I really didn’t eat that much today other than having a pop tart with my second cup of coffee. I wanted tacos so I ordered some. They were just the thing to kill the hunger. My belly is happy. I have been fighting sleep the past three hours. I thought I would blog before I laid down to slumber. I went to the pharmacy today without taking my muscle relaxers. OMG I nearly died while I was in the store. I had to sit down for a bit after I was called four customers later. I wondered how I was going to get home but I made it. I had to pull the mask off when I was three houses away. I couldn’t catch my breath going up the hill. I felt like I was going to fall over at any second. I was cursing myself going out because every time I go out when I am tired this happens. Now I am exhausted. I haven’t brushed my teeth or washed my face. I really need to wash my face because of the cut I gave myself shaving needs cleaning so I can put Neosporin on it. I hate that I can’t shave right now because the cut is a little deep and I don’t want to reopen it accidently.
I had my appointment with my psychopharm NP. She had nose surgery so her face was all banged up. I felt bad for her. We talked about my cousin who passed away last week. She said I should write about it. There really isn’t much to write about. She died from unknown causes at this time. We will know more once the autopsy is done. I think she had a cardiac arrest. It is sad because she is the first female in my family to die suddenly. And so young; she was only 50. I will miss her. I hope she is in peace now where ever she may be.
I have one more appointment with her and it will be our last as I will be seeing a new psychiatrist next week. I hope I get along with him. I don’t like that I have to see someone new in such a short time period. I started seeing this NP last Oct and it hasn’t been a year yet and she is leaving me. I really liked her. She was good. I liked seeing her. Now I got to start over with someone new. I miss my psych so much and wish I could see her again. She said I am in good hands where I am now. I hope that she is right.
I am so exhausted I don’t think I am going to be up for the second Sox game tonight. I wanted to listen to it but I am just too tired I can’t keep my eyes open. They are playing a double header today and lost their first game. Fucking Barnes blew the save. I really despise this pitcher. He always seems to lose games. My favorite player was put on the 45 day IL list today. He won’t be back this season. Just as well.
PT is exhausting
I went to PT today and it wore me out. I started having symptoms of CSF leak and that kind of got my PT worried. She made sure that I was ok before I left and gave me two bottles of water to drink so I was hydrated. I had only drunk coffee, nothing else so I probably was a little dehydrated. I was so fatigued. I can’t even describe it. I came home and made lunch. Then I laid down. I took a nap until my med alarm went off for my 4 pm meds. I took them and went back to sleep afterwards only to wake up again to my night med alarm. I am really wiped out. I didn’t too much today but apparently, I did enough. I am supposed to go up to 400 steps a day. I will do that tomorrow.
I really haven’t done much since coming home. I made a sandwich for dinner. Someone has been eating my hamburger rolls so I need to get some more. I have been using them for my sandwiches. It is a good bread. I like it a lot. I might get some more if my bro in law goes this weekend.
I did something to my right arm. It fell asleep and it still hasn’t woken up properly. I can’t make curls as it hurt and I can’t bring my arm towards me without pain. I don’t know what I did. I hope it gets better. I would be sleeping or laying down but I had to take some Miralax. I don’t want to lay down after drinking that stuff as it could come up on me. I have had it before and it doesn’t taste good coming back up. I hate reflux. Been dealing with gas pains the past two days. It has been awful. I don’t know why I have gas so bad. It could be because I am constipated. It has been more than three days since I last went. I hate being constipated. Just another fucking thing to keep track of. I have been having a hard time keeping track of when I void. I know it had been a while because I slept and when I woke up I didn’t pee. Then I fell back to sleep and when I woke up again, I didn’t pee. I forced myself to go pee and luckily I went. I am not sure if I emptied completely but I don’t care. As long as I went I am good. I am nervous about the urodynamic testing. They will test me and I hope I can pee but sometimes my bladder is stubborn and won’t go. It also gets shy so I hope I can go and prove that there has been improvement since the surgery. I was expecting to hear from the secretary today but I didn’t hear from her. I will try and call her tomorrow. Hope that I will get through without waiting for 10 mins like last time. The wait is so long.
I read one chapter of my book. It was all I could read today. I got too anxious to read anymore. I hate when that happens. I could have read half a chapter. But with me feeling woozy, I didn’t feel like it. I will read more tomorrow.
Sunday Blog 05072020
I woke up late. I didn’t want to wake up. I took my morning meds and then went back to sleep for more than four hours. I had woken up in the middle of the night, twice, to pee so I was tired. I don’t understand why I had to wake up so damn early in the morning when I cathed before I went to bed. This annoys me to no end. I didn’t have that much to drink after I took my night meds. Drives me crazy that I have to get up in the middle of the night to pee because my kidneys work. I am grateful that they do but wish they would slack off so I can sleep.
I was hungry but didn’t feel like cooking when I got up at 1430. I made a tuna sandwich. I used my last can of tuna so my next grocery order. My cousin is taking me shopping Tues so I will pick some up then, if I remember. I have to make a list of stuff I need to get. I know I want roast beef and burgers. And steak. I can’t forget steak. I have it at least once a month.
I did my med boxes for the week. I filled up the bottles that needed it. I had been winding down the bottles for the end of the month and I finally used it all. I put the bottles in recycle. I need to take down my recycle. I would have done it yesterday but I don’t think there is space as my sister had a BBQ. I might have to put them in the end of the week after the bins are empty.
I made iced coffee when I got up at 1430. It was good. I love that my Keurig makes it. It is so easy. Just fill a mug with ice and let it pour, mix with cream and sugar. And boom. Iced coffee. So good. I like the Peet’s dark roast that I have. It is really good iced. I like it better iced than hot. I of course have my Starbucks coffee that I will make either hot or iced. Lately everything has been iced because it is too hot for hot coffee.
Tomorrow I have PT. I should be getting a call in a few hours saying what time my ride will be picking me up. Hope it isn’t too early like last week. I had to wait a half hour last time because it was so early. And I couldn’t wait in the waiting room because of social distancing. I really hope PT helps my endurance levels because it totally sucks that I can’t do anything without being short of breath. It makes me sad that I don’t have the energy I once did.
Writing Something is better than nothing
I woke up with my med alarm ringing. I didn’t know what the noise was but I wanted it to stop. It was ringing for a good ten minutes before I finally became coherent enough to shut it off. I took my meds and then went to the bathroom. I did my business then brushed my teeth. I needed caffeine if I was going to have therapy in an hour. I made a cup of tea as half and half seems to be a rare commodity these days. I need it for coffee but seeing as I didn’t have it, I made tea. It was strong and full bodied so I enjoyed my cup.
Therapy was a disaster. I didn’t feel like talking. It was too early in the fucking morning and I guess my therapist finally clued in that this time was not a good time to chat. We changed it for a later time next week on Tues. Just as well as I am not liking these virtual visits. It is so hard to think of something to say. I felt like pulling out my notebook that jotted down some stuff but wasn’t sure if she would approve. Frankly I just wanted to get back to bed. I didn’t care about anything else. I told her about the need to lay flat and that I have a leak. This recovery is taking its own sweet time. I don’t like it. It is too slow for my tastes. So naturally I got a headache today. Luckily, Tylenol took care of it. I was running a low grade temp last night that had me very worried. It didn’t go above 99.6 and ibuprofen took care of it. I have not been running anything close to 98 degrees right now. I am glad. I still feel like shit and if I do anything that requires effort, my heart rate goes nuts.
Last night my nephew was worried as I was so out of breath after I took my shower. It took me a while for me to catch my breath. My heart rate was bananas. I made up a container of water and then I made a container of Gatorade. I haven’t made one today. I should as I haven’t been drinking that much today. I will make a container when my sister leaves my house. I don’t feel like talking to her right now. I just am not in a talkative mood.
I am debating on contacting my therapist for another session this week. I feel like I should make amends to my non-talkative mood this morning. Part of me feels like she is mad at me but I know that isn’t true. I wonder if my therapist is sick of me. I always seem to go back and forth. Like I want to move forward but I rather do it two steps back to make sure I have room to fall. I’ve always done this with every therapist I’ve had. She is the first one in nearly twenty years to challenge me on my thoughts. She wants me to get better. The question is, do I want to?