Hurricane Joaquin

Hurricane Joaquin

Today has been heavy rain and flash floods every where. I am glad I didn’t venture out as I would have gotten soaked. It’s windy but not too much. During one of the breaks in the rain, my mother decided to open the back porch door. Then the heavy rain fell. Luckily, I got to the kitchen in time before it flooded. It is really humid and the house is very muggy as most of the windows are closed. I am ok in my room, but then I have the AC. I hope the rain clears up by tomorrow as I really don’t want to be traveling in the rain. I don’t mind getting wet if I am just walking in the rain (I love it!) but if I have to go somewhere, I hate being in wet clothes. I don’t usually carry an umbrella in stormy weather because all you are doing is fighting with the damn thing and going to get soaked either way. I will carry it if there is no wind, which is what I hope the case will be tomorrow.

I’m glad I didn’t have to go into town today. There was a fire inside one of the stations and flooding at another one. Good going MBTA! The line was down for a good couple of hours. It is now just getting close to being on time. If the stations can’t handle heavy rain, I don’t know how they are going to handle the winter. This past winter there were major delays all over the place. Commuter rail going to the suburbs were affected as well. It was a disaster. I hope this winter won’t be as horrid, but you never know until January.

I had therapy though we didn’t talk about therapy things. Our connection wasn’t great today, probably because of the weather but I think my therapist needs a new phone and she is in great denial about it. So we talked about tech stuff. She was amazed that she went on the internet when I send her links to my blog. She had no idea. Talk about being clueless. She also doesn’t want to lose my text messages, which I can understand. She did that before and doesn’t know how she did it and boy, was she in a panic. I tried explaining to her that getting a new phone will suck for a little while but she wouldn’t listen at all. This is what I am getting from therapy. Counseling my therapist on cell phones and how the internet works. LOL. I found it funny and made a comment about it. She just laughed. She did read the yesterday’s blog that I sent her. She said that it was good that I sent it to her because she doesn’t know when her anxiety about my pain is interfering with things.

We then talked about my writing, or rather the lack of it. Today has been a long day because I woke up so damn early. She said to print out the things that I have written and read it over. Maybe that will spark something. I haven’t done that yet. I was describing the difficulty of writing when she asked if I had any journals about psychosis or something to that effect. I told her I just have suicide or self harm journal articles. I suppose I could Google something but that sounds like a lot of work for something that is supposed to be fiction. I don’t really want my short story to become a clinical paper. She really wanted me to write about my early experiences with my fantasy world but it would be too triggering for me and then with the weekend coming, her not being available, it would be tough to sit through all that stuff. So it stays in my head where it belongs. I’m already having enough anxiety over the anniversary coming up next week. What keeps going through my mind is when I got the phone call from my PCP while I was driving to my therapist’s appointment (I had a car then). I remember having to pull over because I wanted to listen carefully to what he was telling me and not crash into something. After the phone call, I was numb. I had CES again and I was to report to the hospital the following day for surgery. I am glad I had therapy that night because I was close to losing my shit, but it was a weird calm. I knew what to expect this go round because I had been through it before and I had the support of my group. I didn’t know when I would be able to see my therapist again. I was walking when I went to the hospital but wasn’t when I left, not unassisted anyway. I was walking with a walker or a cane. I can’t remember. I just know my left leg was weaker than it was before the surgery. It is what lead to my disability. I know that if I didn’t hurt my back the second go round with this horrid condition, I probably would still be working now. I lost so much after this but I was determined to make as full a recovery as possible. I had to fight to keep my PT appointments, even though they were just telling me to join a gym. A gym wouldn’t help me. I would have to figure things out on my own and fuck that. I wanted someone to show me what I should be doing and how to do it. That is how I learn. I think during my recovery time my therapist started with the phone sessions and it just continued even after I recovered. If I couldn’t make it to where she was, I would have a phone session. It didn’t become a regular thing until I no longer had access to a car to get to her office thirty miles away from me. Both my cars died on me. They were used when I got them and I just didn’t want to put more money into old cars. I do miss the Camaro. That car was sweet. I got my first speeding ticket with that car. I think I still have the violation somewhere in my files. It is paid, of course, but I just wanted to keep it.

There’s a lot of things I wish I knew when I got the second diagnosis of Cauda Equina Syndrome. Like how my bowels and bladder were going to be. They still don’t work the way they did before. I had retention and leakage with my bladder before the second surgery but it got worse after. If I had checked out the AFO before I got CRPS in my ankle, maybe, just maybe I wouldn’t have it today. These are the things that go through my mind. But mostly it was getting that phone call saying that I had CES x 2 that kills me to this day. It’s going to be a rough week.

an injustice and other things

I have been up for the past hour or so. I am in pain and I am not happy about it. It’s raining cats and dogs so I probably won’t go out. It still is muggy though so I have the AC running. I wonder if the rain is what is causing my good ankle to be so sore. I really need to eat something so I can take my NSAID. Hopefully that will help this pain.

While I was up, I read my Twitter feed and a friend posted an article about how a young man died in jail while waiting for a psych bed at the state mental hospital where he was ordered. Cause of death is unknown at this time, but it is not a suicide or homicide. The man was very sick. He had stopped eating, was covered in his own filth as some psych patients get when they are untreated. I find it hard to believe that the people who run the jail didn’t notice his demise and didn’t do anything to get this man the help he so desperately needed. According to the article and the buzz around Twitter, jails are becoming warehouses for the mentally ill because there are no psych beds available. It is sad that they keep on making more jails than psych wards. And what is even more staggering, is they keep closing units left and right. In my own community when I first moved here, there was a mental hospital and three psych units at the local hospital (2 adults and one for kids). Now there is just one adult unit and that is it. The hospital closed because of budget cuts and so did the other units. That is just in my area. I am sure that is the case in other communities as well. Let’s cut the psych unit before all others because who cares about the patients. And now they are wondering why there is a mental health crisis. Good lord.

It bothers me that this young man died all because he was in jail and didn’t get the care that he needed. Course, jail isn’t for folks like him. They do belong in a psych ward but why did no one visit him? Why didn’t his lawyer check up on him? All these questions and no answers. And you know the jail is going to be covering their ass in this day and age when the system is under fire. The guy didn’t do anything wrong, really. He stole $5 worth of snacks and got a death sentence in return. Just doesn’t seem right for a misdemeanor. $5 and within something like 50 days, he was dead. Just so wrong, very wrong.

I don’t know what I am going to do today. I wish my day didn’t start so damn early. If my mother goes to my aunt’s, maybe I will watch the season finale of CSI. I recorded it but haven’t watched it yet, like many of my shows. I still haven’t finished watching Rizzoli and Isles episodes. Though I think I didn’t record a couple because Maura’s father hasn’t been introduced yet. He was played by David Ogden Styers. He also played in M*A*S*H as Winchester. He is a wonderful actor. I could have a M*A*S*H marathon. I had bought the whole DVD collection because it was on sale at Best Buy. It’s one of my favorite comedy shows. I love Hawkeye and Frank. They are so funny. I really missed Frank when he left the show.

I have therapy later this afternoon. I hope no one calls me like they did yesterday. My mother called and then someone else did too. The one time I am on the phone, everyone decides to call me. My phone is silent the rest of the day. I just don’t get it. I think I have figured out a way to see her at least once a month, in person. I just hope it works. Otherwise, I am back to just the phone and not seeing her at all. If it does work, then I won’t have to change my father’s doctor either.

I hope to get some reading done today. I still have not finished the Harry Potter book, yet. I realized it’s because I really hate one of the characters in the book and can’t stand reading about how mean she is and a bully, though she tries to play it off like she is wonderful and kind. It’s not my favorite book because I know what happens in the end and I don’t like it. I guess that is another reason I haven’t finished it. I am half way through and soon as I am done with HP, I plan on reading about the Lusitania. I really should finish “American Gods” but that book is very creepy. It’s one of Neil Gaiman’s books. I didn’t realize he wrote so many books. He is a brilliant writer.

frustrating therapy day

I am in a little less pain today than I was last night. This could change as the night progresses. I have been up and down the stairs today, not a lot but enough to possibly set off my ankle. There is supposed to be rain today but it’s partly cloudy and very humid out. I am glad I didn’t take my AC out last week when it was cool. We always have an Indian summer and the weather stays fair until November. I usually don’t have the AC going in October but it usually stays in until I can clear a path for my brother in law to take it out.

I had therapy today and we talked about my anxiety coming up with my anniversary. She said that it is creating a something to do with PTSD. I forget the word she used. Half way through session, I wanted to stop talking. I just didn’t want to talk anymore about anything. She kept on asking about Hyde and my suicidality, the depression, and about my pain. We talked about that for a bit as pain has really brought me down. I just feel useless because if I do anything, it brings me pain. If I don’t do anything, it brings me pain. How can I win at this game? How am I supposed to live? I am so tired of living with the depression and being in chronic physical pain. I don’t think she gets it. And I am too tired to try and make her understand. I know dealing with chronic pain isn’t her thing and she has had to learn off the fly what it’s like, but sometimes I just want her to listen and not say anything when I complain about being in pain. She can’t do anything for me but be there and that is all I am asking her to do. I’m the one stuck with this bullshit not her. Only thing I can do is fucking text her in the middle of the night because the pain is driving me crazy. Used to be that I texted her my darkness. Now I just want to die because I can’t stand the pain anymore, and everything that goes with it.

She asked about my writing and I cringed. I told her I am just blogging right now. I can’t seem to get my head in gear to do anything else. I am just tired of trying to write something and coming up empty. I have been trying to add on to Haylor but no can do. And it bugs me because the words are there but I can’t get them out. It is so frustrating.

I haven’t done anything today. I wanted to go to the liquor store to get some wine but haven’t the inkling to get dressed and go. I just want to stay in my room, with the AC, and keep my foot up. I slept after my therapy appointment. So much for the coffee keeping me up. I had the Brazil Sertraozinho today. It was very good. Today is National Coffee day. My aunt told me that Dunkins was giving out free coffee today. I’ll stick with my good stuff, thank you. They are only good for donuts, least to me anyway. I really want some Chinese food, the good greasy kind. It’s too bad my favorite place closed down. Now I have limited to no options. There is one place I get General Gau from but that is the only thing good there. Their fried rice isn’t so great and their Lo Mein sucks. Maybe I will get some on Thursday when I have to head into town. I’ll go to the train station and get it there. It’s pretty good and cheap.

ARGH, Another Pain Day

ARGH, another pain day

I woke up this morning and I was fine. I made a phone call to my PCP to find out if my prescription was ready to be picked up and it was. So I set out to go into town and get it. I was feeling okay, not 100%. I am never 100% but felt good enough to venture out. I really wanted to stay home and relax but I wanted my Hawaiian coffee. I stayed at Starbucks for about an hour before heading to town. By the time I finished walking to the PCP’s office and back to the train station, my ankle started up on me. I just missed the 1230 bus so would have to catch the 1330 bus, which meant having to wait a half hour at the station. I was feeling really worn out and just wanted to go home but I wanted to fill the prescription and then not have to go out tomorrow. So as I was waiting in line at the pharmacy counter, my ankle had enough. It screamed and I almost gave out a little yell. I couldn’t believe it. It has never done this before. Luckily, I was called next, then sat to wait for the script. I was grateful to sit down a bit or I would be crying.

I had tweeted Walgreens over the weekend to say I was upset with their customer care. They got the details and while I was at Starbucks, the manager called to apologize. She agreed someone should have called me to tell me what was going on with my prescription (Zofran). She apologized and said that she would call me back when the issue was taken cared of. Apparently, because their system was down, my insurance thought I picked it up and then was trying to refill it so it wouldn’t go through again. They had to cancel out the transaction to let me have my meds. It was complicated and then three hours later when I went to pick it up, it still wasn’t ready. So glad I didn’t go when she said it would be fifteen minutes! In the end, it helps to complain to upper management to get things done. I know some people have problems with the alerts and I keep getting refill reminders more than I get prescription ready alerts. It helps to also have Twitter as a go to for getting customer care. I seriously doubt I would have the meds ready when I came if the manager hadn’t called me this morning. I would have had to wait longer for them to figure the damn thing out and I would again be out of my meds for possibly another day. There would be no way I would be able to wait longer than 15 minutes anyway. My bladder was telling me it was time to go home and my ankle was already crying. It needed to be put up, like it is now. I desperately needed to take a pain med so needed to come home as soon as possible.

I am glad I didn’t buy the Hawaiian coffee because I don’t like it hot. I would have to make it iced and I am just not that talented. I was able to get my Brazil Sertaozinho today. I can’t wait to make that coffee tomorrow. It’s like milk chocolate in a coffee cup. I have had that iced and hot and enjoy it. It’s probably the only thing that I enjoy right now. My mother was confused as to why I bought another bag of coffee. I told her it was different flavors. Really, they are just different places where the coffee is produced. I forget where my Kati Kati is made, but I still have that, household blend, and soon will have Pike’s Place. I am not going to get Pike’s grounded until I am done with the household blend. I have a quarter of a bag left.

I am not planning on doing anything today. I do have to eat something as I really didn’t have breakfast or lunch today. I had a ring ding this morning but I don’t think that counts as breakfast. I am totally wiped so I need to rest a bit before I try and make myself something to eat. While at Walgreens I was able to get some shredded cheese so I can use it for my burrito. I might make eggs. Or I might make a turkey sandwich. I just remembered I bought some turkey breast with my online grocery order. I am so glad I can order groceries online. It is so convenient and doesn’t hurt me. I can order them and have them delivered and I don’t have to carry the bags up the stairs. I just have to put them away. I won’t order eggs again, however. I had to get a credit because two eggs were broken out of the dozen and a half that I ordered. It was something that I feared would happen.

I tried getting a hold of my therapist today but she must be really busy as she hasn’t gotten back to me yet. Now that it’s late in the afternoon, I don’t think she will. I am just feeling really out of sorts and depressed. This pain is really throwing me for a loop. Just when I think I have made it go away, it flares up on me again. It is really bringing me down. I am not suicidal but I wish someone would take me out of my misery. I can’t stand being in pain every day. You would think that I would be used to it by now but it’s not something you ever get used to. Today I went out and did a few things but tomorrow I will have to rest. I might have to rest Wednesday too because Thursday is going to be a long day. I have to deal with my father and then I have my pdoc appointment in the afternoon. I haven’t quite decided how I am going to get to the red line as my father is on the orange. I will have to time it right to get to where I need to go, which means more walking and traveling. I don’t know if my ankle is up for the task. It kills me that I can’t do things every day like “normal” people do. I will have the Friday and the weekend to recover but I don’t know if my mental health will. I am just getting really annoyed that this pain hasn’t let up despite rest and pain meds. Or it has and then soon as I am a little bit active, I am in agony all over again. I am glad I have the energy to do things but paying for the efforts just isn’t fun. It outright, just sucks.