Tag: cauda equina syndrome

Sun Downing

by Midnight Demon, posted in bipolar, chronic physical pain, depression, mood disorders, suicidality

Had a rough time last night. Thoughts were so hopeless and I was filled with despair. I tried tweeting my thoughts but I couldn’t form words to my pain. It was agonizing not being able to express myself. I wanted to read something about suicide that would help me realize that life was worth living but I was paralyzed with fear that if I read something negative, it might push me over the edge on I was on. I was trying to find “suicidal mind” to ease my psychache but I had no idea where to look. Today I know where to look and after I write this blog, I am searching for it. I think it is in my Psychache binder folder. I hope so anyways. If I don’t find it, I will buy another copy when I get paid in two weeks. I texted my therapist to call me if she has a chance. I need her calming voice that things are going to be okay.

I don’t know how things went south. I think it was the sun downing experience I get when I am deeply depressed. My mood gets worse when the sun sets, but unfortunately, the sun had already set when my mood shifted. Usually after 8 pm (2000), my mood goes south, more so this time of the year than at any other time. It usually starts the end of September and ends any where the middle of February to the middle of March. It is when my suicidal thoughts are at their worst. There has been documentation about this in bipolar people. Kay Redfield Jamison’s book, Night falls Fast, I think states that is the worst time of year for bipolars to commit suicide. If it isn’t that book, it is the book “Touched with Fire”. Both are very good books and I think are in my Useful Books page.

Right now I am starting to feel sad. I have been listening to a variety of music on my phone to get me out of this funk I am in but it’s not helping me. They say when you are depressed you analyze lyrics more than words to the song. Or something like that. And I have been doing that. If I could have YouTube on repeat for Carrie Underwood’s song “Something in the Water”, I would. I find this song uplifting. It’s on my music to buy list, which is getting longer each month. I hate not being able to buy music when I want to. When I was working, this wasn’t a problem but being on a fixed income, you learn to budget. And you allow certain funds to go towards entertainment. Usually I get a few songs a month but Carrie just came out with her first Greatest Hits CD and I want it! It has all my favorite Carrie songs, and a few I don’t know. The new song, Something in the water is on this CD collection. I just can’t decide if I want the physical CD or the MP3 version. I have a few weeks to think about it. Until then, YouTube is playing my song, even if I have to hit play a few times.

My little niece called me to pick her up but after my doctor’s appointment today, I need to rest my ankle. I have to pick her up tomorrow and if I do too much today, I will be toast. My ankle is starting to throb so I really shouldn’t tax it. She will just have to wait until her mother picks her up when she gets out of work. I feel bad and it only worsens my depression because I can’t do things like I used to. It still amazes me that I was able to work 2 jobs while in horrible pain and now can’t even work one. Course, I passed my breaking point when I had to wear an AFO. I just wished I had chosen the research job over the clinical job. Working 20 hours would have been a severe pay cut but at least I still would have a job and maybe be able to finish school finally.

Throbbing is moving into my foot. I fucking hate when that happens. I won’t be able to go down the stairs, or up, over the next few hours. Least until my pain medication kicks in. Doc I saw today has me on a new NSAID (non-steriodal anti-inflammatory drug) called Mobic (meloxicam). I need to start it tomorrow because I took my last dose of another NSAID last night and you can’t take the two together. I hope it works better than what I am taking now. I hope it helps my arthritis in my hands and that it doesn’t cause GI upset. I left a message with the doc as to when is best to take it. I usually take all my meds at night but I don’t know if that is best or not for this new med. I just hope it helps me and doesn’t cause me any side effects.

Promoting is hard work

by Midnight Demon, posted in blogging, chronic physical pain, depression

I remember this time last year, I was filled with anxiety about my book. I had done all I could do with the editing piece before my editor would actually read it. I had to wait almost four months before she would work on it and the waiting was filling me with doubts. This year, I am working hard on “selling” my book. It hasn’t been easy as I have no idea how to promote. I don’t have nor can afford an agent. I tried in September to get one and got no response. It has been a hard few months just selling two copies of my book a month, either via Kindle or paperback. Last month I had a promotion and sold 3 books on Kindle. It was the most I have sold since my book came out. In total, I think I have sold something like 70 books between the two formats. My goal was to reach 100 copies sold by year’s end. I still have a few months to go and I hope that it comes easily. I am hashtagging the crap out of it on Twitter, the only social media that I know of. I also use my blog but it doesn’t get more than twenty views a day and most of the time, it is not on the blog link. Even if people read my book page, they don’t click on the link to get it. It is very frustrating. I am glad I have other income or I would be screwed.

My physical therapy appointment got cancelled early this morning. They called before eight to say that my therapist was sick! Talk about courtesy. So I went to Starbucks even though it killed my back. I really wanted to work on a new blog for CAMS/SSF. I got overwhelmed with the first chapter alone so only wrote so much. It’s a lot of information and I know that I will be writing at least 1500 words for this. I want to make it count as there are at least 5 therapists that follow my blog and Twitter account. So I want to write a good blog. I know my perfectionism is what is getting in the way.

I have decided that in the new year, I am getting 90 day supply of my medication because dishing out $70 for 1 month supply every month is getting to me. Hopefully my doc will allow it. I know that my pain meds and Ativan can’t be 90 day supply but that is just two of the twelve meds that I take. I have a new prescription carrier for the new year so hopefully it will actually save me money, in the end. I am spending more on my meds than groceries or food. Luckily, I got Starbucks money for Christmas and my birthday so I don’t have to dish out $25/mth for a while. I am glad my mother gave me cash for Christmas because I am short on getting my blood pressure med this month. There are some meds I can sacrifice, but I can’t do that with my blood pressure. Last thing I need is a stroke.

I really need to take a shower today. I leaked on the way home and I smell. Fucking hate when I leak and I don’t realize it until I go to the bathroom. On the other hand, I haven’t gone to do #2 in a few days so I am not looking forward to going. I took a laxative a couple of hours ago so I go sometime tonight I hope. Just another pill I have to take. And with me taking increased pain meds, I need to be regular. I can’t believe I was so stupid in forgetting to take the senna. But I have been playing the “what I feel like taking, I’m taking” game because I didn’t fill my pill box for the week. I filled it about an hour ago so I don’t have to play that game this week. Some how last night I forgot to take my hormone pill. I don’t even remember if I took my pills last night so it’s good I filled the box. I hope I don’t have my menses because I missed a pill. I will be so bullshit!

My mood kind of sucks today. It took me forever to get organized for the blog that I am writing. I should really call it a paper or review, as that is mostly what I am doing. I can’t believe that I haven’t written, in detail, about the SSF or CAMS before now. I tried to find it in my book but I just gave a brief overview of what they are. I want this paper to be more detailed. But it’s exhausting me because there is so much information, and Jobes had the same ideas that I did, though not exactly at the same time. He was able to come up with something brilliant and useful. I just am promoting his ideas. And promoting as I have learned with my book, is hard work!

Hip is on Fire

by Midnight Demon, posted in chronic physical pain, depression

Hip on fire

I woke up in pain again this morning. My hip just felt like it was on fire. I am so tired of being in pain every morning. Just when I think I am getting better, I take two steps back. I managed to get to the pharmacy to get my pain medication refilled. I desperately needed it as I took my last two this morning. Then it took forever for me to wake up. I planned on going soon as it opened at 10 am but I didn’t get out of bed until around 1330. I just couldn’t move. I also have been taking Ativan to calm down the damn spasms I have been having too. I just can’t win and I am tired of losing.

Tonight, I participated in the BPDChat on Twitter. I was using Tweetchat to participate but something was wrong with it as only my tweets were posting and no one else’s. I had to go to the main Twitter page to see everyone’s responses and comments. I should have just left and laid down and rest. I plan on doing that after I write this blog. I need to lie down. Sitting is getting almost impossible and despite taking pain meds, I am still hurting. I wish I could say that it is because I did X that caused this but I didn’t do anything. I didn’t lift anything. I just sneezed and threw my back out. Plus with this cough, I think I made things worse.

My mood sucks right now. I really am feeling like a piece of shit. I know my not sleeping right is also contributing to my sour mood. Tomorrow I have physical therapy and I don’t care if I don’t go. I really don’t feel like it. But I will go because it will get me out of the house. I just hope that I will be able to walk to get there. Lately, my hip/back has been giving me trouble walking. And going down the stairs is like I am tearing something. This really sucks.

I wrote my therapist a letter this morning. It was long as I was really tired and I was falling asleep as I was writing it. I just gave her a brief update to what was happening. I write her a letter every time she goes on vacation. Hopefully this time I will have it in the mail so she gets it when she is back in the office. I really miss her. I still don’t know when my pdoc is going to be back in the office. I hope it is soon. Guess I will find out after the holidays.

I really want to write a blog about the SSF and CAMS model. I realized that I don’t really talk in detail about them. I mention them in my blog but don’t go into great detail about them. I think it will be a good blog for therapists to have. And I have a few therapists that follow my blog.

I am really tired. Meds are working and I should be toast right now but I am fighting the fatigue like I always do. I have to take a shower sometime between now and tomorrow morning. I hate showering lately. But it’s something that has to happen. It just sucks when you are in pain with a bad back. Any standing motion just triggers more pain and spasms. It just really sucks. I should be getting better by now but for some reason, I am not. I don’t know why. It is really stressing me out. I am going to put a heating pad sticky on tonight to see if that helps. I figure it can’t hurt me. I would put my heating pad on but I really don’t want another thing on my bed. My bed is becoming more my office than a sleeping place. I have notepads, my laptop, journal, pens, a notebook, and a box of tissues. I also have my therapist’s card that I read to remind myself of what she said to me that means so much. I really value her words. I just wish they would sink in. But they don’t so, I have to keep reading them, if that makes sense. I can’t sit any longer so I am going to stop here.

Just Another Saturday

by Midnight Demon, posted in chronic physical pain, depression

Just Another Saturday

I didn’t think I was going to leave my bed today. My back pain was horrible. Even despite taking my pain meds, I was in agony. But once I started moving, I felt a little bit better. I got dressed without too much pain and trekked to my father’s to do his medication for the week. Seems I am the only one that knows how to do it. He drove me crazy today. I still have a cough and he wanted me to take some “aspirins” (which were really Tylenol). I told him I didn’t need them as I wasn’t running a fever or feeling sick. He is a dumb bastard when it comes to illnesses. I really started getting pissed off when he got the bottle and kept shaking them in my face. God, he is so fucking annoying. I can’t take them because I already took the pills before leaving my house. Last thing I need is a damn Tylenol overdose.

I finally left after an hour when my sister was done with his laundry. When I came home, I ordered Chinese food as I was starving and played my game. I am really getting annoyed with my players. They are so whiny. They bitch about not getting stuff, or the have to tell their whereabouts all the time as to why they can’t play the game. Who gives a fuck! We all need stuff for this game that needs 100 things for one mission. We all are struggling to keep up and not get behind. I have decided that if one more person complains about not getting stuff, I am going to block them. I am so tired of hearing it. It’s one thing to get frustrated with the game and “legit” complain, it is quite another to constantly complain you aren’t getting your crops. If you get 20, be grateful you got the 20, and shut up about it. Request it tomorrow so you can get another 20. The game only allows so much giving anyways, which makes it so difficult to get the stuff we need. So if you have 100 neighbors, you are lucky to get half that amount a day. I know not every neighbor returns the favor but that is their problem. Karma will get them.

I still am having a bad back and I don’t like it. I don’t know why it has gotten worse the last couple of days. The weather has been fair, no rain or really cold weather. It has been quite warm so I have been wearing shorts around the house because my mother refuses to turn down the heat. Going out to my father’s really exhausted me. It’s so damn hard doing things when you are in severe pain. I have been fighting the urge to go take a nap since finishing my dinner. I just want to lie down and sleep but I know that if I do, I will be up sometime in the wee hours of the morning and then my sleep cycle will get fucked. It’s bad enough that I am waking up between 0345 and 0445 every morning in pain. I don’t know how, but I have been waking up on my back instead of on my side and my back doesn’t like it one bit. And then to turn over, OMG. It is just torture. I still don’t understand why I am in so much pain. Doc says it’s just a pulled muscle. Great. I want to be better NOW. I can’t take being in pain every damn day. It just drives the suicide demons. And the last thing I want is another dumb hospitalization. Because face it, they don’t help you with dealing with stuff. I wish I could say that they help give you skills to deal with your physical illness but they don’t. They just give you stupid coping skills dealing with your mental stuff, if you can decipher it from the papers they give you. And most of the work is based on YOU doing the work. When you are already passed your limits, it is extremely difficult to work on you. You just want to rest. Like I do, right now. But I keep this blog going because it keeps me going. I really wasn’t going to write a blog today. I just wanted to shut the light off and go under the covers to sleep.

Sometime in the next week, I have to go to the post office and get some Wilt Chamberlain stamps. I had asked my sister to get them for me for either my birthday or Christmas and she didn’t comply. She thought it was dumb to give stamps. Whatever. I will get them either way.