Category: blogging

With thy mighty pen, I slay thee

by Midnight Demon, posted in blogging, mood disorders, suicide

With thy mighty pen I slay thee

This is what I feel like right now, that someone has slayed me and I don’t know why. Just no reason. No explanation. I am just gone from a website.

I just finished looking at my introduction to my book. It says all that it needs to say and more. I hope my book becomes more noticeable than that website, though I doubt it. It further ingrates in me that I am insignificant in this world. That I don’t matter. My feelings don’t matter and obviously, my words don’t matter.

But what does matter is my book. It will be great, I hope. And maybe it will be listed on the other website but I don’t think I want it to be. I am too hurt right now to think of going that far. It will be listed on other, better websites.

If I had any gall, I wouldn’t wait till March to put this book out there. I think this book is good even with the editing that I have done but the ending is weak. It needs some thing good. I am working on it. I hope that my depression goes away for a day so I can write something hopeful and meaningful. I have miles to go before I sleep, isn’t that how the saying goes?

book is done! And other stuff

by Midnight Demon, posted in blogging, chronic physical pain, suicide

Book is completed. I finished it up today, sort of. I still don’t have a solid beginning or ending but the bulk of the book is done. Now I just have to wait for the editor to put me in her queue, make some changes and boom, I will be ready for publishing. I feel like a huge weight has been lifted off my chest and now I can open and read my reward!

I even got the acknowledgement of one of the consultants so I need to add his name or maybe just leave it as treatment team. He is apart of that.

I am so excited about this. I could if I really wanted to, publish it today, but I want a few people to read it first and give me their feedback before I proceed. I also want to print it out so I know what it looks like. Right now I know it is 160 pages but after formatting I think it will be double that. I was looking at some other publishing sites and they wanted as much as $9K for self-publishing! I couldn’t believe it! You got a lot of stuff for that price but still, that is still a substantial amount of money to put into a book. But I guess if you want it to do well, you might as well put the money into it. Unfortunately, I don’t have 9K so I will just publish for free and hope that it does well.

I am kind of scared that I am getting closer to the end product. All my doubts and fears are there. I know when it comes down to the last page of writing and hitting send, I am going to take a long hard look at that click button.

My side effects seem to be ok today. I didn’t take my dose last night because I didn’t want to be an elastic ball today. I paged my pdoc to talk to her. Just in case those feelings come back, but she hasn’t returned the page. I also sent her an email so she knows that I am paging her. Sometimes I don’t have the luck of sending pages through. Symptoms for the past few days have started around 4 pm and so far I don’t have any other than the soreness of the past few days. I hope I can take my dose tonight or that my pdoc doesn’t want me to lower the dose. I am so afraid of the voices coming back but I also don’t want to be an elastic ball being stretched and have restless limbs where I have to keep moving them.

I had a therapy appointment today. I also got snuck into one tomorrow. I don’t know how that happened. But the 17th is still off the table, as far as I know. I just need that day off away from my therapist as it is going to be a hard day. And I don’t want her to know why. I will just keep this to myself this time. I am not going to share it with my blog because it just seems too personal. I hope that you will let me keep my privacy. If I do write about, the blog will be a protected blog and the password will be midnight.

PTSD and of course CES

by Midnight Demon, posted in blogging, chronic physical pain

I took a break from writing today. I got overwhelmed with my book and decided today I was just going to do nothing about it. Actually, other than eating, I haven’t done anything today. It was icy today so I didn’t want to venture out. I texted my therapist last night and just about a half hour ago to try and get her to call me. I am feeling stressed out about the flashbacks I have been feeling since my writing yesterday. The pain in my ankle and it going to sleep on me hasn’t helped. When I first was diagnosed with Cauda Equina, that was the first symptoms. I had numbness in my leg from midshin down to my toes. And OH MY GOD the pain I felt if I put any pressure or weight on my leg if I tried to walk on it. I had forgotten these details until I wrote that stupid introductory paragraph.

I am kind of pissed off that my therapist hasn’t responded to my text. Usually she writes back if something will open up. I hope that she will call me. I just need her reassurance that I am not losing it. This book is taking a lot out of me than I ever dreamed about because it is so personal. I know I have posted a few blogs that dealt with the details of my injury, the bowel and bladder problems, etc. I am in chronic PTSD model anyways and throw in a lousy couple of memories and BOOM, Flashback City! I know I am seeing her tomorrow. But it would be nice to talk to her after the long weekend away from her I had. And we didn’t have a chance to talk on Thursday.

I have been sleeping on and off most of the day. It’s been too cold to leave the comfort of my bed, except for eating. I didn’t even make myself a cup of tea. I might make a cup later. I just feel so cold and my ankle isn’t helping because it is cold all the time. Like now. I swear I just want to amputate the thing so I can go on living a somewhat better life. Granted I would need a prosthetic but at least I won’t have pain. Or if I do, I will know the reason for it. My ankle hurts for no reason and it is all because of nerve damage. I don’t know if it is new or old. My neurologist doesn’t think getting an EMG will be useful at this point. I have to agree. There is no way to tease out the old from the new.

a loss you can’t recover from

by Midnight Demon, posted in blogging, chronic physical pain, mood disorders

I got a lot done today, thanks to my mother waking me up before nine this morning. I finished my editing and worked on my introduction. I also helped her put up the Christmas tree. My sister is going to help her put the lights on later because I suck at that.

I am getting a little worried about how my intro is going. I started writing about my illnesses and then starting talking about my CES injury and where I was at with that. Then I felt like it was TMI for the intro. It also was filling me up with grief so I had to take a break. I then emailed my support group and asked if that was ok to put. I just don’t know how much of the CES I want to put out there. I know I should probably put it in one of the chapters that does deal with CES. Maybe I will write it out and then cut and paste it there as sort of where I am today section.

I got pretty overwhelmed with emotion and PTSD symptoms. I just couldn’t handle the anxiety of what I was writing. And I couldn’t believe what my life has been reduced to. It is a loss that I can’t recover from and I don’t know if I ever will recover from. That what sucks with CES. You might recover but it takes months or years even. As far as my ankle goes, I don’t think there will ever be a recovery. I don’t know if it will get worse, only time will tell. Until then I just try not to use it as much as possible because it gets angry when I use it. I know it shouldn’t do this. You should be able to use your ankle the way you are supposed to at anytime. But for some reason with my left ankle, the more I use it, the more pain I get from it. Like today, I went up and down the stairs I don’t know how many times. I went to my sister’s apartment on the first floor for coffee, then went back up to my room. After I finished my coffee I went downstairs to rinse the cup off. Then went back up to my room. I did this repeatedly most of the day today. My sister needed some help cooking some chicken wings so I had to go back to her apartment (she lives on the first floor while I live on the second). I must have made at least a half dozen trips. And I know come eight o’clock tonight or soon after I am going to be hit with pain. I sort of prepared this time. I took some pain meds a little while ago to prevent pain from happening. Sometimes this works and I hope this time it does. I don’t want pain that I had last night. I had zaps going through my toes that were wicked painful.

I still am tempted to call my therapist tomorrow to chat. I just have been going through a lot of pain that is driving me whacky the past few days. I don’t feel like doing anything, other than cutting my ankle off. But I don’t have any big power tools to get the job done. I told my sister I want a chainsaw for Christmas, but I don’t think she took me seriously. I often wonder if I could really do such a thing. I know it will make a mess. All I keep picturing is the scene from Scarface when the guy dismembers the other guy with a chainsaw in the bathroom of the motel room. Not a pretty picture.