A blog about being blah
I am feeling really depressed and blah today. I woke up late, around 1330. My neck has been hurting me since last night. I put some heat on it while I was having my coffee. It is really warm out today so I was sweating with the heat. I didn’t feel like going out. I don’t feel like doing anything today. I should shower but I don’t even have the energy for that. I still need to do my meds for the week. I’ll do that after I write this blog.
I put in my appointments for the month in my calendar. They are mostly PT appointments. I have a few sessions left and then I am done. She has done as much as she can do for me. I am glad I am not waking up in pain anymore with my shoulder anyway.
“rather die than live in fear”. I got this quote from somewhere, probably Twitter and it has been resonating with me the last few days. It has increased my suicidality. I would rather die than live in fear with my family. The resentment and disrespect is sometimes too much for me. The gender dysphoria sets in and I wonder why I am the way I am. I question who I am and wonder if it is worth it. I just feel so worthless at times that I wonder if it would be better if I was dead.
I see my therapist tomorrow and will be bringing this up to her. I don’t know if we are ever going to start work on the pain workbook or not. Seems to be always something in the way of us getting into it. I am having some serious pain right now in my leg. My ankle and shin hurt so bad. It is getting hard to write. I hate CRPS so much. All it does is take, take, take. I can’t remember the last time I had a day without pain. Now I got the shoulder and neck thing going on for god knows how long. Just something else I got to live with. Been living with this pain for five months now. I think it can be called chronic pain. Just add it to my list of why I should die.
My neck is acting up again. I just took some Zanaflex to calm it down. All my muscles are tense in my shoulder and neck. Stretching my neck from side to side is still hard to do. It hurts so much. I have been trying to keep off my phone so I don’t aggravate it further but it has been hard. I don’t know why the neck has flared up. It takes so much to calm it down and I don’t see my PT till later this week. I have been working really hard with the exercises and stretching that have been given to me. I just can’t seem to calm down the tension in my neck and shoulders. The pain is so bad it depresses me every time because I can’t do much when I hurt. All I do is lay down and stay as still as possible.
Saturday Blog 13032021
I’ve had an exciting day. Started with getting into an argument with my mother over the tea kettle. Then taking her blood pressure a couple of hours later to find her hypotensive. I had to call the ambulance on my mother. She was dehydrated. They gave her a liter of fluid and she normalized. Thank god she didn’t have to adjust her medication. I hope the bitch comes home tomorrow. I still am so mad at her for so many things and am still hurt she doesn’t see me as her son.
I took a shower and shaved. My back cramped up and is still hurting me hours later. I have been doing so much lately that I think it just hates me. It started flaring when I was taking my mother’s blood pressure. I just can’t stand too long still. I am almost a full year post op. Can’t believe it has been a year already. I am still having trouble with my bladder. I have avoided cathing so far. I don’t know if it is still a possibility. I know my bladder is angry today as it really hurts.
I went out today to pick up my meds. I have been trying to get the vaccine any place that is open. One of the pharmacies had an availability and by the time I reset my password, answered questions and shit the availability was gone. I was pissed. Now I am back to waiting.
I have been trying to stay off my phone to give my shoulder and neck some time to heal. It hasn’t flared up so I am doing good. I just wish this back pain would vamos. I am listening to Luke Combs and got “One Number Away” on repeat. It is my favorite song of his. I am so damn tired. I got to take my night meds soon. I plan on going to bed early, again. I have been waking up at three the past few nights to pee. Sometimes I have no trouble getting back to sleep but last night the power went off when I was in the bathroom and I didn’t have my cellphone with me. I managed to get back to my room in one piece without tripping on the stairs. Power came back about twenty minutes later. The wind was wild last night. I got another advisory for tonight so power might go out again. It really sucks because you can’t do nothing but be in the dark.
A Day of Misgendering
Yesterday my mother’s occupational therapist kept misgendering me as well as my sister who called me sister instead of brother. My mother’s blood pressure was low and so I had to stay with her while going through with her doctors on what to do about it. My mother was not a good patient as she didn’t want to stay still. I told her she had to stay sitting or laying down and she said she doesn’t take orders from her daughter. I said I am not your daughter and she replied then whatever you are. I said oh really and she was indignant as she said yes, whatever you are. I felt so hurt. I wanted to cry but I couldn’t. She became more stable as the day progressed and I was glad we didn’t have to take her to the hospital. But the damage was done to my heart. I don’t think I can forgive her for this.
With all the care that my mother required and with me walking all over the house, my back flared up. I had groceries delivered and that just made things worse. I some how managed though. I think my back being flared up is messing with my bladder. I have been having trouble urinating all week. My urologist finally got back to me and if I haven’t gone in 8+ hours I need to cath. So now I got to keep track of my voids again. I have no idea if I am emptying completely or not. I made an appointment for urodynamic testing in a couple of weeks.
Because I had to take care of my disrespectful mother, I had to cancel therapy. I hated doing it because I really wanted to talk to my therapist about the misgendering. I was pretty angry and hurt about this. I kept having to say that I am my mother’s son and it just wasn’t registering. I felt pretty hopeless about being a transgender around my family. I thought my sisters would get that I am their brother because I set them memes about how a brother loves their sister. I guess it didn’t click.
I need to shave and shower today. My hair is getting to be manageable again, though the top is too long and needs to be cut. I didn’t realize how long it was until I started shaving my head and it went up like a mohawk. I want to go out today. It is really nice outside and warm. I want to get a steak and maybe I can grill it as my sister has the BBQ on her porch. I wouldn’t mind getting some steak tips either. My mother’s PT is coming in a little while so I might do it after he leaves.
Pain and therapy
I had therapy today and I was in a rotten mood. We talked about how scared I was about my mother being in the hospital and her heart being dysfunctional. Then I talked about how I wanted to die. I told her to just write me off as hopeless. She said there are no hopeless cases. I really wanted her to say ok, I won’t see you anymore just so I could off myself. But she isn’t going to do that. We set up another appointment for the week and we will start the managing chronic pain book. I asked if I needed to keep the appointment and she said it would be for me if I keep it.
I don’t know if I am going to keep it. I got the fuck its big time and just don’t want to do a damn thing except kill myself. But I can’t right now and that sucks. I am in a lot of pain with my shoulder/neck. I started hurting with leg pain before my suicidal melt down. We were talking about how PT really hurt and I wanted to die but instead told the PT that I wanted to cry. She said that I couldn’t cry so she put some biofreeze on me. Thing me sweat so bad. My shirt was soaked by the time I got home.
I have PT tomorrow. I was talking to a friend that has had shoulder injuries and she said it could be years for knots to be taken out. I hope that doesn’t happen to me. I will hate being in pain for years with this. I will definitely die if that happens. The pain is horrible. The pain goes around my ear and in my jaw. It is so awful. I am hurting something really bad and I can’t go on like this. I just can’t.
I finally changed my sheets today. I am in my mother’s bed as the new foam topper takes shape. It could be up to 48 hours for it to hold shape. UGH I didn’t know this. So tomorrow my niece will help me make my bed. I tried today and my back wouldn’t have it. I folded my clothes and it took all the energy I had to do it. My back was so bad. I would have done the dishes but I was hurting too much. My ankle has flared up now so I am stuck in bed. I took double my BT meds. I hate doing that because I can’t take more if I need it. But sometimes two work better than one pill. I am getting tired so I should be going to bed shortly. I just wanted to write this down while I was still up.