2019May13 Misery and Insomnia Continues
I barely slept last night. I was up till around 0530 because my ankle decided to go up to a level 12 at midnight and stay that way most of the night. It went down to an 8 when I woke up around 10 but after I brushed my teeth, made lunch, washed my dishes, and folded my bedding, pain shot back up higher. It is now around a level 13. I am so disgusted.
I was so frustrated and had bad urges in the early morning hours. I was in such despair. I realized around 4 am that if I go in the hospital, I am not going to have my meds at my bedside. I would have to walk to the nurse’s station to get meds and then walk back to my room. Walking is not a good thing when you are in a fricken flare. So I emailed my psych this and haven’t had a response. I sent her another email asking her if she is going to force me in the hospital. I am done with messaging her today. Either she responds or she doesn’t. I told her I can talk to her tonight or tomorrow, or the rest of the week. I don’t care but I am not going in the hospital. It isn’t like being on a psych unit you have a call bell to have the nurse come to your room. And because the nurse needs to scan your wrist band to give out meds, it is just not a good situation for me.
I am fricken exhausted. Past two nights I barely slept more than 8 hours. I am running on fumes. I had coffee because I needed it. I hate this is another day of not being able to do anything in my room. I haven’t done my PT exercises and don’t care to. I have been doing the calf thing trying to get it loose. I have not used the new band for the foot exercises. I am just so frustrated I don’t want to do a damn thing. I have been doing the foot thing where I am trying to get my foot to be flat. Because my calf is tight, my foot is always bearing on my toes rather than be flat. I have been this way for years so I don’t think that is going to change. I tried it while I was on the bus and train Friday and it was killing my muscles. I am just not used to it. I try and hold it for a little longer.
My psych just responded and wants me to call her tonight or tomorrow morning. For some reason I am scared. Even though I have known her more than half my life, I always fear she will throw me in the hospital and throw the key away. I know this irrational. So I will call her later. Rather face the music today than tomorrow. I will be a nervous wreck if I wait till tomorrow morning.
To the person who commented on my blog yesterday, I hope you are feeling a little better today. I know you are probably hurting a lot. You will get through it even though it might seem impossible right now. Hope you are continuing to read my blog so you see this message.
I took some gaba to help with the pain. Not sure that was an good idea if I got to talk to my psych tonight. Last night I was a little dissociative before trying to sleep at 130am. I have been doing anything and everything I can to control the pain. It most likely is flaring due to the weather. Temp dropped about 14 degrees last night. I so cold. I had to put another blanket on my bed because I put my fleece one in my bag I was planning to take to the hosp. I still am hoping to be a free bird this week. Not sure yet. Will find out when I talk to my psych tonight. Hence why I am scared. She very insistent Friday when we met. I know she is right but I am getting upset on how it will be and it hasn’t even happened yet. A friend said to “let it work” but I am very sure she has never been in the hospital recently, or at least where I live. If I had a therapist, maybe things would be better. The social worker got back to me about the therapist situation. Unfortunately the director is in Africa for a few weeks so she doesn’t know what is going on until he is back. Wonderful. Just reinforces the notion I am a hopeless case no one wants to take on. Other might be helped but after 28 years of getting help, it hasn’t worked out yet for me.
I’ve been slowly making some progress in my room. I was making room so some office stuff could go in. Then I talked to my youngest sister and she said I should just be clearing my room so they could rip up my rug and fix the wall in my room that is bubbling. News to me. I know they wanted to do this but where they were to put my bedroom stuff and office stuff remains a mystery to me. Unless some of it goes in my Mother’s room while they do the stuff and then vice versa. Yes, they want to rip up my mother’s rug, too. I wouldn’t mind having linoleum. I have always hated having a rug but it was what my mother wanted, not me.
I have been talking to someone on Twitter past couple of weeks, maybe more. My moods have been volitile, not in a violent sense, but in how morbid and suicidal they can become when my chronic pain flares up, which has been awful since the stress and moving/clearing stuff has started. So me and this person talking and I’ve been telling them how suicidal I was. Last night, I was letting go of my feelings, not only talking privately but also in my Twitter feed. The person got concerned so reported me. I was pissed off, worried cops would show up at my house later this morning. I am not sure how Twitter handles such a threat. I may lose access to my account for a bit or I would get a thing of saying someone reported me and I should call a hotline. Or both these should occur as well as a wellness check by local PD. We ended up talking through stuff. I venting to her the frustrations of things but not really saying why I stressed. We go into the dynamics of suicide prevention. She suggested moved to Houston. I told them I thought of going to Menninger for treatment but they just use treatment as usual, which I am not quite sure what that is. I just know it is a 6-8 week program which may help keep some of the demons at bay. One study they did was actually successful in preventing relapse. I forget the discipline they used, but I think it was some kind of CBT. I know David Jobes had tried CAMS with suicidal persons but there was a lack of communication between study personnel and staff. Also some staff had attitudes of “they are just going to do it anyway”, which is a myth. Anyway, as moving doesn’t seem to be an option, I am unable to access the programs the Twitter person mentioned. They were still concerned for my safety and I kept reassuring them I okay. I couldn’t say it with 100% certainty but I knew I wasn’t going to do it last night. I have a baseball game I will be going to tonight and then I am to see my psych Friday. The weekend is up in the air.
I’ve been thinking of ending things for so long now. I probably should be in the hospital but I can’t for fear of what my sisters and mother will do with my stuff. My middle sister has “given” me a month to go through my stuff in the living room. My youngest wants me to go through the stuff in my bedroom. Problem is I cannot be in two places at once. Nor can I do stuff on a daily basis. My pain was through the roof just to finishing clearing 1 box in my room and then setting up my new modem. Now I just need to vacuum the area and go through my bookcase so I can get some books off the floor. I got approximately a shelf and a half, maybe more as there are some books I just want in boxes to put the newer books. I also want to get rid of my subwoofer and desktop computer to make room on my desk. I was going to part with it but have decided not to. I can put some more books on it as well as store my office supplies once I go through the drawers.
There is no doubt my mood has tanked horribly and so fast. My appetite has come back but my normal level of depression has not. I am so stressed with my sister here. She has taken over nearly every room. The kitchen is full of her stuff that there is no counter space like there was. I have no idea why she wanted to have her kitchen stuff here. We don’t need two mixers and can openers as well as towels and utensils. It is too much. And the bathroom! Omg. Her son and her have so many bathroom stuff. I know my mother and i had a lot of bathroom stuff but they have double what we have. JFC.
I need to have my eyes checked. I am not sure if my pain or exhaustion causes my eyes to become unfocused at times or my glasses just need to be updated. Although with my current “extra” money going towards my cable bill this month, I am not sure when I can afford new glasses. I have a pair of frames that I want to have the lenses but not sure they will do that at the eye place I go to or if I have to go else where for the lenses. Last time I just tried to do this, it costed me the same price as getting a frame and lenses. But I think my I insurance will cover the cost so it won’t be as expensive. I want to get the kind of lenses that repel dust and smudges, a type of oil repellent as well as anti glare. This kind is expensive but if it saves me from having to clean my lenses two, three times every day, it will be worth it. The type of frame I have I think will be better for multifocal lenses as they are bigger than what I am wearing now. I hate having to wear glasses all the time because if I don’t my eyes become unfocused and everything becomes blurred. It really hurts my eyes because I am straining them to see.
So this is the update. I wrote this on my phone so if there are typos or words missing (my phone has gotten in the habit of erasing words after I type them) please let me know so I can fix it. Thanks
Pain is really bad because i had to leave my house earlier than I would have liked. Both feet are swollen, left worse than right. I can’t deal. Least i had some of my Pad Thai, and by some I mean 5 bites. I was full. Psych thinks I should see my pcp because of the weight loss. Basically losing 5 lbs a week. Told her I am ok. When it is 30 lbs I will be worried 😜 (just have 15 more to go) also thinks I should see him for my flares. I don’t have the energy to. Previous docs have shot me down when I’ve told them every appt flares are worse and i am met with no change in meds or what to do. I’m done getting burned so i am staying away from the fire. Besides with my living situation changing, flares are going to be way more frequent from stress.
I told my psych I’ve been really suicidal. I’ve been trying to keep the demons at bay but pain is a huge trigger and add depression and it just fuels the fire. I’ve never been this down before, well I have. Just not so quickly. Three weeks is a short amount of time. My psych asked me if I could come in next week and I asked if I had to and she said yes. Great. I really don’t want to see anyone. I just feel hopeless about everything and I am overwhelmed with shit I have to do. My sister is driving me crazy because she is stressed out. Stress just causes me more pain. I had my 5th flare in a week last night. I have been going on 4 hours sleep, which I got in 2 hour increments.
I was very suicidal last night, the worst it has been in quite some time. I know I could have called my psych but I really didn’t want to be told to go to the hospital. I am done with going to hospitals, least the unit I was on. There isn’t any help anymore. I don’t have a therapist. Unfortunately I am still not mobile enough to be going. I am making some progress in PT but it is very slow. It has been two months I’ve been going and have been doing the exercises but on days I hurt, I can’t do them or on days like today where I had to fucking leave my house because my pedophile cousin came over with my aunt. His voice still gives me flashbacks and shit. I was out for about six hours. I knew I going to be hurting. I didn’t think I would swell though.
My voice is continuing to change. I had no voice when I got up around 10. Trying to communicate to my mother was a fucking pain in the ass. I literally had to write shit down to tell her stuff. When my aunt came over while I was in the shower, I was a little better but still hoarse. Even while talking to my psych I sounded froggy.
My hair is getting thicker. And omg, my hair on my head is growing faster than ever. I shaved it this morning and now I have a 5 o’clock shadow. Will be a buzz tomorrow. Yet my mustache takes forever to grow back. I shave it off last week because I got a big painful zit. It is growing back but not at the same pace.
I am really exhausted between pain and the depression. My sleep has gotten a little better with the melatonin but if I am in a flare, forget it. I just fight sleep.
I saw my pcp’s social worker yesterday afternoon. She can’t see me like a therapist but will cover me until I do find a therapist. She is easy going but I haven’t shared my suicidal demons with her. I really can’t. Last thing I need is for it to be in my record and then I am fucked. Any provider can read her notes. I am very careful about letting on how suicidal I am. I will tell my psych but that is it.
I had my grocery delivery yesterday. Powerade hasn’t done shit about their lot that is bad. I got 5 more bottles of the crap. Going to have to call again. I wanted to today but was rushed out of my house. I still need to get some as they only delivered 7 of the 30 I ordered. They also didn’t deliver my chicken patties for the second month in a row! Now I need to go to the grocery store to get the stuff. I am going to try and just buy the powerade at a little at a time because I can’t carry a huge load. 5 bottles is my limit on my rolling cart thing. I won’t go tomorrow but maybe Monday. I am sort of dreading it as my sis moves in Sunday. God only knows what it will be like living with her again.