Category Archives: painsomnia

Foot is driving me nutso!!

I’ve been trying to sleep since 2100. My mother wasn’t up in her room yet. I called to see if she was ok as with the AC on, I can’t hear things. She was okay. Her sugars had stabilized.

I got a blog that I read and wished I didn’t. It was about the lesbian protests or something like that in London during the Pride parade. What gets me is that anytime transgender is mentioned, it is almost always having to do with transwomen. I know I cannot be the only transman in the world. I know one came out in the Navy. I know there is another fellow in Oregon. We talk occasionally. We can’t be the only ones out there. So why isn’t it out there?? I just feel alone and invisible.

Then I started talking about suicide and someone tried guilt tripping me. I call it what it is and they say it is on me. Really? I will be fucking dead. How will I know what will happen to my family?? Am I supposed to be a ghost or something? Pissed me off.

My foot felt like it was in a pressure cooker. Then it felt like it was being crushed. Now my big toe is hurting big time. I call uncle, except I don’t think it works. I found my very last breakthrough med. Tomorrow I got to call and have them change the order and make sure the count is so I can take more than 1 a day. Otherwise the pharmacy won’t fill it and I’ll chop my fucking ankle off.

I will need a shower tomorrow. I hate showering. I need to shave my head to keep it bald. Also need to do a touch up of shaving because I missed some spots. My foot isn’t going to be happy. Then I got PT. Oh joy. Yes the curative physical therapy to increase mobility. This is interesting as I haven’t moved my damned ankle in 17 fucking years. It is a fucking joke. Oh and the damn pain clinic refuses to use CRPS. I have left ankle/foot pain. Can I bring a bat to my next appt and clobber them over the head?? Not to kill them, just to knock some sense in them or make them read my damn medical record that says why I need prescription pain medication. Fucking assholes.

I am done trying to say to them what I need. I have a better chance of winning the lottery. My foot is screaming. It is too late for gaba. I need to be up early enough to call the assholes and hope it doesn’t take a week to change the order. I can’t believe I was stupid and didn’t read it before I left. Ugh. Live and learn I guess.

Maybe 300 mg of gaba to calm some of it down. My PT is going to be unhappy with me. I’ve only done home exercises about 3 times. I couldn’t do it the 1st two days after our last session because my thigh hurt too much. Thursday I did it. Friday I was off to asshole’s office. Saturday I slept all day. Today I was in a fuck it mood.ok so what is that just one time? Oops I can’t count. We’ll just say 3 times. I probably am not going to see her anymore anyway. I really don’t want to. I think it is pointless to see her for my ankle/foot. I saw her before and I was in too much pain. And without breakthrough meds, forget it. I am tired of working through the pain.

I have no life. Just doc appts. I can’t remember a day I went to the Square just for fun, to have my espresso and write. Hasn’t happened in so long. Maybe February when I was trying to write the story in my head. It is gone now. Why bother writing it when I am going to die soon?

Part of me is trying to hang around. But with every painful flare, it gets less and less. Just do it runs through my head. Someday soon. I hope. Just do it…

Painsomnia and Midnight Demon Friday 22 June 18

I had started a blog on my laptop to publish yesterday but my brain kept getting foggy and couldn’t focus. I knew if I forced myself to write, it would come out crappy.

Now it is after 2 am. I can’t sleep. Midnight Demon is out. Has been since 10 but had no writing urges. I’m just writing now because I felt like it. I feel suicidal. Been planning for months and now it is almost time. I’m wondering where the weeks went. I haven’t done much other than look over my will. My pension is still wherever it is with my employer. I have emailed my psych that my death is inevitable. I asked her to let me go.

Pain has been decreased by 50% since my new longer acting pain med was started last week. But it does nothing for flares. I am not in a flare. Just pain that is left over from the meds. It doesn’t take all the pain away. Nothing will do that. But this pain is what is keeping me up. That and the thoughts of ending my life. It is like a monkey on my back. It goes away for a while and then comes back full force.

It is a familiar feeling. A part of me knows it will pass. Another parts truly believes this will be the end. I am tired of fighting this. I had made my decision 3 months ago. Now the 3 months is almost up. I extended the date due to circumstances beyond my control. Next week I will check out the location. I hope it will be suitable. I am still afraid I won’t go through with it. My psych might intervene. I don’t know if I will end up back in the hospital. I told her it was useless.

My hope level has been fluctuating a lot. My friend reminded me I’ve been in rough patches before and got through them. I didn’t tell her this was it. I feel so stupid. One of the suicidologists I know that is the president of AAS did a study on the effects of a suicide. In the study she found that >132 people are affected. If that holds true, I will have ~400 or more. And that just includes my online/high school/ co workers friends. Doesn’t include my humungous family.

I feel guilty about this. Today she posted saying that it was a reminder to suicidal persons as they often feel no one care or that no one will miss them. Makes me mad. I don’t want to cause pain to others yet why should I go on in torment of my CRPS and depression? I feel it is a guilt trip. A huge one at that. I stuff those feelings when I am deeply suicidal. Then when it lowers or I look at the people I love, I wonder how could I do this to them? I am in agony over this. It is truly hurting me. Call it ambilvalence. Call it selfishness (please don’t as that is NOT what it is but i don’t know another word). I just am so conflicted as to what to do. I can’t stuff them. I want to die. I need to die. My time is coming. Question is, to be or not to be.

Feeling shitty and can’t sleep

It is almost 2330. I had a burger later and then got sleepy. I’ve been trying to sleep for an hour but my damn foot keeps acting up. Bottom of my foot has this pressure pain. I am getting zaps in the side of my foot near my toes. My metatarsals are being ripped apart.

Then my brain is working none stop. For some reason, the source (evil demon from Charmed) keeps popping in my head. I will be talking to someone and then their eyes change to black and they want to envelope me. I don’t get it. I don’t usually have nightmares, not since I was a kid.

Pain is driving up my suicidality. I have been thinking about canceling my therapy appt for Monday. But I want to see him. I got 3 appts this week. I was going to have 4 but I am going to cancel my eye appt. I’ll just reschedule it. I have been trying to do the exercises my PT gave me but they are different than the ones we did when I saw her. I can do the one for my right foot but my ankle is too angry to try to do. I have no idea if having my knees up and doing one exercise is going to upset my foot/ankle. It was alright with the AFO on but I don’t wear it around the house. The. There is one exercise that sounds more like part of my notes than an exercise. Have no idea what that is about.

I think I am going to go back to regular pillows and not use the body pillow I have. It is annoying me. I also need to change my sheets but I have accumulated a bunch of shit on my bed that will take a few days to get off. I started clearing off some stuff. I have a gazillion pharmacy papers from my meds. I tried using the privacy stamp on it but it didn’t work. So it is back to the “to be shredded” pile, which is overflowing at this point.

Last night I was in a suicidal mood and sent my psychiatrist an email about things running through my head. I was expecting a phone call today but nothing and no reply. I forgot she was on vacation last week so that was why she didn’t read the article and blog I sent her. I really wanted her to read the article. But because she didn’t, I couldn’t talk to her about what was on my mind. She said she will get to it. I hope so.

Foot is hurting really bad. I took the breakthrough med a little while ago. I think a placebo would have worked better. I also took some more fiber pills. I went a little bit today but that was all. I am expecting a colon blow. But it just feels stuck. I feel really uncomfortable. Usually one will work and I am taking 3 different things. I don’t think the senna works for me anymore. I hope i go tomorrow.

Anxiety, pain, and PTSD. What a mix

I am having moving pain, going up half way my leg and back down to the bones in my foot. I’m kind of freaking out because my nerve injury started that way. It is setting off PTSD for me. Have had nightmares all night so not sleeping well. Took some ativan, neurontin and fiber because my bowels are stuck again. I am fearful of what is going to happen when I change my meds. PT said take the laxatives before dose. Great. Also if pain doc for some reason doesn’t prescribe me my meds, I am screwed. I need a refill of meds this week and don’t see him till late Friday afternoon. Emailed my pcp this concern. I don’t want to be out of meds on a weekend. Just a little more anxiety this week.

I went to PT yesterday. She said I have one of two muscles pulled that affect the groin but not sure which one. The good news it is not coming from my back and I don’t have bursitis or arthritis in my hip. If I did, she would send me back to my doc.

It was good seeing her. She is still recovering from a little major surgery. A muscle in her thigh popped out. Yikes! Even while she was examining me, her leg started to fatigue. She had the surgery last month. I feel for her.

Because it was my groin, she started moving her hand feeling about and when she got to a certain point, I started to get uncomfortable because of my sexual abuse history. I felt uncomfortable telling her but she quickly stopped and I was grateful. That area has always made me tense, even with female doctors. I didn’t see my male pcp on this issue because I didn’t want him touching me there. I know they need to and they are professionals so aren’t going to hurt me but it still makes me uncomfortable and tense.

I didn’t write a blog yesterday because I couldn’t think of a title. That is usually the first order of business. Then I can write. I had stuff to talk about but without a title, I couldn’t write. I tried for 2 hours and then gave up.

Most of the night, I’ve been having nightmares. I don’t know why. I am not prone to them. Usually i just have weird or bad dreams but nothing that wakes me feeling scared and have to turn on the light to know it was a dream. Just felt like people we out to get me. I am sure the anxiety i am having this week hasn’t helped.

Not sure what I’ll be doing today. Probably sleeping but I’ve been up since 330 and despite taking my meds, I don’t feel tired 2 hours later. I had a fluffernutter. It is a sandwich made with peanut butter and Fluff, a marshmallow spread. It is a New England staple as Fluff was invented in a town nearby Boston. They recently celebrated the 100 year Anniversary of the patent being sold to a factory in Lynn, which is north of Boston.

My ankle bone is being hammered like it was when I woke up two hours ago. Guess I’ll have to add the strong pain pill to the mix. I hate bone pain more than any other CRPS pain.

Sunday Blog about nothing 20 May 2018

Sunday Blog about nothing 20 May 2018

Just finished a cup Earl Grey tea. Had another crappy night of sleeping so when I woke up after 1300 and decided McDonald’s were in order. I had to have chicken nuggets. The order was delivered quicker than the other day. I liked what I ordered this time, just my favorites.

I woke up feeling crummy. My alarm for my pain meds went off and I think I shut off the alarm but didn’t take my meds. Oops. I couldn’t help it. My mother woke me up a little before 8 to put her socks on. I was really exhausted with this interruption in my sleep. I listened to the ball game. I was watching some of it but it was so humid and I had to go to Walgreens to get some antacid. One of my meds or maybe a combination, is giving me indigestion. I will hold the Zoloft tonight and see if that does anything. I hope I don’t have to stop taking it. My mood is already flimsy at best and I think it helps me cope better than without it.

When I came back from the store, I listened to the rest of the game. Sox won 5-0. JD Martinez hit two home runs. I lost how many games he and Betts have homered twice in a game. Both are tied for most homeruns in the MLB at 15. We are still fricken tied for 1st place with the snakes. Sox are off tomorrow so that sucks. They are going to Tampa Bay to play the Rays. I so dislike that team and park. So fricken loud. Supposedly, they will be building a new stadium somewhere else but it won’t be this season. I don’t remember when the building starts.

I haven’t had a chance to fill my med box for the week so will do that after I finish this blog. I got my postcards ready for the post office. Now I hope I can go there tomorrow. If I do, I will go to Starbucks too. All depends on how tonight goes and if my mother wakes me up early. I am glad she is wearing the socks because they are helping her but getting up to do it after you only slept a little while sucks.

I couldn’t believe how humid it was today. So ridiculous. I hate it and Friday when I go to the game is going to be 82. I am glad we will have good weather but still. I am not a heat person. I hope I can have my brother in law put in the AC and screen this week. I will text him tomorrow. I forgot to ask him when I went downstairs.