I got this review that I found on my Amazon site the other day. It was written two years ago. Amazon doesn’t notify you when someone leaves a review. But I am happy this person left it. I sent it to my former therapist and she loved it. I sent the review to my cousin and now he wants a copy of the book, signed. I got to order more as I am running low on my copies. I think I gave away my last one. I plan on mailing it out today. It is really nice out.
I had therapy yesterday. It went ok I guess. She doesn’t think going back to school is a good idea. She gave a good example of how therapy is more than just an hour session and so is a class. You need to do the work so now I am thinking of how to do the work outside of our sessions. It bothers me that I can’t go back to college. I really would like my bachelor’s degree from UMass/Boston. I am not sure how I will pay for it but the idea that I just can’t go kills me. I know the stress will not be good for me. It is why I had to quit in 2008. I suffered a psychotic breakdown and I never recovered from it.
I am so fricken tired. I took a two hour nap and I am still fricken tired. I have no energy for anything. Wed is going to be a long day. I have an 8am appointment. I plan on shaving and showering today. I really need to wash my hair as it is very itchy.
I finally am registered for the vaccine and have an appointment Thursday. It is at the convention center in Boston. It is going to be a bit of a walk for me. I think I am going to get off at the T stop rather than walk from Copley. It is going to be 70 degrees out that day so that will be so good. I love going to the Back Bay area. I used to go to college around the corner from there.
I woke up this morning with my shoulders, neck, and ankle hurting me. I had to take a breakthrough med. I didn’t want to so early in the day but I was in so much pain. My PT is not going to be happy about this. I also took some Zanaflex to help relax the muscles. I hate that it gives me dry mouth. I have the lozenges for dry mouth. It helps a lot.
My phone is acting up today for some reason. Apps are closing while using them and I keep getting messages for other apps that something is wrong and it need to close. I’ve restarted the phone several times. There is an update that I just checked. I am installing it now so I hope that helps this issue. I also updated the PRL profile. OK, updates have been installed and I still cannot open the wordpress app. Fuck. I hope I don’t have to do a uninstall/reinstall. There is no update for the app. I don’t know what happened to my phone overnight. I really don’t want to get a new phone. I do need to take a line off my phone because I am not using it. I got to go to the store and have it removed because I tried with a chat and they are so dumb they didn’t know what I was talking about.
A Day of Misgendering
Yesterday my mother’s occupational therapist kept misgendering me as well as my sister who called me sister instead of brother. My mother’s blood pressure was low and so I had to stay with her while going through with her doctors on what to do about it. My mother was not a good patient as she didn’t want to stay still. I told her she had to stay sitting or laying down and she said she doesn’t take orders from her daughter. I said I am not your daughter and she replied then whatever you are. I said oh really and she was indignant as she said yes, whatever you are. I felt so hurt. I wanted to cry but I couldn’t. She became more stable as the day progressed and I was glad we didn’t have to take her to the hospital. But the damage was done to my heart. I don’t think I can forgive her for this.
With all the care that my mother required and with me walking all over the house, my back flared up. I had groceries delivered and that just made things worse. I some how managed though. I think my back being flared up is messing with my bladder. I have been having trouble urinating all week. My urologist finally got back to me and if I haven’t gone in 8+ hours I need to cath. So now I got to keep track of my voids again. I have no idea if I am emptying completely or not. I made an appointment for urodynamic testing in a couple of weeks.
Because I had to take care of my disrespectful mother, I had to cancel therapy. I hated doing it because I really wanted to talk to my therapist about the misgendering. I was pretty angry and hurt about this. I kept having to say that I am my mother’s son and it just wasn’t registering. I felt pretty hopeless about being a transgender around my family. I thought my sisters would get that I am their brother because I set them memes about how a brother loves their sister. I guess it didn’t click.
I need to shave and shower today. My hair is getting to be manageable again, though the top is too long and needs to be cut. I didn’t realize how long it was until I started shaving my head and it went up like a mohawk. I want to go out today. It is really nice outside and warm. I want to get a steak and maybe I can grill it as my sister has the BBQ on her porch. I wouldn’t mind getting some steak tips either. My mother’s PT is coming in a little while so I might do it after he leaves.
I don’t know what to say
Been a hard few days for me with pain and depression. I had therapy Wednesday and it was a disaster. I became suicidal after we went over some negative thoughts and then we both became frustrated. I told her I didn’t want to be in the hosp. She wanted me to join a group of some sort. I called the chronic pain support and they have a long waiting list so I won’t be able to go to that for a while. I got the impression she doesn’t know how to support me when I am suicidal. Yesterday I wrote her a message telling her about the suicide response plan and safety planning by Brown and Stanley. I don’t care which one we use but I think it is important to use one of them. I told her I prefer the suicide response plan because it is what Jobes uses for CAMS. I told her what CAMS was and how I find benefit from it but there are no CAMS trained therapists in Boston.
I got really upset and thought she didn’t want to work with me anymore because she said that she was tired of this cycle we get in when I get suicidal. She wants me to check the facts about this. I was sure she didn’t want to work with me anymore because I was too suicidal. I still feel like I might need another therapist but I know finding one now is going to be impossible because of the pandemic and because of my history.
Last night I had a runny nose and was sneezing my head off. I felt lousy. I still feel like I am coming down with a cold so I am trying to limit my exposure to my mother in case I am sick. I need to shower and shave my head. I got my haircut Wed. I didn’t have it all nice when I was talking to my therapist though. I had rinse out the hairs and it was messy. I didn’t care. I haven’t showered all week. I am trying to get enough energy to do it. I just feel so tired and don’t want to do anything. I really need to go to the grocery store to get more Gatorade. I have just six bottles right now. That is not going to be enough for the month, or even a week.
Yesterday I had PT and my deltoid is sore today. It feels bruised but there is no bruise mark on it. She did a lot of work on my arms yesterday. I got more stretches for my neck. I am glad because my neck has been such a pain. I need to put heat on it. Only thing is my family keeps moving my heat wrap on me so when I am in the kitchen, it isn’t there for me to throw in the microwave. It is the only way I can put heat on. PT also gave me some tennis balls for my back and hamstring. I have to rig something to have it between my shoulder blades. She said that I can use scotch tape but I think the balls will be too heavy for it. Will try it and see. Otherwise I will have to think of something else. Maybe a sock or something.
I got a letter from my pcp yesterday. He is leaving to go to the CDC. His last day is April 1st. This really sucks because I really liked him. He was a good doctor. I am going to miss him. I see him Monday for a follow up. It will be our last. Really sucks.
Pain, pain, and more pain
I have been severely depressed and in a lot of pain with my shoulder and neck the past few days. Yesterday I went to PT for some more dry needling. She checked my progress and I have improved a lot since first going to her but the pain and sleep have not gotten any better.
A psychiatrist I follow on Twitter told me about some Taylor Swift journals so I had to have them. I just got them today and they are purdy. I can’t wait to write in them. I am still writing in a Harry Potter journal. I haven’t been writing lately. Been so hard for me to write down my thoughts lately. I know it has been a while since I last blogged. I have been really struggling with the depression. Pain has been making the depression worse so it cycles. My therapist thinks that I am in my head too much. I don’t know what that means. I got to ask her when I see her Mon. We are going to do the CBT pain workbook together. I hope that this book will help me.
I emailed my neurosurgeon asking him if my weight restriction could be increased to 15 lbs. Right now I am not supposed to lift more than 5 lbs. He gave me the okay as long as I didn’t get a headache from doing so. I feel like I have made some progress. I still am deconditioned as I brought my groceries up the stairs by myself and got really winded. It took me like six trips because there was six bags. I only bought ten Gatorade. It wasn’t the flavor I wanted but that is ok. I will go to the grocery store tomorrow and get the flavor I like. It is supposed to snow tomorrow so we’ll see how that goes. There is supposed to be some good weather next week so hopefully I can go then if this weekend’s weather is shitty.
I am in so much pain in so many body parts it isn’t funny. Mostly the pain is on my left side. I want to cry. But the tears aren’t coming. It has been so hard to cry lately. I feel like I should, I probably would feel better but I just can’t seem to let myself. I feel like watching old baseball games or Sox highlights of the 2004 and 2007 games so I can cry. It will be the same release, except instead of sad tears they will be happy tears. I am such a wimp. I watched the 2007 series DVD and cried throughout it. I swear I went through a box of tissues.
I just tweeted to the psychiatrist that I got the new journals so now we are having a conversation about how to get another lyric printed. This is so fun. Another therapist friend had a predictive text for therapist and this is what mine said “my therapist told me I am not going to be in a relationship because of my favorite country artist”. HA HA. I love it. I can’t wait to show her on Monday.