Haircut and shower exhausted me
I had some energy this morning so I decided to get my haircut. When I came home I showered and now I am exhausted. I went to Starbucks for my mocha and something to eat. While walking back to the barber shop, I got winded and it took a while for me to catch my breath. I thought I was over covid but I guess not. It has been five months and I am still experiencing some side effects of the illness. Please, if you are reading this and haven’t been vaccinated, please get the shot.
I have been feeling depressed and my sleep has been awful. I was up most of the night. I just couldn’t sleep. It is pay week and I am worried about my finances. I already messed up and am overdrawn on my checking account. I thought I could pay all my bills with one check and I can’t. I need the supplemental pay I get from my long term disability claim to help with my bills. I still need to pay my cell phone and cable bill. I get paid tomorrow from the LTD so I won’t be in the negative but I will be down a hundred bucks. I should have some money to pay my sister back for the loan she gave me.
My therapist responded to the message I sent her about how to proceed in therapy. I asked her if we could just free associate rather than stick with a topic because I just am not motivated to work on my trauma right now. She said that we could do that if that will bring me in. I honestly was thinking of canceling next week’s session because I see it as pointless. I just am not really in the mood to talk about stuff. I just feel kind of stuck and don’t want to do anything. I have been reading so my concentration hasn’t been affected. My appetite has been sort of ok. I am eating less than what I should be eating. The other day all I had was a yogurt and an Ensure for the entire day. I just am not eating calories to get through the day. I am drinking fluids though because I have to make sure my bladder is empty every four hours, two if I drink coffee. I am so frustrated with the discharge. I am glad I am seeing the surgeon tomorrow because I can’t take wearing pads anymore. It has been five weeks that I have been wearing it and they are starting to irritate me.
My neurologist granted my request for lidocaine patches for my nerve pain on my thigh. I am so glad. I had a box of them but they expired years ago so I had to toss them. I am going to try and put them on my shin where most of my pain is most days. I don’t know if it will work because the skin is so sensitive it might hurt. I can no longer where socks that are thigh high. The elastic hurts me.
I have an easy week next week with just one appointment to see my therapist. I just put some money on my T pass so I might go to Starbucks to read or write while having my mocha. I meant to bring a book today but I forgot. It’s hard when I don’t carry a bag. I forget things. I am so tired. I think I am going to take a nap and then make a black bean burger for lunch/dinner. Hope I can sleep and not have weird fucking dreams. Last night I dreamt I was with my cousins and was laying in their bed after they made it. I don’t remember the reason I was there. But it was just weird.
I got this review that I found on my Amazon site the other day. It was written two years ago. Amazon doesn’t notify you when someone leaves a review. But I am happy this person left it. I sent it to my former therapist and she loved it. I sent the review to my cousin and now he wants a copy of the book, signed. I got to order more as I am running low on my copies. I think I gave away my last one. I plan on mailing it out today. It is really nice out.
I had therapy yesterday. It went ok I guess. She doesn’t think going back to school is a good idea. She gave a good example of how therapy is more than just an hour session and so is a class. You need to do the work so now I am thinking of how to do the work outside of our sessions. It bothers me that I can’t go back to college. I really would like my bachelor’s degree from UMass/Boston. I am not sure how I will pay for it but the idea that I just can’t go kills me. I know the stress will not be good for me. It is why I had to quit in 2008. I suffered a psychotic breakdown and I never recovered from it.
I am so fricken tired. I took a two hour nap and I am still fricken tired. I have no energy for anything. Wed is going to be a long day. I have an 8am appointment. I plan on shaving and showering today. I really need to wash my hair as it is very itchy.
I finally am registered for the vaccine and have an appointment Thursday. It is at the convention center in Boston. It is going to be a bit of a walk for me. I think I am going to get off at the T stop rather than walk from Copley. It is going to be 70 degrees out that day so that will be so good. I love going to the Back Bay area. I used to go to college around the corner from there.
I woke up this morning with my shoulders, neck, and ankle hurting me. I had to take a breakthrough med. I didn’t want to so early in the day but I was in so much pain. My PT is not going to be happy about this. I also took some Zanaflex to help relax the muscles. I hate that it gives me dry mouth. I have the lozenges for dry mouth. It helps a lot.
My phone is acting up today for some reason. Apps are closing while using them and I keep getting messages for other apps that something is wrong and it need to close. I’ve restarted the phone several times. There is an update that I just checked. I am installing it now so I hope that helps this issue. I also updated the PRL profile. OK, updates have been installed and I still cannot open the wordpress app. Fuck. I hope I don’t have to do a uninstall/reinstall. There is no update for the app. I don’t know what happened to my phone overnight. I really don’t want to get a new phone. I do need to take a line off my phone because I am not using it. I got to go to the store and have it removed because I tried with a chat and they are so dumb they didn’t know what I was talking about.
A Day of Misgendering
Yesterday my mother’s occupational therapist kept misgendering me as well as my sister who called me sister instead of brother. My mother’s blood pressure was low and so I had to stay with her while going through with her doctors on what to do about it. My mother was not a good patient as she didn’t want to stay still. I told her she had to stay sitting or laying down and she said she doesn’t take orders from her daughter. I said I am not your daughter and she replied then whatever you are. I said oh really and she was indignant as she said yes, whatever you are. I felt so hurt. I wanted to cry but I couldn’t. She became more stable as the day progressed and I was glad we didn’t have to take her to the hospital. But the damage was done to my heart. I don’t think I can forgive her for this.
With all the care that my mother required and with me walking all over the house, my back flared up. I had groceries delivered and that just made things worse. I some how managed though. I think my back being flared up is messing with my bladder. I have been having trouble urinating all week. My urologist finally got back to me and if I haven’t gone in 8+ hours I need to cath. So now I got to keep track of my voids again. I have no idea if I am emptying completely or not. I made an appointment for urodynamic testing in a couple of weeks.
Because I had to take care of my disrespectful mother, I had to cancel therapy. I hated doing it because I really wanted to talk to my therapist about the misgendering. I was pretty angry and hurt about this. I kept having to say that I am my mother’s son and it just wasn’t registering. I felt pretty hopeless about being a transgender around my family. I thought my sisters would get that I am their brother because I set them memes about how a brother loves their sister. I guess it didn’t click.
I need to shave and shower today. My hair is getting to be manageable again, though the top is too long and needs to be cut. I didn’t realize how long it was until I started shaving my head and it went up like a mohawk. I want to go out today. It is really nice outside and warm. I want to get a steak and maybe I can grill it as my sister has the BBQ on her porch. I wouldn’t mind getting some steak tips either. My mother’s PT is coming in a little while so I might do it after he leaves.
I don’t know what to say
Been a hard few days for me with pain and depression. I had therapy Wednesday and it was a disaster. I became suicidal after we went over some negative thoughts and then we both became frustrated. I told her I didn’t want to be in the hosp. She wanted me to join a group of some sort. I called the chronic pain support and they have a long waiting list so I won’t be able to go to that for a while. I got the impression she doesn’t know how to support me when I am suicidal. Yesterday I wrote her a message telling her about the suicide response plan and safety planning by Brown and Stanley. I don’t care which one we use but I think it is important to use one of them. I told her I prefer the suicide response plan because it is what Jobes uses for CAMS. I told her what CAMS was and how I find benefit from it but there are no CAMS trained therapists in Boston.
I got really upset and thought she didn’t want to work with me anymore because she said that she was tired of this cycle we get in when I get suicidal. She wants me to check the facts about this. I was sure she didn’t want to work with me anymore because I was too suicidal. I still feel like I might need another therapist but I know finding one now is going to be impossible because of the pandemic and because of my history.
Last night I had a runny nose and was sneezing my head off. I felt lousy. I still feel like I am coming down with a cold so I am trying to limit my exposure to my mother in case I am sick. I need to shower and shave my head. I got my haircut Wed. I didn’t have it all nice when I was talking to my therapist though. I had rinse out the hairs and it was messy. I didn’t care. I haven’t showered all week. I am trying to get enough energy to do it. I just feel so tired and don’t want to do anything. I really need to go to the grocery store to get more Gatorade. I have just six bottles right now. That is not going to be enough for the month, or even a week.
Yesterday I had PT and my deltoid is sore today. It feels bruised but there is no bruise mark on it. She did a lot of work on my arms yesterday. I got more stretches for my neck. I am glad because my neck has been such a pain. I need to put heat on it. Only thing is my family keeps moving my heat wrap on me so when I am in the kitchen, it isn’t there for me to throw in the microwave. It is the only way I can put heat on. PT also gave me some tennis balls for my back and hamstring. I have to rig something to have it between my shoulder blades. She said that I can use scotch tape but I think the balls will be too heavy for it. Will try it and see. Otherwise I will have to think of something else. Maybe a sock or something.
I got a letter from my pcp yesterday. He is leaving to go to the CDC. His last day is April 1st. This really sucks because I really liked him. He was a good doctor. I am going to miss him. I see him Monday for a follow up. It will be our last. Really sucks.