Outside looking in
Last week, I wasn’t feeling well. Each day I was feeling more and more sluggish and sleepy than the day before. Monday I used the bathroom and noticed some swelling under my chin that was not there before. It felt really hard. I didn’t want to go back to see a doctor nor did I want to spend time in the ED again. I had finished the antibiotics for the urine infection I had so I am thinking there is no way I could have another one. I was wrong. I went to urgent care and sure enough, my salivary gland under my chin was infected. The PA (physician assistant) wasn’t sure if it was bacterial or viral so put me on antibiotics with a referral to an ENT. I was supposed to meet up with friends but I felt like shit and had to cancel. I went home after picking up my antibiotics and went to sleep.
Next day I was to see my TG doc. My mood really sucked that day. I just wanted to be in bed. I still felt like crap but I had to get my T shot and discuss the transition with my doc. It went okay. I had my shot and then I figure I would just go home and sleep. I couldn’t. Pain hit and I was again suicidal. I texted the therapist when I got home saying that I was struggling. We talked for a bit and she made sure I wasn’t going to act on my thoughts. I said I wouldn’t today. Wed morning she texted me asking how I was. I told her pretty much the same as last night. Wed was a really bad day. I was in such a rotten mood. Pain was hitting me because of the storm that was coming. I wanted to ended it that day but it was supposed to be raining. It wasn’t so I was pissed as I didn’t get up till after 12 to know this (room is dark as I have window with a darkening curtain). I didn’t do much that day. I just stayed in bed. That night, as is now becoming my usual, I woke up between 2 and 3 am to empty my bladder. My ankle was hurting so fricken bad. I sent off a text to the therapist that if the weather was formidable, I was going to end it either today or tomorrow. I was done. I had scheduled texted it so I could delete it if I wanted to before it sent. I woke up around 815 or so yesterday and was going through stuff. I was so fucking depressed but the wind was really howling and it sounded nasty out. I was on the fence on whether I would go through with it or not. The text was sent and I used the bathroom. I came upstairs and there was a missed call from some Boston number. They left a message and it was the therapist. We chatted and she wanted to send an ambulance for me. I had her talk to my niece and she disposed of the ginger I was going to use. I was then to see the therapist later.
I was really nervous as I didn’t want to go back to the hospital. I got some coffee and went on my way into Boston. We talked and things went well. She was open, really open, to what I was telling her and how I wanted to talk about being suicidal. She wanted me to come in Monday. I really didn’t want to but I was afraid to say no as she might say I would need to be in the hospital and I didn’t want that. We devised a way to convey to her when I am close to being suicidal again but not going to act on it within 24 hours. I don’t know if I will go through with this. I said I would but I am not sure I will in that moment. I wanted to go through with my plan today but I am just so damn exhausted. I was supposed to call ENT and all I did was call to make an appointment with the psychopharm, the new one I have that works with my pcp. The appointments were supposed to be 30 mins long but for some reason, I got booked an hour. I guess that is ok. I have the appointment on Wed. I am going to try and get out of therapy that day when I see the therapist on Monday.
I wasn’t sure I would be able to write about this today. I am still in a really bad place and the anhedonia is really bad. I have no joy doing anything anymore. Writing has become so hard for me. I haven’t written in my night journal in so long. I think I last wrote in it the week I got discharged from the hospital. I am overwhelmed with everything. This new stuff with my bladder hasn’t been easy as it is interfering with my sleep. I wake up in the middle of the night and it just throws me off. Sometimes I can go back to sleep but it takes a while to get there. I am still losing weight because I am not eating. Yesterday all I had was a pumpkin scone. I was able to make a chicken sandwich today. It has been the only thing I have eaten. I just have no appetite the past few weeks. This whole new change with having to cath has really made me feel more depressed than I have ever felt. I also don’t have much support other than with my support group. I finally was able to have peace with my middle sister as she was freaking out about the disposal of the caths. I can’t deal with anything else medically going wrong this year and the stupid salivary gland thing was my last straw. I don’t want to see another new specialist this year. I know I need to because the swelling is still there despite being on antibiotics. I do feel better physically but not 100%. It could just be that I have another urine infection. I haven’t figured out how to get a urine specimen while cathing as I need a third hand. I bought some sterile bowls. I hope then I can just collect the urine there and then pour it into a cup.
I shaved and showered today, though not my face. I have been growing whiskers on my face so I let it go and then when I can’t stand it anymore, I shave it off. I haven’t been great at showering this week. I seem to go once a week, if that. I just don’t have the energy to do it. It exhausts me trying to wash up and dry off, especially with whatever is going on. The TG doc did a blood count so my white counts are within norms. I still feel yucky despite this. I need to change my sheets this weekend. If I don’t wake up at 3 am again, I might do it tomorrow. It needs to get done.