Tag: chronic fatigue

Saturday blog 22012022

by Midnight Demon, posted in blogging, cauda equina syndrome, Chronic pain, chronic physical pain, CRPS, depression, mood disorders

I was having a hard time last night. 4 family members were upset with me because I didn’t bring the recycle down. I had asked my niece to do it and she never did so I got the blame. I got called a hoarder and it really hurt because i know I am not.

Today I slept until my bladder was gonna explode. My sister was in our bathroom so I had to go downstairs to use my other sister’s bathroom, which meant not cathing because she doesn’t have catheters in her bathroom and I didn’t grab any before leaving my room. I had something to eat and coffee. I feel like I could go back to sleep. I actually went to bed around 7 last night but I didn’t sleep. I felt guilty going to bed so early.

I had a difficult day as I got my haircut and then had to go to urgent care for my blood pressure issues. I was having side effects from the blood pressure pill and the doc wanted to put me on a Holter monitor. I said no. My new pcp is going to see me Thursday to start me on the beta blocker lebatalol. But I got to be seen in person. At 0830. Yuck. Next week is going to be a busy week so i hope by Thursday I have some insomnia so I can go to the appt. Otherwise i could sleep through the appt.

I am going to try and shower today. I want to shave my head but don’t think I can do it. I haven’t brushed my teeth in three days. I am so bad when it comes to this stuff. My new toothpaste has become community property. I am not happy about this. I am so tired I just want to go back to bed. I took my morning meds when I got up at 2pm. That is really late to take my twice a day pain med. I just had a really hard time sleeping during the night. I kept waking up to pee.

CRPS doesn’t care about hot temps

by Midnight Demon, posted in blogging, chronic physical pain, CRPS, depression

CRPS doesn’t care about hot temps

It has been muggy in the house the past few days as a warm front is passing through. Temps have been above 70 degrees and I have had the AC going. You would think that would be a cause of my foot being cold but I shut off the AC a few hours ago and then my foot got cold then exploded in pain. I have been miserable since. All I have had to eat today is two donuts and coffee. I don’t really feel like eating. I’ve slept most of the day. I am just so tired. I dealt with bad emotions last night. My anxiety was at its worst. Sometimes it is hard to know it is anxiety and I need an Ativan to calm down. Once the medication works, I can think clearer and not so dark sometimes.

I had therapy. I asked for an extra session as the dysphoria was really getting to me. It has gotten to the point where I don’t even want to shower because I don’t want to see myself naked. I wish there were no mirrors in the bathroom. I hate looking at myself. Sometimes I look at myself and think damn I look good and other times I hate myself so damn much I can’t stand looking at me. I have been meaning to trim my beard all week but that hasn’t happened. I just don’t have the energy for self-care. I was able to brush my teeth this morning before taking my meds. I find that if I brush after having my morning void is easier than trying to do it after I have had my coffee.

My day started late because after I took my morning meds I went back to sleep and didn’t get up till around 1300. I had coffee because it has become a routine to have coffee when I wake up. I tried to take a nap after coffee because I was feeling tired but I couldn’t sleep. I was too anxious I would sleep through my appointment.

I realized today that I had a really nuts therapist who really thought she had possession of me. In a way I am glad I am no longer in that relationship but I miss her sometimes. She provided me care when no one else did and was my biggest supporter in my efforts to be me. She went to the poster session with me at my first conference. My psych was to show up but never did. My psych is someone who I miss terribly. It is coming on two years now that she has been gone. It still hurts like the day we said goodbye. We still keep in touch and have had a few zoom calls since then. I never thought this psychiatrist would be on zoom but she did.

I have to plan my grocery delivery. I got to remove some stuff from my cart so I don’t go over my limit. I am going to the store on Monday with my cousin. I will get the stuff I am removing then. I need to have the heavy stuff delivered so it is easier to bring upstairs. The ice cream and steak I can get at the store.

3500th Blog post

by Midnight Demon, posted in blogging, chronic physical pain, CRPS, depression

3500 blog post

This is my 3500th blog post. I have been blogging since 2012, the year I got disabled. It was a tough year and I was depressed and suicidal most of the time. I had a lot of time on my hands and so I think writing about how I was feeling helped to get stuff out of my head. This blog has been a lifesaver for me. I don’t know what I would do without it.

Yesterday was a really challenging day. I had therapy in the morning. It was stressful. We talked about things that were hard to talk about. She is good at keeping me on point rather than going off on a tangent. I told her I would work on self-care and brushing my teeth/showering. I have been bad at doing these things. I don’t like brushing my teeth but I know it has to happen. I have been showering at least once a week but sometimes I can go 10 days without a shower. I need to work on clearing my bed for the week as I have nothing scheduled the rest of the week. It would be good to change my sheets.

After therapy, I had an hour before I had to leave to get my 2nd vaccine shot. I took public transportation to the hospital and back. I was seen really quickly at the vaccine clinic. I was in and out in twenty minutes. I then went to the square and got a caramel macchiato. I had a half hour before the bus was to come so I just sat on a bench and drank it. It was peaceful at the station. Not too many people were there. I was already feeling pretty tired. I brought a Powerade bottle with me to drink so I would stay hydrated. PT was torture. She had me do one of the machine and within a minute or two, my CRPS ankle flared up. I went as slow as I could possibly go. I didn’t care. I was exhausted and just wanted my bed. Afterwards she worked on my legs to get the knots out. She accidently put too much pressure on my nerve injured thigh and I screamed in pain. She avoided the area the rest of the session. My legs felt better but I got up too quick and got dizzy. She had me drink some water and rest. I then realized I had not eaten all day. I ordered Kung Pao chicken on the way home from PT. It was so good. I really love this dish.

Today I have been tired because I was up in the middle of the night again. I woke up at 1 to pee and had trouble getting back to sleep. It could be a side effect of the vaccine as well but I am going for my long day yesterday and being up in the middle of the night as a reason why I am so exhausted today.

I don’t know if I will listen to the entire game but I am going to listen to the first couple of innings. They are facing the Braves, which has been on a hot streak. We have been on a losing streak so will be fun to see what happens. I love baseball so much. I am keeping track of games lost/won again on Twitter. Right now their record is 29-19 and we are in first place.

I got a craving for donuts so I ordered them. Now I am happy because I haven’t had donuts in more than a year since the pandemic started. I am going to try and take my night meds around 7 but it might be earlier. I am just so damn tired but if I go to bed now, I most certainly will wake up before midnight and be up all night.

feeling exhausted

by Midnight Demon, posted in blogging, Chronic pain, chronic physical pain, CRPS, depression, mood disorders

Feeling exhausted

Since Wed’s appointment I have been feeling exhausted. It was a long test and not much came from it except that the doctor switched alpha blockers. I see the NP in a month to see how things are going and if I am voiding. She was very worried about me not going for 18 hours and had me promise to cath if it should happen again. My legs have been sore the past two days and it has been hard to walk. I need to take a shower and haven’t had the energy to. I also need to shave. I got my haircut on Wed and have not taken any selfies because my hair isn’t spiked like I want it. Yesterday I was supposed to get the vaccine but I was just hurting too much. I didn’t sleep because of shoulder pain and my legs were horrible. I just wanted to rest in my bed. Today I had groceries delivered and that took a lot out of me. I was able to take a nap. My appetite has been low the past few days. I have been eating but very little. I had my biscuits with my coffee today and just now had a bowl of cereal. I think that is all I am going to have today.

My neck has been awful all week. I canceled PT yesterday because I hurt too much with my legs. I hated doing it but walking hurt so much yesterday. I am in a lousy mood. Surgery didn’t help me like I thought it did and that is really hard to take. I had a hard time emptying my bladder. The stress of the test left me feeling really tired. I sent a message to my uro to find out if it is the same thing that is wrong, that the bladder neck muscles aren’t working right. I told her I was thinking about botox. I just wanted to research it a little before I said yes.

I had groceries delivered today and then when they were in my room, I just collapsed. I was able to nap for a couple of hours. I need to shave and shower today but I don’t think it is going to happen. My legs just feel really sore. Even though I just woke up from that nap, I feel another sleep is needed. So I probably will be taking a nap before I go to bed for sleep. I don’t care. I am just so bloody exhausted I can barely keep my eyes open. My mother just called to say dinner is ready. I am not hungry so will pass. I just want to lay down and sleep.