Love story vs don’t you
As you may know by now, I am a huge Taylor Swift fan. Her latest album, Fearless (Taylor’s version) has been playing since I have been able to download it to my phone. There are two songs I absolutely love. One is Love Story and the other is Don’t You. I am having a hard time deciding which to put on repeat because I want them both on my top 25 playlist. Right now the numbers are below 50 for Love Story and over 50 for Don’t You. (The numbers are how many times it has been played as recorded by my MP3 app.) I have been thinking of making a playlist with just those two songs so that I can listen to them back to back. I might just do that. Don’t You has been really talking to me, but not in a psychotic way. I just can really relate to this song so much. Taylor’s new music has been really good and there have been songs I can finally relate to. I feel like that her new music has been grown up as she is older now. My other dilemma with her music is that I follow her lyric bots for the album folklore and when a lyric plays and I don’t know the song, I want to listen to the album to know what the song is. It is driving me crazy not knowing.
It is almost 2am. I woke up an hour ago because of pain. And I had to pee as it has been six hours. I was able to void without cathing so I am happy about that. I am not happy I have a uti. My culture came back positive for bacteria. I haven’t heard from the NP yet if she is going to treat it or not. I have been feeling yucky the past two weeks since the cramping started. I have had busy back to back days and am really tired but cannot seem to sleep. I want to change my sheets but it will be a hassle as I have stuff on my bed again. I got Amazon packages surrounding my bed. I just have to take two downstairs to put on my porch. It is my new coffee that I love from Starbucks called Spring Day. It is limited so I bought a bunch while I had the money.
I was able to wake up early this morning to get my first vaccine shot. It took less than twenty minutes and I was early. I had to stay a little longer than the usual 15 minute observation period because I had an anaphylaxis reaction to ginger. Ginger is not in the vaccine but they wanted to be cautious because I had this reaction. The only reaction I am having right now is a sore arm and a headache which Tylenol helped very much. I had to ask my doctor if taking Tylenol on a daily basis is good. He said as long as I don’t go over the 2000 mg dose a day I am ok.
I woke up this morning with a strong urge to pee around 745 so got up and did my business. I was thankful no one was in the bathroom because I don’t think I would have been able to hold it. I came back to my room and took my morning meds. I then went to lay down to go back to sleep when I got a sneeze attack. I must have sneezed like 10 times in a row. It really woke me up so I decided to have coffee. I had my belVita biscuits and my mother called them cookies. I don’t care. I have been eating them nearly every day for weeks now. I have bought different flavors and really love the Golden Oat. They keep me full for a couple of hours before lunch anyway.
Yesterday I didn’t want to do a damn thing but that was not meant to be. I had an early morning bowel accident which caused me to have to shower to get clean. I felt really bad but I just couldn’t hold it as it was such soft stool. I then was in charge of making sure my mother took her walks around the house. She didn’t no matter how much I threatened her. She had her sewing to do and that is all she did.
Today my mother is expecting the home RN and PT to come. I will stay so I know what she hears is what is said. Her blood pressure was on the low side. I hope it improves by the time the nurse gets here. I really don’t want to have her in the hospital again.
I can’t wait to get my haircut next week. The top of my head of hair is so uneven. I want to have it short and spikey. I am hoping to get my haircut after all my appointments next week. I have to go for urodynamic testing and then go for an EKG. I just messaged my psychiatrist to make sure it is ordered so there won’t be a problem. I don’t see it on my upcoming procedures.
I still have not gotten my stimulus money. I wonder if I will get it next week with my SSD payment. I can finally order my groceries from Stop and Shop. Still haven’t decided if I am going to get a new mattress or not. I bought a new foam topper and it works wonderfully. It stays on the bed like it is supposed to.
I am so tired today. All I did was have coffee. I am in pain so that is probably why. My back started hurting while I was taking my mother’s blood pressure. I can’t stand hunched over for too long. My leg is bothering right now. Damn hamstring. I wish I could find a stretch that worked for the pain. I have a couple of tennis balls under my leg right now and that seems to be helping the pain some. I can’t roll it because of the foam topper. I am just glad I have some relief. It is cold today and windy so my room is like 66 degrees. I should shut off the ceiling fan…
Tired of being exhausted
Yesterday I didn’t do anything but lay on my bed, trying to sleep. I just felt so exhausted. All I did was have my morning coffee and breakfast. Today I feel the same. I had some disturbing dreams. This is the second time I dreamt my mother died. I don’t know why I am dreaming this. I know it is a fear I have and her recent medical conditions worsening have probably increased this fear. My biggest fear is that because of Covid she will die alone in the hospital.
I want to make steak so I need to go to the butcher’s shop and get some. I also need to pick up my meds. I got about a half hour to get ready for the Square. I think I will bring my roller bag with me so that I don’t have to worry about the paper bags ripping. I don’t know if I am going to get burgers or not. Lately the meat doesn’t last more than a day in the fridge and it sucks. Or maybe I will buy them and then freeze them so they don’t go to waste.
I texted my therapist a question and she took it that I was unsafe. I had to tell her that I was safe I just wanted to know what to do in this situation. I guess it is something to talk about when I see her next. I just want to know if I become acutely suicidal what to do about it.
I am listening to 1989 Taylor Swift. I love this album so much. I remember when it first came out it was all I listened to. For weeks. It is such a good album. I haven’t decided if I am going to take a shower and shave before I go out or wait till I come home. I am trying to get energy to just do it but am so exhausted I don’t want to move. All my muscles are so tense for some reason and I can’t seem to relax. I am hoping that taking a hot shower will relax me a bit. I need to wash my hair because it is so fricken itchy even though it hasn’t been too long since I last washed it. I have to keep up with shaving my head so it stays styled. I see my barber next week. I am going to tell him I want the top to be all one length. Right now it isn’t and it bothers me. So if I have to go short and spikey then so be it. I will just grow it out again. I actually like how it is now but you can see my hair is not all the same length.
I feel really depressed today. I guess it goes with the exhausted feeling. I have my appointment with my urologist next week. I just did a questionnaire. I answered some very personal questions. I feel comfortable with my urologist so maybe she can help with the sexual stuff that I am having trouble with. I got a letter from my neurologist that she is on extended family leave. I don’t know when I will be seeing her. I just asked my PCP for a referral to someone where he is so I don’t have to commute that far anymore. My neuro is outside of Boston and it was a pain to see her. I really don’t like her office staff.
Shower and shave
I need to shave my head and shower today. I am getting very stinky. I should trim my armpit hair. I haven’t done it in a while. It just grows so damn fast, like the hair on my head. I am really congested today with allergies. Today is supposed to be nice out. I am sure I will overdress and be hot. I will probably sweat a lot, too. I got PT today. My mother does, too.
I had a good session with my therapist on Mon. We talked about my suicidality and how I would like things to proceed from now on. We are going to continue working with the chronic pain workbook and I am to do the Crisis Response Plan. It has been hard to do. I haven’t been suicidal so I haven’t done it. I did write it out in my therapy book. I got to put it in my journal. She wants to work with me and I am glad because I really don’t want another therapist.
Baseball spring training is underway. I haven’t watched it because I really don’t watch TV. I don’t know if it has been on the radio or not. They are now doing 9 inning games so it would be worthwhile to see or hear it. They don’t have it on their radio app which sucks. I don’t know if games are going to be on the app this year or not. It was wonderful last year as I could play it anywhere I go and could listen along as I carried my phone with me around the house. I caught every pitch. It was really good.
I finally was able to get my songs on Dropbox off and put it on my phone for Mary Chapin Carpenter’s One Night Lonely album. I can finally listen to the songs from that awesome night. I still can’t believe I fell asleep midway through her singing. Her voice is so soothing to me so I am not surprised. I am so happy she has her acoustic album.
I have been trying to get my mother to use he/him pronouns with me and she is still resisting it. Yesterday my nephew called me a he and then my mother was like she. I feel so invalidated when she does this. Even when I told her I was her son her response was like “whatever”. I hate that she is like this. I will never understand how a parent can reject their child, never. More stuff to talk to in therapy about.
Since I have been eating regularly, I stopped losing weight. I actually gained some weight but I am still under 200 pounds. I still hate my body. I still want the things on my chest to be gone, completely. Eventually I will get a hysterectomy so I can find out if my bladder is cramping or not. Yesterday I had to email my urologist because I have been retaining again. There have been long stretches where I don’t void. The other day was nearly sixteen hours since my last void. I thought I would have to cath. Yesterday voiding was okay, nearly every three hours I was urinating. It still scares me that I might have to cath again one of these days.
I need to empty my recycles. I have a lot of Gatorade bottles in my room. I just have been so lazy to bring them all the way to the first floor where the recycle bin is. I will try and do that today as tomorrow is trash day.