Tag: chronic illness

restless depressive state

by Midnight Demon, posted in cauda equina syndrome, depression

Had a long morning. My father’s doctor was at least forty minutes late, per usual. I am glad I canceled my appointment with my therapist. There would be no way to talk to her.

I then visited a dear friend who is in the hospital fighting cancer and an infection. She had surgery to remove the cancer and developed an infection. She looked very drained. I feel really bad for her. This is the second time she has developed cancer. I hope that it was caught in time. I don’t want to lose my friend.

I have been in a restless depressive state all day. But now it quickly turned into a moody state because I crapped myself. I should have gone to the bathroom before leaving the hospital but thought I could make it home in time. I really don’t like taking a crap outside of my house. I like having my supplies handy. I know I should carry them with me but 9 out of 10 times I never have to do a number two so why bother. I just feel so humiliated. I would have been fine if I didn’t stop to check the mail. It was two minutes, too long. I am such an idiot.

I texted my therapist about being an idiot. I don’t have another session with her till Thursday. I wish I was having one tomorrow. But I had to cancel my time because my father had another doctor appointment tomorrow. Oh the joys of spending all this time waiting in doctors offices. I wish these docs ran on time but they never do. I don’t know any doc that runs on time. Even my own!

I didn’t take the mood stabilizer today. But I think taking it is helping my pain. Since taking it, I have noticed a marked decrease in my nerve pain and general pain as I have been using my pain medication less. I don’t know about today though because I did a lot of walking in my AFO getting around the hospital. Hopefully I won’t be in too much agony later tonight.

I hope that I don’t have excruciating pain tonight. It will not bode well with my mood and might put in a suicidal state of mind. I hate being restless. I am going to try and read after I finish this blog. Maybe that will calm down some of the restlessness. I certainly can’t sleep and I don’t want to take an Ativan unless I absolutely need it. I just wish my dignity was intact today. Not to say the day was going well but the crapping my pants just made everything worse. Made me feel like I was a little kid again, and not in a good way. I just feel so terrible. I know rationally it wasn’t my fault, it was stupid nerve damage that caused it. But I still feel like I should have controlled myself some way, even though I can’t anymore. I thought with being constipated I was safe but I guess not. It really is hard to gauge your bowels when you have nerve damage to them. I really don’t know if I am being too harsh with myself or not. As a grown up, you think you should be able to control yourself and when that gets damaged, you just feel awful. I know I am lucky that my damage is minimal as I still have some control. Others have lost theirs entirely. But after dealing with this loss for 13 yrs now, it’s just sucks when you have an accident, plain and simple. And the worst part is that other than my therapist, there is no one I can talk to about it. It’s not like I can tell my sister or a friend. A CES friend would be the only other person to understand. But I am tired of just going on the group site to say that I had an accident and feel terrible when I know most of them have accidents everyday and I don’t. Doesn’t make it easier to deal with and it is so isolating.

beyond Exasperated

by Midnight Demon, posted in chronic physical pain, depression

Had an early morning today because my father had a doc appointment. It went ok, though my father had no clue what was going on and didn’t understand what the doc was saying. I had to explain it to him in smaller words.

While I was at the doc’s office, I had to use the bathroom. I found out, much to my dismay, that I sharted. Now I am in a very dark mood. I came home, washed up, and while making my way to my room, my ankle exploded. So in addition to losing my dignity, I am now in wicked bad physical pain. I took some pain medication and am calling it a day.

I wrote my therapist a letter that I had hoped to mail today but forget it now. I wrote her an excerpt of the blog I wrote last night. I felt she had the right to know what I wrote. I also added some things to it. I also texted her to try and have her call me. I really need to talk to her because I don’t think I can be ok till our next appointed time. I don’t know if she will call me or not. Some times she is able to and others she is not. I really am hoping someone cancels one of her appointments and I am able to get their time. A session would help me today. I could call my psych but I know she will just tell me to go to the ER and I don’t want to go. Besides, I don’t have a car and with my ankle the way it is, I can’t walk there. I just feel stuck.

Since the shart episode, I feel like I can’t trust myself. I am afraid to do anything that will cause my bowels to move. I hate feeling like an asshole. I know it isn’t my fault but the hardest part of dealing with CES is losing the ability to trust your own body. It’s gone and there is nothing I can do to get it back. The sensitive nerves are damaged and there is no getting these nerves back. I can’t feel myself and haven’t for the past eight years now. It’s the little things like this that bother me the most. And what is worse, is that I have no control over it when it happens. There are no warning signs. Just soiled underwear and skid marks. Luckily today I was wearing a feminine product because of my menses so my underwear didn’t get soiled. And that is the other thing that is frustrating me. That I am having to use feminine products because of my menses. I am beyond exasperated. I should not have to wear them but what choice do I have? It’s either that or really soil my underwear. I am just so frustrated by this. And no one understands, except another CES sufferer.

Why am I dealing with this? I should just be dead. To me that is the answer that I am looking for. I am tired of constantly dealing with a body that isn’t working anymore. I am tired of dealing with depression that makes my soul dark, that sucks the energy out of me. And that also goes for my body excretions as well. You have no idea how tiring it is to have a bowel movement sometimes. I feel like I am in labor. I sometimes am so weak afterwards that I need to rest. All because I can no move my movements because of the nerve damage. I literally have to push and push to get it all out. It is a very tiring process. And if this grosses you out, well, I am sorry. Every time this happens I want to kill myself. I just don’t think I can go on living this way. It’s just too much for me to bear. I am past my breaking point, well past it! I am so far from the edge that I still haven’t realized I am on standing on nothing. Yet gravity hasn’t knocked me down yet to kill me. Or maybe I am just falling in slow motion. I refuse to grab on to anything that might save me. I just am not good enough to go living anymore.

Pink Rectangular Pill

by Midnight Demon, posted in blogging, depression

It begins with the shakes. The creepy crawly feeling that you hate. You are not shaking but it feels like you are. All the side effects of the one pill that keeps you sane. Small price to pay for if I miss a dose or don’t take it, I end up in the hospital because the psychosis strikes with a vengeance. The voices have gotten worse as I get older. Luckily, there is something I can take to stop the quivering and restlessness that I feel. But I have to wait till it takes effect thirty or so minutes after I take it. Thirty minutes is a long time when you are feeling like you are crawling in your skin. It drives you crazy. Sad part is that I am not even tired despite today being a long day for me. I watched a movie for the first time in months and actually had the attention span to watch it beginning to end.

The small pink rectangular pill. That is all that makes me sane and crazy at the same time. And it sucks being like this, this crawling in your skin type of feeling. I rather deal with the elastic ball type of feeling where I am being stretched out. That is more tolerable. But I can’t pick which side effect I want. I rather have none but, like I said, it’s a small price to pay. And as long as this isn’t permanent, I am good. I think tonight it started when I noticed the increased in saliva production. I have been drooling a little bit for a while but it stopped too, for a bit. This is the stuff I go through that no one really knows about except for my therapist and psychiatrist. No one else really understands when I say I feel like a rubber ball being stretched out. That I feel like I can’t stand being in my own skin. I have not felt this way in sometime. But then I also have been lax in taking my other white pill to counter act these side effects. I only take them when I need them so if I am not having side effects or feeling symptoms of PTSD, I don’t take it. My doctor trusts me with this judgment. She is not a pill pusher like some docs are. We have a good relationship.

When I feel this way, I can’t help but think bad thoughts. Thoughts that are self destructive. Thoughts of how I wish to be dead. Thoughts that if I only had killed myself before now I wouldn’t be going through this. I still don’t know what my purpose is in my life. It’s not like I am an aspiring country singer. I just am struggling with mental illness. And that is a battle I don’t wish upon no one. It is difficult dealing with these thoughts and feelings when you feel so crummy. It makes the world seem dark and gray. But then my world is dark and gray even on a bright sunny day. It’s hard to see anything else when you have a black cloud trailing you all the time. But that is what depression is. Only dark gray skies can be seen. And within this darkness there is no hope. That is the toughest part of this illness is feeling hopeless all the time. You try not to let it get to you but it sinks into your veins and you have no choice but to accept that things are never going to change. Sure you might be happy that one day but it never lasts. Too bad that pink pill can’t help with that.

rambling 63

by Midnight Demon, posted in depression

I didn’t think I would write today. I am kind of not really in a writing mood. My writing mojo has ceased to be and I am kind of depressed about it. I posted a status about losing my writing frenzy and a person liked it. I hate the like button as it truly doesn’t reflect things. Does the person really like that I can’t write anymore? Or are they just showing support somehow through, “liking” a status. Same can be said of the blogs. How many of us have just scrolled through the reader and just hit “like” because the first few sentences were enticing. I have one blog that I follow that is just of clouds. I like this blog because some times the patterns are pretty and amazing. Other times they are not. I don’t scroll through the reader every day like I used to. Not too many of the blogs that I follow post every day so I check it every few days.

My football team lost tonight. It was a sad loss. I don’t think my team is ever going to make it to the SuperBowl again.

Tomorrow I am heading out to see my optometrist because I want his opinion on my eye situation. My psychiatrist wants me to see an ophthalmologist but I don’t have an appointment until May and I am hoping that seeing him might bring up the appointment. I think I can wait but the intervals of my eyes not focusing are getting more frequent than they were before. Either that, or I am just becoming more tired everyday. Funny how you take your eyesight for granted until something happens to it. I am not saying I am losing my eyesight but if I have to rest my eyes more because of the increased use of the computer, this is going to suck. I get anxious when I can’t read or use the computer and everything is blurry. It doesn’t happen all the time. It is worse in the morning and evening than it is during the day. I just hope when I see my eye doctor, his office doesn’t expect a copayment as I don’t have it. I hate copayments. I think they are just a nuisance.

I have been sleeping for the past few hours or so. I got really tired after the game. I hope I can go back to sleep for the night. I think I will be able to. I just took my night time meds and soon will take my pain meds as my ankle is more painful than I can stand. I don’t know why that is. I haven’t done anything at all today except watch TV. I was trying to get caught up on Major Crimes and failed short of doing that because of the game. Jeri Ryan from Voyager (Star Trek) is playing the defense attorney and she is a bitch! Love seeing her again, even if it is a bitchy role. She is one hot ticket.

Tomorrow I will need to shower and brush my teeth. Yes, these two things have to be the priority of the day. Just hope that I don’t gag when I brush. I still have to call the dentist. I am so dreading seeing them because I know I will be reprimanded for failing my dental hygiene activities. I don’t know when I stopped caring about brushing. It has been years since I have brushed consistently. I don’t mean to write this to be gross just as an observation as those suffering depression often neglect these things, depending on the severity of depression. Course my reasons for stopping to brush have more to do with nausea and gagging than for depression itself. I would always throw up while brushing in the morning so I stopped one day and really haven’t gone back to it. I will if I am not nauseous and can “get away with it” so to speak. It all has to do with timing. I got to make sure my stomach is empty or half full so I don’t throw up all its contents. So because of this, I have stopped brushing.