These will be so much easier as then I don’t have to worry too much about wetting the bed with an accidental miss. Throughout the conversation I was having trouble keeping it. Concussion symptoms were in high gear today. Memory was finicky at best and my thoughts were not always on point. I would forget mid-sentence what I was saying and then totally blank out completely. Didn’t help that I sleep deprived.

After the appt, I went grocery shopping. I wanted burgers and turkey bacon. 4 things and I wiped out when I got home. I wanted to nap but couldn’t. I asked my mother to make burgers. She did, almost using the two pounds of meat I bought. I told her not to use all of it because I wanted to make dirty gravy. Now I need to buy more meat, which means going out in the storm tomorrow. Fucking fuck. I am so pissed she just did what she wanted with my stuff.

The only side effect from my failed attempt is a sore throat. I haven’t officially told anyone. I feel more hopeless and useless now than i did before. I put in a call to the NP as the therapist wanted me to involve her in this. She (NP) never called me so not sure when or if she will. I texted the therapist about it. Still got no response so she must really be sick. I don’t know if she is going to figure out i duped her with appt days. I did ask saying if there was an opening to let me know. I cannot see her Thurs but will if i have to. I see the behavioral med psychologist then. I cannot see the therapist and him on the same day as insurance won’t allow it.

I really don’t want to let on I tried to end things today. I feel like I will get in trouble if I do or worse, get placed back in the hospital. I will know more tomorrow if the therapist is feeling better.

Wed morning I see the concussion specialist. I am being evaluated for a TBI, which is what a concussion is, a traumatic brain injury, though a mild one. I am having a lot of symptoms so hope they can help. I know I have been bad about screen time and resting my brain. It is so hard though doing absolutely nothing sitting in the dark. I wouldn’t mind if I was drugged out on something or maybe I just need an ativan to help me sleep while my brain recovers. I still am getting headaches and pain at the back of my head where I banged it. Short term memory is shot. I can’t remember things like i used to and i have to write stuff down. The OT suggested I have an alarm set to start being on a bladder schedule so i know when to pee. I think i am going to put it in my med app as i can order it for every 6 hours or so without disrupting the time schedule. Trick would be at night so i don’t wake up in the early morning hours just to empty my bladder. But if i should have to, i now have the urinal and obviously the caths to do it. The OT also gave me a few higher quality chux pads. That was really nice of her. Now I can order them through Amazon. I haven’t decided if I should get disposable ones or washable. The price is pretty much the same, except for washable you get 4, disposable I think is 50. If I get the washable, I won’t have to reorder them, which would be nice.

I am feeling pretty worthless about failing, again. I guess I am just not meant to die. And this bothers me so much.