nerve pain is a bitch

I should be sleeping but instead my left foot is driving me up the fucking wall with it’s constant buzzing. My toes are even vibrating though if you touch them they will feel normal. I am very tired and all I want to do is sleep but this annoying foot keeps me awake. If I could chop it off I would.. now I am getting bone pain. My toes are cringing though they have nothing to cringe at except my wrath.
It hasn’t been this way for a couple of weeks. I actually had some reprieve for almost three weeks when I got a cold and was drinking cold medicine like it was going out of style. But now the pain has returned and I do not like it. There is nothing I can do about it till I pass out which might take a while. Right now it’s 02:45 in the morning. I tell time by military as I think it’s cool and more precise.
I got my book that I lost and had to reorder today. I forgot how dry the material is and down. I read up to chapter 1 because I didn’t want to overload myself with suicidal thoughts right now. I should probably take some pain medicine but I want to see if it will go away on its own first. That is part of my problem. I wait until I am in unbearable pain before I take my meds. What usually would be a 6 or 7 for someone would be a 10+ for me. I have a high pain tolerance. It really needs to be a 10+ in order for me to take medication. Otherwise I think I am wasting it. I know that is probably not right to do, to wait till the pain gets really bad, but like I said, sometimes it is just a passing phase and other times it is with me for days. I hate this type of pain. The pain meds just usually knock me out so I can get some sleep and calm down some of the pain. It can take days before I am pain free agin. I just wish My middle toe would stop doing what its doing. It’s like wiggling saying “hi I’m here” like some little kid that wants to play. Well I don’t want to play, I want to sleep damn it!! It also feels like someone with a vise is clamping down on the toe, making sure it doesn’t go anywhere. I hate this type of nerve pain. And it’s the result of Cauda Equina Syndrome. My bundle of nerve got crushed and now I am left with nerve pain that decides to come and play every night. It can’t come out during the day like normal pain, NOOOOOO, why would it do that? Then we might have simpler lives. We might be able to work and play with our kids. This damage costs us everything and there is nothing anyone can do to make it better once it happens. It’s all a joke until we kill ourselves from the pain. Everyone one of us has at one point or other thought about killing ourselves because the pain gets too much or we just can’t see ourselves living this hell anymore. Doctors are useless. They just like to spin us on merry-go-rounds having us go from this doctor to that doctor and so on. It took 9 doctors and two physical therapist to figure out that I was not walking correctly because all my scans and tests came back normal, they thought I was a head case or something. I was in pain 24/7 and nothing was helping me sleep except a little pain medication. It took months between this appt and that appt to figure it all out. Then I got out of work because I couldn’t walk around the lab anymore. My department of 14 yrs says sorry your restrictions are too strict and out the door I went on forced medical leave. I couldn’t believe it. I wanted to kill myself right then and there if I had a chance. At 36 yrs old I was declared disabled after fighting this condition for eleven years. It was fun being out of work for a while. But then it got lonesome. I missed my coworkers. I missed going out. I became a hermit. I had nothing to do 24/7. I played my games and that was about all. But the pain didn’t stop, even with me resting it. If I went out and stood too long or walked too far, I paid the price. Like I am doing now. I must have walked too long though I hardly left my house at all except to go to my sister’s house around the corner. Now my foot is on fire and there is no extinguisher to put it out. Simple things I just can’t do anymore. I don’t shower because it hurts to stand too long. I don’t brush my teeth for the same reason. People take these things for granted. I can only take a 10 minute shower and in those ten minutes I wash and then if I remember I brush my teeth. I dry off quickly and hope I don’t fall while I put on my clothes because sometimes my balance is off.
I still can’t believe the difference between my left and right foot. It’s so weird. I have full feeling on my right but diminished feeling on my left. Sometimes but not often I have burning on my right foot. It’s the left over nerve damage from my initial injury 12 years ago. My anniversary is coming up in a few weeks. Maybe that is why I am thinking about it now. These memories don’t fade away like normal ones. My therapist calls it a trauma. I guess when you have emergency surgery, it is a trauma.

any thoughts?

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