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Ever had one of those days where you just feel blank? Like nothing is going on inside your head, no thoughts, no feelings of any sort, just feeling blank? Or have those days where nothing tastes right? Yea, I am having one of those days. I tried to make it a good day but I just feel so blah, like everything is an effort.

I got my hair cut today and I thought I would feel better but I didn’t. I waited around for the bus to the Square to get my coffee and decided to get Mexican food instead of a pastrami sandwhich and it just didn’t taste right. I had half of it then threw it away. I then got my coffee, a pumpkin spice latte, iced and a pumpkin scone. The scone was edible. It was okay but the latte was terrible. I don’t know why but it just didn’t float my boat today. I drank half of it and tossed it. I just was not in the mood to finish it.

My therapist was able to fit me in her schedule today. I guess I should talk to her before the weekend. I hope that I can explain this blank feeling to her. She probably will just say ah ha. And that will be that. I hate it when she says that. I’m going to try and talk about the grief of not working. I think I am having a bout of it today. A friend of mine I used to work with is on twitter and still works in the lab. I miss working with her. She always made me happy when I was grumbling at work. It made the day go by faster because we would have a good laugh to ease to the tension of the work day. The job was stressful. We were responsible for people’s lives as we were the ones to order lab tests the doctors had ordered. If we ordered the wrong test, which happened occasionally, it would suck because it could delay treatment of the patient. I miss it, but I kind of don’t miss the stress of it, especially when it came to pediatric tests. I always felt bad when a little one was sick. Sometimes the nurses drew too much blood or not enough, mostly not enough, and expect us to perform miracles on a tiny drop of blood. I remember we had a newborn who needed a glucose and the nurse sent us the sample like three times and each time was the same amount of blood. She didn’t understand that we needed at least a half a tube of blood to get the test done. The worst part was that the parents were lawyers and were threatening to sue or cause something because she had to repeatedly stick the baby. I felt bad but we need more than a drop of blood to do our job.

We then had funny diagnoses from the ER. My favorite were the ones that came in because they were drunk and fell. Well no shit. Whoever drinks to the point of alcohol poisoning is going to tip over and get hurt. It really sucked when it was a young person. You just knew they could become alcoholics if they weren’t already there. But it was interesting working in the lab. Got to see some really cool specimens and others that were just beyond gross. We once had a sample that was supposed to be urine but because the patient was doubly incontinent, we got both stool and urine. And it stunk really bad. When I called to ask the nurse about it, she just said do the best we can. Yea, hold our breath as we analyzed it and hope we don’t pass out!

I wish I could remember the fun times in the lab. We used to have a lot of fun until a certain supervisor got jealous and made us stop. She really was a bitch though she would always play the injured party when caught. I always tried to keep my “good” side with her because she was such a backstabber, but toward the end of my days, it was getting harder and harder to do. She realized how much of an impact I had when I was there and soon laid off her phoniness with me. Not like that made things better, but it was a step up. I remember there was a time we played a joke on a friend. She had injured her foot in a car accident and took her sneaker off. Well, a coworker and I decided to hide it on her. When she came looking for it hours later, we made up some story that we used the pneumatic tube station and tubed it to blood gas. (it was still in the front office where we were but didn’t let her know that). She hobbled to blood gas looking for her sneaker while me and the other coworker who was in there just laughed our asses off. We actually forgot where we put it, until we went searching for it ourselves. The expression on her face was priceless. Those were the good days. We got the work done and still had a few laughs. Then the lab changed and so did the laughter. It was just work, work, work. Sure we would still have our breaks and such, but damn, it was hard keeping up with the patient’s samples coming in and not enough people to log them in. There were nights we had to leave the outpatient samples for night shift. We could only do so much in eight hours. And computer downtimes, scheduled or unscheduled were always a bitch. You always got that one not so understanding clinician who wanted his stuff above all the others just so his shift could come to a close. We would go out of the way to find it and then find out that there was another doctor covering him. So much for it being a priority!! I would get so pissed off.

There were days I would just get to work and be in a bad mood. Saturdays were the worst. If day shift left us outpatient bags, I was even in a worst mood. Plus they always seemed to wait for me to come in and hand off the problems that should have been dealt with hours ago. I had a rule of not talking to be until after six o’clock, because by then, things were caught up and day shift was really gone and all the problems have been dealt with. But never failed that a half hour or even fifteen minutes before my shift ended more problems would come in and I would have to stay on till exactly midnight or after to make sure they were dealt with and handled properly. I always made sure things were clearly documented so the supervisor would know what was going on. And in my line of work, you had to be clear otherwise mistakes would make the mistake worse.

I liked my job. It was routine. I was the one that was there the longest and knew the system better than anyone (other than the computer staff). I also helped where I was needed even if it wasn’t my “job” for the day. But things got more difficult the more my mobility slowed me down. When we had the big analyzer machine installed, I found I couldn’t run it and aliquot specimens in the same shift. I would be dead the next day and often it lead to me calling out on my next scheduled shift, which I rarely ever had to do. Once I stopped having a car, getting to work on Sunday was getting to be impossible. I was late and it took me over two hours to get to work, by public transportation. I just said the hell with it and worked during the week and Saturdays. Sometimes, I would work only half shifts and even those were painful. I sometimes had to leave my shift in a wheelchair or half way through, go down to the emergency room because the pain got to be so bad I could hardly stand. My leg would swell and hurt really bad. I never found out why it swelled and hurt so much. I just found that I needed a day in between working until finally I had to have restrictions in my day in order to work. Then lost my job because it couldn’t accommodate me. That was really painful, emotionally, because I worked my ass off even through the worst of my pain. I had no idea that it was so restrictive. But it was the only thing that I could think of so I wouldn’t have to take any more time off work and get off FMLA (family medical leave act). So I went from working two jobs to trying to work forty to none in four months. And it sucked! I really didn’t know what I was going to do. I tried to get another position in the hospital but little did I know the hospital had a hiring freeze on. I needed a job that I could work sedentary but couldn’t find one. Then when I lost access to my work email and such, I stopped looking and filed for disability. I already had two psych hospitalizations and was working on a third when I was out of work. I had to file for long term disability, which was a mountain of paperwork. I think it took more paper than social security! I got both within a month of each other. I was glad because finally I could pay off some bills that had piled up while I wasn’t collecting anything. But it still is tough living on a monthly check. I still have not learned the art of budget. I seem to pay the most important bills, my cell phone, Starbucks, health insurance, and cable bill. What I have left has to last me until the next month, which sometimes it doesn’t. I could have a dollar to my name until the next check. And I always make sure that I have transportation money or I am not going anywhere for the month. And that will suck!! I just got to figure out how to spread out at least two hundred dollars of spending money and make it last a month. And somewhere in there has to be food money. I can’t live on coffee alone.

being in pain is exhausting

A fellow blogger recently wrote about things being all or nothing. That phrase has been stuck in my head since I read it because it is so true. We all have this idea that we should do things and complete the tasks we all set out to do in our minds. No one is telling us to do these things (unless you have commanding voices). But when you have physical illness, we forget our limitations to follow through what our mind wants and thinks we should do. Yesterday I went and got my breakfast at McDonalds and then had my coffee at Starbucks. It was 9 in the morning so I had plenty of time to kill before my therapy appointment at 12:30. I came home around 11 and just chilled until my appointment time. I was also waiting for a friend to email for our blog exchange. After therapy and after my friend exchanged our blogs, I had to pick up my niece. I walked the 8-9 blocks to the school and back. I let her watch TV and have a couple of snacks before I ordered pizza for dinner. Then had her do her homework and watched her until her father came home a few hours later. By 7 pm I was exhausted. I tried to watch the game but it proved to be too much for me. So I made my last trek up the stairs to my room for the night and checked a my email for the night when WHAM my foot started spazzing and exploded in pain. It got really bad because when I held my foot to sort of message it out, I could feel the muscles twitch. I had a horrible night of pain. And it drove me crazy. At one point, I had an out of body experience where I didn’t think my foot was mine. The pain got worse instead of better, even though I had taken pain medication. I seriously got suicidal and wanted to OD on everything I had but I couldn’t get up off my bed to do it. I eventually went to sleep.

This morning when I woke up I still was in pain. I have been battling the pain all day. I knew I had only one thing I could do today. I could either go to the grocery store to get some stuff or I could go and get my one cup of coffee. I decided to go to the grocery store and now I am totally done for the day. My toes look like Vienna sausages and my ankle/foot is throbbing like no tomorrow. I took my pain meds so I am going to pass out now. My goal of writing four pages is not going to be met. I hope when I wake up I can do something more but for now I need sleep. Being in pain is exhausting.

good day turned bad

I was pretty excited this morning and energetic for the first time in I don’t know how long. But pain kept me from doing all that I set out to do today. I really got depressed and cried for almost an hour because I had plans to go to a movie with a friend and had to cancel on him. This is the second week that I had to do this to him because my pain levels were high. I wanted to make cupcakes today and that was a flop because after I went to the store to get the ingredients and supplies, I was just in too much pain to stand, let alone do much else. My sister had a BBQ today so I tried to attend that and just sit and rest but sitting caused me more pain. And it was hot and muggy today. Even though my sister had the AC on my fricken stupid aunt got “cold” and made me turn it off. I got so pissed off as I can’t stand the heat. This condition (CES) has left me so heat intolerant it literally boils my blood and my temper. I had to go back to the confines of my room where I have been for the past several hours. I had to stand for a few minutes to take my night time meds and now I am in wicked bad pain again. I feel like such a loser because things were going so well and now I am hurting and am a sobbing mess. I have been looking forward to doing something, anything, since I got the recipe for these cupcakes and now they will have to wait. I hope they come out good when I finally make them. I just don’t know when that day will come. I am so tired of hurting. All I did today was shower and go to the store. Day was done after that. And I am so pissed off. I can’t stand myself right now. I have feelings of overwhelming sadness that I just can’t shake. Surprisingly, I am not suicidal, though I just want to stab my ankle repeatedly.

writing, pain, and music

Woke up to my phone sounding emergency broadcast. Scared the hell out of me and then I heard a big BOOM of thunder. Wicked bad rain and flash floods in my area. Just wonderful on a cloudy Sunday.

I also woke up to my back hurting me and of course my ankle. I just took a shower so it really doesn’t like me right now. But I had to take a shower as it has been days since my last one. I was feeling pretty gross.

Today I am supposed to meet up with a friend for the movies. I hope my ankle pain has stopped by then. I also am planning on going to the grocery store to get the ingredients needed to make my cupcakes. I really want to do something today rather than just lay in bed resting my ankle. I know that going to the store and then making the cupcakes are going to hurt me big time. I am not looking forward to it. What is worse is that my sister is having a BBQ today. I don’t see how as the weather has on and off downpours for the next several hours. She wants me to bring the cupcakes. I don’t know how I am going to do all this. And just the thought of it is stressing me out. Stress and already being in pain is not a good thing. I just put a brace on my ankle. Pain is getting unreal but I don’t want to take more pain meds because I have things to do today. I just want to go to the grocery store and get the supplies I need for these damn cupcakes. But I just heard thunder rolling again so maybe today is not going to be the day to go.

I also have to write four pages for my book. I thought today I would talk about the struggle of being transgender. I don’t know if I can stretch it to four pages but I can try. Or I might talk about something else. What, I have no friggen idea.

I am mad crazy listening to Luke Bryan’s new CD Crash my party. There is not a song I don’t like. I have listened to one song, Play it again, over and over and over. Guess you can say I have been playing it again and again. Or as Luke says Agin! He has become one of my favorite male artists. I don’t know why I like him so much. He just has a good voice and his songs get me into a good mood. It’s like listening to Taylor Swift when I am having a bad day. Crash my Party is by far the song that gets me all mushy inside when I hear it.

I did too much. I went to the grocery store and then picked up my prescription. No movie tonight. No cupcakes made. Just listening to the ball game now and trying to relax. I am in so much pain. I feel really bad for my friend that wants to see me. I can’t even bring myself to call him back. I had a feeling I wasn’t going to be able to do all the things I wanted to do today. I know I went up and down the stairs too much. Not only does walking around the grocery store did me in but going to and from my sister’s apartment did also. I just can’t win and it gets me really depressed. It really sucks to not have use of your feet.

I know I should call my friend and let him know that I am useless today. I know either way he will be disappointed. I hate disappointing people. But I can’t do too much on my feet anymore today. I need to rest my ankle otherwise I am going to be in more pain. And I can’t be going down the stairs anymore. Even though I really want to go downstairs and watch a DVR program. I am really upset with myself. I hate that I can’t do more than just take my shower, go to the grocery store and then I have to rest because I am in pain. It’s not that I am exhausted and need to rest. I still have energy but I just can’t STAND. I can’t WALK. It is just that I am in PAIN. It is a 9 and I really don’t want it to get above a 9 because I will really be in agony, more so than I am in now. I have a high pain tolerance. Usually anything above a 7 will get me to slow down. But I feel energetic so I am pushing myself. But now I have pushed myself too much. I hate that I have energy and can’t do anything with it. I feel so bad. I even took a pain med before I took a shower hoping to keep my pain in check but it didn’t do anything. I took another pill after I came home from the grocery store and still my pain has not calmed down, though it has calmed my nerves down. I really, really hate this. I honestly have no idea how I was able to work two jobs with this pain. I know I ignore most of it but I guess when you don’t have anything to distract you, you think about it more. I am not saying the pain is in my head. I know it is not. If I touch my ankle, I will scream. Right now it is feeling a little better now that I have it elevated and not putting any type of pressure on it.

I am going to stop here because I still need to write up some pages for my book. Until tomorrow…