Tag: cauda equina syndrome

I don’t know what happened

by Midnight Demon, posted in chronic physical pain, depression

I don’t know what happened

I took a big dose of Nyquil to calm my cough down and get some sleep from the allergies that have been plaguing me all day. Within an hour or so, I got a buzzed feeling and decided to sleep. Nope…not happening. I then got an itching for ice cream and had some. Well, that was stupid of me. Now I really can’t sleep and my ankle is sore as hell for going up and down the stairs.

I don’t know where all this energy is coming from. I am not high per se, but I am somewhere in between. My Sox are losing and I should be paying attention to the game rather than writing this blog, but I have no interest in the Indians. I am in a writing mood and that almost never happens. SO I am going to write…

I was listening to a song earlier about “got a little drunk last night” by the Eli Young Band. It got me thinking about my ex. I know I have not talked about her on here because it just is too painful. She was my first love and at this point, I think she will be my only love. But she has a lot of issues. More issues than you can shake a stick at. I won’t get into them but mainly her health is what scares me the most. She recently re-friended me on Facebook and then after an IM session blocked me. I have no idea what I said that caused that to happen. We were talking about how to get to a hospital that is very difficult to get to when you are not used to the surrounding areas. I was trying to get her to use public transportation as that would be easier than driving and poof, she was gone. Her medical issues are getting worse and I just can’t handle it. I know she is going to die sooner than I would because she most likely will go on dialysis for her kidney issues. She has diabetes to boot. And MS. And that is what I know of. She has psych issues too, which is probably why she went and blocked me. I feel bad about her blocking me. I thought this time around we might be friends without the benefits sort of. But now, it is not going to happen because she blocked my ass. I never had anyone block me before, least not that I know of anyway. I miss talking with her. And I guess that was the bottom line. But oh well. Se la vie. She is out of my life, probably for good this time around. It’s her loss.

I do miss having someone in my life that I can talk to. Someone to go out with and hang with. But at the same time, I am glad I don’t because I don’t need the stress of a relationship right now. I can barely keep myself together. My aunt just IM’d me. Said she wants to talk with me. Great. And I know it has to do with my book. I don’t know if I can handle talking about my book with someone. I know she is my aunt, but we aren’t that close, close. She suffers from depression too. Maybe that is what she wants to talk about. I just don’t want to cry in front of her. That would not be good.

I went shopping after everything I did today. BAD IDEA. My fricken foot is not happy with me right now. It’s swollen and it hurts. It is very angry with me. And I am angry with myself. I knew that walking around the grocery store was going to trigger another flare up but I needed my flame retardant Powerade as I only had one bottle left. I spent more than I should have as I went a little crazy. The baked beans were on sale. I love baked beans. My mother told me to buy two, and I bought four. Then I had to buy bread and ice cream. I really didn’t need the ice cream but wanted to have it. I just had some, in case you were wondering. A late night snack. I really want to make a cheeseburger but I will tomorrow. I am in no condition to operate a stove. I still feel buzzed out from the Nyquil.

I am going to ask my therapist what the hell are the objects Freudians talk about in their literature. It is bugging the crap out of me. I just hope I remember to ask her. Because unless you know what the hell they are talking about, the sentences make no sense!!

This week’s AAS post was about coming out as an attempt survivor and then getting fired because of it. It is discrimination just like I was discriminated against because of my mobility issues. But getting back to the article, I think it was an eye opener. Now I feel that anyone that reads my book is going to know my deep darkness and it might cost me a job or two or three. Leave aside my debt issues, and what do I have to show for the last two years? Writing this blog and a book about my struggles with mental illness. I am lucky I am on disability because I really don’t think I can hold a job anymore than I can stand more than twenty minutes in one place. I want to be a barista but I don’t think I can stand to be on my feet for eight hours. Course, working at a place where you can screw up a double skinny no whip latte can be challenging and then having to make it again because it is “cold”, might piss me off. I vowed after working for a place for three years that went out of business, that I would not go back to retail. But I like customer service. I like interacting with people. It is the one thing that I miss most about not working is the isolation it brings. I don’t have many friends outside of the internet. Sure I have family but if you look at my call list, you will not see that many calls from friends where there used to be many. I hardly go over my limit of 450 minutes anymore because most of my calls are mobile to mobile. The only person to call me from a landline is my mother, usually. My father will also call from a landline. And the most they will talk to me is a minute or two. Boring.

I don’t know why I am getting pain in my “good” leg. Started with zaps in my heel and ankle and now I am getting pain in my calf. I think something is wrong with my back. I haven’t been getting back pain but for me to be having pain down my leg, it has to be coming from the back. And that scares me. I don’t want another surgery. I don’t even want to see another neurosurgeon for the rest of my life. I will kill myself if I have to have another back operation to repair my disc. I will have to have a fusion and I just don’t want to because that will mean permanent disability. Not saying I can work now but there is a chance I might find office work as a receptionist or something but that will go down the tubes if my back is gone and fused. I will lose whatever mobility I have and I just can’t risk that. I rather be dead.

ankle chronicles 6

by Midnight Demon, posted in chronic physical pain, depression

I spent the weekend resting my foot. I thought my foot would be better by now but it is still sore. I have things to do and there is no one else who can do them for me. I need to get a haircut, go to the post office, and pick up my prescription.

I feel really bad that I am missing my niece’s graduation tonight. But there is no way I can walk around the stadium. It is also the hottest day of the year and I don’t do heat too well. I really just want some butter pecan ice cream and go back to sleep.

I was up early this morning. I woke up from a bad dream around 0130. I stayed up till almost 0500. I wrote in my journal for about an hour before the pain meds and Ativan kicked in. I also woke up in pain. I was not happy. I guess I really did too much on Friday night for me to still be in pain three days later.

I am tired of being laid up in pain. I want to go out and get an ice coffee and maybe read a little bit. And get my haircut. Or at least be able to shower. I haven’t had a shower since Friday afternoon. I was going to take one at the wee hours of the morning but I didn’t want to risk waking myself up. I never know how a shower is going to go. It will either exhaust me or wake me up. My luck, it will wake me up.

I think for the first time in a while, I might run out of pain meds before my doc appointment. I am running low because of this flare up and I don’t see my doc for another two weeks. I am not that worried. I can stretch them out. I am sure once this pain flare up calms down, I won’t be taking any meds. For some reason I woke up with my calf hurting this afternoon when I got up. A little stretching and it seems to have calmed it down. Don’t know what that was about.

I wish I didn’t catch a cold this weekend. I feel terrible. I think I am going to make some soup, despite it being hot out. But I need the fluids. I have been bad about drinking. It doesn’t really cross my mind. I am not really thirsty, which doesn’t help. I have powerade, but I mostly just use it for my meds. I need to get more, add that to the list of things to do.

No Rest for the Weary

by Midnight Demon, posted in cauda equina syndrome, chronic physical pain, depression

No Rest for the weary

I woke up at 0400 yesterday (30-May) in severe pain. I took some meds and then tried to go back to sleep. I slept for a couple of hours and then my alarm went off. I had an appointment with my pdoc. The appointment went well, we decided to stay the course with the increase in the mood stabilizer and see if the Cymbalta is truly making me sick by not taking it tonight. It really doesn’t matter as I doubt I will continue taking it. My mood has improved over the last two weeks, well at least compared to last week where I was in bed every day. I couldn’t do a damn thing without sleeping all day.

I wanted to take a nap very badly as my sister had tickets to the Red Sox game and I wanted to go. But I never got a nap so was really cranky. The tickets were part of my youngest niece’s school group and I was around kids. BAD, very bad for me because I swear a lot during the game. I had to twitter my curses during the game rather than say them outloud but toward the end of the game, most of the kids went home so I could curse. And it was a hell of a game. Two brawls. Three ejections. And the Rays were “scot free”. I don’t know what the Sox did to piss off every umpire in the MLB but it’s getting obvious there is a conspiracy out there with their calls going against Boston. And the sad part is that for the next two days, we have the same umpiring crew so it will be the same bias.

I did a lot of stair climbing and my foot is now paying the price. My foot pain did not abate during the day. I have been dealing with it like I said before, since 0400. I have been taking my pain medication which brings the pain down a notch but during the end of the game, I wasn’t able to take an additional med for the ride home. And it was a ride. The trolley ride, in which I was standing, killed me as I was putting too much pressure on it to stand upright. My foot is thanking me so much by swelling and not being able to move my toes. I am beyond miserable and I can’t sleep. I have been up for almost 24 hours. I love my niece but she was such a whiny brat tonight. I know part of it was because it was past her bed time but I had no nerves left to deal with it because of my sleep deprivation and pain level. I didn’t let on but I really wanted to say something to her but I didn’t. I had a good time at the game, despite the kids and aggravation. I tried my best to zone out as much as I could. My sister was the cheering squad but she was doing that to keep from being bored. Baseball is not her thing. But she was a trooper staying until the end of the 9th inning, despite a tied score. I had to leave by this time because the pain had become intolerable. I don’t know how many stairs we went down to get to home but it was a lot and my ankle did not appreciate it.

So now I am home, I have my foot elevated. I am medicated. Yet I am not sleepy despite being overtired. I don’t have anything that I have to do today. I had wanted to get my haircut, go to the post office, and pick up my prescriptions but that is way too many spoons (energy) at this point. I don’t think I am going to do much other than veg out. If I am lucky, I will sleep past 0600. I am tempted to take an Ativan to sleep but having decided to take a stronger pain medication tonight, I don’t want to risk further side effects.

Despite being in severe pain, I am not suicidal like I thought I would be. This is the fourth or fifth day in a row that I have been dealing with my foot pain, the same kind of pain every single day. I just haven’t been able to get a break from it. I am hoping that taking the stronger pain medicine breaks the cycle and I get some relief but there is no guarantee that will happen. Right now, all I want is some pain free sleep. But it doesn’t look like I will be getting it. I still am waiting for my meds to kick in, and it has been over an hour since I took them.

It is strange not being suicidal when I am in so much pain. You would think that I would be, that I would want that escape. I guess part of it is that I am not feeling hopeless about it. And I am not severely depressed like I was. Pain changes the way you cope with things. Right now I am feeling the pain but also trying to block it out of mind. I guess when I can no longer do that, maybe then I become suicidal? I guess we will find out soon enough.

Nerve pain is no joke

by Midnight Demon, posted in cauda equina syndrome, chronic physical pain, depression

I laid down a little while ago to try and get some sleep but my foot had other plans. It feels like it has been submerged in ice cold water and then thawed out. I feel like every nerve fiber, neuron, and nerve bundle is firing all at once. I am in agony and there is nothing I can take for it except to wait it out. The funny thing is that I take Cymbalta which is supposedly a neuropathic medication used to treat this type of pain. Either I am on too low a dose or it just doesn’t work for me. I just want to sleep and I am itching on despair.

I didn’t think this would happen. I thought I would be in physical pain, bone crushing pain, not nerve pain tonight. I hate feeling so helpless as my foot is hurting and there is nothing I can take for it. I just have to wait for it to calm down on its own. If it was just one part of my foot, I could put a gel on it but the pain is ALL over my foot and I can’t put that much gel on my foot. I will get it everywhere and I don’t know if it will be effective. Nerve pain sucks!!!!

I am deeply frustrated that there is nothing I can do but suffer. This is why I become suicidal because my situation is hopeless. There is no end to this pain. The only way to stop the pain is to end my life. And I want to so bad. But my family needs me, least I think they do. My sister has been depending on me more to take care of her younger daughter as I have been babysitting more. I am supposed to be up in five hours to take my sister’s car so that I can transport my father to his medical appointment. I don’t know if I can survive a day on five hours of sleep. This just totally sucks. and I feel like I should just end things. My life would be better off if I were dead. People don’t understand that being in chronic pain sucks. Least with cancer, you know there is going to be an end. But with chronic pain there is no terminus. It just goes on and on.

My foot is still swollen from today’s activities. I won’t be walking too much tomorrow, thank goodness. I know I overdid it today and that is why I am hurting. Seems that whenever I think I can go back to work I will have a night like this to remind me that I can no longer work an eight hour shift. I don’t even know if I will be able to work half a shift. I miss my coworkers though. I would love to be able to return to my old job but I don’t think I can physically do that type of work anymore. It just sucks. But maybe by not being here anymore I don’t have to worry about working at all or about my finances and being broke all the time. Having complex regional pain syndrome really does stink. and pain flare ups are the worse.