rough snowy day

So yay! I got my prescriptions filled today. Now I just have to wait until 2/2 for my next one because I am two days late for refilling my narcotic meds thanks to the blizzard or the inept medical assistant. And I am 8 pills short. I am not happy about this. The doc decreased the pill count to 112 for a 28 day supply. I am screwed if I have a pain flare up. My doc refuses to give me 2 pills at a time, which is what I take. I have told him this numerous times but he refuses to change the script to reflect that. I am so annoyed. I am just happy the pills cost less this month. I have 2 extra dollars, yay!

I see the stupid nurse practitioner for my next refill. That is going to be fun because she is an airhead. I probably will have to have a drug test as it has been a while. I am not worried about it. I have been taking the meds that I am supposed to be taking.

I got into an argument with my mother today over my money. She doesn’t understand that at least $70-80 USD goes toward my prescriptions every month and that is all I have to play with. Yes I bought a printer and a few other items that I probably shouldn’t have but I need these items to make me happy. And I needed a haircut because my cousin always gives me “female” haircuts and there is no arguing with him about this. I sometimes allow him to give me a haircut because it free, but it is not what I want so I rather just pay for what I want. I told my mother I spend most of my money on bills. I have to pay medicare, my private insurance (which went up $16), cell phone, cable, therapist, and student loans. I am not left with too much left over. I really wanted to buy Chinese food this month but I am broke. It will have to wait until next month.

I still have two prescriptions I need to pick up, but luckily, they are not expensive. Just 4 dollars. Then I am set for the month. I really should look into a state plan like Mass Health to see if they can help my prescription costs. But I am not sure I can afford them right now. My cousin pays $94 a month for it and there is no way I can afford that unless I cut my private insurance.

I am still waiting for my printer to be shipped but I just checked the status. Seems because of the weather (it has started snowing again), my shipment might be delayed. I guess that is good because I haven’t cleared the space I want to put it. I have been lazy about cleaning. I still have to go through my big box in my room to see if my Lincoln DVD is in it. If it is not, I have totally misplaced it and I will be sad. I love that movie.

I was in an okay mood until the scrapple with my mother over money. Now I am just depressed and want to die. I hate being broke every month and spending so much money on my meds. It was fine when I was working but I no longer have that luxury. Plus the thoughts of transitioning are weighing on me. That always increases my wanting to die.

Ankle is going to be hurting me later on today. I went up and down the stairs a little bit too much today. I haven’t eaten that much today. I am hungry but I don’t know what to make so I don’t make anything. Plus we are low on eggs so I can’t make my favorite sandwich. I went to Walgreens and they were clean out. No eggs. I probably will make some bacon later if I can muster up enough energy to do it. I just hate cleaning the pans.

Random 1,000

I did a lot of walking today. But it was worth the effort as I got to meet my high school friend. We chatted for a good three hours. It was good catching up with him. After we chatted, I got a fresh haircut. I feel normal now.

The ride home was ok. I am pissed the mail didn’t bring me my prescription I need. Then I went to pick up my waiting prescriptions. I really need to get off my antipsychotic. It just costs me so much money. But I need it to keep sane so it’s a hard line I am crossing. I also found out one of my meds is short. The pharmacy owes me like 75 pills. I don’t know why they even bothered to fill it! I was supposed to get 90 pills. OY VEY.

I was very hot when I came home but now that I have settled down, I am freezing! I need a nap but it’s almost bedtime so probably not a good idea to go to bed now. I should have gotten a coffee while I was out. I thought about going to the square on the way home but the red line has had some delays today. Apparently there was some smoke on a train and the train and the station had to be evacuated. That made a great morning commute! Then I got an alert that the buses were all delayed because of weather related events. Funny they didn’t have any problems yesterday, and most of the snow wasn’t plowed yet! And I hear there is another storm for this weekend. Going to be fun with all this fricken snow. I am already sick of it and it’s only the beginning of winter!

I was supposed to get my printer cartridge today but it hasn’t been delivered yet. Probably won’t be till tomorrow. I don’t know why they didn’t just have one shipment. But then, that would make sense.

I had another early morning wake up. I swear if I had to get up at 0630 in the morning, there would be no way I could do that every day. Yet I am not working and I am waking up at that hour, sometimes a few hours before, too. I don’t know why I can’t sleep at least 7 straight hours. I used to be able to sleep 12 no problem. Now I am lucky to get 5 straight. Maybe I should start drinking. But with my new muscle relaxant, I don’t think that would be a good idea. Sucks being on meds!

I feel pretty good, despite being depressed again. I am really missing my pdoc. I got an email from her and doesn’t look like she is coming back any time soon. She is healing slowly. I have a feeling it might take at least six months for her to return. It’s driving me crazy not seeing her.

My high school friend read my book. He liked it because he said I wrote like I was telling a story. I liked his perspective. He also commented that I was his first author to know personally. I was flattered by the comments.

A Tired Ramble

A tired ramble

I should be sleeping but I am fighting sleep right now. All the bad thoughts are coming out. I feel like I am a worthless piece of shit. I need a haircut badly as my head itches. I don’t think cutting my hair is going to solve the problem (it’s dry scalp) but least I will feel human again.

Snow has hit the city where I live pretty hard. We have a travel ban in effect and the governor has stopped public transportation from running. Essentially, I am trapped in my house. I hope that it is all cleaned up by Thursday so I can have lunch with my high school friend. I know we are going to talk about my book. He is taking me to a Thai restaurant in the Back Bay. It must be a new place as it wasn’t there when I went to school. Or maybe it was and I just never went there because I didn’t like Thai back then.

My pain levels are excruciating, too. Which is why I cannot just shut the light off and go to sleep. Pain that was in my leg but now is in my foot. It is dancing around, all over the place, with the same intensity like a hot poker stick. I just took some pain meds so I hope that calms it down. I also took some Ativan to calm the fuck down. I don’t know why I am so damn anxious but I am. I know part of it is because I haven’t talked to my therapist in a week. She had to cancel today’s session because, well, like I said, everything was shut down. I don’t know how she is going to get into her office but whatever. She canceled for tomorrow’s session because school is closed but is going to try and have some evening time. I guess it all depends on if she can get child care for her daughter.

I emailed my pdoc again because I need refills for my meds. I got no answer from the one I sent the other day. I am getting frustrated with her!! This is sucks that she is out of the office and I can’t see her and then when I email her, I get no response. What the fuck kind of patient care is that?? I am so bullshit!!

Then tonight I decide to read Uncle Tom’s cabin and this little girl I fell in with dies. I have been in tears for the past hour. It was so sad that she died. I think she had some kind of heart condition. But then, the author didn’t elaborate on the illness nor was the medicine back in the early 1800s very good at diagnosing difficult ailments. Her father is heartbroken and her mother, who was a basket case to begin with, is playing the part of grieving mother. I just want to slap the mother silly as she just wants sympathy from all her servants and no one else can show sympathy. Beecher-Stowe really is a good writer, better than I could ever be.

I have been up since 0430. It’s now almost 0100. I am dog tired. I should be passed out by now. I spent some time reading today. I read a hundred pages in my civil war book and then I read a “dictionary” called the definition of suicide by Shneidman. Holy hell this man uses big words. I am glad I know the language so I can follow along (I have read his stuff before so I know his terminology), but some of it I am like really?? The word is archaic now and he is using it?? He was a funny person. I wish I got to know him better before he died.

Today is my best friend’s birthday. I wish I was in Chicago to celebrate with him.

I haven’t heard from my problem blogger in a few weeks. I hope that means she is gone. And if she comments to say she is around, I will just delete it. I don’t need her negativity in my life. I hate when people try to push their beliefs on to you and think their way of thinking is right and the ONLY way to get “better”. I don’t need that in my life. Never have and never will.

My Twitter followers is strange. The numbers will go up and then the numbers will go down. I had 343 followers. Now I have 349. I think I will have 345 by the time I look back on it tomorrow. I think it is probably bots that follow, not real people. If they are real people, and I don’t follow back (I won’t follow unless I know them or they meet my criteria for following them, which is basically working in the mental health community, a baseball lover, or something else that attracts me). If they are just authors looking for endorsements or life coaches looking to save my soul, I won’t follow back and if they become problems, I block them. Like there is this one guy that is “cured” of fibromyalgia. I don’t know how anyone can be cured of that ailment as they only just recently been able to treat the condition and give it a name! But whatever works for him, might not work for everyone. HA, speaking of Twitter, I just got a book app that is now following me! I had a book promotion thing following me for a while. But it costs like 9 bucks for just 3 days of pushing my book. I wasn’t going to waste my money on something that might not work. If I get extra money, I might do it to see if it pans out but my writing partner says it is extremely hard to promote a book and sell it. I am lucky that I sold 5 books this month. Next month I probably won’t sell any.

Meds are finally kicking in. Here is hoping I don’t wake up again around 0430.

Runaway Train, Soul Asylum

Runaway Train, Soul Asylum

This song is the song of my teenage years and more. The lyrics are just so powerful. I know the song deals with runaway children, but when you are in so much pain and want to escape, this song pretty much covers it.

I am snowed in, literally. There is almost two feet of snow surrounding my house. My brother in law is outside plowing with his snow blower. They have not plowed the streets yet. Travel ban is still in effect as far as I know, though they have lifted the ban in the western part of the state.

I thought I would writ this blog and then read my civil war book. Tomorrow seems to be the same. School has been canceled so I am guessing I won’t be having therapy this week. I could really use a session as my mood has plummeted since I edited one of the papers I am using for a “lived experience” contest. I just hate myself so much that I just want to die. I was reading a transgender blog and read that the FTM is going to have surgery in three weeks to remove his breasts. I am so jealous. But then, I haven’t pursued avenues to my transition. I keep trying to get the nerve to tell my mother but I lose my nerve. I know what she is going to say. And the most hurtful part is that she thinks she knows me. Yeah right. If she knew me, she would know that I buy men’s clothes because it fits my identity as a person.

I should probably take a shower today but I don’t feel like it. The shampoo that I have been using just dries out my scalp and makes it itch. I have yet to find a shampoo other than Selsun Blue that deals with the issue. And Selsun Blue isn’t cheap. I got to get another bottle, so add it to my shopping list. I love shopping on Amazon. I usually am able to get things much cheaper than in the stores, and usually a 2 for 1 deal. Plus I usually have free shipping so that is good. I am not a Prime member because it is too expensive, but I think next year I will be. If I am still alive.

I was reading about a friend on Facebook. We became friends while in the hospital last year. She is thinking about entering the hospital’s DBT program to help her. It is an intensive program, from what I heard. I never found DBT or CBT to be helpful for me. The therapy that I have with my therapist is eclectic, meaning there is no specific discipline she focuses on. Mostly we just talk and go from there. She is open to any therapeutic ideas that I have which I like. I usually am not open to her ideas, though I will research them. There was a guy she liked about something, I forget. I think his last name was Frantz. I came across his paper the other day while looking for something else. It was an interesting paper. It probably is the only thing that I liked that she suggested.

Oh this sucks. I am almost out of my pain medication and I still have not received my new script in the mail. And because of the snow storm, mail won’t be delivered today. Fuck! I still have a few pills left but they won’t last this week. And if I don’t get the script tomorrow, it will throw my damn refill schedule off. UGH. I am so pissed. And because of the new narcotic regulations, they can’t fax in the prescription. I am so screwed.

It’s 1435 EST and I just realized I have not had lunch yet. Think I will make some eggs and toast. Then I got to do some reading.