pain and sleep ramble

Got things done today

Last night I started the process of changing the bedding and sheets on my bed. See, half of my bed I use as my “office”. It has books, journals, my laptop and a couple of other items. So clearing it off was the real problem to changing the linen. Once I did that, I got the comforter off the bed and washed it. I knew it would take a couple cycles to dry in the dryer. I already had a set of clean sheets. Trouble was that today after I took my shower, I didn’t want to do anything. I had a rough night sleeping and thought a shower would wake me up. It had the opposite affect. But once the comforter was drying, I knew I had to change the sheets. I forced myself to do it and it went quicker than I thought it would. Usually I only have one clean set of sheets because I always put the clean sheets somewhere and forget where I put them. But the last time I washed my sheets I put them in my bureau where it wouldn’t get lost and hopefully the clean smell would stay on it. Score for me.

This is hard because it always hurts my back when I do change the sheets. It would be easy if I didn’t keep my bed as an “office” but it is easier to work from my bed than from a desk. I know sleep docs would have a fit if they knew. But I won’t see them as I know my problem with sleeping comes from my mood disorder than any other cause. Last night, I slept a few hours and was up at 0230. I wrote a nice blog, something about demons and that is all that I remember of it. I was in a lot of pain when I wrote it and also was a little drugged up with my pain meds. But I had to write. It was the only way I would get back to sleep. Around 7ish, I was finally ready to call it a night. I wish my sleep schedule would be normal but when I am in pain, all bets are off. And I was in so much pain last night it woke me up. Then I started getting cramps in my neck that just wouldn’t allow me to go back to sleep. It was a really bad night. Probably the worse since being home from the hospital. And I was so angry at my treaters. Angry that they had kept me alive. Angry that I was in so much pain and couldn’t sleep. Angry that I couldn’t vent with someone because it was 3 in the morning. I was so WTF at everything.

I am to have a lunch date with my aunt this week. But I don’t think it is going to happen because I have my appointment with my PCP this week. It’s an appointment I am not looking forward to. My blood pressure is still borderline high to high at times. It seems to be worse in the evening. I don’t know why. I will mention that to him as well. He isn’t going to be happy with me because I gained a few pounds while in the hospital. I have been trying to work it off but it’s been so difficult as all I want to do lately is sleep because my nighttime sleep schedule is so fucked up. Maybe I will go for a walk tonight. It can’t hurt. Well, I suppose it can. I just never know what will jack my pain up. Sometimes it is over activities. Sometimes its doing NOTHING but resting. I just don’t get it. I know that if I go up and down the stairs more than a few times, I will hurt. My ankle just doesn’t like the normal flexion it is supposed to have. But I really have no idea why I woke up in excruciating pain last night. I am so baffled. I know part of it is because I was sleeping on my left side (I usually sleep on my right). But I was in a deep sleep and for me to be woken up in severe pain, I just don’t get it. I wish I could talk to some doctor about it to help me figure it out. My PCP is useless when it comes to trying to figure out my pain. But then, he is not a pain specialist. And the pain specialists don’t have any answers for me either. So I am stuck with figuring it out on my own. I need to become a pain expert and study pain but the brain is so damn complicated. I am lucky if I remember the structures of the brain. I can’t even remember the amygdala from the gyrus. It has been too long since I looked at it and its pathways. My memory is not the same as it once was. I used to have photogenic memory. Now, I am lucky to remember things such as when I had lunch or breakfast.

any thoughts?