Category: depression

bad news

by Midnight Demon, posted in blogging, CRPS, depression

Bad news

Today has been a rough day. It started at 6am when I woke up and couldn’t go back to sleep. I had to get up and shower anyway so I got up and had a cup of coffee. I then showered which flared up my back. That took forever to calm down. I didn’t want to take a Zanaflex because I knew it would make me sleepy. Once it calmed down enough so I could get dressed, I called an uber and went to my appointment. I was thankful I did this because I knew I wasn’t going to be able to walk to the bus stop and then walk to the building I needed to go to with my back being the way that it is.

There was traffic but I made it to my appointment in time. The doctor was running late. About a half hour after my appointment was to start, she called me in her office. I explained why I was there and thought the CRPS was spreading to my shin. She took a history and then examined me. She confirmed that it was CRPS and went over medication options which were not many. She said an SNRI might help the pain but I would need my psychiatrist to prescribe it as it is a psych med. I see him next week so will talk to him about it.

I feel devastated that the CRPS has spread. Right now it is flaring up because of all the walking I did today. In the afternoon I had PT and got dry needled in my back. I hope that this works in calming down the spasms and cramping I get when I try and do stuff.

Today has been a long day and it has been really difficult. I am angry that it took so long for me to get diagnosed with CRPS and now it is spreading because I couldn’t treat it within the time frame of when it started. I am now left to deal with pain every fucking day for the rest of my fucking life. Makes me so mad that I saw more than 20 doctors in and out of Boston and no one was willing to tell me I had CRPS because it wasn’t a typical presentation. My PCP at the time kept sending me to doctors to find out what was wrong because he just thought it was a mechanical issue with my ankle. All the while I was working my ass off, 50-60 hours a week between two jobs. Once I had to go into the AFO I had to stop one of the jobs and then four months later I was deemed disabled. And I still didn’t have a diagnosis of CRPS. That didn’t come until five years later. It took 8 fucking years to get a diagnosis. 8! A bone scan proved I had it. It was in my damn bones in my foot and ankle. Now it is in my shin which is the large bone in the lower leg called the tibia. I wonder if the new neuro would order a bone scan to confirm CRPS in the bone again.

I sent a message to my therapist and psych about the spread. I haven’t told my psychiatrist yet. I will when I see him next week. I hope by then the correct time I am supposed to see him is in the patient web thingy. Right now whoever does his schedule has me seeing twice and one of the times is booked when I am seeing another doctor.

Suicide’s fall out, future planning

by Midnight Demon, posted in blogging, chronic physical pain, depression, mood disorders, psychache, suicidality

Suicide’s fall out, future planning

It has almost been a week since I last planned the end of my life. I didn’t go through with attempting because I didn’t feel like it. I didn’t want to fail again so I held off. Now I am future planning with my hysterectomy surgery coming up and thinking about going to the weight clinic so I can lose weight to have top surgery. This is a big deal for me because it is living. Doing gender affirming things is making suicide less of an option.

My therapist was curious about my future planning. When she said that, I got scared. I told her about my realization last night about how suicide will be on the back burners should I opt to go to the weight clinic so I can have top surgery. It would be stupid to lose weight and kill myself. I never thought I would feel this way about life and wanting something from it because I have wanted to die for so long. I still want to die, especially after the day I have had today. I’ve been in pain and cathing hasn’t been easy today for some reason. I have cut down the hours to three to cath because the urge to go has been so strong when I cath it is like popping a water balloon and pee goes everywhere. I also have been in pain since 4am this morning. My aunts were over and my mother deadnamed me. This was right before therapy. I feel so bad about things. I hate my life.

I am scared about this future planning and being suicidal. I have lived a dual life where I was planning to end my life yet carrying on like I wasn’t. Now the opposite is happening and I know that there are stats that go against me. I am not saying that this forward thinking is going to prevent my suicidal thoughts from happening. I am slowly doing things that make me laugh and feel good. My therapist recommended I watch the show Community and although it is a stupid funny show, I enjoy watching it. It takes me out of my head. When I woke up at 4 this morning I watched an episode to try and settle things down so the pain meds would work and I could go back to sleep. My bladder had other plans though. It kept waking me up every couple of hours to be emptied. And this is without drinking any fluids.

Suicide has always been my go to option when I am feeling bad, really bad. Now that I am finding more options to things, I am needing it less. It feels really, really strange. Losing weight will be a huge challenge for me. I am not ready to face it. I have to get through my hysterectomy surgery first. Once I have recovered, I plan on going to the weight clinic to help me be the weight I want to be. Just hope that this new living plan that is forming doesn’t get derailed by suicidal thinking again. After all, suicide is always an option no matter how much living I do.

random stuff 05072021

by Midnight Demon, posted in depression

Clearing out stuff and watching shows

I spent the morning watching Community on Netflix. I woke up around 4 am and watching it till about 6am then went back to sleep for a couple of hours. I had my coffee around 10 when I woke up. I watched some more episodes and it has been a lazy kind of day today.

I took out a steak for dinner. I want to grill it so I am going to have my sister show me how to operate her grill. I made quiche for lunch. It was so good. I had my second cup of coffee. My sister made beets and squash so I had some of that. My mother is making escarole soup. It is a cool day today. Nice weather.

After lunch I got bored so went through one of my bins that I have in the hallway. I had a sheets at the bottom of the pile that I threw in the wash. They were all dusty and I don’t know how long they have been in there. I have found some comp notebooks and quite a few notepads and journals. I also found some coloring books. My sister saw one and claimed it. LOL one way to get rid of stuff.

My brother in law hasn’t been feeling good with his sinuses the past week. He still hasn’t put in my new AC because he doesn’t feel good. I feel bad for him but he won’t go to the doctor to get checked out. He is stubborn. My back is hurting from standing for the minutes I spent trying to clear out the hamper. I tried using a tennis ball to work out the knots and it hurt so bad. I think I am going to tell the PT I want dry needling done. I think it will help a whole lot. It really helped my shoulder pain.

I was grilling for the first time. I made a steak. It was good and tender. My brother in law said that he would put in the AC tomorrow after work. I am glad because it is going to get hot and muggy again later in the week.

I am seeing a new neurologist this week. I hope she is open and knows her stuff. She also does palliative care so I think she will be a good doctor for me. I have therapy tomorrow. I just realized that if I go to the weight clinic to lose the weight I need for top surgery, I would have to put suicide on the back burner and I am not ready to do that.

trauma comes when you least expect it

by Midnight Demon, posted in depression

Trauma comes up when you least expect it

WARNING talk about sexual abuse, childhood sexual abuse

I was minding my business today. I was in my room killing time before going out when intrusive memories of my mother abusing me came through my mind. It was a vivid memory with sensory memories too. I remember how she touched me and then put her finger inside of me. I had just finished taking a shower when I was 13 or 14 years old. She noticed that my labia was long and she wanted to exam me. There was nothing wrong with me but in my mother’s warped mind there was. She looked and felt my genitals to her satisfaction and yet still brought me to the doctor. I feel so disgusted about this. I have no idea why I didn’t say no. You don’t think your own mother would harm you. But she did. She had me lay on my bed on my back with my knees up. I shiver when I think about it. She had no right touching me. She had no right looking at me the way she did. She had no right doing what she did. It hurts so much. And this is just one of the times she hurt me.