Tag: tethered cord

legs don’t want to work

by Midnight Demon, posted in blogging, chronic physical pain, CRPS, depression, mood disorders

Legs don’t want to work

My legs hurt today for some reason. I wish I could say that it is because I walked too much or something but I haven’t done anything the past few days. Other than leaving the house Monday for my MRI, I haven’t left the house. I just showered and I feel a little bit better. My groceries will be arriving soon. Just hope I can go up and down stairs.

My surgeon got back to me. I will see her next week for the discharge that I have. Sucks that I have to go through this another week. I was hoping that it was done but when I looked at the pad before taking it off for my shower there was some yellow stuff on it. I don’t care I am wearing boxers today. I will change into underwear before bed. I was getting chafed by the underwear elastic because I got a size too small. I need a break. I still have a stitch on my belly. I don’t know why it is still hanging on me. I tried to gently remove it but it is stuck on me pretty good. I will have the surgeon look at it if it is still there next week.

I don’t know what to do today. It is cloudy and muggy. I might go to the square this afternoon to mail my letter and get some cheese. I want to make a grilled cheese sandwich. I am really craving a bowl of Chex cereal. My groceries came and I don’t feel like doing anything now. I am so damn tired. I made quiche for lunch and am pretty full. I also had my second cup of coffee. I have been having at least two to three cups a day and I am still tired. It was muggy in the kitchen so I opened the door. It is cooler outside than it is in the house. I am sweating though. My mother called me to tell me to pick up the milk from my cousin. Going up and down stairs really exhausted me.

I am glad I checked when I am seeing my uro NP tomorrow. I thought it was at 2 and it is at 1. We have a lot to discuss. Since stopping the Flomax I am finding it easier to cath. I don’t get the urge as much but I keep track of the hours in between caths. It still hurts when I void so I cath when I can. I also increased the tolterodine and that has helped a lot. I don’t know what the NP will say to this but we will see. I think she will be ok with it.

Sunday Blog 06092020

by Midnight Demon, posted in blogging, Chronic pain, chronic physical pain, CRPS, depression, mood disorders

Sunday Blog 06092020

I am post op day 10. I had surgery to remove and repair a csf leak. I thought it would be safe to shower and I was careful not to have my back on the water for too long as I still have stitches. I felt so much better after I washed up. I shaved and took a chunk of skin off my cheek. I don’t know how it happened. The razor wasn’t my friend. I got three nicks. Sucks. I had to use the nick stick twice for the nick I took skin off. Damn thing wouldn’t stop bleeding.

After I showered, I made coffee and then I went to the pharmacy to pick up my meds. I came back home knackered. I am just so tired. Today was the first time I left the house since coming back home from the hospital. I did okay but it still is tiring to go up my street. Those five houses from the corner to my house is so damn tough to walk up that hill. I get winded. But then I get winded when I go up the stairs, too. I am not in too much pain today other than a headache that just started to get worse. I took some Tylenol when it first started. I might take some ibuprofen.

I got Tim McGraw’s new album and have been listening to it. It is pretty good. There isn’t any duets with his wife on this album. Sucks. I love their duets.

I weighed myself for the first time in a month. I lost three pounds. I haven’t been eating so great since coming home from the hospital. I haven’t had much of an appetite. Depression has been bad the past few weeks. I was OK a few days after surgery but then the anesthesia wore off and my mood plummeted. It has been low since. I have been resting because my back needs it. I am so tired of having nothing to do. I got a few appointments this week. I get my stitches out and see my therapist. I don’t know if seeing her the same day is going to be good but we’ll see. I also see my psychopharm this week. She finally agreed to put me on citalopram. I started that on Friday. It is going to take a few weeks to work. I think it will work better than sertraline as I don’t recall it giving me stomach problems in the past. I am hoping for the same this time around. I only stopped it way back when due to it being ineffective after years of taking it.

Day 8 Post Op

by Midnight Demon, posted in blogging, Chronic pain, chronic physical pain, CRPS, depression, mood disorders

Day 8 Post OP

I am still feeling sluggish and my back keeps cramping up on me. I am just going to take it easy today. I thought I would have my stitches out but the secretary called and said it was too soon. I will have it out next week. I don’t know if my surgeon will do it or the NP that works for the office. I will be glad to have them out so I can shower again. I was looking forward to it this afternoon but now I got to wait till next week. I got to wash my hair as it is grimy. I am glad it is short so it doesn’t feel dirty as fast. Also doesn’t smell. I will try and wash my hair later this afternoon. Back is hurting me too much right now after I brushed my teeth. I hate that I have a limited number of spoons a day to do things.

I want to get a new electric razor, a different style than the one I have. I found one that is wet/dry but it is $80. I can’t afford that right now so I will get it next month. I might have to budget for two months. Depends on how my finances go when I get paid next.

Most of the day I’ve been in a gender dysphoric mood. I kept thinking about if only one of my doctors or therapists had asked me about how I felt about being female if things would have changed. I dressed as a male all the time so I don’t understand why they didn’t ask. I remember when I got diagnosed with polycystic ovarian syndrome and had to go on the pill to treat it. I was terrified of what the hormone was going to do to me. I remember asking the psychiatrist and she laughed at me like it was the funniest thing ever. I hated taking such a female thing. I was highly suicidal at the time. Having this diagnosis only made me want to kill myself more. What is really getting me dysphoric today as well is that during surgery, my breast was positioned improperly so was bruised. Every movement I make with my arm, my boob hurts. Pain is driving me crazy because there is nothing I can do about it. I have always wondered if things would have been different had someone asked me about being female. I have always thought I am a male but the incongruency comes with my body being different than how I think and feel.

Back has been smarting all day. It has been spasming most of the day which has caused me severe pain in my lower back. I am taking a muscle relaxer every eight hours as they had prescribed me this while in the hospital. I am prescribed this at home as well so I didn’t have to go to the pharmacy for any of my meds. I told them I didn’t want them prescribing my pain medication because last time they screwed up the timing. I no longer get both medications at the same time, which sucks.

shitty day for therapy

by Midnight Demon, posted in blogging, Chronic pain, chronic physical pain, CRPS, depression, mood disorders

Shitty day for therapy

I had PT this morning. I also had a psychotherapy webinar but it was an hour and a half and that would cut into my PT time so I didn’t go to it. I had PT and my PT gave me a new scale called the Yucko meter. It ranges from 1-10 and you base it on how yucky you feel. I was a 4 by the end of session and had to lay down but I had therapy so I couldn’t. My therapist decided to reschedule the time because I felt shitty about 15 minutes into session. I liked that she cared enough to reschedule because I was feeling so crappy but at the same time I felt terrible that it had to happen. I rescheduled for Thurs. I have PT that day but the time for therapy is a few hours later so I can rest. I do have to have 400 steps every day in between sessions. I got more than half that right now.

I goofed with my pain meds. I was supposed to call in a refill for my pain meds last week but I totally forgot and now I don’t have meds. I put the request in last night so I should hear back sometime today. It is raining heavily right now and supposed to be storms all afternoon. I feel it in my ankle so I won’t get my prescription today if it gets called in. I will pick it up tomorrow. It is supposed to be hot and muggy all week. I hate it already. Least the rain is cooling things off a little bit right now. I have been running my AC all weekend. I will have to give it a break soon so it doesn’t frost up.

Tomorrow morning I see my neurologist via virtual visit. Then I have my psychopharm visit. I have to tell my psychopharm that I stopped taking the duloxetine because of stomach upset. The reflux was too much for me to handle. It was especially bad at night. I haven’t been eating much the past few days because I have no appetite. Yesterday I just had Ensure and a bowl of cereal. Today I ate a little better. I had a piece of chicken cutlet and some French toast. I got the hungry horrors today probably because I had gaba last night. My ankle pain was out of control last night. It took all that I had to control it. In the end I took Benadryl to sleep as it was after midnight.

I layed down after therapy was over. I didn’t sleep, I just laid there listening to classical music. I still feel shitty. My head feels so fuzzy. I am definitely a 7 on the yucko meter. I should be laying down and resting but I don’t feel like it. I am so aggravated that this is beyond my control and that I have to literally do nothing but rest in order to feel better. I wanted to get my haircut this week but that doesn’t seem likely. I have too many appointments this week. I wanted to go Wed but I don’t think I can because I have testing done in the morning. Urology finally called me and set up urodynamic testing. I have that Wed morning. I am back to being busy with doctor appointments. My psych wants a zoom meeting but she hasn’t responded yet with a time and date. I half want to message her and say can it be next week as I am so booked up. I am tired just looking at my schedule. I don’t have to leave the house for any of the appointments but still, the mental energy I have to put in them is tiring.

I was able to brush my teeth today. I used my electric toothbrush, which dropped toothpaste on my shirt. I had to change shirts. I still need to wash my face. I am mustering up the energy for that. My back has already started to act up on me. I don’t know if I can stand that long to wash. I got a huge headache still so I really don’t think it is going to happen. Maybe this evening.

I got to lay down again so I will stop here. I wish I didn’t feel so shitty.