football and writing

Man, did I get my teams mixed up! I thought OSU were playing Illinois and Nebraska was playing, too. Turns out the right team is Nebraska. OSU is playing Indiana. Unfortunately, I can only watch one game (OSU) because Neb is on the BTN, a channel I don’t have. I am bummed. So I guess I will get updates from the game, again, via Twitter.

For the first time all week, I slept late today. I don’t know if I will make coffee as it’s almost 1500. I don’t like to drink coffee too late in the afternoon because it could keep me up. I want to go to the liquor store and get some wine. I think my mother is making pizza tonight so wine would be perfect.

Last night before bed, I started writing. I was really tired but a thought came into my head and I had to write it down. It was only a page and a half, so roughly maybe 400 words. I plan on writing more about it today. If I wasn’t so tired, I probably would have written more. But I am really excited something came to me last night and I wrote. I think it will go into my book if I can make it longer. I hand wrote it so it will be a little while before it’s in a word doc.

It’s really cold and damp today. I went to get the wine and it was pretty cold out. I had to wear my winter jacket. Now the walk and going up the stairs has made me very tired and out of breath. I don’t know why sometimes I can do this without a problem and other times, I am exhausted. My right (good) ankle is hurting me for some reason. Not really painful just sore. I hope the NSAID will take care of it. I had something to eat a little while ago so that should protect my stomach from this pill. It’s the only pill that I have to make sure I eat with or I could get stomach problems. And I don’t need that.

I keep looking at the calendar to see what day it is and I still have September up. Guess I will need to change that sometime today. I really wanted to change my sheets today but that isn’t happening. I have no energy left after going to the liquor store. I want to nap but the game is on now.

depression and delusions

Been reading my blogs from a year ago and found that I was very depressed. I didn’t want to be in treatment. I didn’t want to take my medication anymore. I just wanted to be left alone. I felt like I was a bother to my psychiatrist and my therapist. Then things got more serious. I was in pain and that just sent me over the edge. I became suicidal. Now there was no way I couldn’t see my pdoc or therapist. They wanted to see me despite me telling me them it was a waste of their time. I must have read at least three blogs that said this.

It was after my book was published and I sunk into a deep depression. I don’t remember it now. I just have the blogs to monitor these things. I am glad I have this record because I don’t remember half of what I write. Some blogs were written in the evening. Some were after midnight. The ones written after midnight were more depressing than those written at an earlier time. But then, my moods always get worse after midnight, especially if I can’t sleep. I talk about Hyde in a few of the blogs but not all the time. Hyde is my suicidal alter that comes out when there is a perfect storm: I am in severe pain, deeply depressed, and want to end my life. He likes to write the most morose things. He will write suicide notes. He hasn’t been around much since July. I hope that he stays away.

There was another blog that I read that was “private” I had to throw it away because it was a description of me trying to end my life. I couldn’t justify keeping it so I “threw” it away.

I am in a lot of pain right now and I just realized I forgot to refill my bottle of pain meds that I keep by the bed side. I will have to get up and do so. My ankle is not going to like it but it needs to be done. Because if the pain gets worse and I have to walk the three feet to the bureau, that will be worse. I hate being in pain at night. It is awful. But hopefully my meds will kick in soon and I will fall asleep. I doubt that it will be soon. Foot is also acting up along with my ankle. It’s the trouble twos. I usually can’t rest when both my foot and ankle are flared up. I didn’t do anything. I think it is nerve pain because my toes are throbbing big time.

I read a lot of my blogs tonight. I didn’t notice any patterns or anything in my mood for the months I was depressed. And when I was depressed, the world stopped spinning. It was horrible to read the pain I was in and I don’t mean the physical pain. The mental pain of depression was awful. I don’t know how I got through those episodes without trying to kill myself. According to the blogs, I had extra sessions with my therapist. That must have been what got me through. I wrote that I fired her a few times in addition to cancelling my sessions that she refused to do. In one blog, I wrote that I had pain and she un-cancelled the session. I had to see her. All because my ankle was hurting me. She is a weirdo, but she is my weirdo.

I feel depressed right now because of my pain and that I can’t sleep. It’s after midnight. I feel like I should write. Writing tends to make me sleepy so I can actually sleep, even if it’s for a few hours. I am sure to wake up anywhere between 0400 and 0700 today.

As I have been writing about my second diagnosis of Cauda Equina Syndrome, I have another story to regale. One night the nurse practitioner decided to give me a high dose of Neurontin with my other meds that I was taking. Mind you, I was still recovering from surgery so I still had some anesthesia in my system and I was on some powerful pain meds at the time. She gave me the Neurontin to try and ease the “nerve” pain I was having in my thigh that was weak. I have been on Neurontin before so didn’t think nothing of it. Until I started having delusions. I imagined I was in my bed at home and when the tubes fell into the nursing stations, I thought my mother had fallen out of bed. I couldn’t get up to see her but when I woke up from the noise, I realized I was in the hospital and went back to sleep. Soon after the nurse came in to wake me up as I had to go for an MRI to find out what was causing the weakness in my leg. She was to give me valium so I could be relaxed during the MRI and a pain med so I would be comfortable on my back for the hour. She didn’t know my mental status was impaired until I told her I had to call my mother and find out if she was okay. At 0230 in the morning, I called home to see if my mother was indeed ok. She was and told me to worry about myself. I realized I was dreaming and the nurses went on their way but I still wasn’t myself. The orderly wheeled me to the emergency department imaging center and I had a flashback of when I was first diagnosed with CES. I was stuck in this time. I had no idea what was going on. But I was too drugged to do anything about it. By the time they had me on the table for the MRI, I passed out. When I came to, two nurses were trying to catheterize me because I hadn’t gone to the bathroom in hours and my bladder was very full. They asked me if I knew where I was and I told them I was in the ER (I was actually back up in my room but it was still the middle of the night) and that I had CES again. I then passed out but not before hearing them say something like “he’s gone”. When I finally came to the next day, the nurse practitioner came into my room to talk to me. She said that I had a bad reaction to the Neurontin. I just looked at her and said, that wasn’t a dream? She told me no. I was floored. She was going to put me on another medication and that is when I stopped her. I told her to run it by my psychiatrist first before putting me on any more meds. My psychiatrist must have scolded her because she came back and said she wasn’t going to put me on anything else but to make me comfortable. Results of the MRI showed that I had a fragment on my L3 nerve root and would need surgery again. Oh fun! It would be my second in three days time.

Feeling Irritable

Feeling irritable

Not having a good day, at all. I woke up at 0430, after falling asleep around midnight and then had a hell of a time trying to go back to sleep. I was pissed off. Then I woke up around 0830 with my ankle going berserk. I called it quits and took some pain meds that finally allowed me a few hours of sleep. When I did get up around 1130, the gas man turned off the gas so I couldn’t make anything to eat or make coffee. I am really upset that I couldn’t make coffee more than making something to eat. So now I think I will go out to Starbucks so I can have my fix, even though I really don’t want to go out. It’s really damp, windy, raw and cold out, not really good for my ankle. I just wanted a nice day at home where I make the food that I bought and drink coffee. Nope, I am denied. All because they are doing work in my area. Damn condos. I ordered a burger and now I am not so grumpy, but I still want coffee. The food that I prepared for my lunch will have to be my dinner now.

I emailed my psychiatrist late last night about my anxiety around next week, just so she knows. I started writing about what I was going through, with the memories of the phone call and then the surgeries and how I faired afterwards. Aside from getting a UTI (urinary tract infection), I did okay. Though mentally I was more scared than I was physically. It was good that the CES was caught in time and I was operated on so urgently, even though it was twice I had to be cut open. I then had CSF leaks both times so I had to lie still for 24 hours. That was not fun. And it wasn’t fun when the idiot resident came to me and told me after my second surgery that he wanted to take my urinary catheter out. I asked him how I was going to pee if I had to stay still for the next 20 hours or so? He didn’t take it out. This jerk also wanted to send me home without any PT in the hospital. I couldn’t get around on my own inpatient, how was I supposed to at home? Then the stupid stuck up nurse that I had was yelling at me, asking why I didn’t want to go home. Maybe because if I fell, there would be no one to pick me up? Maybe I had two flights of stairs at my house and I couldn’t walk up one step? My leg was still weak, I couldn’t put any weight on it and without a walker, I couldn’t stand on my own. It really pissed me off and the only doctor that was understanding was my surgeon. Then I got the UTI and the antibiotics they put me on really did a number on my bowels. If you ever want to clear your system out, go on Leviquin. All I did was shit and shit and shit. For two straight days. Then they sent me home and I was tired of fighting them anyway. So I spent another two days shitting my brains out and became weak. Guess what? I had to go back to the hospital ER for fluids. If the idiots had kept me, they could have avoided this. I still had stitches in my back, I couldn’t feel my left leg, I couldn’t walk unassisted and was sent back to the ER all because the resident wanted me to go home. No wonder I have a hard time trusting doctors. They can be really stupid sometimes.

I have to watch my niece in like an hour. I really don’t feel up to it. I just want to stay in my bed. Foot is acting up so I don’t think I will be going out. I hate this. It just started to rain so that clinches it. I am not going out. I will have to wait till the workmen finish their work so I can make a damn cup of coffee.

Sox are in Cleveland tonight. They have three games left and they are done. I am very sad at this. I knew they weren’t going to the post season, it would have been a miracle if they did, but it just didn’t work out. They lost last night and sent the fucking Skankees to the post season. Hate the Skanks. I hope they lose, and they will. I think the Jays have a chance at winning it all.

Tomorrow will be college football. I can’t wait. OSU is playing Illinois, a school that I had my eyes on for grad school. They have a beautiful campus. I visited twice when I went to Chicago. Those dreams are long gone and I will be rooting for the Buckeyes. It’s going to be a tough game because Illi is also 4-0. OSU is still undefeated from last season. They just keep on winning games. And I hope my having their hat doesn’t jinx them. I will be so sad.

OSU hat and other things

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OSU hat and other things

I finally got my official OSU (Ohio State) hat today. In the box it was sent it, I also got a bunch of snacks. There were sample packs of gum, Combos pretzels, and other stuff. I thought it was really cool to get these things. I never got more than what I paid for before.

I saw my pdoc today. We discussed the pain I have been having and the corresponding depression that I am in because of it. She thinks it might be the nerve connections growing back. It’s a painful process but it could mean that I could get sensation back in my foot where it is numb and weak. That would be good because finding out that I stepped on something and it’s embedded in my foot is not a good thing. I had a tiny piece of stone in my foot a few months ago. I have no idea how long it had been in there as skin was almost covering it up. I couldn’t believe it. But a piece of stone is better than a piece of glass. I will never forget the time my mother broke a glass in the bathroom and a fragment was left behind. I stepped on it as I walk barefoot. I thought it was a piece of rock and it was this piece of glass. Had no feeling in my foot whatsoever as I didn’t feel it puncture my skin at all. All thanks to having cauda equina syndrome.

I am extremely tired. I have been up since 0630. Before my pdoc’s appointment, I had to go to my father’s. As I was approaching my father’s apartment, his doctor called to tell me his INR (Coumadin level) was low. I said I would investigate and call her back. Turns out the ass hasn’t been taking his night meds. He must have missed a few nights for his level to be low. I wanted to strangle him. He is at risk of stroke not only because of his age but because he has an irregular heart rhythm. So he has to take this medicine to keep his blood thin to prevent a clot. I regaled the story to my sister and she tells me he starts his meds on Monday. WTF. He has to take them every fucking day and night. I am so frustrated because I am the one the docs go to when there is a problem with his blood work. He doesn’t understand or care, I don’t know which. I am too tired to figure it out. I don’t live with him so I am not there when he takes his meds. And I will be damned if I have to make a special trip every night to his house to make sure he is compliant.

I should have ordered Thai food for dinner but I wasn’t hungry when I left my pdoc’s office. I really would love King and I’s Pad Thai. I haven’t had a decent Pad Thai since I left work three years ago. There is a place in my town that makes it that is comparable but it’s not the same as King and I’s.

The one thing I did forget to talk about with my pdoc is the PTSD symptoms I have been having with my anniversary coming up. I think the stress of being in pain while I was seeing her made me forget. I really didn’t want to see her. I just wanted to go home and put my foot up. I might shoot her an email. I really just want to get through next week without it bothering me but I doubt that will happen. It’s really hard to forget something like having to go through two surgeries for the same problem. And then to find out that your second surgery had to be done because a disc fragment was embedded in the L3 nerve root. You never get over the anger of dealing with something like this. I have tried letting it go but it is very hard to do when you are in pain every day because of this injury. And now to suffer the consequences of surgery and scar tissue, it’s just too much.