Tag: chronic pain

second blog of the day 15-May-13

by Midnight Demon, posted in CES, Chronic pain, chronic physical pain

Second blog of the day:

Normally I would be sleeping by now as it is after midnight but no such luck. This is the second night in a row that I have been up because of pain. I just took a ton of meds and hope that it knocks me out soon. I am tired of being in pain for the past 72 hours. My ankle has flared up on me tonight and I don’t know why. That pain calmed down and now I am dealing with nerve pain. I feel like my foot is in a vise and my toes are killing me.

And I don’t know if because I have been hunched over on the computer for so long, my stomach hurts. I can’t seem to “straighten” out to make it stop hurting. Lying down only makes it worse.

I just wrote a journal entry about my plan. I am no longer depressed, just suicidal. There is a difference and me being this way is a little more dangerous. Because I just don’t fucking care anymore. They say pain changes you, well mine has. I have been in constant pain and there is nothing to do but stop it. Yet the meds I take have to go through the voices in my head to justify taking the meds. I know it sounds silly as I am just fight with myself about it. The voices know that I am in pain but yet they hope that I overdose on my meds. That is why I have to be careful. If pushed by them too much I might give in and take a handful of meds that I really didn’t mean to. I just hope I fall asleep soon. I hate being like this. I can’t say that I am a happy person because I am not. I might appear to be to other people but it is just a façade. I have to make the appearance that I am ok even though I am not.

My therapist wants me to make the trip out to Framingham to see her. She says we need the connection. I just think that she wants to keep me in her office so she can keep an eye on me. But I don’t want to drive out there. I know it has been a while and I really should go but I just don’t feel like it because it just takes sooo many spoons to go. I have to shower, get dressed then take a bus to my sister’s work, walk three blocks to my sister’s work all for a fifty minute appointment? It takes more than that just to get my sister’s car!! And the drive can be anywhere from 45 mins to an hour and a half, both ways. Just doesn’t seem like a good idea given my pain cycle at the moment. I do miss seeing her and my teddy bear Johnny. He is a HUGE bear that I got when I was in the hospital when I was first diagnosed with CES, Cauda Equina Syndrome. That was 12 years ago. And then I got two little bearista bears that I got from Starbucks, Bucky and Amelia. I didn’t want Bucky to be alone so I got Amelia for him. They stay with my therapist, mostly to comfort her while I am gone. Hehehehe. Ok pain meds slightly kicking in now.

I was twittering with the Prez of the AAS (American Association of Suicidology) tonight about how the words suicidology and suicidality are not words Microsoft word recognizes. So he sent a twitter message to Bill Gates. I hope that he makes some noise because suicide is the 10th leading cause of death in the US. I will be part of these statistics soon. That is all that I am, a statistic. I am nothing more than that to the world. I cannot believe that I am going to kill myself soon. And I am happy about it. I know that my pain will end. Thing is, though I have a date and all, I don’t have a plan. And that is troubling me because how can I kill myself if I don’t have a plan. I have a few ways I can do it, nothing that I will blog about because I don’t want to trigger any one or give someone the idea of how to do it.

I could experiment with some things but I just don’t have the energy for it. Besides, if I experiment and succeed too early then people are not going to be ready for my death. I just realized that I have to write letters to people to explain why I am doing what I am doing. I don’t want there to be a “why”. I know that there will be but I want to lessen it. I also know that there will be some questions about why didn’t my treaters to enough for me, but that simply is not true. They have tried to help me but I am just too hopeless for them. There is no medicine that can help me. And talk therapy has helped me stay alive for this amount of time but I am tired of talking. I am also tired of being in pain all the time. And the talking only helps when I see my therapist or blog/write about it. And I know to some I must sound like a whine bag or something because all I talk about is my physical pain of my ankle that no one can help take away.

Unless I hit the lottery or they find a cure for nerve damage I am stuck in pain and debt. Both of which hurt me very deeply. I just can’t ever get ahead with my debt because of I am no longer working anymore. I can’t even order out for food anymore. I know that sounds like a whine but I like ordering Chinese once in a while. And now I can no longer do that. I like ordering pizza and subs. Can’t do that anymore. I am not a good cook so I just have what my mother makes which isn’t the healthiest of choices because she likes to fry everything. Even vegetables. She will make say asparagus and then she will fry them the next day. Don’t get me wrong, they are good, but they aren’t healthy.

I have been trying to stick with the Special K diet in which you eat two bowls of cereal for breakfast and lunch and then have a sensible dinner. That is a fail. My stomach has been messed up since my bowels have been backed up for a week that I can’t think about eating and when I do, it is not for a bowl of cereal. And that is another reason why I hate myself, because it hurts so much to go to the bathroom. For the past few months I have been having nerve pain in my anus and rectal areas. Sometimes sitting is so painful I just want to scream. And there is nothing really I can take that makes it better. Vicoden barely touches the pain, if at all. I can’t go through life like this. No more, I have had enough.

why should I live again?

by Midnight Demon, posted in chronic physical pain, mood disorders, suicide, suicide attempt, writing

Bus saga continues

Today I get on the bus and of course it’s the same lady with the 3 wheeled stoller that was talking shit about disability. This time she was the rude was one as she was blocking the damn isle with the fucking stroller. People couldn’t get by without doing cartwheels. How fucking rude. Then a man who is slightly mentally disabled comes on and spills his coffee on the passenger next to him who was helping him trying to open it. I see this guy on the same bus. I am just going to wait for the next bus. I can’t stand this idiot. He is rude and belligerent. Always calls the bus driver an asshole. But he is never the problem. Everyone else is.

Talked with my therapist today. She got my letters and my CAMS paper. She gets it so I guess I have not lost my knack of telling things in simple terms. But I still feel like I have. We also talked about my upcoming plan to kill myself. She was trying to get me to see that I have something to live for but I told her, I just don’t care anymore. If I don’t try this time I will feel like the biggest loser in world. I have to do this. I am determined to do this. Nothing can really change my mind. She wants me to see her. She feels that maybe if we have a session face to face it will bring some connection back. Now I got to plan this out as I just can’t take my sister’s car whenever I want it. I mean I could if she is working and not using it but sometimes she takes her husband’s new truck and I just don’t feel comfortable driving it. I have yet to drive this vehicle. I don’t know why. I want to drive an F150 and if I can’t drive a Jeep, why bother with the F150 truck?

I feel that I am getting in the blinders and constriction of my suicidal thinking mode. It’s starting to become everything I thinking of. But I can’t kill myself now. I have to wait. I don’t know what I am truly waiting for but I know that I just can’t do it now. I don’t have true will power to do it. But it is starting to be on my mind more frequently than I like. I often wonder what the questions would be if I called the suicide hotline. I know they would assess my risk and then tell me to call back later if I felt I was in greater danger. I can’t stand that.

I just read some thing by my twitter friend @unsuicide. She just posted something about hopekits and such. I have been thinking about making one but I think why bother. It might help in the interim but I don’t think it will help in the long term. My suicidality is just too great.

I have been thinking about writing the paper about April and suicide risk but I would have to dig into the statistics and such. I actually forgot what the numbers were. I knew them at one point. My brain has just turned to mush. All it can think about is other stuff about suicide prevention but yet I can’t take it. I feel like such a hypocrite. Here I am saying what to do when someone is suicidal yet here I am suicidal and I don’t do any of that stuff. It’s not that I don’t do it because it is bullshit. I just don’t think it applies to me. I have been there many times. I have had too many hospitalizations that were worthless and made me more frustrated than before I entered. The whole system is backwards. I can’t stand it. And because I don’t have a degree I can’t change it or try to. And it’s my fault I don’t have a degree. I can’t blame anyone else. If I was smarter and less prone to mental breakdowns I would have had my degree by now, or at least closer to it. But no. I get the fuck its and my life is now over. There is no stopping me unless I win the lottery or something major shifts in my life, like they find a cure for CRPS, Complex Regional Pain Syndrome. I just tell my doc that the vicoden works for me but in reality it doesn’t really do much anymore. It takes some of the pain away but it comes back when it wears off. I had evidence of that last night. I took two vicoden with my night time meds and then got my second wind around midnight. By then, the pain meds wore off and I needed to take some more around two in the morning because I just couldn’t take it anymore. I can tolerate pain but when it becomes more than a 7 on a scale of 1-10, I have to take something before it gets out of control. Right now I am ok. But it’s day time. Pain won’t start until around 7 O’clock pm. And it is like this EVERY SINGLE NIGHT. So why should I live again?

exhausted

by Midnight Demon, posted in Chronic pain

I took the day off writing yesterday because I just felt really tired. I slept most of the day. I would have slept today but today was mother’s day and I couldn’t. I feel like I could just drop.

Pain in my foot started early yesterday morning and still continued. I have had no relief, except when I am sleeping. I don’t have anything to do tomorrow so I plan on sleeping tomorrow.

I don’t know why I am so exhausted. I tried making a cake today and it floundered. I was kind of upset by it. It was still good just didn’t come out the way that I was hoping it to.

not all disabilities are visible

by Midnight Demon, posted in chronic physical pain

I was coming home from Davis, riding on the bus and these two women were saying how young people (aka me) doesn’t have respect for disability or older people anymore. UM, hello. I was sitting in the disabled seat because I AM disable you fucking idiots. Just because you might not see it doesn’t mean I don’t have it. It got me really upset and if I had my cane I would have bopped them off the head. It kills me when I can’t give up my seat on the bus like I used to because it hurts me to stand and plus, the current bus driver was speeding and stopping short at every stop. I would have hurt myself if I had to stand. So excuse me if I chose to sit.

I already was in a bad mood. I only got six hours of sleep and had to get out to get my coffee because Isla Flores was calling my name. I just had to get out of the house today, even though it ended up down pouring rain at times. I had to get out anyways because I had to pick up my prescription.

I wrote another nasty letter to my therapist in the wee hours of the morning, basically telling her that I am going to die and there is nothing you can do about it. I thought of writing out the letter as a blog so people can see where my mind goes at night but it is too frightening to go back there. I wrote a lot of morbid thoughts trying to defend my decision to kill myself because of my pain. I came close to revealing my plan or at least my date but I refrained.

I don’t know why I am in a rotten mood. It is spring. No more snow and winter storms. I should be semi-happy but I am not. I know part of it is because of the pain I deal with every day. But mostly it is because I am just an unhappy person. I have never felt contentment for more than a few weeks in my life and I have never felt no suicidal feelings at any point in my adult life. I have always felt like I should be dead or that I need to die. After almost thirty-eight years of this, I think that being in the ground six feet under is a welcome.