I woke up at 3
I woke up at 3am and am still up so I ordered breakfast. I am kind of hungry. My mother’s baby monitor alarm went off shortly after I woke up. She had to go to the bathroom and my sister was there to help her. I was supposed to watch her tonight but got a flare after an emotional response to my mother after she called me a “she”. I hate when I get emotional flares of pain. I hate that CRPS is so dependent on my state of mind sometimes.
I had the breakfast but couldn’t finish the 3rd burrito. It was cold and I was already getting full. I thought about making a cup of tea but didn’t want to stay in the kitchen. I wanted to try to get back to bed. So I am writing a blog to exhaust myself before trying to get back to sleep. I had woken up with back pain which is never a good sign. I took some Tylenol to try and settle it down. I really hope I didn’t so something to my back. I see the neurosurgeon next week and I wanted him to sign me off but I am not so sure he will now that my back has flared up. I have been doing more stuff lately so I can understand why my back is flared. The sneeze I had yesterday morning didn’t help. I felt like I pulled a muscle and that is what it feels like.
I have lots to do today. I need to clear off a space in my room so it is less dusty. I also need to change my bedding. My new foam topper should be arriving today. I don’t know when but I hope it is in the morning and not the evening. My hope is to put it on my bed and then watch my mother while it settles on my bed. I have to have it like that for at least 24 hours. So I can’t be on my bed at that time. I am going to need a chair to sit down because I can’t stand while doing stuff for long periods. That will definitely flare me up more. I really need to get stuff done in my room. My sisters want to replace the rug with a wood laminate. I don’t mind. I hate having a rug anyways. I just hope my bed doesn’t roll on the floor. I got wheels on my bed that have sunk into the rug. One of them have broken due to the weight of me and the bed. But they are cheap plastic wheels so I am not surprised. I hope I can remove them and just have a stopper instead.
The other day I had a phone call with the reporter that is doing a book on suicide. He is interviewing people from the study I was involved in last year. We have become good friends. He asked me how the partial hospital was going with it being virtual. I told him how it was and how distant you can be while being online. You really don’t make friends with the group members because there is no real interaction.
I had ordered my meds by mail and I receive one of the two packages. I should be getting the other one sometime today. I hope so because I am running low on one of my meds. I am surprised it has taken this long. I usually get them right away after I get the email that said they have been shipped.
I am constipated again so I just took some Miralax. Surprisingly, I haven’t had the soft stool that I usually get while taking it, which is good because that means no accidents. I have lost the control of loose soft stool. I can’t keep it in anymore. Hard stuff I can but if it is soft and mushy, forget about it. I think I need to take Miralax regularly for a few days so that I can go every day. I feel backed up when I don’t go for a day or so. I feel like I should take 1000 mg of magnesium at night just so I can go. I hate being constipated. It is the worst feeling in the world.
One thing I have noticed since going to partial is that my suicidal thoughts have gone away. I am not so suicidal anymore. But I still wish that I was dead. I haven’t actively planned anything in a while. I think that is good. I will bring it up in therapy on Monday. I haven’t heard from partial about extending my time. I hope they do. I am so anxious about this. I hope they approve it and will be sad if they don’t.
Saturday Blog 12122020
I’ve had a rough day. I can’t seem to get going. I woke up with hunger, which is unusual so I had some ramen noodles as that was what I was wanting. I got the download link to One Night Lonely with Mary Chapin Carpenter but I haven’t been able to download it to my phone so that my MP3 recognizes it. It is stuck in dropbox app and I don’t remember how to “free” the songs. I have to google it I guess.
I had partial yesterday and a meeting with the therapist which felt good to talk to him. He validated a lot of what I was going through and is willing to have a reduced schedule for me because of my pain. I will go three days a week and go to 3 groups. I haven’t decided if I will do that. I am going to give it one more full day to see how I do. It is tiring even though it is on virtual. I can’t say I am learning a lot because it is a lot of old stuff through the years being brought up once again, with the distress tolerance and wise mind and mindfulness. All DBT stuff I have learned before.
The therapist and I talked about how I was really feeling and I honestly told him how I felt. It felt good to finally tell someone that pain is again causing me to be so miserable. It was good telling someone that this might not work for me because of pain and he understood this to be a barrier in treatment.
I did have a good session with my therapist Thursday afternoon. She thinks trauma is the reason I get suicidal and depressed because I am not dealing with it. I thought about what she said and it made sense. I told her let’s work on it then but she thinks I don’t have the coping skills to deal with it right now. We are going to give a few weeks of partial a shot and then go from there. She is on vacation in a couple of weeks so it might not be until the new year that we work on this. I have no idea what it entails. I am tempted to read my “trauma and recovery” book that I got in college but I don’t know where it is right now. I think it is in the basement with my other books from my office. I just tried to find the book but it isn’t there so I don’t know where it is. I will just order another copy.
Trauma has been something I have stayed away with in therapy for a long time. It was something I never thought I needed to go through. Seems like now I got to face it and I am not sure I can do it. I just hope my therapist doesn’t refer me to a trauma specialist because I won’t go through with it. I don’t want to see two therapists for basically the same problem.
I’m listening to Taylor Swift’s folklore again. I want to get the new album but I have to deposit money in my account. I will probably do that tomorrow. My favorite song on this album is exile. It is a duet and it is so good. I have it on repeat right now.
Going to partial
I had a lengthy conversation with my therapist yesterday about partial hospitalization. She really wants me to go and think it will help me. I was cranky and irritable and that concerned her. I told her I haven’t been eating and she said that was concerning. The whole appointment was a concern for her. I told her I would get in touch with the social worker today about starting the program, which I did. I start Thurs. I should be getting a phone call tomorrow night about how to join as I haven’t received any web information. It starts at 9. Yuck. I think I just have two meetings that day, back to back. Just hope I can make coffee before the meeting. I have two meetings so far for Thurs back to back.
Yesterday I got tested for Covid. I am glad I scheduled the appointment as I was in and out. Otherwise I would have had to wait two hours to be seen. I am still waiting for my results. It was easy to get to and I am glad I was familiar with the area. After the testing, I went to Starbucks and got a Crème Brule latte. It was really sweet and I only got the 2 shots of espresso. I should have gotten three but it is ok. I know for next time.
I am feeling good today. I might shower and shave. My beard is a little on the long side and is irritating when I put my chin down. I think I might just trim it some so it isn’t annoying. I haven’t shaved it in over a month now. I like the results. Sucks with the mask no one can see it outside of the house. I love the feel of the beard under my chin.
I ordered a new calendar today and was not pleased the price went up by 10 bucks. I usually get it for 10 or under. But I like having a calendar I can look at a glance to check in what day is what. Helps me to keep track of the days much better than looking on my phone.
Tomorrow I have the dreaded urodynamic testing. I will be glad to get it over with. It isn’t a pleasant test but it is important. I just hope all is well and I can keep doing what I have been doing. It is a little tough sometimes because I know I still retain and the urge to go isn’t strong at times. Sometimes I will be sitting on the toilet and have to wait more than a few minutes to start urinating. That is so frustrating. Just when I am ready to say the hell with it and cath, I go. So it is worth waiting I guess. I got to figure out what time to leave my house. I think I will leave around 9 so I can get some coffee at Starbucks and maybe something to eat. I have been wanting to have their breakfast sausage sandwich. It is supposed to be cold tomorrow. I am just glad the building isn’t down the street from the hospital this time. It would have taken me forever to walk there with my back the way it is.
I got a lot of worries with my family right now that I wish I could talk about but I can’t. So hard having so much anxiety about this. It definitely isn’t helping the tension in my neck and jaw. I haven’t eaten anything today. I don’t know what I want to eat. I want to nap. Maybe I will be hungry after I have some sleep.
Sunday Blog 06122020
Another Sunday has passed through. Weeks keep flying; there is no stopping time. My birthday will be in seventeen days. I am not looking forward to it. I hate my birthday. I like my name day better. No one knows it and doesn’t give me grief about it. I blame my mother for the reason I hate my birthday. All because when I was 16 she threw me a surprise birthday at my grandmother’s house and I had to spend it with people I hated. I wanted to be alone and she didn’t want me to be alone. She is a real bitch. She knew I hated her side of the family. I still do. I want nothing to do with them at all.
I didn’t eat today. I have no appetite. I drank an Ensure so I have something in my stomach other than pills and Powerade. I had coffee and I didn’t even finish that. I am having a lot of pain on my left side of my neck. I took a couple of Ativan to calm it down with some Tylenol. I hope I sleep tonight. I have to get up early tomorrow morning so I can get tested for Covid. My sister tested positive yesterday. I have been staying in my room as much as possible and wearing my mask when I am not in my room.
I did my meds for the week. I really didn’t want to take the Latuda but I don’t want to suffer from withdrawals from it so I took it. I don’t want to take the citalopram either as it isn’t doing much of nothing too. I am not happy that these meds I am taking that are supposed to help haven’t. Least the voices are under control. I hope the psychiatrist doesn’t stop the med because of the mood and leave me hanging for a psych med for the voices. The whole reason I wanted to be on the Latuda was for voices not as a mood stabilizer, for fuck sake.
I am so damn tired. I hope I sleep tonight. My foot is bothering me but it isn’t excruciating like it has the past couple of days. I bought a glycolic wash that I plan to use once I shave my beard. It will be in a the next few weeks as I am getting tired of it. It gets long and then I want to shave it off. It is cold today. I still have the ceiling fan on because it gets hot in my room. I can’t stand it when it is hot. I like being cold in my room. I still have the AC in. It probably will be in year round as I haven’t bothered my brother in law to take it out. The weather has been warm like every other day so it is good that I have the AC in the window. The really cold winter weather hasn’t started. I am grateful for that.