a painful rainy day

A painful rainy day

I had therapy this morning that I didn’t want to go to. I was in a lot of pain and really didn’t feel like talking. It was pouring rain when I got up today. Probably why I was hurting. My neck and leg, ankle, foot were hurting me so damn much. In therapy we talked about the letter I wrote my mother. She said it was clear and good. I told her how I would give it to her and she thought that was ok. I told her I was in pain and she thought that we should come up with a plan to deal with it. I tried getting away from the topic and she got me back on. I hate when she does that. I told her I would take some BT meds and watch the show Community for a bit. It is a good distraction even if the show is stupid.

I gave my mother the letter and she didn’t have much to say other than she will try to do better and she was sorry for making me feel the way I do. So now that that anxiety is over with, I am listening to Taylor Swift Red. I had my second cup of coffee in my Fuck Transphobia mug. I am tired. I feel so worn out. The rain has stopped but it is still cloudy and damp. I am still in pain. I don’t feel like doing much. I had wanted to clear off my bed as shit has collected itself at the foot of my bed again.

I’ve been alternating between voiding on my own and cathing today. If I don’t get a strong urge to pee when I get to the bathroom, I cath. I find that when I do cath I can go longer without peeing than when I void. I have not put the timer or med app on to keep track of peeing. I just have been monitoring how much I drink and then within an hour or so I will go to the bathroom. This is just a strain and another thing to keep in mind during the day and night.

I have a few ideas of what to write in my book. If I didn’t have pain brain fog I would try and write a few hundred words. I brought this up in therapy and not surprising, my therapist wasn’t interested in what I was writing.

It’s the All Star break so the Sox are off the next three days. I am already sad. I guess I will be watching Netflix more. I am craving fries and pastrami so I ordered it for supper. I need to go to the grocery store for some more Gatorade. I also want to pick up some rice as it is on sale. Would love to make zucchini and rice. Maybe I will take out some chicken for tomorrow and make my lemon chicken too.

Sunday Blog 11072021

Sunday Blog 11072021

I didn’t do much today. I was talking with my mother this morning. She was complaining about how she has hairs on her face and she needs to shave. I told her she should grow a beard like me and that is when she said she didn’t understand why I grew I beard. I couldn’t deal so went to my room without saying anything. I watched an episode of Community and tweeted the situation. I then wrote my mother a letter that I sent off to my therapist before giving it to her. I laid out the boundaries and said that if she wants a relationship with me, she needs to basically respect my pronouns and name change. It’s been three years that I have been out to her and I have been very patient. But I can’t go on with the negativity and hurt.

I took a nap in the afternoon. I still am feeling sleepy. I don’t know if I have an infection or not but I seem to be peeing like every 2-3 hours. I am drinking a lot. I have been drinking a lot of coffee lately. Trying to avoid the afternoon naps. Sometimes I am successful. Most times I am not. Usually two cups a day is my limit.

I filled my med boxes for the week and as I was closing the morning med box, it slipped and tipped over. I had pills all over my bed. Fuck. I hate when that happens. I sorted out the meds, again. I had an egg sandwich for lunch. I haven’t had dinner. I am not really hungry. I also don’t know what to eat. I am thinking a bowl of cereal. I don’t feel like cooking.

a muggy but cool Saturday

A muggy but cool Saturday

I had a shitty sleep as I kept on waking up to pee. I was also hot so I turned on the AC. I took my morning meds late and then had coffee. Only thing I have to do today is go to the pharmacy to pick up my meds. I am waiting for one of them to be done before I go.

Yesterday was a bad day for me. I was in pain and I was wicked tired. I pretty much just slept the whole day. I know it was because I did a lot on Thursday. I still can’t believe the CRPS is spreading. I just hope it doesn’t go up my leg. I still feel pretty down about it. I told my youngest sister and she texted me at 4 am with treatment options from the UK. I know a lot of people in the UK with CRPS and they haven’t been helped much by the treatment. It is only good if you get it within the first year of diagnosis.

I’ve been watching community and realized it is such a hetero show. It is funny though, but in a stupid way. I have no idea why I am continuing to watch it. But it breaks up the monotony of my day so I guess I will watch it until the end.

I am really tired today. I am having my second cup of coffee to try and wake up. Usually a second cup does ward of the tireds. I am still waiting for the pharmacy to let me know my prescription is ready. I might just go after I finish my coffee. It has been in process for a few hours now.

I am listening to Taylor Swift again. I can only go so long without hearing her. It has been ages since I last heard Mary Chapin Carpenter. My music changes. I am supposed to be working on the suicidal thoughts workbook but I can’t seem to open it. It is dealing with pain and I just can’t deal right now. It is hard to write about.

PT really helped my back. I feel like I can move without pain now. I haven’t had cramps when I stand. Today when I go out will be the test. I am not having PT this week due to scheduling issues. I am meeting with my surgeon this week to go over pre op stuff. I am also meeting with my psychiatrist after a few schedule changes. I am going to ask him about a medication change for depression. The citalopram just isn’t working for me like I hoped it would. I could go up on the dose as I am on a medium dose right now. But I don’t know if I want to do that. There isn’t anything new out there that I haven’t tried. The medication the neurologist wants me to try might cause nausea. I hate nausea.