2019May10 worries on my mind, pain in my heart

2019May10 worries on my mind, pain in my heart

I saw my psych today and the first thing she said to me was “have a mustache.” I laughed. I had taken a selfie while at the bus stop and when it popped up on my timeline on FB, I really noticed it being darker than it was even a week ago. Sometimes it is the small things you don’t notice right away. I sort of have been in a gender incongruent/dysphoric mood today as I feel like my breasts are a thousand pounds each. Also feeling bloated doesn’t help. I am not sure why I am bloated as I haven’t eaten gassy foods today, unless it is leftover gas from the burrito I had last night. I am just uncomfortable with my body right now and I don’t like it. I loathe myself so much right now.

My appointment kind of went as planned, with the exception of the hospital being my choice. She is insisting on me going in the hospital next week when my sisters come home. I told her to please find out of the psych unit prescribes pain medication because if they don’t, there will be problems. I most certainly won’t be going in if I can’t have pain meds. I am to call her Tuesday so she can find out about beds as we sort of agreed on a Wed admission. I honestly don’t know if things will be better by then. I doubt it as I am getting closer and closer to an attempt. We didn’t discuss the means, thank god. But she is not letting this get worse as it already has been.

I have already packed a bag. I just need to see if I packed shorts because I don’t want to be hot as the temps have been climbing up. I also need to make sure I have extra underwear as I have been leaking a lot more than usual lately. The increase in the pain meds have caused more retention than I expected. I am still hoping it will level off but who knows when that will be. It has been a few weeks since I started the new dose so maybe a few weeks more as my body adjusts. Course this also goes with how many breakthrough meds I have been taking as that also causes retention. I honestly don’t get the signal to pee until I am practically ready to burst. This is due to the nerve damage caused by cauda equina syndrome. Even though it has been more than 10 years, I still have damage that is permanent.

After I left my psych’s office and was on the way to the train home, I got hit with the biggest heart ache. It hit me so hard, I could barely breathe. It has been bad like this the past three or four days now. I really don’t know what brings it on. But I guess that is the nature of psychache, just comes on when you least expect it. Then when I came home and got into my PJs, my damn ankle exploded in pain. Pain got worse as I have been typing this blog. I was getting hungry so just had a protein bar. I was going to have Nutella on a flour tortilla but doesn’t look like that will be happening. I hope I can sleep tonight. My psych was astounded when I told her I had 5 shots of espresso. I can handle it, though I probably should have had four. I don’t think it will keep me up as much as the pain will. I am already experiencing sensory overload as noises have been bothering me. My mother is playing her dice game in the kitchen. I swear I’d like to toss them in the trash one day. Fucking hate the noise!! Nothing worse than hard plastic hitting glass. And she seems to be playing it whenever she is in the kitchen now, with the blasted TV at full volume. I just want to die and I know the night is only going to get worse between my psychache and physical pain.

2019May06 Monday Blues

2019May06 Monday Blues

I didn’t sleep well last night. I fell asleep around 0330 and then woke up either every hour or every two. I finally gave up around noon, which by then I had pissed off two people. So ya, my day is going great and I feel frustrated and sad on top of my suicidal self. Now I just got two emails from my doctor’s office saying they approved and denied my medication request for renewal. I called the office and the new coordinator said she will have him get back to me.

Before I went to bed at 330, I emailed my psych saying that although I appreciate the close contact I have with her concerning my suicidality, I am okay and I don’t want to call her. She writes back that I “run the show!” Now sure what that is supposed to me. I don’t know if she is upset with me or not. I told her I will see her Friday and that I will call if something urgent comes up. I feel like an asshole and I don’t know why. I really am not okay and maybe she knows that but is going with it because I said so. I don’t know. I am still having suicidal thoughts that are overwhelming and the feelings that go with it are getting to be too much for me to handle. I am still contained, as the hospital would say.

I wanted to go out today but because I didn’t have a good sleep, I decided not to. I made coffee at home as I needed it. I just had one cup. My face is still feeling smooth so I didn’t shave. I just washed my face and brushed my teeth. I forgot to do it yesterday. Sometimes I can remember and sometimes I just don’t feel like it. It is hard doing ADLs some days.

It’s a nice day. While I was in the kitchen, I opened the back door to let some air in the house. I want to open my bedroom window but it will take some doing as I probably will cause an avalanche. I have no idea how I accumulated shit there. It was cleared off when my brother in law took out the window sometime in October. I am going to try and clean out my hamper that is just a holding bin right now. I got a set of fleece sheets in there. I think I will wash them so I can put them on my bed when I clear off my bed to change them. I can’t go overboard today because I have PT tomorrow. If I do too much today, I am going to have a flare Wednesday and that won’t be good. I really don’t want to have another suicidal flare. I think it will send me off the edge.

I got such a heavy heart today and I don’t know why. It has been this way past four days now. It is a mix of anguish and despair. I feel hopeless that things will get better. I feel like I am going to feel this way forever. Part of me knows this isn’t true but it has been going on for months now and seems to just be getting worse. I am seriously thinking of going back on an antidepressant but every time I think about it, I think of the side effects and I just don’t want to deal. The one my psych wants to put me on has nausea as the most prominent side effect. Nearly everyone I know that has been on it has gotten sick the first week of starting it. I am not sure I can last a week of feeling nauseous all the time. I do have Zofran to help with it, if need be but I don’t want to be taking a med to counteract the other med. I did that with the other antipsychotic I was on. I don’t want to do it again. It is a trial and error. It could not have any effect on me.

Since getting up, I have been thinking of going in the hospital. I have been ambivalent about going in. I am weighing the pros and cons, which right now, it is mostly cons, starting with at least a 12 hour stay in the emergency room waiting for a bed. I most like will have to change into their clothes, which is like scrubs. The hard part is trying to leave the house without someone noticing I am leaving with my backpack and duffle bag. Probably the only way is to leave the house really early in the morning before my sisters leave for work. I just have to remember to grab my journal in my every day backpack. I feel like I should bring my power cords just in case I don’t go to the hospital I prefer.

Doesn’t look like I will be doing anything today as I need to take a nap. Maybe later in the evening I will when I can’t sleep. God I feel so horrible. Maybe some sleep will make me feel better.

2019May05 Cinco de Mayo

2019May05 Cinco de Mayo

Happy Cinco de Mayo if you celebrate it. I don’t because it is a rebellion that is for only those people and I don’t drink so no point.

I had stayed up until four in the morning. I was trying to do something and it just wasn’t going to work. I had no idea time was flying while I was attempting to do this. So stupid.

Today is my cousin’s birthday. I honestly don’t remember the year she was born so no idea how old she is. I think she turned 30 last year or the year before. I was invited but couldn’t go because of pain.

“I am now the most miserable man living. if what I feel were equally distributed to the whole human family, there would not be one cheerful face on the earth. Whether I shall ever be better I cannot tell; I awfully forebode I shall not. To remain as I am is impossible; I must die or be better, it appears to me.” –Abraham Lincoln.

This quote is what things feel like now. I sent it to my psych last night as I was having strong urges and thoughts and visions of knives being in my chest. Past two days have been rough with suicidality. I wish I could say what is on my mind but am too afraid someone might call the cops on me for feeling the way I do. I see my psych on Friday and might tell her. I also need to call her, again, Monday. I want to tell her over the phone as that will be easier but on the other hand, I am not sure I will be a free bird after I tell her. I appreciate her wanting to check in with me so often but I kind of want her to leave me alone, too. I know she is worried about me and she would leave me alone if she felt I was okay enough.

I was up till 0430 this morning. I had my laptop and this document up so apparently started writing and dozed off a bit. I was in such a rotten mood last night. Because I made breakfast, my damn foot is acting up. I’ve been bad about doing PT exercises. I don’t care anymore. If I do them, I do them, if I don’t, fuck it. I hate stressing over it. I feel bad because my PT and I have been making progress except for the balance and calf issue. It has been nearly three months now and my calf is still hard as a rock. Every time I try to stretch it out, I have pain the next day and can barely stand, much less walk. I know it is sore but fuck, I need to be able to do those things, even if it is around the house. My heel pain has been much better, flaring every so often now. I have no idea what triggers the pain as I can be walking fine and then it will hurt. Last time I had just turned to throw something out while in my kitchen and was hit with pain. Then it went away (nothing really helps make it go away other than resting it). I am so tired of being in pain between the two feet that it is driving me so nuts to the point of being suicidal all the time. Sure my mood doesn’t help but neither does being in severe pain every day. The new extended release has brought my every day pain down. I forgot what it was like living with a 3 level pain every day. But the flares haven’t stopped. I still have them where I can see stars at times and then my suicidality will fricken increase so much. Usually when it calms down the next day, I am not so suicidal. Past few days, I have no idea what is going on but I just am plain suicidal. I am not going to act on what I feel or think, but damn, I can’t shake them off. I have tried things that have worked in the past but I can’t seem to decrease them and the more I try the harder they are around. Doesn’t help when your psychache is out of control, either. Psychache is when you have unbearable anguish, despair, frustration, emotional pain, guilt, perturbation, worthlessness, etc. It has been coming on strong. That is why the quote from Abraham Lincoln is so poignant right now. This quote has been on my mind a lot, too:

“I appear at times merry and in good heart, talk too before others quite reasonably, and it looks as if felt too. God knows how well within my skin yet the soul maintains it deathly sleep and the heart bleeds from a thousand wounds”. Hugo Wolf

I posted that with my Instagram account last night with a pick of me looking pathetic. Well, actually, it looked like I was in pain, which I was, just like I am now. Foot pain has gone up and so has psychache. Eventually my perturbation and lethality will skyrocket and I will act. I just don’t know when that will be. Maybe I will save up for a hotel room. I don’t know. I need some place to do it other than my bedroom. There isn’t any deserted places around where I live. Kind of sucks and the weather calls for rain most of the week so being outside won’t be ideal. Maybe going in the hospital will give me some breathing room. I don’t know anymore. I still need to straighten out my room. I was going to change sheets today but I don’t have the energy for it. I still need to clear off the corner of my bed that likes to accumulate shit. Trying to keep that corner clear is a joke at this point. Ready to just throw it on the floor and be done with it.

bunch of worries

Bunch of worries

I woke up at 6 am because of a headache and my foot hurting me. Always nice to wake up in pain, not. I couldn’t go back to sleep. I kind of wanted to but yesterday I did and I felt like shit after so I decided to stay awake even though I am sleepy.

I see my PCP today. I have swelling on my leg that has now spread to my shin. It is hard as a rock and if you press on it, it is painful. I am not sure my increase in standing and moving around is the cause or not. It sort of feels like it did right before I was deemed disabled by my work. With having nothing to do, I rested it and the muscles/tendons calmed down but the pain in my ankle and foot remained. I have no idea if CRPS is spreading up my leg or not. I have raised the issue with my neurologist who blew me off. I also have a new swelling just above my ankle. I am worried about all of this. Plus my review of my LTD paperwork that I will be giving to my new pcp to fill out makes me nervous because he doesn’t know me well (only seen him one time) and here I am telling him what to write, or at least giving him stuff about what my symptoms are and everything.

I had my appointment with the social worker. We talked about things and a little about my suicidality. She asked me an odd question. She asked how do I think I will die, whether it be peacefully or what down the line. My first thought was “are you kidding me?” Did she hear that I was suicidal and currently contemplating when I will carry this out? I told her I will die by my own hand. I don’t know when that will be (hopefully soon but didn’t tell her that part). She then asked if I will see her next week. She gave me the option to cancel. I guess she doesn’t want to be committed to seeing me as she is just filling in until I have someone, which I am not sure when that will be. She has told me the psychiatrist for the practice has taken my information and is seeking out a psychologist for me. In the meantime, I am planning my death because it is what I do. Doesn’t mean I will act on it. I just like having it because it has always been my back up plan. She understands that it is an escape for me.

After my appointment with the pcp today, I am to call my psychiatrist. I have no idea if I will. Last time that she wanted me to call, I was so upset that I didn’t want to talk about it (it was with my previous PCP, who was a dipshit). So we will see how it goes. I weighed myself yesterday and if the goddamn scale is right, I have gained about eight pounds in a few days time. I haven’t had a bowel movement in more than a week now. I hope that isn’t why my weight has mysteriously gone up. But the scale could be wrong. I will be wearing sweatpants today instead of jeans so I can have a better weight. Of course, medical scales always adds pounds so I am not sure what the hell I am. If it is greater than five pounds, I will be getting a new scale.

I have been finagling the bagel over my bills, which I need to pay tomorrow. I have been going up and down with my grocery bill. I put stuff in my cart and then when it comes down to crunching numbers, I take them out. I had bought stuff to make my chili cornbread casserole dish that I love, but I went to the store yesterday and bought the stuff. I made it for dinner last night. It came out so fricken good! I will have it for dinner tonight when I come home from my appointment.

I hope my psych will be okay in just calling her today. I see her Friday and as much as I don’t want to see her, I unfortunately have to because I need refills on my meds. I also need my medical meds refilled so when I see my pcp I have to tell him. I hope my nerves don’t get the best of me and I forget. I also need to call the stupid pharmacy to see if they have it in stock. If not, I will call another pharmacy until I find one that has it in stock. I only have one day supply left so I can’t wait more than a day to get them in. Just hope I don’t have to go outside my town to get them. That will really suck.

I am getting sleepy. I think I will make a cup of coffee. I don’t know if I want to go downstairs as my mother just went down. She uses the whole kitchen counter to make her breakfast and I have to go around her to get what I need. I hate that. I am grumpy until I have had my coffee. I am not sure if I will have something to eat or not. I won’t be home till at least 5 pm or so as my appointment is at 3pm. I generally like late appointments but it just interferes with the damn bus schedule. Today I have to leave the house at 1230 or I have to wait till almost 2pm for the next bus to the Square. It really sucks that it is more than an hour for either bus to come. I hate the new schedule so much. But because of the stupid extension of the train line, the bridge is out so the bus has to go through a detour to get to the square. It is kind of faster as there is less traffic, unless we get behind another bus (there are two other buses that share the detoured street). I am glad that both buses that come to my street go to the square now, but the times are all screwy. I hope it isn’t going to stay that way until the bridge is rebuilt.