depression and music

I finally finished my book. Right now it just seems like a hodgepodge of stuff but I don’t care. I will print it out one day next week so I can edit it with a red pen and make changes. I also signed up for Amazon’s self-publish and I think I am going to go with that. It was quick and easy to sign up for. I just don’t know how exactly it is going to work. I know that I will not lose any of my copyrights and will still own my work so I threw in my clinical paper on suicide as the final closing. It know it might be stupid to end the book that way but I really want to get this paper out there because I want people to read it. It has not done so well on my blog sight. I might also put in my most popular blog just as a chapter about CES. Thing is I don’t know how I am going to sell it. But I’ll worry about that when I get closer to publishing it, which I hope will be in a month or so. I have not told my writing partner this. I want to do it on my own first.

Now that I am done, I am sort of depressed. I was depressed most of the day but I think that is because of my stupid menses. Today was a heavy day and it is messing with me so bad. I wish I could just bleed to death and have it be over with it. I did take a shower today, I had to take a shower which meant I couldn’t do anything else today. My foot was too sore already from the last few days. Monday the swelling was so bad that when I took off my sock, I had deep imprints. It took forever for those marks to go away. I also took a lot of pain medication by the end of the night.

I know I should be happy but it’s like when you are reading a good book and you come to the end of it and you are sad…that is what I feel like. I guess it’s a sort of good depression rather than a bad one, if that makes sense. Only thing I am worried about is the editing. I tried it when I was at 50 pgs and failed. I just couldn’t get into it and I know I was skipping words and such, then realized I repeated some stuff and just gave up on the task because it just seemed impossible. I might have a friend that I know is good read it but I don’t know if she would be able to do the 150 pgs. I might have to buy her dinner or something nice as a kind of bribe.

I don’t know why but I asked for another session with my therapist today. This is the third week since she has been back from vacation that I have seen her three times a week. I just feel like I need the extra support right now for some reason. She got my letters about grief and I could tell she wants me to talk about it but she is not pushing me to talk about it. Today we were talking about my appearance as I just sent her a pic to remind her of what I look like. I told her I look disgusting and of course she disagreed. What else is she supposed to say? I know that I have issues with my appearance. I hate the way I look. People think I am attractive but if they only knew how bad I felt inside they wouldn’t think that I am attractive.

Never fails, I get half way through Taylor Swift’s sad beautiful tragic song when I want to change it. By then it’s almost over anyways. It’s probably the only song of hers that I dislike. Oh and speaking of music, I hear some new songs by Pearl Jam today that I really liked so I pre-ordered the new album. I saw a video of Eddie Vedder and man did he change in the last twenty years. He doesn’t look old but you can tell that time been good to him. He is sporting a goatie beard, which I think looks stupid on him and has cut his once beautiful hair. He still can sing though! I can’t wait for the CD to come out. I can’t remember the last time I bought a Pearl Jam cd. I think Vitology was the last album I got. Then it got too metally for my taste.

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Ever had one of those days where you just feel blank? Like nothing is going on inside your head, no thoughts, no feelings of any sort, just feeling blank? Or have those days where nothing tastes right? Yea, I am having one of those days. I tried to make it a good day but I just feel so blah, like everything is an effort.

I got my hair cut today and I thought I would feel better but I didn’t. I waited around for the bus to the Square to get my coffee and decided to get Mexican food instead of a pastrami sandwhich and it just didn’t taste right. I had half of it then threw it away. I then got my coffee, a pumpkin spice latte, iced and a pumpkin scone. The scone was edible. It was okay but the latte was terrible. I don’t know why but it just didn’t float my boat today. I drank half of it and tossed it. I just was not in the mood to finish it.

My therapist was able to fit me in her schedule today. I guess I should talk to her before the weekend. I hope that I can explain this blank feeling to her. She probably will just say ah ha. And that will be that. I hate it when she says that. I’m going to try and talk about the grief of not working. I think I am having a bout of it today. A friend of mine I used to work with is on twitter and still works in the lab. I miss working with her. She always made me happy when I was grumbling at work. It made the day go by faster because we would have a good laugh to ease to the tension of the work day. The job was stressful. We were responsible for people’s lives as we were the ones to order lab tests the doctors had ordered. If we ordered the wrong test, which happened occasionally, it would suck because it could delay treatment of the patient. I miss it, but I kind of don’t miss the stress of it, especially when it came to pediatric tests. I always felt bad when a little one was sick. Sometimes the nurses drew too much blood or not enough, mostly not enough, and expect us to perform miracles on a tiny drop of blood. I remember we had a newborn who needed a glucose and the nurse sent us the sample like three times and each time was the same amount of blood. She didn’t understand that we needed at least a half a tube of blood to get the test done. The worst part was that the parents were lawyers and were threatening to sue or cause something because she had to repeatedly stick the baby. I felt bad but we need more than a drop of blood to do our job.

We then had funny diagnoses from the ER. My favorite were the ones that came in because they were drunk and fell. Well no shit. Whoever drinks to the point of alcohol poisoning is going to tip over and get hurt. It really sucked when it was a young person. You just knew they could become alcoholics if they weren’t already there. But it was interesting working in the lab. Got to see some really cool specimens and others that were just beyond gross. We once had a sample that was supposed to be urine but because the patient was doubly incontinent, we got both stool and urine. And it stunk really bad. When I called to ask the nurse about it, she just said do the best we can. Yea, hold our breath as we analyzed it and hope we don’t pass out!

I wish I could remember the fun times in the lab. We used to have a lot of fun until a certain supervisor got jealous and made us stop. She really was a bitch though she would always play the injured party when caught. I always tried to keep my “good” side with her because she was such a backstabber, but toward the end of my days, it was getting harder and harder to do. She realized how much of an impact I had when I was there and soon laid off her phoniness with me. Not like that made things better, but it was a step up. I remember there was a time we played a joke on a friend. She had injured her foot in a car accident and took her sneaker off. Well, a coworker and I decided to hide it on her. When she came looking for it hours later, we made up some story that we used the pneumatic tube station and tubed it to blood gas. (it was still in the front office where we were but didn’t let her know that). She hobbled to blood gas looking for her sneaker while me and the other coworker who was in there just laughed our asses off. We actually forgot where we put it, until we went searching for it ourselves. The expression on her face was priceless. Those were the good days. We got the work done and still had a few laughs. Then the lab changed and so did the laughter. It was just work, work, work. Sure we would still have our breaks and such, but damn, it was hard keeping up with the patient’s samples coming in and not enough people to log them in. There were nights we had to leave the outpatient samples for night shift. We could only do so much in eight hours. And computer downtimes, scheduled or unscheduled were always a bitch. You always got that one not so understanding clinician who wanted his stuff above all the others just so his shift could come to a close. We would go out of the way to find it and then find out that there was another doctor covering him. So much for it being a priority!! I would get so pissed off.

There were days I would just get to work and be in a bad mood. Saturdays were the worst. If day shift left us outpatient bags, I was even in a worst mood. Plus they always seemed to wait for me to come in and hand off the problems that should have been dealt with hours ago. I had a rule of not talking to be until after six o’clock, because by then, things were caught up and day shift was really gone and all the problems have been dealt with. But never failed that a half hour or even fifteen minutes before my shift ended more problems would come in and I would have to stay on till exactly midnight or after to make sure they were dealt with and handled properly. I always made sure things were clearly documented so the supervisor would know what was going on. And in my line of work, you had to be clear otherwise mistakes would make the mistake worse.

I liked my job. It was routine. I was the one that was there the longest and knew the system better than anyone (other than the computer staff). I also helped where I was needed even if it wasn’t my “job” for the day. But things got more difficult the more my mobility slowed me down. When we had the big analyzer machine installed, I found I couldn’t run it and aliquot specimens in the same shift. I would be dead the next day and often it lead to me calling out on my next scheduled shift, which I rarely ever had to do. Once I stopped having a car, getting to work on Sunday was getting to be impossible. I was late and it took me over two hours to get to work, by public transportation. I just said the hell with it and worked during the week and Saturdays. Sometimes, I would work only half shifts and even those were painful. I sometimes had to leave my shift in a wheelchair or half way through, go down to the emergency room because the pain got to be so bad I could hardly stand. My leg would swell and hurt really bad. I never found out why it swelled and hurt so much. I just found that I needed a day in between working until finally I had to have restrictions in my day in order to work. Then lost my job because it couldn’t accommodate me. That was really painful, emotionally, because I worked my ass off even through the worst of my pain. I had no idea that it was so restrictive. But it was the only thing that I could think of so I wouldn’t have to take any more time off work and get off FMLA (family medical leave act). So I went from working two jobs to trying to work forty to none in four months. And it sucked! I really didn’t know what I was going to do. I tried to get another position in the hospital but little did I know the hospital had a hiring freeze on. I needed a job that I could work sedentary but couldn’t find one. Then when I lost access to my work email and such, I stopped looking and filed for disability. I already had two psych hospitalizations and was working on a third when I was out of work. I had to file for long term disability, which was a mountain of paperwork. I think it took more paper than social security! I got both within a month of each other. I was glad because finally I could pay off some bills that had piled up while I wasn’t collecting anything. But it still is tough living on a monthly check. I still have not learned the art of budget. I seem to pay the most important bills, my cell phone, Starbucks, health insurance, and cable bill. What I have left has to last me until the next month, which sometimes it doesn’t. I could have a dollar to my name until the next check. And I always make sure that I have transportation money or I am not going anywhere for the month. And that will suck!! I just got to figure out how to spread out at least two hundred dollars of spending money and make it last a month. And somewhere in there has to be food money. I can’t live on coffee alone.

being in pain is exhausting

A fellow blogger recently wrote about things being all or nothing. That phrase has been stuck in my head since I read it because it is so true. We all have this idea that we should do things and complete the tasks we all set out to do in our minds. No one is telling us to do these things (unless you have commanding voices). But when you have physical illness, we forget our limitations to follow through what our mind wants and thinks we should do. Yesterday I went and got my breakfast at McDonalds and then had my coffee at Starbucks. It was 9 in the morning so I had plenty of time to kill before my therapy appointment at 12:30. I came home around 11 and just chilled until my appointment time. I was also waiting for a friend to email for our blog exchange. After therapy and after my friend exchanged our blogs, I had to pick up my niece. I walked the 8-9 blocks to the school and back. I let her watch TV and have a couple of snacks before I ordered pizza for dinner. Then had her do her homework and watched her until her father came home a few hours later. By 7 pm I was exhausted. I tried to watch the game but it proved to be too much for me. So I made my last trek up the stairs to my room for the night and checked a my email for the night when WHAM my foot started spazzing and exploded in pain. It got really bad because when I held my foot to sort of message it out, I could feel the muscles twitch. I had a horrible night of pain. And it drove me crazy. At one point, I had an out of body experience where I didn’t think my foot was mine. The pain got worse instead of better, even though I had taken pain medication. I seriously got suicidal and wanted to OD on everything I had but I couldn’t get up off my bed to do it. I eventually went to sleep.

This morning when I woke up I still was in pain. I have been battling the pain all day. I knew I had only one thing I could do today. I could either go to the grocery store to get some stuff or I could go and get my one cup of coffee. I decided to go to the grocery store and now I am totally done for the day. My toes look like Vienna sausages and my ankle/foot is throbbing like no tomorrow. I took my pain meds so I am going to pass out now. My goal of writing four pages is not going to be met. I hope when I wake up I can do something more but for now I need sleep. Being in pain is exhausting.

my day

I started the day off with a blog about my writing buddy but I wanted to write more about my day.

It has been a crazy day for me. My mood has been all over place. I have been up since early this morning and then had to watch my niece. It took a lot of energy to do this and my ankle is somewhat paying the price for it now.

I really wanted to take a nap but I don’t have any time as the Sox game is about to start.

Last night as I was taking some medication for my foot, I spilled some of my Gatorade on my sheets. It sent me into a tizzy of self-harm urges. I don’t know why that is. I know I was mad at myself for being clumsy. Maybe anger toward myself is the trigger for my self-harm.

I didn’t write anything for my book today. I am too tired, both physically and mentally. The hypergraphia that had yesterday seems to have dissipated.

I emailed the blog I am referenced in to a few friends and my psychiatrist. My psychiatrist is awesome and she wrote back asking me if I wanted to participate in her med student class again. It is basically an interview model where one doctor will ask me questions while the students observe. There are usually 8-10 students in the group. Usually that will bother me but they stay quiet and don’t ask me any type of questions. Now I just have to come up with some ailment to present to the class. I have so many to choose from. I think I will go with CRPS as the last time it wasn’t too clear a diagnosis. I still have trouble with understanding it but it is important for students to realize there are some neurological ailments that are not always textbook. Last year when I had the interview I mostly talked about my transgender issues and surprisingly, I was ok though I was a little shaken up afterwards. I couldn’t believe I told a roomful of strangers my inner most secret. It was tough to process afterwards but it is an important issue to bring up to med students.

I enjoy talking with the doctor. It usually is about forty-five minutes of talking and sometimes there are questions, sometimes there are not. I am usually guided along with my “ailment” of what brings me to the clinic. It usually is difficult in the beginning but then eases on out.

I am glad the mixed state I was feeling earlier today is gone. Now I just want to go to bed but I have to see if Buccholz is going to get his ass kicked or not and keep his 9-0 record, hopefully make it 10-0.