Tag: hopelessness

A Day of Misgendering

by Midnight Demon, posted in blogging, Chronic pain, chronic physical pain, CRPS, depression, mood disorders

A Day of Misgendering

Yesterday my mother’s occupational therapist kept misgendering me as well as my sister who called me sister instead of brother. My mother’s blood pressure was low and so I had to stay with her while going through with her doctors on what to do about it. My mother was not a good patient as she didn’t want to stay still. I told her she had to stay sitting or laying down and she said she doesn’t take orders from her daughter. I said I am not your daughter and she replied then whatever you are. I said oh really and she was indignant as she said yes, whatever you are. I felt so hurt. I wanted to cry but I couldn’t. She became more stable as the day progressed and I was glad we didn’t have to take her to the hospital. But the damage was done to my heart. I don’t think I can forgive her for this.

With all the care that my mother required and with me walking all over the house, my back flared up. I had groceries delivered and that just made things worse. I some how managed though. I think my back being flared up is messing with my bladder. I have been having trouble urinating all week. My urologist finally got back to me and if I haven’t gone in 8+ hours I need to cath. So now I got to keep track of my voids again. I have no idea if I am emptying completely or not. I made an appointment for urodynamic testing in a couple of weeks.

Because I had to take care of my disrespectful mother, I had to cancel therapy. I hated doing it because I really wanted to talk to my therapist about the misgendering. I was pretty angry and hurt about this. I kept having to say that I am my mother’s son and it just wasn’t registering. I felt pretty hopeless about being a transgender around my family. I thought my sisters would get that I am their brother because I set them memes about how a brother loves their sister. I guess it didn’t click.

I need to shave and shower today. My hair is getting to be manageable again, though the top is too long and needs to be cut. I didn’t realize how long it was until I started shaving my head and it went up like a mohawk. I want to go out today. It is really nice outside and warm. I want to get a steak and maybe I can grill it as my sister has the BBQ on her porch. I wouldn’t mind getting some steak tips either. My mother’s PT is coming in a little while so I might do it after he leaves.

pain and therapy

by Midnight Demon, posted in blogging, Chronic pain, chronic physical pain, CRPS, depression, mood disorders

Pain and therapy

I had therapy today and I was in a rotten mood. We talked about how scared I was about my mother being in the hospital and her heart being dysfunctional. Then I talked about how I wanted to die. I told her to just write me off as hopeless. She said there are no hopeless cases. I really wanted her to say ok, I won’t see you anymore just so I could off myself. But she isn’t going to do that. We set up another appointment for the week and we will start the managing chronic pain book. I asked if I needed to keep the appointment and she said it would be for me if I keep it.

I don’t know if I am going to keep it. I got the fuck its big time and just don’t want to do a damn thing except kill myself. But I can’t right now and that sucks. I am in a lot of pain with my shoulder/neck. I started hurting with leg pain before my suicidal melt down. We were talking about how PT really hurt and I wanted to die but instead told the PT that I wanted to cry. She said that I couldn’t cry so she put some biofreeze on me. Thing me sweat so bad. My shirt was soaked by the time I got home.

I have PT tomorrow. I was talking to a friend that has had shoulder injuries and she said it could be years for knots to be taken out. I hope that doesn’t happen to me. I will hate being in pain for years with this. I will definitely die if that happens. The pain is horrible. The pain goes around my ear and in my jaw. It is so awful. I am hurting something really bad and I can’t go on like this. I just can’t.

I finally changed my sheets today. I am in my mother’s bed as the new foam topper takes shape. It could be up to 48 hours for it to hold shape. UGH I didn’t know this. So tomorrow my niece will help me make my bed. I tried today and my back wouldn’t have it. I folded my clothes and it took all the energy I had to do it. My back was so bad. I would have done the dishes but I was hurting too much. My ankle has flared up now so I am stuck in bed. I took double my BT meds. I hate doing that because I can’t take more if I need it. But sometimes two work better than one pill. I am getting tired so I should be going to bed shortly. I just wanted to write this down while I was still up.

PT Pain and Torture

by Midnight Demon, posted in blogging, Chronic pain, chronic physical pain, CRPS, depression, mood disorders

PT pain and torture

I went out in the snow to my PT appointment and I left with being in more pain than I was. But it was a different kind of pain. I am very sore and can barely move my arm but I got to keep moving it. I am putting heat on it right now to try and soothe it.

After PT, I went grocery shopping. I bought a lot of coffee and just a half gallon of half and half. I also bought some burgers that I will make tonight for dinner. I am supposed to wash clothes but I am hurting too much. I am very depressed and feel like crying. The floor guys didn’t come because the helper has Covid. They won’t be able to work on the areas in two weeks. My mother isn’t going to like this. She was looking forward to going back upstairs this weekend.

I had therapy yesterday and it went ok. We talked a lot about safety as my suicidal levels are high right now due to pain. She wanted me to write it down the things we talked about. I was reluctant at first because it is the same thing over and over again. I added to take medication and she was for it. She asked if I will do the things I wrote and I said I will try it. I probably am not going to call a hotline.

I had zoom with my cousins tonight. One of my older cousins still calls me my deadname and “lady”. I hate that at every meeting I need to remind her of my name and pronoun. I even have it in my zoom profile G (he/him) so I don’t know what the problem is. Fuck. I was telling my therapist yesterday that my mother still calls me daughter, especially for medical stuff. It is so hard to bring up. I feel like she is ashamed of me.

Last night I had a hard time sleeping. I kept on waking up every few hours in pain. Then I don’t know what happened but my right foot was under my left foot and it (right) jerked, causing my toenails to scratch me. It hurt pretty bad and there is a long scratch on my ankle. My niece put bandaids on it. It is still painful because I have no skin on the bone of my ankle. I don’t know how it happened. So weird. I hope I can sleep tonight.

more dry needling

by Midnight Demon, posted in blogging, Chronic pain, chronic physical pain, CRPS, depression, mood disorders

More dry needling

This is my new stuffy, Jim. He is so soft. A dear friend gave him to me today. It made my day as my day hasn’t been so great as you read along…

I had PT today and more dry needling. The left side hurt like a mofo and still does. It is so sore but the right is tingling. I had to contact the PT to find out if this was normal or not. She said it was as long as it isn’t going down my arm. It isn’t. I am to alternate with ice and heat so am doing that now. It is already starting to feel better so I am glad I called her. She said it is because it is undertreated. I think I only had one area done instead of two and that is why the muscle is angry right now.

I had a good session with therapy. We talked about trauma and how things are with my sister. She gets me triggered which then can make my pain worse because CRPS is a brain condition. So I told her there was a book on managing chronic pain through CBT but I don’t understand some of what the book is trying to teach. She is getting the book so we can go over it. Shit got real. I had to agree to work on this in between sessions and now I am wondering what the fuck did I get into. She said skills is what I need and this is all skill shit.

For the thing I work on I told her I would go through the book and see what I could do. I am overwhelmed with pain right now and am having flashbacks about shit that happened years ago. I am literally terrified that my sister is going to come barging into my room any moment just to scare the daylights out of me. I know rationally she isn’t going to but the fear is there. I am so anxious and it is just worsening my neck pain.

I am supposed to drink a lot of water after the dry needling but I have a love/hate relationship with water. So I just drank a whole 32 oz bottle of Gatorade. I just took my night meds so I hope the Ativan helps some of the tension I am feeling with the PTSD stuff. I am so tired but still kind of fearful. I have been texting my friend about what is going on and it has helped as well as writing it out. I did text my therapist but I don’t think I will hear back from her. It’s too late. Maybe tomorrow.