chronic pain sucks

Been in a sour mood all day. I just can’t seem to get motivated to do anything. I wanted to have coffee but there was no more half and half in the house. I woke up in pain so I have been trying to sleep most of the day. I finally fell asleep for about an hour when my niece came home yelling at her sister for something. I was so mad. I did go out to get something to eat and a jelly donut. I was craving one. I know I shouldn’t as I have been eating crap the last few days but I so wanted a donut.

Today was my cousin’s baby shower. I didn’t go. I hate going to those things. I consider it a female thing so I just don’t go.

I really am tired today. I have been trying for the past hour to come up with some writing but nothing is coming to me. Oh and I tweeted Andrew Solomon today and surprisingly, he tweeted back! I was excited!! My twitter handle is noondaydemon75, which is named after his book. I am re-reading his book but can’t really get into reading. My brain is just toast. I had a hard time sleeping last night so decided to read some of the Lincoln book until 3 am. I didn’t sleep more than 6 hours before I woke up in pain again. I am in pain now. I just don’t care anymore. Right now, it just feels like a bad toothache.

I don’t know what to make of my pain. I was reading my old blog site and seems like this started the end of January of 2011. So it has been over two years that I have had this pain, and I feel it almost every single day. Nice (not). As I was reading my blogs, I noticed just how bad the despair was. I also read the fear I was having that this was a back issue and how much I was going to kill myself because of the pain and if I got CES x 3. Not much has changed since those writings. I still am suicidal and I am still in a lot of pain. I have seen over I don’t know how many different doctors/specialists for the problem and it seems, according to my writings, that no one was willing to help me with it. Even now my PCP, though he does give me my pain medication, sends me to other doctors. It is like I just can’t go in for one month and just get my script and walk out without some kind of theory he gets. I don’t care anymore. The pain as far as I am concerned is caused by nerve damage and the diagnosis is according to three doctors is complex regional pain syndrome. I don’t know what that really means but I know it can’t be fixed. And as long as the pain medication takes care of the pain a little bit, I am happy with it. Structurally, there is nothing wrong with my foot/ankle/leg except for some mild swelling, which no one has been able to get down. Even after a year of inactivity, I still get the swelling. I still have a lump on my leg where there is swelling.

And the whole thing depresses me. I can’t go for long walks like I used to. I can’t stand for more than twenty minutes without some kind of pain attack. At night my foot or ankle will start to bother me more than anything and I want to die from the pain. It will start off as small and then it will rear its ugly head all the way through half the night. Sometimes if I take my meds early enough I can go to sleep without it getting bad. Other nights, the anxiety it puts me through is too much and I am up all night, sometimes till 6 am.

Tomorrow is going to be a long day for me. I have to take my father to a medical appointment and then I see my psychiatrist in the afternoon for the medical students interview. I am dreading it because I know that it is going to be a long day and I am not going to sleep very well. I hope that before I drop my sister off at work I can get my coffee as I know I am going to need it. I might even have two in the day. But we’ll see.

blah 3

Ever had one of those days where you just feel blank? Like nothing is going on inside your head, no thoughts, no feelings of any sort, just feeling blank? Or have those days where nothing tastes right? Yea, I am having one of those days. I tried to make it a good day but I just feel so blah, like everything is an effort.

I got my hair cut today and I thought I would feel better but I didn’t. I waited around for the bus to the Square to get my coffee and decided to get Mexican food instead of a pastrami sandwhich and it just didn’t taste right. I had half of it then threw it away. I then got my coffee, a pumpkin spice latte, iced and a pumpkin scone. The scone was edible. It was okay but the latte was terrible. I don’t know why but it just didn’t float my boat today. I drank half of it and tossed it. I just was not in the mood to finish it.

My therapist was able to fit me in her schedule today. I guess I should talk to her before the weekend. I hope that I can explain this blank feeling to her. She probably will just say ah ha. And that will be that. I hate it when she says that. I’m going to try and talk about the grief of not working. I think I am having a bout of it today. A friend of mine I used to work with is on twitter and still works in the lab. I miss working with her. She always made me happy when I was grumbling at work. It made the day go by faster because we would have a good laugh to ease to the tension of the work day. The job was stressful. We were responsible for people’s lives as we were the ones to order lab tests the doctors had ordered. If we ordered the wrong test, which happened occasionally, it would suck because it could delay treatment of the patient. I miss it, but I kind of don’t miss the stress of it, especially when it came to pediatric tests. I always felt bad when a little one was sick. Sometimes the nurses drew too much blood or not enough, mostly not enough, and expect us to perform miracles on a tiny drop of blood. I remember we had a newborn who needed a glucose and the nurse sent us the sample like three times and each time was the same amount of blood. She didn’t understand that we needed at least a half a tube of blood to get the test done. The worst part was that the parents were lawyers and were threatening to sue or cause something because she had to repeatedly stick the baby. I felt bad but we need more than a drop of blood to do our job.

We then had funny diagnoses from the ER. My favorite were the ones that came in because they were drunk and fell. Well no shit. Whoever drinks to the point of alcohol poisoning is going to tip over and get hurt. It really sucked when it was a young person. You just knew they could become alcoholics if they weren’t already there. But it was interesting working in the lab. Got to see some really cool specimens and others that were just beyond gross. We once had a sample that was supposed to be urine but because the patient was doubly incontinent, we got both stool and urine. And it stunk really bad. When I called to ask the nurse about it, she just said do the best we can. Yea, hold our breath as we analyzed it and hope we don’t pass out!

I wish I could remember the fun times in the lab. We used to have a lot of fun until a certain supervisor got jealous and made us stop. She really was a bitch though she would always play the injured party when caught. I always tried to keep my “good” side with her because she was such a backstabber, but toward the end of my days, it was getting harder and harder to do. She realized how much of an impact I had when I was there and soon laid off her phoniness with me. Not like that made things better, but it was a step up. I remember there was a time we played a joke on a friend. She had injured her foot in a car accident and took her sneaker off. Well, a coworker and I decided to hide it on her. When she came looking for it hours later, we made up some story that we used the pneumatic tube station and tubed it to blood gas. (it was still in the front office where we were but didn’t let her know that). She hobbled to blood gas looking for her sneaker while me and the other coworker who was in there just laughed our asses off. We actually forgot where we put it, until we went searching for it ourselves. The expression on her face was priceless. Those were the good days. We got the work done and still had a few laughs. Then the lab changed and so did the laughter. It was just work, work, work. Sure we would still have our breaks and such, but damn, it was hard keeping up with the patient’s samples coming in and not enough people to log them in. There were nights we had to leave the outpatient samples for night shift. We could only do so much in eight hours. And computer downtimes, scheduled or unscheduled were always a bitch. You always got that one not so understanding clinician who wanted his stuff above all the others just so his shift could come to a close. We would go out of the way to find it and then find out that there was another doctor covering him. So much for it being a priority!! I would get so pissed off.

There were days I would just get to work and be in a bad mood. Saturdays were the worst. If day shift left us outpatient bags, I was even in a worst mood. Plus they always seemed to wait for me to come in and hand off the problems that should have been dealt with hours ago. I had a rule of not talking to be until after six o’clock, because by then, things were caught up and day shift was really gone and all the problems have been dealt with. But never failed that a half hour or even fifteen minutes before my shift ended more problems would come in and I would have to stay on till exactly midnight or after to make sure they were dealt with and handled properly. I always made sure things were clearly documented so the supervisor would know what was going on. And in my line of work, you had to be clear otherwise mistakes would make the mistake worse.

I liked my job. It was routine. I was the one that was there the longest and knew the system better than anyone (other than the computer staff). I also helped where I was needed even if it wasn’t my “job” for the day. But things got more difficult the more my mobility slowed me down. When we had the big analyzer machine installed, I found I couldn’t run it and aliquot specimens in the same shift. I would be dead the next day and often it lead to me calling out on my next scheduled shift, which I rarely ever had to do. Once I stopped having a car, getting to work on Sunday was getting to be impossible. I was late and it took me over two hours to get to work, by public transportation. I just said the hell with it and worked during the week and Saturdays. Sometimes, I would work only half shifts and even those were painful. I sometimes had to leave my shift in a wheelchair or half way through, go down to the emergency room because the pain got to be so bad I could hardly stand. My leg would swell and hurt really bad. I never found out why it swelled and hurt so much. I just found that I needed a day in between working until finally I had to have restrictions in my day in order to work. Then lost my job because it couldn’t accommodate me. That was really painful, emotionally, because I worked my ass off even through the worst of my pain. I had no idea that it was so restrictive. But it was the only thing that I could think of so I wouldn’t have to take any more time off work and get off FMLA (family medical leave act). So I went from working two jobs to trying to work forty to none in four months. And it sucked! I really didn’t know what I was going to do. I tried to get another position in the hospital but little did I know the hospital had a hiring freeze on. I needed a job that I could work sedentary but couldn’t find one. Then when I lost access to my work email and such, I stopped looking and filed for disability. I already had two psych hospitalizations and was working on a third when I was out of work. I had to file for long term disability, which was a mountain of paperwork. I think it took more paper than social security! I got both within a month of each other. I was glad because finally I could pay off some bills that had piled up while I wasn’t collecting anything. But it still is tough living on a monthly check. I still have not learned the art of budget. I seem to pay the most important bills, my cell phone, Starbucks, health insurance, and cable bill. What I have left has to last me until the next month, which sometimes it doesn’t. I could have a dollar to my name until the next check. And I always make sure that I have transportation money or I am not going anywhere for the month. And that will suck!! I just got to figure out how to spread out at least two hundred dollars of spending money and make it last a month. And somewhere in there has to be food money. I can’t live on coffee alone.

being in pain is exhausting

A fellow blogger recently wrote about things being all or nothing. That phrase has been stuck in my head since I read it because it is so true. We all have this idea that we should do things and complete the tasks we all set out to do in our minds. No one is telling us to do these things (unless you have commanding voices). But when you have physical illness, we forget our limitations to follow through what our mind wants and thinks we should do. Yesterday I went and got my breakfast at McDonalds and then had my coffee at Starbucks. It was 9 in the morning so I had plenty of time to kill before my therapy appointment at 12:30. I came home around 11 and just chilled until my appointment time. I was also waiting for a friend to email for our blog exchange. After therapy and after my friend exchanged our blogs, I had to pick up my niece. I walked the 8-9 blocks to the school and back. I let her watch TV and have a couple of snacks before I ordered pizza for dinner. Then had her do her homework and watched her until her father came home a few hours later. By 7 pm I was exhausted. I tried to watch the game but it proved to be too much for me. So I made my last trek up the stairs to my room for the night and checked a my email for the night when WHAM my foot started spazzing and exploded in pain. It got really bad because when I held my foot to sort of message it out, I could feel the muscles twitch. I had a horrible night of pain. And it drove me crazy. At one point, I had an out of body experience where I didn’t think my foot was mine. The pain got worse instead of better, even though I had taken pain medication. I seriously got suicidal and wanted to OD on everything I had but I couldn’t get up off my bed to do it. I eventually went to sleep.

This morning when I woke up I still was in pain. I have been battling the pain all day. I knew I had only one thing I could do today. I could either go to the grocery store to get some stuff or I could go and get my one cup of coffee. I decided to go to the grocery store and now I am totally done for the day. My toes look like Vienna sausages and my ankle/foot is throbbing like no tomorrow. I took my pain meds so I am going to pass out now. My goal of writing four pages is not going to be met. I hope when I wake up I can do something more but for now I need sleep. Being in pain is exhausting.

hard day

I have been having a bad day. I am still in a lot of pain with my ankle. I didn’t get to sleep till after one in the morning and then my phone kept on going off. Some idiot that is an unknown number calls me at 08:40 every single morning. And then will call me an hour or two later. I was too lazy to turn over and shut my sound off. I got up around eleven and took some pain meds and I was completely gone for the day, as what usually happens when I take my pain meds during the day. Funny now that I think about it, this same reaction doesn’t happen at night. I don’t understand why as I am taking the same dose. Weird.

Because my writing partner has taken today off, I decided I would too. It is a holiday after all. And my pain is making it impossible to think anyways.

I have therapy tomorrow. I am sort of looking forward to it. I really just want to spend the day sleeping like I did today. I don’t want to do anything tomorrow. It is too fricken muggy and hot in the house to do anything and I stay in my room anyways. I do need to go out. I need to get some half and half for my coffee. I didn’t have any coffee today because I didn’t want it. I can go days without coffee. I like having it but it’s not a necessity. Some days I wake up and feel the need to have it.

Last night I was listening to Luke Bryan’s CD for most of the night. I found that I couldn’t turn it off and it wasn’t until I got really sleepy did I shut it off. They say that music can be addicting and I think I am addicted. I have to listen to music everyday. It doesn’t matter what I listen to. Right now it’s Luke but that might change over the next few days and I will go back to my mixed playlist.

I had a real hard time last night as the pain was driving me nuts. I wrote a second blog that turned into an email. I sent it to my support group. I just got belittled. I felt like they didn’t validate my feelings. I was in a very vulnerable state. Some did validate it but some didn’t. Then I found myself getting angry. And I had no idea why I was seeing red. I don’t know why I was getting so upset. These people know what I am going through because they have been there. So I have no idea why I was getting so angry. I still am kind of angry and want to just go off. I think I am just displacing my anger at myself to them. I just felt really bad that I couldn’t go out to see my friend last night because I was in such horrid pain. I sent him an email and then I had a meltdown. I could not stop crying for almost an hour. I never cry. But I just had this overwhelming sadness. Sadness that I couldn’t control. Sadness that hit me like a ton of bricks. I was no longer the person that could do everything and it hurt. I wanted to do so much yesterday and could only do two things. I ran out of spoons. And I found it hard to live with that.