Category: cauda equina syndrome

night time blog

by Midnight Demon, posted in blogging, cauda equina syndrome, CES, depression

Night time blog

I did nothing for my birthday. I stayed home listening to the rain fall and watched TV. My family came over and we had some laughs and some cake. I didn’t shower like I wanted to. I fell down the stairs and it kind of wiped out anything else that I was going to do. I am hurting and it’s worse now standing for even a few minutes. I will probably shower tomorrow.

I got a lot of presents that were just for my birthday, not Christmas like it usually goes. My Aunt gave me a Euro in a necklace that nearly choked me because the chain was too small. I like it but the chain didn’t fit right and was aggravating me the whole time I was wearing it. I usually to not wear necklaces. I will wear my Claddaugh ring, but that is only because I lost my high and junior high rings. Our middle school gave out rings because most of the graduates never finish high school. My starting freshman year was about 250 kids. Only about 150 graduated. Granted some had transferred to other schools (like my sister and a couple of my friends moved out of town) but the majority either dropped out because it was too hard or because they got pregnant. One of my friends didn’t graduate because she just couldn’t keep up with school work.

I edited my book for hopefully the last time before the editor sees it. I put in the indents in the paragraphs. I was reading it as I was going along, well, maybe not reading, skimming. And it still gives me chills on certain parts of the book. I know that part of it is because the book is so personal. I talk about every aspect of my life that has to do with my suicidality and the road to seeing therapists and psychiatrists. It was not an easy book to write. I do hope that someone can relate to some of the things I write in it. I know the title alone is a paragraph but I had to get CES into the title. There are no other books out there that deal with Cauda Equina Syndrome, not in the personal sense. People need to know about this syndrome because not all back pain is the same. And back pain can progress to CES if not taken cared of properly or if further injury makes it worse. I try to cover all aspects of getting CES in the book but I am not everyone. What happened to me, might not happen the same way to another person, even if we both had the same disc problem. CES is tricky to understand and most doctors do not know how to treat it, if they are able to recognize it in the first place. And this goes to radiologists too because they are the ones that interpret your MRI’s. They call something wrong because they haven’t seen it and you are fucked.

So this is how my day was. Nothing interesting. Except for the fall down a few steps. OUCH!

Sucky day part 2

by Midnight Demon, posted in blogging, cauda equina syndrome, chronic physical pain, depression

Almost decided not to blog today. Having a rough day. For the first time in almost 21 years I feel like my psychiatrist does get that I am ill. I told her today, I wanted to go up on my mood stabilizer because I have been wicked up and down and all around. Last night to top off my wicked sucky day, I got hit with a mixed state that had agitation and restlessness mixed with the need to write. I told her that I was going nuts and she said I can’t do that. She won’t increase my meds just have me take the trilafon and Ativan when I need to. I am so frustrated with her. I think the extra mood stabilizer is what I need right now to tamper things down. I am only escalating. And usually this time of year, I am in a deep depression that has me walking in mud. Well no mud today. I walked all over town today, well more than I usually do and now I am paying for it but I don’t care. I had to get the agitation/frustration out of my system somehow. I know that things are going to get worse if I don’t get a handle on them now. If I end up in the hospital, I am going to tell her “told you so”. I did forget to tell her about my menses. She became really concerned when I told her I was having trouble with my vision. She wants me to see an ophthalmologist. I will make the appointment after the New Year. She doesn’t know if it is the medication or not. My luck the doc will just call it atypical migraine and be done with me.

When I came home, I took my meds. Then I had to pick up my niece. I am beyond tired and hope that I sleep tonight. I know I am probably not going anywhere tomorrow because I will be too sore. If this throbbing that I am feeling now is any indication. I know it’s going to get worse after eight. I am not looking forward to it. I can’t even stand long enough to change out of my jeans and into my PJs. This so sucks. I know I brought it on myself but it felt good walking again. It doesn’t feel good right now, but I didn’t have pain when I was walking around town. Picking up my niece did make things worse but that is my fault. I forgot my sister told me so if she didn’t text me, I would be in big trouble right now. I also did the walking without my AFO so not sure that was a good idea or not. I had to have steady snow shoes on because there still is a lot of ice and snow on the ground.

I don’t think I will have a mixed state tonight because I am so tired. The walk wore me out and going the extra few blocks to pick up my niece from her after school care program really did me in. But I have the weekend to chill. I really just hope that I don’t wake up one of these nights before Monday. I just don’t want to deal with my birthday. I used to love it and the Christmas days. I would see my family three days in a row, well my father’s side anyways. It was always fun. Now I don’t. And I think my godmother forgot my birthday again this year as I didn’t get a card from her like I usually do. Since my uncle died, I haven’t been getting a card every year. I really miss his handwriting. It was the neatest script. I also really miss him, too.

I really want to take myself out somewhere for my birthday. Just go to a good restaurant. I might take my niece as her birthday is the fourth of Jan. When I was working, I used to take my “kids” out for their birthday as they hated getting a book from me. I figured a book never gets out of style like clothes do or games/toys.

I still am upset about my psychiatrist. I think I am going to increase the med anyways. I am the one that has to live like this not her. And if I want to do something, I am going to do it. Last night I thought definitively there were rats in my room (it was just the radiator kicking on). That is how spaced out I was. Luckily I was able to talk to a fellow blogger friend that understands. She really helped me get through the night so my meds could kick in and work. I am glad I have friends like that.

In other news, I got a weird question on my Facebook page. They wanted to know what topic my book is. Obviously, this person has not been following my blog.

having a bad day

by Midnight Demon, posted in blogging, cauda equina syndrome, chronic physical pain, depression, suicide

Having a bad day

I woke up in pain, again. This is the third or fourth morning where my foot has woken me up from a sound sleep. I took some pills to get some relief but unfortunately, I was not going back to sleep. Every noise in the house kept me up. Then my mother’s phone rang. Then the damn smoke detectors went off for some reason I still haven’t figured out yet. Because this noise is far louder than the phone, it scared me and forced me out of bed. When I knew the house wasn’t truly on fire or my mother had left the gas burner on again, I had something to eat and then played on my laptop. I have been playing the same annoying game. I don’t know why I can’t quit it. No one will know but I want to complete the damn missions and it gives me something to do.

I am in a depressed state, a deeply depressed state. I really want to end my life. I find no use for living anymore. I hate being in pain all the time. And then we have Tuesday coming up. A day that I planned a year ago to end my life by if things weren’t better. Things are some what better than they were a year ago. I am not as suicidal or depressed (except for my current state) as I was a year ago. I find that I don’t write depressing messages on Facebook anymore. I will, however, tweet them. I have a book that is done and is ready to be published. I just need an editor to look over anything that I have missed. I am actually looking forward to things, though right now, I can’t say what I am looking forward to. Things just look dreary and dark. I am not looking forward to Christmas or my birthday, both are next week. But Tuesday I am planning on having a day with Crown Royal and drink my sorrows away. I have a ¼ of a bottle left. I doubt I will get very drunk.

I am tired of feeling this way. Maybe I should be dead. My sister said to me the other day that there is no “mental illness on my mother’s side of the family”. It took all that I had in me not to laugh in her face. HELLO, I wanted to scream at her. What about me?? What about your cousins that suffer from anxiety, bipolar disorder and schizophrenia? Aren’t they on your mother’s side??? Talk about complete blindness and denial.

I really want to commit suicide. I have dreamed about it for so long. Why can’t I go ahead with it? Why am I such a coward? I do nothing day in and day out. I have nothing but this blog to keep me going. I feel like I have to write every day or I will lose my mind. I stopped writing in my journal. I don’t seem to have very much to say after I blog. It’s all the same isn’t it except what I journal doesn’t get posted on the internet.

I know that I have another book to write. I don’t know exactly what that will be yet as it is supposed to be co-authored. But I don’t care. One book will be enough for me. I can’t write anything else. Once you write about your memoirs, you can’t write another. Unless at least thirty years go by or something and I know I am not going to be around for the next thirty years. I will be lucky if I make it past this week. I am so tired of fighting myself every day. I am more tired of dealing with pain every day. Today was bad. Still is as the day isn’t over yet. I know part of it is because of the snow storm that hit. I haven’t gone outside nor do I want to. I just realized I have to deal with my father yet again for another stinking doctor’s appointment, all because the asshole lies all the time and won’t give a straight answer. So if his doctor tells him something he is not going to a) remember it or B) deny it and just say that he is “fine”. I don’t know how I got to be the one to go to these appointments. All the more reason I should kill myself. Just so I don’t have to deal with an ornery bastard.

I still have to hear back from my therapist about my sessions or lack thereof this week. I really don’t want sessions this week. I rather deal with this on my own. I do anyways.

let it snow, let it snow

by Midnight Demon, posted in blogging, cauda equina syndrome

Let it Snow, Let it Snow…

I went to the store early this morning to get some food for the weekend. I have been dying to try out a chipotle mayonnaise on a chicken sandwich. Today I finally made it and it was so good. I also did some shopping for my mother who needed milk.

My day started off early as I woke up at six. My foot acted up about a half hour later so I took some pills and went back to sleep. I thought I would chronicle the day but I realized I already had a blog called a day in the life of the midnight demon so I nixed it.

I have been in a relatively ok mood. It’s neither good nor bad, kind of in between. I still am fretting over what my therapist will do/say about me taking this week off and then her being off the next two weeks. But I guess I will find out Monday, that is if the snow doesn’t cancel school. I will be pissed if that happens. It started snowing around 3 and is supposed to continue until tomorrow. My back is not liking this weather at all. I am having a flare up and sciatic pain in my left buttock. I just took something for it because I don’t want it to get worse.

I am concerned about a fellow blogger. She is having some psychotic symptoms that are out of control but because of some issues with an upcoming vacation, she can’t go in the hospital, where I think is where she needs to be as she is getting worse not better with the increase in medication. I am really worried because I know how bad things can get with psychosis and paranoia. Been there, done that. But I am not her so I can’t make judgments of the hospital kind, only express my concern. I hope this quiets down for her and she gets better soon. I also wish there was a better system for her other than just going to the ER because it is the weekend. I always have my pdoc on call in emergencies. But I guess not everyone has that and that is a shame.

I haven’t heard from my writing partner in a few days. I hope things are ok with her. I know she had a speaking engagement yesterday but was expecting an email today at least. But she usually takes the weekend off from email. I don’t know if I could do that. I am almost always on the laptop, playing games and such so it would be hard for me to ignore an email if I got one. Plus my friend usually emails me before we set up a time to meet up so it is kind of good that I don’t keep off the email on weekends.

Wind is rattling the windows. And it is so fricken cold. I don’t know what my mother did but she turn the gas on a pilot and didn’t light it. I came out of my room and smelled gas. I didn’t use the stove today so I know I didn’t turn any knobs accidently. I opened a window to let the smell out for a few minutes but she closed it while I took a shower. The kitchen is the coldest room because my asshole cousins didn’t put enough insulation when they were rebuilding it. We also have a crummy radiator that works when it wants to. The heating system is a joke. We have to turn it on to 70 for the house to get warm, 80 to get it hot. We have gas heat, which I find more convenient than oil heat. I grew up with oil heat and I hated it because you had to have at least $300 (USD) to get a decent amount of fuel in the tank and that was a lot of money when you were on welfare. I am sure the cost is more now than it was back then. I feel for those that can’t afford heat. I know what it is like to be cold. We were never on the streets or close to it but the house I grew up in was drafty and my room had no radiator. So I had to pile on the blankets to keep warm during the winter. I didn’t mind it as I liked my room being drafty and cool. It was better than it being too warm. But since getting my nerve injury, I can no longer tolerate either hot nor cold. The cold weather causes spasms and arthritic pain. Hot weather, I just can’t tolerate, at all. That is why I need the AC. I used to love the cold but it doesn’t like me anymore.