Tag: CES

Feeling like a lucky SOB

by Midnight Demon, posted in cauda equina syndrome, depression

Feeling like a lucky SOB

I saw my psychiatrist today. We had a good chat about things. I told her that I got the consent from the two guys that wrote the Building a Therapeutic Alliance book. She was happy and can’t wait to get my autograph when my book comes out. She said she is going to buy it so I can sign it. That kind of sealed how much confidence she has in me and my writing. I told her I hope that my book is as successful as we are thinking it to be. But I keep holding myself in check and tell myself that if I sell 100 copies, I will be happy.

As I was walking to the station, I was thinking about Dr. Michel and realized, I am a lucky SOB to have these wonderful suicidologists from around the world interested in my work and not only that, to wish it success. I really can’t believe it. But I have the emails to prove it. I told my psych today that I think the summary that I wrote to Dr. Michel is going to be the blurb on the back.

Right now my foot is throbbing really bad. It was raining today so the benches that I normally sit on to wait for the bus were nice and wet. I had to stand and walk around a bit while waiting for the bus. To say that I stood too long is an understatement. I had more than a half hour’s time at the Square waiting for the bus and there were no seats available until one of the buses came. My bus didn’t come for another twenty minutes. Plus, when I got there, there was a homeless or other mentally disturbed person laying on the bench and cops were around him. I don’t know what the deal was but they carted him off in an ambulance. Later when I walked over because it was the only space vacant, I saw what the guy did. He burned circles in the wooden bench. Jerk.

I still feel upbeat though not in a euphoric kind of way. Just in a content kind of way. I am hoping to work on my second book today. I really want to get something done while my mood and energy levels permit it. I can’t stand and clean my office. I think I am done going up and down the stairs today, well, only if I don’t have to use the bathroom, then I can stay in my room with my foot up. I was telling my psych about the PTSD I was experiencing after the fall I took and how terrified I was that CES was happening again. I asked if that is ever going away and she said probably not. Great. I guess if I had it the one time, I might have been ok in recovering from it and not have PTSD so bad. But having CES twice and in the same leg really did a number on me mentally. Even as I was talking about it, I was getting all wired up and had to focus to stay grounded. She asked if I was still taking the Ativan and I told her I was. I had to because I am still experiencing side effect from the abilify. I need this med to keep the voices away. And I rather deal with my arms and legs feeling like stretched out elastics than to hear voices and be paranoid and delusional.

I finally got my hair cut today. The stylist didn’t cut my hair the length I wanted. I didn’t realize that until I came home. I am going to need another cut in two weeks time now, rather than four. No matter, I will go to my barber’s shop by then rather than back to Supercuts.

PTSD is flaring

by Midnight Demon, posted in cauda equina syndrome

I took a fall last week, on my birthday. I didn’t think I did anything as I landed mostly on my butt and hip on the stairs. I just pretty much collapsed on the steps. Today my back is hurting and my left leg feels week. Also my thigh is twitching. All indicates that something happened. I don’t really want to have another MRI as the last one sucked but it’s the only way to know if I did something to my back. I am hoping it clears up by tomorrow because I really don’t want to end up in the ER on New Year’s eve. All of this worry and anxiety has flared up my PTSD symptoms with flashbacks of my second diagnosis. I keep hearing my surgeon tell me has never seen a disc fragment so big and that he has no clue how I was able to walk as my nerves were so compressed. I still don’t know how I was able to do it. I was working two jobs at the time and moving stuff in the lab as we had a freezer go down. It was a nightmare. Plus we had two interns from Mexico come to help out the lab and I was no good to either of them because I had to have surgery a month into their arrival. All of these memories keep flooding my brain. I really think I reherniated my L2/L3 disc again. It would account for my symptoms. What a way to ring in the New Year with potential surgery. I will be screwed and most likely permanently disabled if this happens.

To say I am scared is an understatement. I keep moving my foot and toes to reassure myself that things still work. I haven’t done any leg raises because that is hard to do with the laptop on you, LOL. I will do them when I get off. If I didn’t have thigh pain, I probably wouldn’t be worried but that is how everything started with my second go round in the operating room. The surgeon missed a fragment his first go round with my nerves and my left leg became fuzzy and then weak and then non-functioning all within three days time. So now I am at the fuzzy stage and I am freaking out!!

This is what I have to live through and I swear if it is CES again, I am not going to live through it. I will kill myself because I would rather die than be permanently disabled. I will have to have a fusion done to stabilize my spine and I have had too many people have them done and something go wrong. They never recovered and never was able to return to work. I don’t want that to happen to me. I know I am not working now but why should I go through the agony of losing what I regained again to being worse than what I am now. Totally not going to happen. I am too smart to let them talk me into a fusion. I just won’t. I rather be dead.

night time blog

by Midnight Demon, posted in blogging, cauda equina syndrome, CES, depression

Night time blog

I did nothing for my birthday. I stayed home listening to the rain fall and watched TV. My family came over and we had some laughs and some cake. I didn’t shower like I wanted to. I fell down the stairs and it kind of wiped out anything else that I was going to do. I am hurting and it’s worse now standing for even a few minutes. I will probably shower tomorrow.

I got a lot of presents that were just for my birthday, not Christmas like it usually goes. My Aunt gave me a Euro in a necklace that nearly choked me because the chain was too small. I like it but the chain didn’t fit right and was aggravating me the whole time I was wearing it. I usually to not wear necklaces. I will wear my Claddaugh ring, but that is only because I lost my high and junior high rings. Our middle school gave out rings because most of the graduates never finish high school. My starting freshman year was about 250 kids. Only about 150 graduated. Granted some had transferred to other schools (like my sister and a couple of my friends moved out of town) but the majority either dropped out because it was too hard or because they got pregnant. One of my friends didn’t graduate because she just couldn’t keep up with school work.

I edited my book for hopefully the last time before the editor sees it. I put in the indents in the paragraphs. I was reading it as I was going along, well, maybe not reading, skimming. And it still gives me chills on certain parts of the book. I know that part of it is because the book is so personal. I talk about every aspect of my life that has to do with my suicidality and the road to seeing therapists and psychiatrists. It was not an easy book to write. I do hope that someone can relate to some of the things I write in it. I know the title alone is a paragraph but I had to get CES into the title. There are no other books out there that deal with Cauda Equina Syndrome, not in the personal sense. People need to know about this syndrome because not all back pain is the same. And back pain can progress to CES if not taken cared of properly or if further injury makes it worse. I try to cover all aspects of getting CES in the book but I am not everyone. What happened to me, might not happen the same way to another person, even if we both had the same disc problem. CES is tricky to understand and most doctors do not know how to treat it, if they are able to recognize it in the first place. And this goes to radiologists too because they are the ones that interpret your MRI’s. They call something wrong because they haven’t seen it and you are fucked.

So this is how my day was. Nothing interesting. Except for the fall down a few steps. OUCH!

PTSD and of course CES

by Midnight Demon, posted in blogging, chronic physical pain

I took a break from writing today. I got overwhelmed with my book and decided today I was just going to do nothing about it. Actually, other than eating, I haven’t done anything today. It was icy today so I didn’t want to venture out. I texted my therapist last night and just about a half hour ago to try and get her to call me. I am feeling stressed out about the flashbacks I have been feeling since my writing yesterday. The pain in my ankle and it going to sleep on me hasn’t helped. When I first was diagnosed with Cauda Equina, that was the first symptoms. I had numbness in my leg from midshin down to my toes. And OH MY GOD the pain I felt if I put any pressure or weight on my leg if I tried to walk on it. I had forgotten these details until I wrote that stupid introductory paragraph.

I am kind of pissed off that my therapist hasn’t responded to my text. Usually she writes back if something will open up. I hope that she will call me. I just need her reassurance that I am not losing it. This book is taking a lot out of me than I ever dreamed about because it is so personal. I know I have posted a few blogs that dealt with the details of my injury, the bowel and bladder problems, etc. I am in chronic PTSD model anyways and throw in a lousy couple of memories and BOOM, Flashback City! I know I am seeing her tomorrow. But it would be nice to talk to her after the long weekend away from her I had. And we didn’t have a chance to talk on Thursday.

I have been sleeping on and off most of the day. It’s been too cold to leave the comfort of my bed, except for eating. I didn’t even make myself a cup of tea. I might make a cup later. I just feel so cold and my ankle isn’t helping because it is cold all the time. Like now. I swear I just want to amputate the thing so I can go on living a somewhat better life. Granted I would need a prosthetic but at least I won’t have pain. Or if I do, I will know the reason for it. My ankle hurts for no reason and it is all because of nerve damage. I don’t know if it is new or old. My neurologist doesn’t think getting an EMG will be useful at this point. I have to agree. There is no way to tease out the old from the new.