sixteen years

Sixteen Years

Today is my niece’s birthday and I thought it would be a cool thing to review those years. A lot has happened during that time.
1998: I brought my niece into this world as I was part of the delivery team. She came into this world at 21:47. It was the happiest day of my life watching her birth. It made me happy, if only for a little while as I was still battling depression of sorts. I was working for thoracic surgery at the time at a big hospital in town. It was a busy place. Then my supervisor found out I was gay on Valentine’s day and that was the last week I worked for that surgical group. I then went to work, through a friend, at the next big hospital in town. I spent 14 years there, giving it my all only to be tossed aside when I could no longer perform my duties due to my physical disabilities. I learned a lot of things at this job. Mostly how important lab results are in the care of the patient. It might not be the sole key to diagnosis but it does help with patient care.
My favorite uncle died this year, losing to his battle with kidney disease. I was so messed up by his death that I didn’t go to the wake or the funeral but visited his grave when I was able to. Things really were never the same after this. My father’s side of the family were dwindling. And it was very sad.
1999: nothing note worthy
2000: the year of the computer collapse. No major computer issues happened until later that year when the lab went from one computer system to another. It took forever to get things done. It was the busiest time for OT in the history of the lab because the new computer system was so slow. Later this year I started having back pain. Little did I know that I was doing too much as I was working as a temp in medical assisting on my days off and also working as a cashier at a hardware store. It was the only time that I worked three jobs consecutively.

2001: My almost fatal work year. In February I had emergency surgery that would forever change my life. I couldn’t walk and it would take me weeks to learn to walk again. I also started with a new therapist yet again but this one I hope would stick around. Even though it has been almost fifteen years that we have been together, I still hope this to be true. I had to relearn quite a bit. I went back to work earlier than anticipated because I had no more earned time and basically didn’t have a paycheck. It was a hard time but I had to go to work. But I didn’t realize that going to work for forty hours would be so tortuous. I had to cut my hours first to twenty and then slowly increase to thirty-two. It took me a few years to make it back to forty and then some.

2002: I start on a very potent pain medication and it helps with my pain so that I can work pain free. But my moods were shifting up and down, really bad. I again thought that this would be it, that I would kill myself the next month if things weren’t put to a halt. I was put in the hospital, on a detox unit unbeknownst to me. There I was fed lies and had a nitwit for a psychiatrist. We argued the whole time I was there and by the end of my stay I had the staff and patients call her Dr. Dittlewhack, because she was so whacky. She thought one of the antidepressants that I was on was an antibiotic. I knew more about medication that she ever did. She took me off my pain medication and my muscle relaxant and told me lies that my doctors wouldn’t treat me for my pain or for my mental illness if I went back on my pain medication. I was furious. But when I got out, I learned that my doctors had no knowledge of what this idiot had said and they certainly weren’t going to stop treating me because I had pain issues. It was all lies. I so wanted to place a complaint against Dittlewhack for her mistreatment of me but never did. It was my one regret in life. I did, however, file a complaint with the human rights officer as staff and other doctors would interview patients out in common areas rather than private interview rooms. I hated that hospital stay and vowed never to return to that hospital.
2003: only thing noteworthy in this year was the Sox blowing the ALCS to the Evil Empire. It would end up being the last time the Yankees would make post season for a while

2004: my therapist goes on maternity leave. I am going back to college. I have an interim therapist because to be without one for four months would kill me. I was never more afraid of losing my therapist than I was this year. My biggest fear was that something would be wrong with her kid and force her to change her schedule or not come back. This would be the last year that my therapist would be at the same location as the interim therapist. Later this year, a friend would give me a car and I would be a car owner for the very first time. I sunk money into this baby to get her up and running but in the end it would be for waste. I couldn’t keep up with her demands. I also left the lab for a research job at this time. Life in the lab had become intolerable with the new supervisor and I felt like my job was going to be in jeopardy because we clashed so much. When I was called in the chief supervisor’s office because I deleted stupid emails, it was the last straw for me. I had to transfer out. And I did, partially. I still kept my Saturday hours and worked thirty-two in the research job. It was the first time in three years that I worked so much. I was pain free and almost recovered from CES.
The Sox win the world series for the first time in 86 years!
2005: Lots of major things happen. Starts with me working my ass off at two jobs. Research had to cut my hours so I was now working twenty hours in two positions. Things become intolerable. My psychache was getting worse and worse with each passing day. I knew that I was on the verge of another hospitalization and then a group leader told me I wasn’t cut out for another psych hospitalization anymore. I lose my mind. I really planned on ending my life this year. I had everything down to a T. I tried to play it off with my therapist that things were going good. And then she asked me a question that saved my life and forever changed my course of therapy with her, “what was really going on”? I end up going to a partial hospitalization program so I could continue to work my research job as there would be no one to cover me.
2006: the year I wish I was dead. I got CES again in the fall. It is still unclear to me how I got it again or how in five months my back went from bad to worse, needing emergency surgery yet again. I would lose function yet again in my left leg and had to learn to walk again for the third time in my life. I had wicked bad muscle spasms in this leg that made me wish I went through with my plans from a year before. I hate my therapist. I knew what to do this time around and stuck with physical therapy for almost six months. All through it, I still worked two jobs.

2007: my beloved Sox win the World Series Championship for the second time in three years. I am still recovering from post CES. I learn about the American Association of Suicidology and become a member. I start writing a paper on how the medical profession always has a scale for physical pain but not psychological pain. I submit the paper for the AAS as the conference will be held in Boston the following year.

2008: I go to Barcelona on a business trip. All expenses paid through my job. My paper gets accepted for the AAS and I work on the poster for it. I am really excited about this. This year was probably the year I realized that my career is in psychology and not the lab. I try and work harder for my degree. I end up with a psychotic breakdown in the fall. I am heart broken as I have to put college again on hold. The voices become very demanding and medication doesn’t seem to work like it once did. I am hospitalized again as the voices want me to kill myself. I am put on high doses of trilafon and then am evaluated for clozapine as it has been more than two months and the hallucinations just won’t quit. This has been the longest I have ever been psychotic for.

2009: I start the year with an involuntary hospitalization and am placed on abilify to help my mood and psychosis. I do ok on this new medication and have minimal side effects. Soon as a month or so passes I stop the medication. I am without antipsychotics for a good year or so.

2010: I am still working two jobs and now my research job has kicked up a notch as I now have to go to dialysis centers to pick up blood. I am driving all over the city, getting stuck in traffic and basically spending my life on 93N/93S, mostly 93S. We get more help to coordinate pick ups and drop offs and the like. Worse of all I suffer a sprained ankle that has me in a boot for a few months due to severe spasms.

2011: My health starts failing. My depression worsens. My leg/ankle/foot keeps giving me pain and no one can understand why as physical therapy and scans/x-rays are normal. It is discovered that I am not walking correctly when I see a special physical therapist that deals with AFOs. I am evaluated and my life is forever changed again due to the nerve damage in my ankle/foot. My foot turns and pulls on the muscles and tendons it shouldn’t when I walk. I am placed in an AFO and by year’s end I make the decision that I need to work just one job. Little did I know that this one job would be the last job I would ever have.

2012: the world doesn’t come to end. My career as a lab assistant is over. I go to the AAS annual conference in Baltimore and become convinced that I am a hopeless case. When I return from the conference, the occupational health and my department decide that I am too disabled to work. I have to file for long term disability and social security. I am beyond devastated. I am truly hurt that despite my slaving at this job, an exception cannot be made to keep my job. So I leave in tears. The worse thing that happened was that my student loans are garnishing my SSD. I also have two hospitalizations as I cannot deal with the stress. I am back on abilify and need to stay on it if I want to keep the voices at bay. I also start a blog and it is successful.

2013: A new Year. This year I work on my book and by year end, have it all ready for an editor to pick through and red ink the shit out of it. I work closely with a writing partner and by October, my suicidality lifts enough that I am no longer thinking about suicide as much. Though it has been a brutal year for my depression. I write blog posts and dissociate. My therapist and I come to terms with suicidality on her side of things. Hearing her spell out how difficult it is helps me understand better what she goes through when I am suicidal. Just as in 2005 when she helped me through my November attempt, so she did again help me through. It wasn’t easy. There was a lot of arguing and a lot of frustration but we made it through.

2014: I don’t know what will happen this year. I hope that my book gets published. And I hope it sells a million copies so that I don’t have to be on disability anymore but that remains to be seen. The baby that I brought into this world turns 16. Amazing what happened in those years…

cabin fever musings

Today has been a rough day. I have been stuck inside because of the freezing temperatures outside and I just been having cabin fever. I really wanted a latte today but made a hot cocoa instead.

I have been wanting to write all day but nothing has been forming to actually write. It is so frustrating. It’s like the words are there but they just won’t come out. And having no idea what I am writing is not helping. I wanted to write a blog just about Aeschi but I need to get into that kind of mood and I am just not there.

Then I thought I would clear my bureau off with stuff I don’t need anymore but I got overwhelmed and had to stop. Plus I kept finding stuff to play with to distract me from the task so that wasn’t good. Also wanted to clean up my office a little bit but that didn’t happen. I just couldn’t get myself motivated to do it. I just have to pick up my jackets and hang them up in the closet. Not a huge deal. And junk my printers. I have decided that I am just going to throw away the printers that are useless to me. I don’t think I can the HP printer to work anyways and I don’t have the drivers for the other one. I don’t even know if it still works anymore as it hasn’t printed anything in years. I will get myself a good printer soon as I am able to afford it.

I’m feeling so shut in it’s not funny. I am going to go out tomorrow. I will take my Aeschi book and just write something. I also will get my latte that I have been wanting the last few days. I also need to go to a stationary store and get a calendar for the year. I don’t know if that will be tomorrow or not. Depends on what the streets look like. I am not going to risk falling just for a calendar.

My writing partner and I have decided not to work on our book until February. That is fine with me as I have nothing to write about. I haven’t really thought what I am going to write. I know I need to add to the six pages I already wrote but I don’t know if I can add to it. The pages seem more like an introduction type and I don’t want to mess with it.

I requested a song today by my favorite DJ and she never played it. Now I am debating downloading the song because even though I have it (it’s in .WMA format), I can’t convert it to MP3 because of licensing rights. It sucks because the whole album is that way. I should have transferred it to CD when I had the chance. I am excited that my favorite artist, Terri Clark, is coming out with a new album in Feb. And my other favorite artist comes out in two weeks. I already pre-ordered her CD. Hers I have to order a CD because I know the instrumentals are not going to be good for MP3 playing.

I need to get back to my routine of leaving the house every day and getting to Starbucks to write or read or to do something! Even if I spend an hour or two there I think that will be better than spending 24 hours in my house. I will have to get out of my house next Friday because of a doctor’s appointment. But other than that, I don’t have any plans of leaving the house and because of the cold, I have been hibernating more. I know part of it is because I don’t want a flare up of pain. The other part is no motivation or energy to go out. Starbucks has lost its appeal to me. I have drank every drink they have and nothing really sticks. I create my own lattes or just have their Clover coffee. Right now they have a Mexican coffee I have been dying to try. But there is no information about it so I am afraid that it will be too bold. I like coffees that are mild, strong, but mild. And because of the anhedonia, I don’t enjoy anything anymore. I guess that is why I am afraid to try this new coffee. I am afraid it will just taste flat. I will be so disappointed. I am waiting for the anhedonia to lift before trying it. Though it doesn’t see like it is going to lift anytime soon.

Anhedonia and rubbing elbows

I had trouble sleeping last night. I woke up from a bad dream at 4 am and took a while to get back to sleep. Then I slept for a few hours before waking up around 8. It’s snowing out so I won’t be going out today or tomorrow as tomorrow is going to freeze. Thing that sucks is that I won’t be seeing my primary as they have closed the office and I won’t be seeing him for another few weeks. This totally sucks. Now I have to wait for my prescription by mail because I couldn’t get it in person. I just hope that I can ration out my remaining pain meds until then.

My ankle is really hurting today and when I lift it up on my toes, my whole leg start jiggling. I know it is a new nerve problem but I want to see what my primary says before I run off to the neurologist. My luck, they will want a demonstration and it won’t happen.

I haven’t made any of the phone calls that I need to today. I am just being lazy. I need to take a shower but my ankle is hurting so I will put that off for today as well. Maybe if the pain meds quiet it down I will take the shower.

I got a good email from my neurologist. I had emailed her one of my blogs and she said that I am an amazing writer. I had to text my therapist that.

Speaking of therapist, I had my session with her today. I am feeling really upbeat today for some reason. But I keep feeling like it is going to end soon so I am trying not to keep my hopes up that this feeling will last. I was very happy to talk to her today. I told her about the author Konrad Michel’s email exchange. She thinks I am rubbing elbows with the suicide people of the world. I told her that is crazy, that I am just emailing him out of courtesy so that in case someone reads my book and they go to him about it, he knows. I don’t want to get sued over it or feel like I am plagiarizing his work. Most of it is in my own words and I did quote what I needed to. I just don’t think one email constitutes knowing a person to rub elbows with them. I also told her about the anhedonia that I have been feeling. Nothing seems to be good as it was with me. Nothing tastes good. I don’t feel pleasure in eating my favorite foods. I have been trying to snap out of it but it is difficult. Even though I felt sort of upbeat today, it kind of wore off and I am back to my normal restrained self. It sucks when you are in this type of depression. I am really surprised I am not thinking about ending my life. I guess I have really turned a corner and don’t go to that place that often anymore.

I just took a picture of the snow outside for a friend that wanted to see how much we got. I think it’s hysterical that some of my friends that live in warmer states like Arizona and California don’t see as much snow as the New England states do.

My eyesight is not getting better. I am hoping to make an appointment with the ophthalmology people soon. My vision keeps going in an out with blurringness. It is really frustrating as I got to really focus my eye to keep them focused on things. It is a pain when I try to read or play on my laptop or even write a blog.

I can’t wait for tomorrow night. The OSU game is playing. I have been looking forward to it. I just hope I can stay up and watch it. I don’t do so well with night games. Maybe I will try and take a nap like I have been trying to the last few hours and I will be rested enough to stay up. But the trick is not to wake up before 9 am. My mother has been waking me up every single morning for the past week and she is always up around 8. And she puts on the tea kettle and doesn’t shut it off right away. Annoys the crap out of me.

Transitioning isn’t easy

Transitioning isn’t easy

I just wrote to my support group that I will be changing my name. I feel comfortable in this group and hope that once my book is published, I can be the name I picked out. I have decided that this is the year that I am going to move forward with my transition. I am going to try and do it, weighing my options to what I feel comfortable with and hopefully the depression that I feel around it will be lifted. I have always felt like a “he” more than a “she” most of my life. I have tried to emulate a masculine persona and I think I have succeeded in doing that. The only thing that has prevented this from happening is the things on my chest. They are useless to me. I will never use them as they were intended to be used as I will never bear a child. I have a useless reproductive system that refuses to be stopped. I am hoping that it has stopped, that Dec 29th was my last day of having my menses for a while. I have to be more vigilant about my meds so I don’t run out. Funny how I am lax with certain meds and more mindful, so to speak, about others. I still can’t believe that missing one pill messed me up so badly. Bleeding for two weeks sucked the life right out of me. I was never more depressed than I was during those two weeks, and added to the spotting that I had prior to that, it makes for four weeks almost. Hopefully, I don’t have to buy stock at Always.

I don’t know if I am going to tell my family this year. Maybe as I get closer to changing my name officially I will. But I still am four months away from that. I have to look into it as I am not sure how it is done or if I will have to pay to change my name. Then the hassle of changing everything to my new name will start. Maybe then I can feel more confident in myself.

I just realized that I spent the majority of the day in my room. I have played my mundane game most of the day. I had a late lunch and that was the only time I left my room, and to watch college football for about an hour or so. Today is a holiday and I just didn’t feel like venturing out. I could have. I had my sister’s car I could have borrowed but decided not to. Tomorrow it is supposed to snow all day. I just hope that my therapist’s town doesn’t cancel school. I really want to keep our appointment for tomorrow. It will really suck not to talk to her because then it will be a full two weeks that I have not had therapy. It will be the longest stretch since my having surgery in 2001. Granted that was more like four weeks but still, I have stuff I want to talk about with her. Mostly dealing with this idea of transitioning more.

I am also going to try and set a weight goal for the new year. I hope to be less than what I am now come this time next year. I know it will be a herculean effort as I love sweets and buy them all the time. My new favorite is Edimann’s Donuts. Now I have to stay away from Stop and Shop, or at least the Edimann’s display, which isn’t easy to do because it is right where the yogurt and frozen foods are. But any donut is my weakness. I am surrounded by Dunkin Donuts. There are at least 4 within a mile radius of my house. And of course, Starbucks has them too. Luckily, the last few times I have been there they have been out of my favorite donut. So not eating a donut in 2014 is going to be difficult! I have to eat better, I know that. I am going to try and stick with the cereal diet but lately an hour after eating, I am starving. Losing weight just seems like a losing battle. It’s much easier to gain than to lose. I wish I could exercise but any walking activity is going to flare up my ankle. And no, I don’t do swimming of any sort. I just have to cut the calories and stick with that without starving myself.

Another goal that is more pressing is to see a dentist. I haven’t been to one in over two years. Mostly, it has been my fear that has keeping me from going. I hate the scraping sound and feel of my teeth. I know that if I go regularly, it won’t be so bad. But something always happens when I go for my next appointment. Last time it was because I was in the hospital. I canceled the appointment and never made a new one. But I really need to see one because I am getting really paranoid that I have a cavity. And I am not sure I am still going to have dental insurance throughout the year. I think my benefits are going to stop sometime in April, least for my private insurance. Then I will have to go on the state’s insurance plan, which I have no idea if they will offer dental. All the more reason to make an appointment now rather than later.