Category Archives: physical pain

Night out

I had another rough night sleeping and woke up via my med alarm, took meds, and went back to sleep. I got up around noon and made something to eat. I also made a cup of tea. I would be having espresso so I didn’t want to make coffee. I checked on my niece but she didn’t want anything to eat. I asked her twice. I tried.

The bus was extremely late and I just made it to my commuter rail station to get out of Boston. My friend was already there. We boarded the train and talked. My sister called just as we were pulling out. My mother was at the rehab. I had tried calling but no one answered.

I had a good time with my friends. Food was really good but I took my main course home as I was full from appetizers and soup. Always the case. Least I have lunch for tomorrow and dessert as no one could finish. It was such a nice time.

I am not having too much pain but I am not home yet. I am waiting for the bus home. I hope I don’t have too much pain. If I am up, I will read Norse Mythology. I started it the other night because I was bored. I have been switching between Poe and Norse. Least I am reading something. My friend gave me a book tonight. It is a short book so i might read it after one of them.

Bad flare ruined my day

I had another bad pain night. I had to leave the house early 1) to avoid the high heat and 2) to get my scripts. When my med alarm went off, I wanted to throw my phone. I honestly didn’t want to get up. I used the bathroom after taking my meds and brushed my teeth. I didn’t feel like shaving my head so went to the kitchen. I asked my mother if she needed anything mailed or bought while I was out. She said no.

I got dressed and then went back to the kitchen to grab my cup. Soon as I got to the stairs, my mother called me back asking me to mail something. Really?? By the time I got my bag squared and my sneakers on, I missed the fricken bus. It had pulled up when I was about 20 feet away. I wasn’t going to run. I knew another one was coming and it did.

I listened to my music. I got to Starbucks and ordered my espresso and a sandwich. I then wanted something sweet so got a cookie. Wrote in my journal for a bit and then went into town. The trains were running okay. I got my scripts and I checked it before leaving. I also got some water as I was really thirsty. The heat had climbed up.

I decided to get my tickets to see my friend south of Boston. So I went further into Boston. The machine I usually get my tickets wasn’t accepting cash so had to go to the desk. There wasn’t a line. I showed my disability pass and got the tickets. I had to show my pass in order to get the half fare.

Went back to the trains and was about to get on an elevator when an older woman stopped me. She wanted to know where the train to New York was. I told her not here and told her where to go. I don’t think she understood. The place is confusing with all the different turnstiles and entrances/exits. I got on the elevator and went on my way. By the time I got back to the Square, I didn’t have to wait long for the bus. I went to the pharmacy and filled my meds.

I got home and it was really hot in the house. I was hungry but too hot to eat anything right then. I went to my room to cool off. When I felt better, I went to the kitchen and finished off the Mexican food from yesterday. It was so good.

Went back to my room. I stayed on my bed trying to decide what to do. I was wicked tired and wanted a nap. I played with my phone and relaxed on my bed. Holy fucking hell. Next minute my ankle just explodes. I am crying with severe pain. I didn’t even move my foot/ankle!! That was the weird part!! I was half lying down so had to remain still before attempting to move. Pain wasn’t resolving so I risked moving to take a breakthrough med. I was paralyzed in pain. I really wanted to nap but had no idea how I was going to move my body to my right side to sleep. I moved my leg and turned my body without more pain. Then my mother called asking me if I wanted raviolis for dinner. Fucking A. Seriously?? My phone was blowing up but I didn’t check it. It was either the T or Twitter and I needed a nap. Thankfully I slept for about an hour and a half when my mother called again. I didn’t answer it. I couldn’t move. I was in pain all over. Just breathing hurt.

The pain continued and still hasn’t let up. It is around a 10. Tomorrow will have to be shit day as I haven’t shit in a few days. I’ll be taking laxatives and fiber pills until I go. Just hope it doesn’t cause colon blow. Hope I can sleep tonight. Sox won their 8th game in a row. It was a good distraction until I stood up to turn the radio off. Now I’m in hell.

Foot is driving me nutso!!

I’ve been trying to sleep since 2100. My mother wasn’t up in her room yet. I called to see if she was ok as with the AC on, I can’t hear things. She was okay. Her sugars had stabilized.

I got a blog that I read and wished I didn’t. It was about the lesbian protests or something like that in London during the Pride parade. What gets me is that anytime transgender is mentioned, it is almost always having to do with transwomen. I know I cannot be the only transman in the world. I know one came out in the Navy. I know there is another fellow in Oregon. We talk occasionally. We can’t be the only ones out there. So why isn’t it out there?? I just feel alone and invisible.

Then I started talking about suicide and someone tried guilt tripping me. I call it what it is and they say it is on me. Really? I will be fucking dead. How will I know what will happen to my family?? Am I supposed to be a ghost or something? Pissed me off.

My foot felt like it was in a pressure cooker. Then it felt like it was being crushed. Now my big toe is hurting big time. I call uncle, except I don’t think it works. I found my very last breakthrough med. Tomorrow I got to call and have them change the order and make sure the count is so I can take more than 1 a day. Otherwise the pharmacy won’t fill it and I’ll chop my fucking ankle off.

I will need a shower tomorrow. I hate showering. I need to shave my head to keep it bald. Also need to do a touch up of shaving because I missed some spots. My foot isn’t going to be happy. Then I got PT. Oh joy. Yes the curative physical therapy to increase mobility. This is interesting as I haven’t moved my damned ankle in 17 fucking years. It is a fucking joke. Oh and the damn pain clinic refuses to use CRPS. I have left ankle/foot pain. Can I bring a bat to my next appt and clobber them over the head?? Not to kill them, just to knock some sense in them or make them read my damn medical record that says why I need prescription pain medication. Fucking assholes.

I am done trying to say to them what I need. I have a better chance of winning the lottery. My foot is screaming. It is too late for gaba. I need to be up early enough to call the assholes and hope it doesn’t take a week to change the order. I can’t believe I was stupid and didn’t read it before I left. Ugh. Live and learn I guess.

Maybe 300 mg of gaba to calm some of it down. My PT is going to be unhappy with me. I’ve only done home exercises about 3 times. I couldn’t do it the 1st two days after our last session because my thigh hurt too much. Thursday I did it. Friday I was off to asshole’s office. Saturday I slept all day. Today I was in a fuck it mood.ok so what is that just one time? Oops I can’t count. We’ll just say 3 times. I probably am not going to see her anymore anyway. I really don’t want to. I think it is pointless to see her for my ankle/foot. I saw her before and I was in too much pain. And without breakthrough meds, forget it. I am tired of working through the pain.

I have no life. Just doc appts. I can’t remember a day I went to the Square just for fun, to have my espresso and write. Hasn’t happened in so long. Maybe February when I was trying to write the story in my head. It is gone now. Why bother writing it when I am going to die soon?

Part of me is trying to hang around. But with every painful flare, it gets less and less. Just do it runs through my head. Someday soon. I hope. Just do it…

When they say you aren’t alone but you really are…

Past few months I’ve planned my ending. Now the time has come and it all comes down to me as to whether I go through with it. Sure, I unexpectedly got my pain meds that I waited 9 months for. But I am still in pain. Meds aren’t touching flares or making them bearable.

My lower body hurts. Legs feel like cement some days and because my legs are usually bent on the bed, they don’t want to stretch when I stand. And it hurts so much trying to walk just to go downstairs to use the bathroom. Sometimes walking helps but I got to walk hunched over because being fully erect is too much pain. It just isn’t comfortable.

Foot is going berserk. So fucking tired of being on pain. Half my foot from third toe down my ankle joint outward is being ripped apart or cut open. It wants to be separated. I hate this feeling and nothing helps me. I am so fucking annoyed!! Flares have a mind of their own. This one started with my pinkie and got worse from there. Midnight has struck. I want to fucking sleep. Chloral hydrate?

I feel like I should email my dark thoughts to my psychiatrist to let her know what is going on. I don’t know if she will respond, if she will tell me to go to the hospital (not an option and I will fight it), or she will want to see me ASAP. My therapist is on vacation. He doesn’t have a clue.

See, here is the thing. I’ve been chronically suicidal for years. I spent the last few months of 1994 in the hospital. I had one attempt in the beginning of November and I didn’t get out until mid January. Basically, I had to cover up my feelings to get out. I was close to being committed to a state hospital at the age of 19. I didn’t care because my depression made me feel so worthless that nothing was going to keep me here. But eventually by stuffing the darkness, I was let out to go to college. I earned my degree, found a stable job that I didn’t go to school for. And then tried to back to earn my bachelor’s degree only to suffer a psychotic episode that I never recovered from until months later on the right meds.

All that time, my suicidality fluctuated. I had a serious depressive episode in 2005. Things sort of got better in 2006. Two years later was the psychotic episode and I had to quit college. 4 years later I had a condition known as complex regional pain syndrome and that threw me on the disability table. Now I feel my life is over and I have a plan on ending it soon. I planned it back in March. I really was going to end it June 30th. But things happen and I push it back. Then pushed it back again. Now I am on the cusp and I don’t know what to do.

People always say you aren’t alone, but the truth is, when you are an attempt survivor, you are. You know what to say to get in and out of hospitals and what to say to avoid them. But the thoughts remain. They still circle your brain. And when you are in severe pain, you want to end it now. But patience is needed. I can’t end it on my bed for a family member to find me. I have a location in mind. I am scared of myself and omg what if I do die. If I succeed. Failure has happened and prevented me from attempting again. Now I am wanting to try again. I have no idea if I will succeed.

No one wants to hear me out. Soon as I say I want to end my life, people panic. They get angry. They tell you stuff that makes you feel guilty. And then you think why bother. Just go on suffering for THEM. So they don’t feel the pain you go through every single day. I’ve been doing this for years. My previous therapist prevented so many dates that could have been attempts. Sometimes I was hospitalized. Sometimes I just had more contact with her and or my psychiatrist.

I wish I could say I gave a fuck. But I am tired of hurting so damn much in the midnight hours of hell. When the midnight demons come out in me. I am a dark person. I pretend to be happy, to get along with everyone. That is what is expected of me. It hurts me to see others hurt. I’ve always been an emotionally sensitive person.

I have no idea if what the hell I am writing makes sense. I had to get the thoughts out of my head. It is going to be a flip of the coin the day of my doom. Imagine that. A coin having the power to live or die. I am pathetic.

Feeling shitty and can’t sleep

It is almost 2330. I had a burger later and then got sleepy. I’ve been trying to sleep for an hour but my damn foot keeps acting up. Bottom of my foot has this pressure pain. I am getting zaps in the side of my foot near my toes. My metatarsals are being ripped apart.

Then my brain is working none stop. For some reason, the source (evil demon from Charmed) keeps popping in my head. I will be talking to someone and then their eyes change to black and they want to envelope me. I don’t get it. I don’t usually have nightmares, not since I was a kid.

Pain is driving up my suicidality. I have been thinking about canceling my therapy appt for Monday. But I want to see him. I got 3 appts this week. I was going to have 4 but I am going to cancel my eye appt. I’ll just reschedule it. I have been trying to do the exercises my PT gave me but they are different than the ones we did when I saw her. I can do the one for my right foot but my ankle is too angry to try to do. I have no idea if having my knees up and doing one exercise is going to upset my foot/ankle. It was alright with the AFO on but I don’t wear it around the house. The. There is one exercise that sounds more like part of my notes than an exercise. Have no idea what that is about.

I think I am going to go back to regular pillows and not use the body pillow I have. It is annoying me. I also need to change my sheets but I have accumulated a bunch of shit on my bed that will take a few days to get off. I started clearing off some stuff. I have a gazillion pharmacy papers from my meds. I tried using the privacy stamp on it but it didn’t work. So it is back to the “to be shredded” pile, which is overflowing at this point.

Last night I was in a suicidal mood and sent my psychiatrist an email about things running through my head. I was expecting a phone call today but nothing and no reply. I forgot she was on vacation last week so that was why she didn’t read the article and blog I sent her. I really wanted her to read the article. But because she didn’t, I couldn’t talk to her about what was on my mind. She said she will get to it. I hope so.

Foot is hurting really bad. I took the breakthrough med a little while ago. I think a placebo would have worked better. I also took some more fiber pills. I went a little bit today but that was all. I am expecting a colon blow. But it just feels stuck. I feel really uncomfortable. Usually one will work and I am taking 3 different things. I don’t think the senna works for me anymore. I hope i go tomorrow.