Never thought I would ever be on so many meds for one illness. If it was for my mental illness that would be one thing. But for chronic pain there are like 4 or 5 plus patches and gels and ointments. I’m tired of taking them when flares hit. And there is nothing I can do but let the pain be a 20/10 and hope morning comes so the hell will be over. A family member once said you are on pain medicine, why are you still in pain? Because it is not the pain it was meant to be dealt with. Nerve pain is different than physical pain. Then you have the pain go away and another pops up in another place on your fucking foot or ankle. Chronic pain sucks and need different things to keep it in check and then there is nothing to keep it in check. It just is. That is what CRPS is. Complex regional pain syndrome. So I am off taking another pill that might work. And if it doesn’t or changes to something else, go through the list. So exhausting. This is why I constantly think of death. I have no strength left
There was yet another shooting in the US. A hospital in Chicago lost an ER doc because of her fiance. We don’t know details because he is dead. An officer and a pharmacy tech were also killed. I am so sad over this. Docs are mad continues to happen while those in government do nothing. is becoming an every day thing. Innocent people are losing their lives because someone decides to take a life with a gun. I honestly think the more this is broadcasted the worst it will be. People must be thinking it is “ok” to do this, everyone is. Makes me so mad and sad.
I had to cancel my therapy appt last minute because I was stuck at the hospital trying to give a urine sample. My bladder was retaining so damn fucking bad. I felt I had to go. I knew I had to go. I had drank more than 1000 mLs of fluid. I was full or close to it but no, I wasn’t overflowing so nothing was coming out. I tried everything. It was so noisy in the lab. Soon as I went to a quieter bathroom, I finally was able to pee. I then had to walk back to the lab to drop off the sample. There was no way I would be on time. I would have like 15 minutes with him and that would be it. I hate having to cancel. Stupid bladder.
When I walked back to the station to go home, my heel was killing me. I don’t think it is plantar fasciitis. I am starting to think the steps I take are to harsh on my heel. It is so inflamed right now. I bought some gel inserts to try. I don’t know what else to do. My feet are freezing so I am not about to put ice on. I probably should. But with the whole CRPS thing, I fear I am causing damage than helping it.
My blood tests came back. My sodium is still low but higher than it was. My pcp sent me a letter but didn’t tell me if I need to keep doing the restrictions or not. Ugh. Idiot. So I emailed him back. Hope to get an answer tomorrow. I see him next week so will probably recheck my values again.
I was so damn exhausted. I ate a sandwich and then I passed out. I have no idea how long. I woke up with a bladder yelling at me. It was ready to explode. I was so disoriented. It was around 6 I woke up so I don’t think I slept too long. I was not rested. I just wanted to take my meds and go to sleep. But i was so cold. It was freezing in my room. It is a little warmer now. It is raining again. We are supposed to have a snow rain mix tomorrow. That is going to be fun as i got to go see the pain program social worker. I am going to be blunt like i usually am. I only had one session and canceled 2. I really don’t care anymore. I am not feeling well. I emailed the PT and OT about why I couldn’t make it. I am not doing the stretches at all anymore because it flares up my foot. I had a million and one pains last night. It was awful. I hadn’t hurt that bad in a while. Then when I was just about to doze off, my body jerk, causing my left rib cage to hurt. It was such a bad night. I have no idea how I got up this morning at 9 to be out of the house by 1030. I didn’t shower as I knew that would tire me out. I wish I went to therapy. The whole thing makes me want to quit. Like why bother seeking help when I have so much wrong with me.
My thoughts are with those employees of that hospital in Chicago. What a terrible thing to happen. It happened at my workplace. A secretary shot a cardiologist one morning. I was glad I was off that day. Total mayhem with police and news crews. The news were camped out for like a week. So stupid. Hope they all can talk about it so it doesn’t cause PTSD for them. That is my theory anyway. But sometimes it doesn’t work and does more harm than good.
Hope my pain eases and I sleep. Night all.
Rambling 29 July 2018
I didn’t do much yesterday but sleep because I didn’t go to sleep till 5 am. I had a bad night of pain. I sent an email to my psych around 4 and then took an Ativan and that finally got me to sleep. I put my phone on do not disturb but set my alarm so I could take my morning meds. With the do not disturb, my app alarm doesn’t work.
Sox won. I listened to the game, though around the 7th inning, I was getting sleepy so tried to sleep. My foot decided to explode. It was hurting me before I laid down but then it really started to hurt. I took some Neurontin. It didn’t work. I put some lidocaine on, and that seemed to calm it down a bit.
My cousin was calling me a few times during the day. He gets anxious if you ignore him. I really think, after talking to him tonight, that he is paranoid. He seems to think his mother and sister want him to move out of his apartment so his other brother can live there. I don’t know. That seems kind of crazy to me. I don’t know where he will go. He says he can’t live on his own, but yet he is. He can do a lot of things I can. I told him I might have to go into assisted living if something happens to my mother. I can’t be on my own because I never know when my ankle is going to go out on me. I can’t keep up with house chores. I found that out Thursday when I tried to do six loads of laundry. It took a lot out of me.
I have some dishes in the sink but I was too tired to do them after I ate. I used my last cold brew iced tea bag today. I have it brewing in the fridge right now. It is probably done now but a few more hours won’t hurt. I like it to be strong. I think you can use regular tea bags but I think it takes longer to brew or maybe you use hot water and then cool it so you have iced tea. I have a hyperchill think I can use. It works great for coffee. I just make coffee like I do for hot and then put it in this cup with ice around the chamber and it cools the coffee without diluting it. It is really neat. Only thing that sucks is that it is small. You can only get about 12 oz of coffee. I like at least 16 oz.
I am listening to my country music. Cam posted a little vid that she performed in Mexico. She sang Diane in Spanish and OMG it was better than it was in English! It was just one part of the song and then she sang the rest in English. I was bummed. I had to listen to her song again and just let the playlist play.
Weather is supposed to be less humid today. We’ll see. Today is going to be the only day the weather is less humid. Monday is going to be yucko again. I’ll have to carry my sweat rag with me. I can’t help it. I just sweat a lot in hot weather because of my nerve condition.
I am going to try and sleep. I will write more if I can’t. Thanks for reading guys. It means a lot.
I am having moving pain, going up half way my leg and back down to the bones in my foot. I’m kind of freaking out because my nerve injury started that way. It is setting off PTSD for me. Have had nightmares all night so not sleeping well. Took some ativan, neurontin and fiber because my bowels are stuck again. I am fearful of what is going to happen when I change my meds. PT said take the laxatives before dose. Great. Also if pain doc for some reason doesn’t prescribe me my meds, I am screwed. I need a refill of meds this week and don’t see him till late Friday afternoon. Emailed my pcp this concern. I don’t want to be out of meds on a weekend. Just a little more anxiety this week.
I went to PT yesterday. She said I have one of two muscles pulled that affect the groin but not sure which one. The good news it is not coming from my back and I don’t have bursitis or arthritis in my hip. If I did, she would send me back to my doc.
It was good seeing her. She is still recovering from a little major surgery. A muscle in her thigh popped out. Yikes! Even while she was examining me, her leg started to fatigue. She had the surgery last month. I feel for her.
Because it was my groin, she started moving her hand feeling about and when she got to a certain point, I started to get uncomfortable because of my sexual abuse history. I felt uncomfortable telling her but she quickly stopped and I was grateful. That area has always made me tense, even with female doctors. I didn’t see my male pcp on this issue because I didn’t want him touching me there. I know they need to and they are professionals so aren’t going to hurt me but it still makes me uncomfortable and tense.
I didn’t write a blog yesterday because I couldn’t think of a title. That is usually the first order of business. Then I can write. I had stuff to talk about but without a title, I couldn’t write. I tried for 2 hours and then gave up.
Most of the night, I’ve been having nightmares. I don’t know why. I am not prone to them. Usually i just have weird or bad dreams but nothing that wakes me feeling scared and have to turn on the light to know it was a dream. Just felt like people we out to get me. I am sure the anxiety i am having this week hasn’t helped.
Not sure what I’ll be doing today. Probably sleeping but I’ve been up since 330 and despite taking my meds, I don’t feel tired 2 hours later. I had a fluffernutter. It is a sandwich made with peanut butter and Fluff, a marshmallow spread. It is a New England staple as Fluff was invented in a town nearby Boston. They recently celebrated the 100 year Anniversary of the patent being sold to a factory in Lynn, which is north of Boston.
My ankle bone is being hammered like it was when I woke up two hours ago. Guess I’ll have to add the strong pain pill to the mix. I hate bone pain more than any other CRPS pain.